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hi I am new to this I am writing as a daughter because I am curious...four years ago my mother was diagnosed with stage 2 breast cancer they did a surgery and took out some lymph nodes in her armpit she almost finished the chemo but then months later before her last chemo her spleen exploded and called for emergency splenectomy so she never finished her treatments about two months ago she was again diagnosed with a cracked hip she then found out weeks later that she had cancer but didn't know the stage then up to a month ago they diagnosed her with stage four matasisis breast cancer cancer was found in her hip arm spine lungs and ribs then a few weeks later was told it was in her brain also I have been researching and researching what her prognosis was with no answers from online or from her Dr. Her appetite has decreased alot she's on oxygen and they are only doing four treatments of chemo on her lungs everything else they are letting go can someone clarify this for me the seriousness of her condition maybe a prognosis anything. Thank you

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  • dlb823
    dlb823 Member Posts: 9,430
    edited September 2016

    Loripotrubacz, I'm so sorry about your mother's situation. It sounds like she's been through a lot since her original Stage 2 diagnosis. As far as a prognosis, no one can really venture a guess about that, nor should they, as it will depend entirely on how well she responds to her chemo. I can tell you that it's not unusual to have metastasis in several or even many different areas, and have an almost miraculous turnaround. It all depends on how well she tolerates her chemo and how effective it turns out to be on her mets. As far as letting other things go, as you put it, the lung mets are probably the most life threatening if not treated. For the most part, the other areas affected are all bone, perhaps with the exception of brain, which could also be bone if it's actually her skull vs. her brain. I don't know for certain, but it sounds like the plan is to get the lung mets under control, then re-evaluate what's next.

    Has her oncologist given you any suggestions for increasing her caloric intake with a decreased appetite? Obviously, it's important to keep her strength up, so be sure he/she is aware of the situation, especially if something like an anti nausea med could be helpful.

    Let us know what other questions you might have. I'm glad you've found us. (((Hugs))), Deanna


  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited September 2016

    Warning: long and shares openly about metastatic breast cancer, goals of treatment and death. Please read at your own risk and while sitting down in a quiet place. I'm not trying to overwhelm you, but you shouldn't read this in a busy, crowded place or at your workplace. Warmly, Stephanie

    Hi Lori,

    I am so sorry your mom is in her current condition and that you aren't finding the resources you need from her healthcare providers or online. Are you her designated medical agent? If not, can you work well with the person who is, so you can get and keep in the loop with what's happening for/with her medically? Can you find a way to talk with her doctors directly to get your questions answered?

    Lori, you asked us for a prognosis for your mother, because the doctors haven't clearly given one and other online resources are vague at best.

    Nobody can say and certainly not us band of folks dealing with MBC. We don't know your mother or her case. We don't know her resources or if and how her body will respond to treatment. We don't know much about the physical condition she's in or if she can even tolerate the treatment she's been offered, much less any future treatments.

    I wonder if you're asking for yourself as much as her - how long is she likely to live? Should I take FMLA (family medical leave) from work and go take care of her? Move her in with me? How tough are her ongoing treatments likely to be? And how will her disease likely progress? What future can we all anticipate for my mother and for ourselves?

    Of course, these are my wonderings, not your questions, Lori.

    But, from your description of your mother's current medical condition and the treatment course her oncologists have ordered, she is in dire straits and likely to die of breast cancer - perhaps sooner, perhaps later.

    If her doctors were focused on getting rid of her cancer, they'd be treating her brain, as well as her lungs, as well as her whole system with chemotherapy.

    Brain metastasis is usually treated with radiation and special drugs that cross the blood-brain barrier. Regular chemotherapy doesn't.

    Bone metastases are additionally treated with targeted radiation and injections or infusions of bone strengthening drugs to prevent pain and breaking.

    It sounds like they are focused on symptom relief or palliative treatment of her lung mets with both the oxygen and the chemotherapy. Basically, they are trying to make her feel better, not cure her cancer.

    Metastatic cancer isn't considered curable, but is treatable and some achieve what is called remission (the disease retreats). Even stability (the disease stops growing and taking over the body) while on treatment. The cancer is unlikely to go away or be cured - though as Deanna mentioned, there are always miracles.

    But miracles are, by definition, unusual or unexpected.

    What doctors expect is for someone with very advanced cancer is death by disease. And their treatment goals are to make the patient feel better, not worse.

    At a certain point, hope in advanced cancer is more about feeling better and less about beating the cancer. And at a later point, hospice is called in to focus fully on addressing pain, distress and symptoms of a dying body.

    There is still hope while on hospice - only it's different.

    Lori, I was on palliative care for 4 1/2 years and have been under hospice care since last November. It isn't a death sentence, but a chance to work with my team to achieve my best possible quality of life.

    You will need to find a way to get more information about your mom's condition through her or through her doctors, so you can help provide the best hope and care possible for your mother...and so you can plan this next stretch of your life. You can also decide you won't accept the dire news and seek second and third opinions, clinical trial options, continued aggressive treatments. You'll get some good advice here about how to do these things.

    Life is 100% fatal for everyone, but metastatic breast cancer can force us to face possible death sooner than we wish.

    Lori, I so wish we had clear answers for you...but we just don't know.

    You don't know.

    Your mom's doctors might have a good guess that they're not clearly telling you. Though nobody knows exactly when or how anyone else will die, there are telling signs, especially as death grows nearer.

    Here's an article about life's final days that is very graphic. You might want to bookmark it for a later read, because your mom isn't there yet:

    What It Feels Like to Die: Science is just beginning to understand the experience of life's end.

    Remember, my response is not only long, but potentially upsetting. I'm one of the few here who speaks openly about death. This group is great for encouraging members to seek and survive treatments and to never lose hope.

    My hopes for all of us are slightly different because I believe that facing death can help us clarify life - others' lives and our own.

    Please feel free to share more information, ask questions and share your concerns. We might not know what will happen with your mother, but we have big, kind hearts, much life experience and good minds.

    Sending warmest healing wishes, Lori, Stephanie

  • artistatheart
    artistatheart Member Posts: 2,176
    edited October 2016

    Very nicely written Stephanie......

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