Can we have a forum for "older" people with bc?
Comments
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Thanks for your comments IllinoisLady. I just got back from appointment and chemo appears off the table for now. I was having some problems I thought were lymph nodes but my MO said its stiff shoulder with referred pain and showed me some exercises to do. She told me to be sure and tell my PS next week at my pre exchange appointment about it and that they might be able to release the scar tissue at exchange.
All this is so stressful. Sometimes I will get a quick shock as I realize over again that I am a cancer patient. You never forget but sometimes there is just a jolt as you remember what you've been through.
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Seedsally -- glad to hear no chemo. Those are good words to hear. Also that there are options for the scar tissue that seems to be the major culprit in this case. Hoping that all works out well. It is a big shock ( for most if not all of us ) to have gotten a cancer dx. I don't think about it in the same way I use to. Often though what I do think about is how complacent with life I had gotten in the sense that I had most of my life figured out good and proper and certainly major forms of ANY illness, let alone a cancer dx. were not a part of it.
So hoping for you that you can come to that time when you can look on things as something to get through and conquer by making the best of it and forging on. Sending sunshiny smiles and lots of hope for calm and care and some sereneness.
Blessings,
Jackie
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SeedSally - we'll be waiting along with you to hear the results. Sending hugs.
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Thanks so much Jackie and Minus. I don't know what I would have done without this site and all of you. I have learned so much here and it helped when I had my BMX and still helps. Again thanks to e
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Compassion is the ultimate and most meaningful embodiment of emotional maturity.It is through compassion that a person achieves the highest peak and deepest reach in his or her search for self-fulfillment. -Arthur Jersild
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Hi Ladies,
Carol, I love the statues of the animals
Carol and Puffin, that is a great picture. Glad you were able to get together
Seedsally, , sending prayers for good results
Chevy and Cami, it is good to see you two back and fun to read the banter back and forth
Not much new going on here. I met my new oncologist and regular doctor. Both seem nice and ct scan on lung did not show up the spot from the last two scans. Tests showed low in vitamin D but that is easy to remedy. Also BP is high one time then normal the next time so I am just monitoring it. My BIL is now in a nursing home recuperating and having rehab to get his strength back.
I will be heading back to Illinois soon to babysit for a week. I won't be in my home town but an hour away with no car so I am hoping the other kids will come up for dinner one night so I can see them and the grandkids.
Hope everyone has a great week
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Hi ladies, Dh and I have been away for t he last 10 days. Were on a Country tour of Western Iowa. Yes, I said Iowa. And 2/3 of the group were Iowans! Saw the surf Ballroom, where the Big Bopper and Richie Valens played, when the plane crashed. Went to Iowa State Univ., went to horse, and a lavender farm, Saw several different antique tractor collections, the Blue Bunny and the Winnebago factories and a Danish Windmill. Also experienced a huge Iowa storm near, appropriately, Storm Lake. Had a fun group of mostly seniors. So back home to catch up and pay taxes and bills!
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Carole, I love both of the animal statues but I REALLY love the bear!
Good to see that Chevy and Cami still have what it takes to keep the chatter going! Great that you both checked in.
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Now she is going to pretend she is really busy or something! She is such a brat! While in the mean-time, I am out working in my yard... painting my house, garage, moving pots, planting "stuff" and working my fingers to the bone.... while SHE lounges around all day in her big 4-poster Queen-size bed, with the lace coverlet, eating chocolate covered walnuts! She is SUCH a Diva!
Probably has Net-flix and the touch of her finger.... So hold on, while I go warm her up some cream-of-wheat.........
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Way way too funny !!! Cami -- get out of bed please.
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See how long she goes? I mean it's probably because she can't find her way back here... It's like I'm talking to myself... waiting for a little sister to wake up, and drag herself out of bed so we can go play hop-scotch or something.
You guys can tell I have nothing worthwhile to talk about... It's like a dream that I even had breast cancer... And I am so fortunate and lucky to be where I am today... but this AGE thing is sometimes troublesome! Man, I thought when I worked as a Long Distance operator, that some of those gals were just ANCIENT! They were 24. Anything over 60 sounded just unattainable when I was in my 20's...
But turning 79 wasn't much harder than turning 30.... Things like feet, are harder to reach, but that's about it.... And getting down on the floor to look under the bed, without breaking your knee in half, and then finding just ANYthing to pull yourself back up again, is a little worrisome.
I am most thankful for my family, friends and a life that I can find joy in.... Now watch Cammi come back and pretend she knows something about the relativity of chocolate cokes..... I mean if she ever finds us again........... zzzzzzzzzzzzz
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It is easy enough to be pleasant,
when life flows by like a song.
But the person worthwhile is one who will smile,
when everything else goes wrong.
Ella Wheeler Wilcox -
Mornin all,
I am busy settling back into home- trying to catch some rest after 5 weeks of traveling from state to state. The only news around here is that my son may need back surgery soon. Last year he got three shots of steroids from the doctor but they didn't seem to really help. He has three discs in his lower back that are pressing on his nerve. The surgeon said the surgery to help that is a very serious surgery and he will be down and out at least three months. The surgeon says his back injury is far more severe than when athletes tear their ACL. They can eventually go back to playing sports after that, where most athletes with Tim's type of injury are never able to return to sports. The surgeon says he has the back of a 50 or 60-year-old man instead of the early 30s The tough part of the surgery apart from the being major surgery and a long recovery period, is that there's no guarantee that the surgery will solve the problem. It might help, it might actually make the situation worse, or it could do nothing at all. Tim has been an athlete since he was about 2. He was riding a two wheeler at 3 1/2 and playing with a basketball even sooner than that. He also has been active in the gym since he was in high school. His back situation will stop him from playing basketball and will limit the amount and level of working out he will be able to do.
Other than that there is not much going on here. My seven-year-old grandson was sent home from school about two weeks ago with what they used to call hoof and mouth disease. Now they call it hand and mouth disease. It is a virus, and I used to think it was only in the mouth. But Kayden had sores on his hands as well. He was home from school for a week, then Jamie sent him to school. They called her to pick him back up within 10 minutes, saying she needed a clearance letter from the doctor, or no visible spots. She would not take him back to the doctor for a clearance note because when they went to be diagnosed they were put in the "sick" waiting room. Refused to take him back and have them in the sickroom again. So he missed another five days of school before he had no spots left. She is such a germ-a-phobe that she would not let me near the baby the last time they were over because she was afraid the baby might be getting the virus.
I am waiting for Tim's call, because we are supposed to be going to have lunch. This date has been scheduled no less than 10 times, with him just not showing up. He says that I should just go to his house and meet him, but he is about a half hour away at least and I don't want to get there and him not be there. I texted him a half hour ago and I'm still waiting for a reply. Will let you know what happens
Anne
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We got Chevy back ( or at least I hope we did ) now Cami ----- please, begging just doesn't sound very good one me, but I'm on my knees offering prayers to the Gods, or whomever they are.
Anne, what a dilemma !!!!! Tim is so young for this and at some point I would imagine ( age brings changes when your back is GOOD ) even should he do the surgery, he will need more repair later down the line. I'd likely take the risk and do it --- and then pray for the intervening yrs. that they are able to come up with a super fix for things when and if another times comes that more repair is needed. It is always hard to know what to do.
I have a friend ( I never got the deep details of it ) who needed hip replacement ( which I'm told is actually easier to bounce back from then knees ) and she would not do it. Over time she ended up first with canes, then a wheel-chair and now with an Amigo which is a motorized scooter type chair which can be used indoors or out. She is pretty much well overwt. and ALWAYS restricted about what she can do. The only thing I ever heard was that she didn't want to do the operation because of her blood pressure ---- which is or so I always thought easy enough to control. Anyway, the point being --- I do think you have to be careful about your choices but if Tim's back is bad ---- my impulse would be to find a fix. I guess I'll never know why my friend felt she couldn't risk having her hip replaced but I'd likely not think twice about it. If my choice is sure constant pain in addition to losing the majority of my mobility -- then it must have been something awful that stopped her.
Hope you get your call soon.
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Anne, I have to concur with Jackie—orthopedic surgery may be technically “elective” but is definitely not “lifestyle:” impaired mobility can not only ruin QOL, but actually shorten life. Haven’t needed hip replacement yet, but if it’s recommended I am there. Knee replacements changed my life…definitely for the better. (Only downside is that when my HC placard expired, I couldn’t justify asking my doctors to certify a new application—especially since they all have ordered me to walk, walk, walk). I am still 30 lbs. lighter than before the first TKR. AIs make it difficult to control my weight, but if I were immobile due to knee OA it would be even harder. Your son should not hesitate about having the surgery—he may never be an elite “weekend warrior” again, but he will definitely regain and maintain a healthy degree of mobility. And so sorry to hear about your DGS’ Coxsackie virus. It is contagious, so best to ride it out at home and get his homework assignments online.
Jackie, Cami’s pretty active over at the “cocktail lounge” (How About Drinking) thread. I am an aspirational imbiber, due to being ER+, but am still into my 3-drink/wk-equivalent, so I do hang out there and share my wine adventures (and the occasional non-alc. alternative recipe worth sharing).
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Hi gals... Anne.... I had surgery on my back when I was about 45... 2 herniated discs, and I put up with it for about a year, trying different methods to alleviate the pain... physical therapy, traction, even a chiropractor... The chiropractor was the worst.... had to go back to get relief from the pain HE caused.
Finally my Doc referred me to a neuro-surgeon... The pain going down my left leg, into my foot was almost unbearable... I was taking 600mg of Ibuprofen every 4 hours, just for help... I went in for a mylo-gram... then surgery... As soon as I woke up, that pain was gone.
They did a double-laminectomy... 2 disks.... coagulated, and blah-blah... I climbed back on the hospital bed that night....Didn't have to fuse it.... More physical therapy after, then traction, but that pain was gone!
Maybe another opinion or two? Maybe a neurosurgeon instead of an orthopedic surgeon? I just know my surgery went very well... no problems now, even at 79....!
I finally DID get a handicapped placard after my broken hip surgery! I only limp a little.... but my back is fine....There's nothing else to BREAK on that side...Hah!
Bottom line is .... NO-one wants surgery.... but when you can't take the pain, when you lose quality of life, or can't even sit for move than a few minutes, you will do almost anything for relief. If I had KNOWN the surgery, and the recovery would have gone as well as it did, I would have done it sooner. I was back to work in 2 weeks, giving tours, etc.
His "team" or Doctor doesn't sound very convinced in the out-come...I would try a few more opinions!
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Anne - I agree with Chevy. Do have your son get a 2nd opinion and do make sure it's a neurosurgeon. Orthopods are great for bones, but my friend the nurse told me to always go with a neurosurgeon for the back because there are so many nerves in the spinal cord & area that send signals to the brain.
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Hi from Hull, MA! ChiSandy, I noticed you are taking Femara. I started it a week ago after 6 months on Aromasin. I had terrible back pain that started at about 5 months in. The hot flashes were terrible too but my MO put me on Effexor and it did a great job. Since it has only been a week on Femara, I am still getting used to it I think. Hot flashes every morning and still have trouble falling asleep. But my hair is growing back after chemo and that is a good thing plus it's coming back curly. I was 64 when I was diagnosed last year after my routine mammogram. I had my first one since treatment on September 7th and it was normal but have to go back in 6 months for another one. Radiologist said due to surgery and radiation, there were changes and he feels 6 months is good for a re-check.
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Hi, everyone
Thanks for your input. This is Tim's second or third opinion. And the Dr in charge of the ER Tim works in, as well as being the head of all EMT services for Broward County is the one who got Tim in to see this Dr. Apparently he is the best of the best in our area. Tim did mention a neurosurgeon, but I don't remember if this Dr is one, or if he is going to consult with one. Tim's working at the hospital is definitely a bonus. His sister-in-law, who is a pediatric dermatologist at the same hospital, went to the MRI with Tim the other night, so she would know exactly what the Dr said, and be able to make sure Tim understands his options. It sounds a lot like what you went through, Chevy. Tim's one leg is numb a lot from the disc's pressing on the nerve. Unfortunately,Tim who is an incredible caring young man is also a very stubborn young man and when he makes a decision, no amount of working to get him to change his mind gets thru. I have no idea why he wants to wait for the surgery, other than its outcome not being guaranteed. One summer he choked on a cheese stick appetizer at a restaurant and refused to eat anything but cereal and jr whoppers fromBurgerKing. For an entire summer. Made no difference that whatever I made for dinner had no cheese at all, and the jr whopper had cheese, he had decided and that was that. So I will try to be supportive of whatever choice he makes.
Anne
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Okay, I understand.... I know what it is like when a guy/man sets his mind on something, and will not budge! Yes, the side of my leg was numb for the longest time! Even after the surgery.... but that all came back. It was that sciatica pain that I just couldn't take anymore. If he takes enough pills, and it helps, he might not go for the surgery....
Sounds like he is one of the stubborn ones, and will listen to no-one.... so guess you have tried your best.... that's all you can do..... My Brother's grown Son, is in a 1/2 way house.... keeps everyone awake with his coughing.... So my DB is trying his hardest to get him to quit that smoking! Plus, the COST of smoking, and this kid has no money! Well, not to waste on smoking!
It's like you always try to "fix" your kids.... no matter what.....
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Hello everyone, I've been lurking here awhile but finally had to chime in and say I'm glad to see Chevy here. I love your sense of humor but I also love that I've found someone here older than me. I just had my 76th BD in August. Now, I'd like to see Cami show up and tell us how old she is. Maybe that will bring her so she can brag about being even older or vice versa. :-)
Illinoislady, I love all the little nuggets of wisdom you post. They so often speak to my heart.
Rest well everyone,
Faith (in the future
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Faith, I'll be 76 in October, so you're not alone. I can still do most of what I've ever done and haven't slowed down.
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Oh hey Faith! Cammi don't even know how old she is anymore. She once said she was 32.... but that was before they invented refrigerators....
Yes! Isn't it fun to find someone older? Hah! It kind of gives us hope, I say. Whoever thought I would be where I am today? I mean 24 sounded old when I was 18! And somethings DO get better.... not necessarily your parts, but your life seems more of a gift to you, more than it ever did. You become more appreciative... now THAT'S a word Cammi will not understand, I don't think..... I think everybody else at the mall looks older than we do..... So I put on more lip-gloss and feel pretty good.... I know it's just a state of mind... but what else do we have?
Looking in the mirror does become rather dis-heartening sometimes... So don't do it. At least without throwing in those hot rollers, and spending time putting your face on. I still do it... every morning... I just don't like to scare people away, while running around in the yard, or going shopping.
And life is still fun! We get out almost every day, if even just to walk around the Mall, or go pick something up.... Even if we don't need it, if it's on sale, ya just gotta HAVE it!
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An old man's T SHIRT QUOTE I am not 60. I am 16 with 44 years of experience. Think different , problems common to all but attitude makes a difference.
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Cammi, I think you should stop drinking and get over here. Hey, I will even stop letting others take credit for your quotes. Isn't that an offer you can't refuse. Seriously, I do wish you'd pop in. You know ---- you make me feel so young and all that.
Anyway hope you are all going to have a fabulous Friday. A bit on the toasty side here but we are in a time period where it goes that way. We just in the last week had our roads into the woods oiled and chipped. O my, I really dislike it, but we have to have good roads. The gravel ( white ) is very dusty and I at least am happy that they put enough on that we don't get oil splashing up on our cars. That has happened in yrs. past when our city/township budgets had a lot to be desired. That means turpentine to take the oil off, then a good washing and waxing etc. Now it just means more washing of your car which I may do this afternoon some time -- we will see. I may try to hold out till Monday and use the car wash to dissipate the white dust.
Time also to start the annual gathering to nuts and falling leaves. It is mild right now but un-mistakable that Fall is arriving. It is a hard time of year for us with hilly land and we have to blow all the leaves off the lawn into the ravines either side. Sometimes I feel tempted to let them lay on the ground over the winter as fodder for the lawn in Spring but that means almost as much work in the Spring.
Are you coming Cammi????
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Hi all. You guys crack me up. I'm assuming Cami and Chevy have a long history here on this thread, and I too love the humor!
Someone was talking about ortho surgeries. I've now had 3 hip replacements, a full knee replacement, total foot reconstruction, trigger thumb surgery, and shoulder reconstruction (bad genes and heredity!) Surgery is so much better now than my first hip replacement. My brother also had a full shoulder replacement and just had back surgery for 3 fractured and bulging discs. He even had it as outpatient and did remarkably well. The important thing is to have faith in your surgeon, but the pain and QoL really needs to be considered. Good luck with your son, Anne.
Hope all have a good weekend,
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ChiSandy,
Hope you let us know when your cd comes out. I didn't know until today what type of music you played. Have you ever been to the Michigan Dulcimer Festival? It is about 15 miles from my town and is held every summer.
My next door friend neighbor in Tucson (my winter home) plays two different dulcimers. I love sitting on the patio and hearing her music drift through the yard. She is currently battling bc and she sleeps a lot so not hearing the music this fall. I would love to get her and me your cd. Please send me a message when you have them available. Thanks
Jo
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Morning gals.... SHEESH Dara! You have had a LOT going on there! See now, Cammi, if she ever finds her way back here, is going to think you have 3 hips.... And your KNEE? Oh holy-cow, that hurts just to read all this!
But yes, EVERYthing has come a long way... and a SHOULDER? You should invest in Duck Tape & Bailing Wire, and try holding those things together yourself.....And a friend on here has her hip that keeps going out of the socket!! Even on the way home from the Emergency room, it went out of place again when she got out of the car!
So now she has to wear this hip-brace stabilizer thing! YOU on the other hand, need a full body brace! I don't mean to tease, but if it will make you have a smile, it is worth it..... Sometimes that's all we have, right?
It's only 45 degrees here girls!!!
Okay.... this is really beautiful!...
https://www.youtube.com/watch?v=Dy3h6--fMBA
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Sandra, is Mike gaining strength to return home?
Enjoying the pics. ;o)
MARIONSGIRL and Faith-840, Hi and Welcome!!
Jackie,
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You are a child of the universe, "fearfully and wonderfully made." In the history of creation, there has never been anyone like you. Accept this reality about yourself— that you are a special, unique human being who has a place on this earth that no one else can fill. Acknowledge yourself as a glorious expression of your loving Creator. This healthy self-love will form the foundation of a joyful and satisfying life. Then, as you love and accept yourself, your inner light will shine outward to bless and heal your fellow human beings.
Douglas Bloch
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