Question regarding IDC and recurrence

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Bonniebleu
Bonniebleu Member Posts: 71

hi there,

Just lately I've read some things (not just on BCO), about IDC and that it generally comes back a few years later?

Is this true?

I'm not going to get all bothered if in fact that is the case but would like to know.

Thanks in advance😀

Comments

  • doxie
    doxie Member Posts: 1,455
    edited September 2016

    BC can come back as a local, regional, or distant recurrence 1 - many years out, but it depends greatly on your stage, grade, type of BC, and nodal status. Generally, lower stage, high ER + PR+ BC like yours is much less likely to recur than others. Still there is a risk and that extends beyond the 5 year "cured" date. Most of us accept that there is no guarantee of a "cure" with BC. But the majority of us lower stage gals will live our lives without facing a recurrence.


  • Bonniebleu
    Bonniebleu Member Posts: 71
    edited September 2016

    thank you Dixie :

  • Momine
    Momine Member Posts: 7,859
    edited September 2016

    No, that is not true. It does not "generally" come back. There is always a risk that it may come back, and that risk is unfortunately constant and for your lifetime, as doxie said. However, the odds that it won't come back are greater than the odds that it will. Also, because the risk is lifelong, it could come back when you are 95. Finally, you can reduce your risk of recurrence by having proper treatment, exercising and maintaining a normal BMI. Are you getting anti-hormonals? If not, I would discuss that with the doc

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited September 2016

    ER+ bc will ultimately recur, all things being equal. But all things are not equal--mainly, the fact that most of us will have died of old-age-related causes first, with recurrence confirmed only at autopsy.

  • doxie
    doxie Member Posts: 1,455
    edited September 2016

    I want to make sure there is no confusion here.

    My comment is about early stage and in response to the poster asking "about IDC and that it generally comes back a few years later?" "A few years" is not 10 - 20 or more that most of us will live past our initial diagnosis, if not mets. I read "a few years" to be less than five and early stage bc like hers "generally" is highly unlikely to recur in that short time.

    Besides, where is the data and sources that state "ER+ bc will ultimately recur...with recurrence confirmed only at autopsy?" I cannot believe that everyone who has ever had BC and dies of other causes has autopsies where they look to find if it has progressed.

    I don't doubt that most of us have bc and/or other cancers that ebb and wane, most never being detected or causing problems when our bodies fight them off. Is this rolled into that statement?

  • KathyL624
    KathyL624 Member Posts: 217
    edited September 2016

    I'd like to know too, if there is evidence/studies that shows it always comes back? I've never heard this, and in fact, my doctors have said many women are cured of breast cancer.

  • bluepearl
    bluepearl Member Posts: 961
    edited September 2016

    The majority of early stage BCs do not come back in the early years. especially if they are ER/PR+ and HER2-. Triple negative can come back when diagnoses early but after five years, the chances go way down. Her2+ indicates an aggressive form of cancer, so it too can come back, even if very small. But with the exceptions of those two, the risks, as said previously, of not coming back are higher than those that it will. Death stalks all of us. We are all terminal. So enjoy now and let the future roll forward.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited September 2016

    The recurrence risk for ER+ never goes away--ER+ tumor cells eventually develop resistance to estrogen-deprivation therapy, and may even synthesize it (or an analogue they use to fuel themselves) from cholesterol. BUT how long is “eventually?” For most of us that’s 20, 30 years or more--and it’s moot because we would have died of diseases of old age by then. OF COURSE not everyone with early stage bc who dies from other causes has an autopsy after death--heck, most people who die of natural causes don’t get autopsied! (Many religions forbid it under any circumstances, even in the case of violent and/or suspected criminally-caused death where it’d otherwise be required by law). Autopsy is performed to determine cause of death, and in the elderly there is usually no doubt about it and therefore no reason to satisfy the curiosity of family members. But what I was saying was that the only way to know definitively if there has been a recurrence in a woman who’s died of natural causes many years after diagnosis--and when it is discovered in such a manner, it’s an incidental finding in an autopsy performed for reasons other than ruling bc in or out as a cause of death.

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