Stage 4 Fitness 2016

Thanks Zarovka. I am hopeful that some of these drugs will come my way too through trials or whatever. Just trying to stay on with the craniotomy. I hear you about the drugs too. Hope you did not have to stay in bed too long. Sometimes I think the steroids are annoying for the racing thinking/talking too but I can't stop taking them or my brain will explode :P. The decrease in pressure in my head is amazing though. Don't care how long it lasts, is a definite relief.

Had a meltdown today but forced myself out to walk it off. so 2x 20 min walks and two x15 min stationary bike earlier today.

The exercise is helpful but the sleep music I use at night works the best for being able to rest thought free.

Hope everyone is comfortable today and enjoying whatever weather you have.

My area will be stinking hot starting from Tuesday til I enter hospital so any walking would be morning.

Glad the car sickness was not severe. Sounds like a wonderful walk. Right up there with you about feeling fortunate and unlucky at the same time. Will be doing may 3x20 min walk and probably some stationary bike. Got some Young and Restless to catch up on.

Good day to everyone here. Looking forward to seeing what others are up to as well. Always enjoy the pictures too.

maryK87. Hi there. I have had stage iv to multiple area of my bones since October of 2015. I use terry naturally curcumin and I also go for vitamin c iv. It is very good for pain and believe me, I understand the pain. Give either ir both a try, you never know what's going to work. Hope this helps you

Just a quick hello to everyone, and happy birthday wishes to you shazzakelly. Thank you for posting the photos. They were great.

I've been walking, biking and swimming. Enjoyed a nice bike ride with my daughter today. Saturday my husband, brother and I did a 15 mile ride and then spent some time together at lunch-a very nice day. Tomorrow's plan includes meeting my friend at 6 am for a bike ride (usually we get in about 10 miles), then back home to work (I work from home), then off to the lake with my other daughter for a swim when she is finished at work. I find it hard to get everything done but I feel better when I keep busy and moving.

Hope everyone has a good evening.

Happy Birthday Shazza!

Good luck on the 12th Mara....I'll be thinking about you. Please let us know how it goes.

I agree with you on the sleep aspect, Z.....sleep is the one thing I totally need, or everything else falls apart. I take Adivan every night before bed....they gave it to me when I was hospitalized for so long when I was diagnosed and now I am afraid I am addicted, but it does the trick.

I did an 8 mile hike up to 12K feet on Sunday with my hiking group, and it really wore me out. We are leaving tomorrow on our annual "big" hiking trip.... 12 women. We are hiking into a hut in the San Juan Mountains near Ouray, Colorado... and then next day hiking 12 miles to Telluride, and next day 12 miles back. Really worried about my ability to keep up....but I am still looking forward to it.

Hello to everyone else... keep moving....I know it helps!

XO

Andrea

Hi Nancy you have been so strong with all your treatment.may God bless you

I have a quick question.Did having Fulvestrant injection caused lot of pain in butts coz I'm having them regularly and it causes pain

For how long are you taking them

Awesome work everyone. Just doing some stationary bike today. Believe it or not, I bent couple of toes back when walking yesterday so was unable to walk but am kind of happy to have something so silly to worry about. Tomorrow is the big day for surgery. Ready to get this bugger out and see what happens next.

Everyone is so awesome in their workouts etc that as soon as I am able I will be back posting and cheering everyone on ASAP. This board has been a lifesaver since my dx of the brain met.

I do await a bone scan but feeling from MO is that since CT is clear, I am probably NED below the head which should aid in recovery and for which I am grateful for. Have been able to find positives within the mess of bad news and that is mostly thanks to these boards and all of you living your lives in spite of cancer. I don't think any of you can understand how much all of you meant to me when I was not yet DX metastatic but still stage 3. I always voraciously followed the different threads including this one. Helped me get on with some of the fears of recurrence.

I will let everyone know once out of surgery and to anyone struggling, I will always be in your corner. Those of you working it out inspire me. Thanks again.

Love reading about all the great things everyone is doing. Hope all is well with the hiking and mountain biking-I'm so impressed with all that you are doing.

Sherriw-I have some hair this summer, very short and thin, and my favorite hat is a "ball cap" type of running hat made by Headsweats. It is cool and lightweight, and basically covers my head. I would have liked more coverage when I was bald, but wore it anyway because it was comfortable.

Mara-I was thinking of you today while I was walking on the treadmill. I am inspired by your can-do attitude and I hope all goes well with your surgery and that we will be hearing from you soon.

I am planning to do a little longer walk tomorrow, maybe four miles or so, depending on how early I get started, so better turn off the Olympics and head for bed.

Love the pictures Shazza. Craniotomy went well. Probably walked a couple of hours off and on between rest. No cognitive problems yet. Will take couple weeks to biopsy tumour and get neuroscience once treatment. I have been lucky so far, body is strong. Thanks for asking after me.

Bionic, I definitely can see waiting for scans would be hard. Hope yours are what you are looking for.

Getting really bored in hospital. Need kitty and my own bed. No weakness/cognitive issues, walking the floor probably 3x20 mins but looking forward to my exercise bike.

I am supposed to meet my neuro onc and hopefully blow this popstand if i MRI shows less swelling. I am certainly not a patient person since I still feel fine. Staples are weird but not bad all things considered.

Hope you all have a decent day out there.

Meant to update here too. I did get released today so will be sleeping in my own bed. Got lots of walking in while still in hospital but taking it easy today. Will be starting stationary bike next couple of days and going out couple times per day to get ready for all the next neuro/oncology/bone scan etc appts. Those are coming but am happy to be out, no issues and just enjoying being home.

Thanks everyone for the good wishes, you guys did awesome. Shazza my best thoughts towards your scans. I can imagine how scary that is since that will be me and my brain going forward. I will see how I handle that end of things later. Not too much experience yet, MRI's only found on original lesion but MRI yesterday was just to check on swelling to make sure OK to release me etc. Little bit of swelling but am on a tapering schedule for this round of dex. (At least until we figure out how to attack the brain). Little part of tumour was wrapped around artery but I am sure radiation will be applied once brain healed from the surgery. Will get a better game plan at my next cluster of appointments.

For now will do my bike, check on everyone here and be hoping the best for everyone with activity, not to many SE fro

m various treatments and hoping that scans go as well as possible for everyone. Much love Mara.

Light workouts since Monday as I transition back from downhill mountain biking maniac to soccer mom. Hope to do a jog walk on the trails behind my house with my daughter tomorrow.

Just finishing the last of three weeks on Ibrance Starting my week off sunday. This is always a rough time with a lot of fatigue and heaviness. Legs and feet still stiff and tired from mountain biking. That should not be the case, but maybe the drugs delay recovery? In any case, muscles hurt walking down stairs. My last intense exercise (and it was really intense) was Monday.

Shazza - fingers crossed for awesome scans.

Mara - I am in awe. With your will and your plan, I think you can expect an astonishing recovery.

Bionic Bunny - Brilliant way to keep the cancer stuff in its place. Chemo sounds like an errand you ran between horseback riding and biking, just where it should be.

Thanks for the updates from everyone getting on with their lives. I needed rest today. I was tired from travel and medication. It was mostly napping and olympics but tomorrow I will get back at 'em. You guys show me how its done. This thread keeps away the self pity like nothing else.

Sleep well.

>Z<

Mara great to hear you are recovering well. Bionic Bunny we got the same scan results mostly stable. I'll be staying on weekly taxol. Next month I'll have been on it for 3 years straight.

Everyone seems to be doing some pretty intense and interesting workouts. Me not so much. Still just my walking and Pilates and yoga. After over 2 months of nothing but dull, grey, wet winter days the last week has just been glorious. I've really enjoyed walking in the sunshine. Today I walked a 13 km route with a friend. It's all leading towards a 21k walk for breast cancer in October. I think I'm on track.

Sunday morning yoga tomorrow.

Have a great week every

Shazza - 13km is a long way. 21km is an aggressive goal by any standard. There are days when my daughters school, which is 1km away, is long walk. Just depends on where I am at any given moment.

Pokemon definitely gets me and my DD's out of the house and goofing around together. This morning we jogged until something spawned. Caught it. Jogged again until a pokemon spawned. It's pretty fun interval training for 12 yr olds and their silly mothers. To ramp it up one would sprint between pokey man, but not there yet.

good to hear everyone doing so well.

Keep moving ladies!

>Z<

Thanks Shazza. Still doing well from surgery.

Dealing with sore swollen feet from the steroids from water retention. Am off them now so working with natural diuretics ie celery, dandelion tea, cabbage, water etc to get swelling down so can walk again. Also have some good compression stockings to help as well as broke out my ibuprofen for pain. It is the only thing that has helped for the foot pain.

Am starting to ride exercise bike more in the meantime. Starting at about 10-20 mins per day working up since this will get me exercised without hurting feet.

No other issues re surgery, staples came out yesterday. Washed my hair for the first time in two weeks which was exciting.

Hope everyone else is doing well this week. Love the Squirtle too.