Progression

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intothewoods
intothewoods Member Posts: 449

Hello all,

Some of you remember me. I hope. :-)

I've been away, enjoying work and life -recently visited Montreal and Quebec City. Beautiful cities and lovely people! But my rose-colored-I'll-be-on-faslodex-forever-with-one-bone-met glasses are off. I have new "faint" spots on spine, another rib, pelvis and both lobes of liver. I've had my first cycle of 4-6 cycles of cytoxan and doxil with zometa. Happy to say so far I'm tolerating it well. Onc mentioned going back to faslodex and try ibrance again. We stopped the Ibrance due to neutropenia.

I have some very dark moments, which intellectually I know is way way too soon, but I can also say my experience of life's beauty and enjoying every moment is heightened.

Not sure how much I'll be posting as I'm still working but I wanted to share with those who get it.

Best to all

Lisa

Comments

  • Sophie_7
    Sophie_7 Member Posts: 7
    edited September 2016

    Hi Lisa,


    I sure get it. Those dark moments come and go. I am so glad we have this forum. I am mets to sternum with sternotomy (prosthetic sternum and rib attachment/reconstruction). I am in lots of pain (on painkillers) and hope I can return to active work when and if my pain subsides. Don't want my career to end too soon . (Will be 60 in December... Only recently not working).


    You are in my thoughts and prayers. When you hit those dark moments remember we are right there with you!

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2016

    Lisa,

    I have wondered about what you've been up to. Allow yourself to have the dark moments. I'll be thinking of you and hope you have a good run on your new tx.

  • intothewoods
    intothewoods Member Posts: 449
    edited September 2016

    Thank you, Caryn. I think of you too. The new grandbaby is awesome. Such a face! I hope your year is off to a good start.

  • intothewoods
    intothewoods Member Posts: 449
    edited September 2016

    Thanks Sophie. I'm 60 in December too.

    Hope for pain free days for you soon.

  • artistatheart
    artistatheart Member Posts: 2,176
    edited September 2016

    Hi Lisa, I'm sorry to hear of your progression. I know exacy how you are feeling. I find myself battling the dark moments a lot myself even though I feel fairly well. I am working still which helps keep my mind on something else at least for that portion of every day. I feel I have been abandoned by a few key people in my life so am becoming more reclusive each day. I know it is just my way of protecting myself against hurt but it is not working. I am trying hard to get out there and just grab life by the ring but it is slow going. Some days I feel paralyzed by fear and inaction. All I have to say is "one day at a time" and "one moment of beauty at a time" is all we can do. I hope you will check in often! It is nice to speak with others who get it for sure....I will be 60 in May!

  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited September 2016

    We get it, and progression truly stinks. Recover, new plan, and Onward!

  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited September 2016

    Hi Lisa,

    I just turned sixty and so get the "other shoe dropping" with cancer progression.

    Hang in there! Celebrate the good times and continue to find support and sustenance.

    You may want to join the liver mets community - there are many there who approach this in many ways.

    warmest healing wishes, Stephanie

  • Kandy
    Kandy Member Posts: 1,461
    edited September 2016

    I sure get it too, I also recently had progression and I was living the dream that me and faslodex was going to have a relationship forever. Dang him for betraying me. I hope your new treatment is the ticket. Wishing you the best.

  • susan_02143
    susan_02143 Member Posts: 7,209
    edited September 2016

    Five years of success on Faslodex lulled me too. But all good things, evidently, come to an end. Progression is hard. Very hard. I hope that your new TX does the trick for a long time to come.

    *susan*

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited September 2016

    Lisa, I'm sorry to learn about the progression. I hope that the new treatment effectively takes care of it and that you would even seen Ned and have a long period of stability. Best wishes

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2016

    We're so sorry to hear such unwelcome news. Lisa, sending you many many hugs, and best wishes that your next treatment works for you.

    The Mods


  • intothewoods
    intothewoods Member Posts: 449
    edited September 2016

    Thanks everyone for the good wishes. It's great knowing someone is always there who gets it is where you are or has been and will lend support. Yes, this is hard and a new plan is intended to knock it all back. For a long time.

    And Artist, Sophie and Steffanie, 60 is the new 40, right? I'm much happier and on many measures healthier if you don't count cancer at 59 than I have ever been. Really, NED you should take another look.

    Happy day wonderful ladies

    Lisa

  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited September 2016

    Ah Lisa, I'm sorry for your progression. I have my very own rose-colored Herceptin glasses. I know I won't be able to keep them on forever, but sometimes I think....just maybe... I hope the new treatment brings Ned back to you for a very long time.

    Hey, if 60 is the new 40, then 40 is the new 20, which makes me 23! I like this math!


  • Heidihill
    Heidihill Member Posts: 5,476
    edited September 2016

    I hope the new treatment gets NED interested and back to you. So much heartache with this guy. Ugh. Hang in there.

    I turn 60 next year.

  • Tina2
    Tina2 Member Posts: 2,943
    edited September 2016

    Lisa,

    That's a low blow. I'm very sorry.

    I'm glad to learn, though, that you're tolerating the new treatment well, and that you're working. May NED come calling quickly!

    Tina


  • zarovka
    zarovka Member Posts: 3,607
    edited September 2016

    Lisa - I've heard of people cycling back to AI's and Ibrance with success. Maybe they will have the neutrophenia figured out by then. Ibrance is just one of many options should you ever move on from Zometa/doxil. Hang in there this transition. A healthy state of denial awaits you soon ...

    >Z<

  • kayrnic
    kayrnic Member Posts: 1,708
    edited September 2016

    Yeah I had two years with one single bone met and hoped to be on Tamoxifen forever. I've had 2 progressions.....weirdly, each two years apart. But I know how lucky I am. I hope the new treatment works wonders and you can put the rose colored glasses back on for awhile!

  • artistatheart
    artistatheart Member Posts: 2,176
    edited September 2016

    Yes Lisa! 60 is the new 40! I feel the same as I feel that I look better, dress better, have more wisdom than ever. And yes even in better shape than ever besides the damn cancer. Haha Shutter! I like the math too....Here's to NED for all!

  • intothewoods
    intothewoods Member Posts: 449
    edited September 2016

    Ladies,

    You are the BEST!

    Yes, more wisdom and better dressing!

    The new math is a great tool.

    Z you had me LOL at "a healthy state of denial"

    A healthy state of denial , rose-colored glasses and NED to all

    L.

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