Need to decide between Lymphapress and FlexiTouch pumps. Help!

Options
buzymom3
buzymom3 Member Posts: 3
edited August 2016 in Lymphedema

Hi Everyone!

I have Lymphadema in my left arm from BC node removal and surgery in 2013 and in my entire right leg from chemo and radiation for Non Hodgkin Lymphoma this past year...yah, I'm just lucky.

So I have started treatment and see therapist twice a week. She thinks that I would benefit from a pump and wants me to chose between the Lymphapress and the FlexiTouch pumps. . They do not have one in house that I can try. My arm is stage 1 and my leg is stage 2. My therapist has only used the flexitouch so she is not really helpful. Also she is very new, only been certified for one year.

I have done some research and in my reading I have seen some mention that the Lymphapress is better for legs because of the way the wraps are put together. I only get to do this once so I don't want to get the wrong one. I cannot find anything that says which machine is better for specific areas.

What do you think? I want to get it ordered as soon as possible. I really appreciate your input and help. This has pretty much flattened me.

Janet

Comments

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2016

    I have a Flexi-Touch - have had it for 6 yrs. LOVE it!

    I know nothing about it's effectiveness for leg issues - have none.

    I was the first one that my LET guy ordered a MLD machine for as he felt that they 'were 't effective or worth the cost' but he talked to other LETs in large VA facilities (the one I go to is a small facility by VA standards) and he was told that he should order me a FlexiTouch. So he did go ahead and order one for me - it's great. I have had have the different garment sections replaced over the years - they wear out.

  • hugz4u
    hugz4u Member Posts: 2,781
    edited June 2016

    I don't do either but the news is you may not have to do the stage one arm. Just take good care of it wearing garments, et. Ask your therapist if she is suggesting arm to. I hear a lot like flexitouc

    Awe you have had it rough girl. Chin up, press forward , , .hugz4u

  • SusanSnowFlake
    SusanSnowFlake Member Posts: 165
    edited June 2016

    I have a Flexitouch and I don't like it. Fitting this thing has yet to work. The first time it was fitted so tight if I had continued to use it, it might have created a serious problem. The next 2 times left gaps and inconsistent pressure. I am tall, my worst problem area, truncal, wasn't addressed because there was at least an 8 inch gap at my waist. I have given up, for now I do it manually. I don't know anything about the lymphapress but if it provided easy adjustments, if the fabric isn't as stiff and heavy, if the lower piece meets or is connected to the piece that covers the body and if the way the pieces connect is easy to use I would choose it because those things were a problem, for me.

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2016

    Busymom, have your lymphedema therapist contact the Flexitouch rep for your area--they'll bring it to her office for a trial. I don't think Lymphapress does that, but you could ask. I have lymphedema in both arms, trunk and one leg, so I have Flexi for both upper extremities and the leg/abdomen. I love the Flexi leg--comfortable and relaxing. I get frustrated using the arm garments because it ties up one hand, so it's hard to read or do anything, and I need to keep busy. I'd go for the leg garment, but if your arm is only Stage 1 I'd sure go with self-Manual Lymph Drainage and self-wrapping or garments rather than tying yourself down to the time it takes to pump your arm. JMHO.
    Hugs, and do let us know what you discover!
    Binney

  • scrunchthecat
    scrunchthecat Member Posts: 269
    edited June 2016

    I have a Circu-Flow. I have lymphedema in my arm and a little in my boob. I have an arm attachment and my PT is ordering an attachment for my chest. Circu-Flow is very easy to use - I just put on the sleeve, turn it on and it pumps in an hour. The sleeve has four chambers - hand, wrist, elbow, upper arm - and each inflates separately, and may be programmed to inflate to different pressures. My understanding is that the flexi-touch system is a bit more complicated. Here's the URL for my device:

    http://www.devonmedicalproducts.com/therapeutic-devices/lymphedema-pumps/circuflow-5200-pump/

  • floaton
    floaton Member Posts: 181
    edited June 2016

    I have a similar issue to susansnowflake, in that it should in theory help most with my back, since it's hard to reach to do mld on myself, however, I also have a large gap between my chest and abdomen/trunk piece. Also, I developed ulnar nerve damage while using the flexitouch (from the machine or wrapping, or a combo, hard to say exactly) and when I called to ask about it, the company said that some people had reported nerve damage in their lower extremities from the flexitouch. So just be aware that this can be a side effect. I'd also recommend a trial of the flexitouch by a rep to see what you think and check it out in person. Then if you do decide to go with it, they'll also send someone to your home to help you work out how to best fit the pieces to you.
  • Frill
    Frill Member Posts: 311
    edited July 2016

    I have the FlexiTouch for my arm. I can't say it's made any difference, but it is what the hospital therapists recommended

  • akshelley
    akshelley Member Posts: 86
    edited July 2016

    IS it ok to post my Flexi-touch Model PD32-U FOR SALE here?

    When I was stage 1, after bilateral mastectomy and reconstruction I used it frequently for low grade lymphedema. I found it helpful over time, and with continual weekly use. I do not need it anymore, as I have healed from lymphedema.

    It is the machine with 4 chambers, plus one upper extremity (collarbone to fingertip) and one torso piece with upper thigh. Both pieces are interchangeable and can be used on either right or left side.

    It comes with original owner's manual which is detailed, but you can also find it page by page, online at www.tactilemedical.com

    $1,500 Or Best Offer. You pay shipping within USA only.

    IF INTERESTED, PLEASE PM ME.

    Thanks bloggers! I hope it goes quickly to someone who really needs it.


  • Kay_G
    Kay_G Member Posts: 3,345
    edited August 2016

    I have had lymphedema in my right arm for almost 5 years now. Originally, it was worst in my hand, but my hand is better now, but my lower arm is bad. I am afraid I am at the point where my arm will not stay good with just sleeves. Do you think having a pump would help? How expensive are they? If you use it, will it definitely move the fluid out? Thanks.

  • akshelley
    akshelley Member Posts: 86
    edited August 2016

    Hi Kay G! Yes, I think you will definitely find lasting results with it. I did. I did Manual LDS massage, and then when Medicaid was done paying with that, I go this to manage it at home. ISince it's your lower arm that is worst, you need the sleeve cuff to come to your finger tips. Then it moves up the arm, with direct pressure and lymph fluid into the clavicle/mediastinal lymph nodes. I think you need to get it and give it a good six month to 12 months 2-3 times a week. The cycle is about 45 minutes long and I always incorporated my meditation time into it.

    Originally I think I paid $4,500 for it, and marked it down to $1,500 or best offer. I wish the company offered a buy back program because it looks brand new, and holds its quality. Then they could turn around an offer it to people who didn't have insurance or Medicare/Medicaid to purchase DME at reduced rates.

    Let me know what you can afford and I'll work with you.

  • pennsygal
    pennsygal Member Posts: 346
    edited August 2016

    I have a FlexiTouch and I am very happy with it. My lymphedema is in my arm, back and boob. It has worked out very well for me, and their customer service is excellent. Both a rep and and LE therapist have been here for training, and the LE therapist is coming back next week for retraining in fitting the garments.

    It's a bit unwieldy, and you are out of commission for an hour, but I've been listening to books on tapes, or doing meditations with the Calm app. Please pm me if you want to discuss further.

  • Binney4
    Binney4 Member Posts: 8,609
    edited August 2016

    Kay G, I have a Flexi pump and have found it useful at times. But please do know it will NOT definitely move fluid effectively for you. We are all different. This is helpful to some women, pretty much useless to others. Also, many, many LE pumps of all kinds have been relegated to the backs of closets because women find them too time-consuming to use. You are absolutely immobile for an hour at a time. And, yes, you can listen to books on tape, watch TV, meditate, pray, or sing operettas, but you need to ask yourself honestly if your schedule and your lifestyle permit (and even welcome!) this kind of time investment. Will you come to resent this hour-a-day investment of your time in treating LE?

    What other avenues have you tried? Do you know how to wrap your own arm? Do you use foam-filled garments at night? Do you have a simple exercise routine that works if used on a daily basis? (I use the Opening section of the Lebed Method DVD daily and it really makes a difference in my LE control--takes only 15 minutes and doesn't immobilize me).

    Lots of options--choose wisely!

    Hugs,
    Binney

  • Kay_G
    Kay_G Member Posts: 3,345
    edited August 2016

    thanks, good advice. I will discuss with my le therapist, have to make an appointment, Wearing the night garments does help. Just wearing the daytime sleeve is not doing much. I get tired of the wrapping at night though. And one missed day and my arm isswollen large again. I think too msny prople (including doctors) told me it would get better iver time. But it has been 5 years, and it is getting worse over time, not better.

  • Binney4
    Binney4 Member Posts: 8,609
    edited August 2016

    Kay G, lymphedema is a progressive condition, unfortunately. Which sure doesn't mean you can't get on top of this and slow its stupid progress, but it does call for consistent effort. (sigh!) I've had LE since 2004 and my arms still measure what they did after my initial treatment then, in spite of any number of flares, so no cause for despair. The whole trick is to find what works for you (and by that I mean both what keeps things in control for you, and what you can actually stand to do on a regular basis) and then stick with it as much as possible (nobody's perfect, so don't even think of beating yourself up!)

    As for night garments, I sometimes put them on early in the evening if I'm having trouble with control. In summer they can be put in a plastic bag and stored in the refrigerator during the day--makes them cool and refreshing to put on at bedtime, and the foam holds the cool for quite awhile. In the winter I toss them in the dryer on a low setting for a few minutes before bedtime--yummy warm!)

    Hang in there!

    Gentle hugs,
    Binney

Categories