BCO/Wisdo Video Shoot
So a few weeks ago, I saw an announcement from the Mods that they were looking for community members in the NYC/Philly/DC region, across all breast cancer stages, with a variety of experiences, to share their stories during a video photo shoot. It is a project in collaboration with the site: Wisdo
I jumped at the chance and was selected to participate. I had my interview this past Wednesday, and wanted to offer up a sneak peak at what I had to say, along with a photo from the shoot. Right now it is posted on Facebook, but since I made it public, if you have an account, you should be able to see it on my page: Bec's Wisdo Photo Shoot. Please feel free to share with others, along with my hashtag #BecsBreastEfforts. The more we are able to get our stories out to the world as MBC patients, the more the general public will understand what it truly means to be a stage 4 patient.
If you don't have facebook, and want to check it out, I can try and make a screen shoot of it!
Once the final video/project is complete, I will make sure to post it here as well. I have a feeling it will come out sometime in October...
Comments
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The link doesn't work ☹️.
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Thanks for the heads up! Here is a screenshot of the post.
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Thank you Becs for being an important part of this story-telling!
The Mods
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Thank you for sharing your story Becs. I can't wait to see the video when it comes out!
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the next person is glad it's Saturday.
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Thanks Shutterbug and Mods. I truly feel it is important to share our range of experiences as MBC patients, especially since everybody's "journey's and cancer types are different. MBC is not just one disease or one person. As of this morning, just the teaser post has received over 100 likes and about 10-11 shares. So hopefully my story and words will be seen by a wide audience and educate others outside of the MBC community.
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I also just wanted to share the following post that I made to my personal Facebook page this morning on behalf of all of us Stage 4 lifers. In case this link doesn't work: BecsBreastEfforts , it is a public post, so it should be easy to find and share under my personal hashtag of #BecsBreastEfforts. If you would like to share it or edit the post to fit your own story, please feel free!!
I know this post is pretty long, but since I took the time to write it, please take the time to actually read it:
With my next monthly chemo cycle beginning tonight, and October, aka Breast Cancer Awareness month, starting this weekend, this#metsmonday, please remember that breast cancer is not something that should ever be sexualized, humorized, juvenilized, or marginalized. It is not a party or event to be celebrated, a team to be cheered on, a sorority or sisterhood to be joined, or a marketing opportunity to be taken advantage of. It is an extremely serious, body changing, life altering, and deadly disease.
This is especially true for those of us with Stage 4 Metastatic Breast Cancer (MBC). Metastatic means that the cancer has left its origin site, spread through the blood stream, and the malignant cells have set up shop in distant sites around the body. In my case, since my diagnosis 2.5 years ago, breast cancer cells have popped up in my lymph nodes, sternum, lungs, and brain. While treatable, there is no cure, and for most, will eventually become terminal. I, along with the other estimated 155K people in the US living with MBC, will be on some kind of cancer related treatment for the rest of my life. Over 40K men and women die of my disease each year in the USA alone.That equates to, on average,110 people losing their lives in our country each and every day to breast cancer.
As of right now, we, as MBC sufferers, will never be able to live our lives as anything but cancer patients. We are the pink party poopers, a community who, throughout the month of October, are told we "need to fight like a girl", "win the battle", or "save the ta-tas". Nobody fights harder to live each day, or understands that not every "battle" is winnable, or that it is more important to save lives, than the body part the cancer stemmed from, than we do. We are the asterisks, footnotes and/or tiny statistics in the bottom corner next to all the "positive" survival information spun by the media and businesses seeking to profit from usage of the pink ribbon (which is not trademarked and therefore can be used by anybody).
However, I refuse to be seen as just a insignificant statistic, a medical id number, or an insurance file (the official insurance term for someone like me is catastrophic longevity, which, for some reason I find hilarious). I am an actual living, breathing person who is more than just an MBC patient: I am usually goofy, fairly klutzy, generally quick-witted, insanely smart, stunningly gorgeous, extremely loyal to my family, friends, and New York Rangers, a sucker for "bad" TV, tourist traps, and high levels of tackiness and kitsch. I am a collector and lover of funny stories; whether it's reading them, watching them, hearing them, telling them, or most importantly, living them. In addition, I'm clearly very humble (Somewhere along the way this turned into a really bad online dating profile).
I am also eternally grateful for, and appreciative of, my extensive (and ever growing) support system for continuing to STAND UP next to me (or sometimes for me when I am too tired and need to sit) and refuse to let me, and other MBC patients, continue to get swept under the pink ribbon covered rug!!
Posting or sharing an 'inspiring' photo, quote, wearing a meaningless pink ribbon, or doing something in the name of awareness is not enough. We are all AWARE. What we need is a CURE. Donate whatever you can to help: your time, your blood, your hair, your money (https://give.bcrfcure.org/fundraise?fcid=354692). It will all make a significant difference to somebody living with cancer.
Please also SHARE this post to continue to educate others about the reality of breast cancer: #BecsBreastEfforts; #Stage4Lifer; #StageIVneedsmore;#BeTheEnd
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wonderful post, I shared it on facebook
Thank you for sharing your story
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