Radical Remission Book Club by Kelly A. Turner, Ph.D.

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  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited July 2016

    I just meant overnight fasting glucose. Yes I bought a meter and test strips. However, I do intermittent fasting every day at least 13 hours or as long as I can. I have also done some fasting but 60 hours is the longest I could do. Yes I have read a lot of Vincent Longos studies. I've twice started a fast mimicking diet that I think might duplicate his. I haven't made it beyond day 1 each time. I need to get more prepared food wise and mentally.

    I hadn't heard of Elysium. I will look at their site.

  • HLB
    HLB Member Posts: 1,760
    edited July 2016

    Deanna, I vaguely remember reading about agave nectar not being that great but don't remember details except thinking "well that figures". I don't know if I would put honey in that category though. I have heard so many benefits of honey, especially local, that I would use it on purpose! Antibacterial, antiviral, and so many things I don't even remember. One thing I have been using it for is a face mask. Leave on for 20 min and rinse off. Your skin is so soft and nice you don't even need moisturizer afterwards. And my skin is so dry that feels tight unless I use cream, not lotion, sometimes reapplying after it soaks in. Anyway, there's an old book called Vermont Folk Medicine by someone Jarvis that is very interesting about honey and a few other things. I'm frequently amazed when I find out little tidbits of info that our great grandparents knew but have been lost somewhere along the line. Sorry if this got too far OT.

  • Heidihill
    Heidihill Member Posts: 5,476
    edited July 2016

    Just as an aside, I tried chocolate with stevia and it was awful. Maybe they'd have to put a lot more stevia to make it palatable, which would then raise the glycemic effect.

    Twohobbies, how did you manage a 60-hour fast?? That is amazing!

    I'm almost done with Radical Remission. I think the story with John of God is fascinating. Interesting that meditation increases melatonin. Also that people take passionflower at the center. I just bought a sleep aid from France that contains both melatonin and passionflower. Hmmm. I haven't started with it as I'm saving it for when I really need it. Maybe I should re-think that strategy.

    I also like the author's take on supplements, that you don't need them forever. The aim, and this is what I've been striving for since I was diagnosed at the get-go with bone mets, is to get your body to a point where you don't need all the extra support. With daily exercise (resistance and aerobic), lots of fruits and veggies, proper sleep, and calorie/carb reduction with ensuing weight loss, enough sun/vitamin D, I am pretty close to that point, I would say, unless my next scan says otherwise. I'm not sure if I'm a radical remitter though because it's possible being oligometastatic (very limited spread) improved my chances greatly (i.e., to more than 25% over 5 years). In any case, it will be 9 years in August so that has to count some.

  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited July 2016

    I'm starting to regret, if not resent, that I've lived the Radical Remission lifestyle plus!

    Having instilled a capacity for resilience and adaptation, my dying is taking entirely too long.

    A propensity toward natural, mind-body and service-as-medicine processes has practically ensured longevity, even as my body breaks down.

    It's amazing to me that I persevere with good humor (and no anti-anxiety or anti-depressant drugs) in the face of death.

    Just needing to rant today.

    This RR stuff really works and sometimes I wish it didn't work quite so well and I could gently ease on out of here.

    Then sanity and love for life reassert themselves and I'm along for the wild ride - MBC is certainly a journey for me. https://community.breastcancer.org/forum/8/topics/...

    Just having a moment and encouraging others to avail yourselves of all possible healing allies - whether beings, practices, service or processes. https://community.breastcancer.org/forum/79/topics...

    warm, healing loving kindness, Stephanie

  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited July 2016

    FYI, Healing Journeys is offering this course that may interest readers of this topic:

    Dr. Kelly Turner's Radical Remission
    Online Course


    For other offerings, see their website or the bco topic that follows.

    warm light & love, Stephanie

    https://www.healingjourneys.org


    https://community.breastcancer.org/forum/79/topics...


  • abigail48
    abigail48 Member Posts: 1,699
    edited July 2016

    we're all flooded with natural opiates because of pain, stress etc

  • eelder
    eelder Member Posts: 169
    edited July 2016

    Someone mentioned chocolate with stevia. Try Lily's Chocolates. SO GOOD. No sugar and tastes like dark chocolate. Yum.

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited July 2016

    Heidi, 60 hours fasting was difficult. I try to fast three or four times a year and I always try to get at least 36 and then go as long as I can. I was starting to feel seriously bad at that point so that's my longest venture.

    I have just finished chapter one and two. Food wise I've done most of what is mentioned but I haven't given up meat. Knowing that cancer can also live on amino acids in addition to glucose, it seems prudent to me to maybe reduce protein for a period via diet or fasting, but other than processed meat, I'm not convinced meat is bad in breast cancer. I can't find any studies that say that. What studies do show is reducing carbs is better.

    What she says about autonomy in chapter 2 really struck me. I definitely had gone from autonomous in my life to not feeling autonomous before diagnosis and up through my recurrence. I'm doing better on that front now and I realized I will never put myself in that position again.

    I loved the story about Shin who would get up and breathe with a singing note and how he studied when the birds started singing. I think he regained his passion for music and de-stressed his body. For me, this is my nature walks and music on in the car. It made me think that maybe I should be listening to music at work, too.

    What kind of things are others doing?

  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited July 2016

    Hi TwoHobbies,

    I too targeted stress when first diagnosed with advanced breast cancer in the early 1990s. As a career activist, I'd been focused on positive change for decades, but looming death focused my attention on immediate goals that included the future of the nonprofit business I'd invested my life in. I willingly made a personal sacrifice to stabilize the business by making it profitable and moving it to a new location where it could survive into the 20th century. We did and the business survived.

    But doing it was stressful and my cancer progressed.

    A few years later, I retired on Social Security to create a lower-stress, higher-healing life. Few professional or personal commitments pulled on me. For many years I focused on healing allies, practices, processes and choices (isn't so much of stress about feeling victimized? http://alovinghealingspace.blogspot.com/2016/07/a-...) For a period, my personal mantra was, "I've done enough."

    But, gradually, I found out that I was a lifetime activist, not just a career activist and that my dedication to being the change hadn't ended but morphed to new ways of being well and supporting others' wellness.

    Since then, I lean into difficult situations that many others avoid - with the personal challenge - how can I impart well-being and less stress to embrace inherently stressful situations (life-limiting and life-threatening disease, end-of-life, environmental challenges, food politics)?

    When I have a choice and am not a victim of circumstances beyond my control (even the cancer within my body), then the opportunity arises to engage eu-stress (good stress) rather than dis-stress (bad stress). Engaging what's important to me, empowers me and encourages others to engage and grow from what's important to them (which is usually something completely different!).

    This is my meditation this morning. There are so many ways of engaging and disengaging stress (eustress and distress) and what's appropriate at one time, isn't at another.

    I hope each of us is able to engage whatever healing approaches allow us full, rich lives.

    Sending warmest healing wishes, Stephanie


  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited July 2016

    Stephanie that's what hit a chord with me-it's not just the stress but feeling you are powerless in the situation. I had a bad work situation that largely has resolved but that term "autonomy" really described it to me.

    Continued peace to you.

  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited July 2016

    Continued peace and well-being for you too, dear TwoHobbies, Stephanie

  • labelle
    labelle Member Posts: 721
    edited July 2016

    Absolutely love your last post, Stephanie! Choice, empowerment and de-stressing hit chords for me too.

    Like TwoHobbies, I follow a pretty low carb diet (Paleo) but continue to eat meat-grassfed, hormone free meat only though.

  • pipers_dream
    pipers_dream Member Posts: 618
    edited July 2016

    Stephanie, I find your posts extremely encouraging. I'm in a great mental place right now--no fear and the feeling that this will resolve in the best way possible are keeping me going. That and your posts.

  • Zoziana
    Zoziana Member Posts: 114
    edited July 2016

    How to de-stress and really live life: this has been my challenge. Stephanie, you have helped immensely with my thinking about this.

    In this regard (as is true on any topic you post on, Stephanie) , your post is not only useful, but thought provoking on a personal level. As always, your posts make me think about much more than "illness." You are thoughtful, wise, intelligent, and articulate. Your sharing so much with us here is a tremendous gift to us. You are helping me see what I intuited: I need complete change, but not to discard the parts of me that are me, but perhaps to shift and engage myself (and those parts) in different ways, a different job, maybe a different location.

    I have read many things about happiness over the years, and I end up dismissing them all because they just don't make any sense to me; I don't even understand some things. I did understand gratitude and consciously incorporated that into my being a few ago (but I'm mid-fifties, so it took me a while.) But your words, Stephanie, on what happiness means for you described exactly what makes me happy, though I couldn't have articulated it the way you did. But your doing so is going to help me as the map for restructuring my life.

    You said something like "Happiness for me rests and flourishes upon and within connections-with people, places, memories, ideas, hopes, dreams and working in concert with divine guidance." I am going to copy those words out and post them on my bedroom mirror and probably also the kitchen; I want them near me always. They are really the only words I think I need to help me get living this life right. For me, the food and exercise is the easy part, but the spiritual part (stress, anger, fear, loss, acceptance, appreciation, etc.) is much, much harder.

    Thank you, Stephanie. Peace be with you and with all of us.


  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited July 2016

    Ok, ladies I have a question. I have gotten the book, and also Anti-Cancer. For those of you who drink green tea, what brand do you drink? I know they can't all be the same, and the only one I can find in my little town other than Liptons, is Bigelow. Is there some specific brand that is a better tea with more of the good stuff in it?


  • dlb823
    dlb823 Member Posts: 9,430
    edited July 2016

    Hi, Gracie! I don't think green tea in bags has as much health benefit as Matcha green tea, which is a very fine powdered green tea. I get my Matcha on Amazon and am not yet loyal to any brand because I am still shopping for one that tastes as good as the high priced ones, without the high price. I recently bought some at an herb & tea store, but it was $9.95 an ounce, which is typical of those ranked "ceremonial" and organic. The trick, I think, is to find a Matcha green tea rated "culinary" that tastes great. For those, I normally pay about $15 (with shipping) for 4 oz., which will last a very long time since you only use maybe 1/2 a tsp. to make a cup of tea. So I buy mine on Amazon, and I look for 5 star ratings and reviews that say it's the best tasting one people have tried. All that said, if you can only find green tea in tea bags, I would suggest buying the highest quality one you can afford. I think Bigelow is probably better than Lipton, but that's just because Bigelow teas in general seem stronger and more flavorful than Lipton, and I perceive it as a premium brand over Lipton.

  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited July 2016

    Ok, thanks, I did not know any of that :) I will go look on Amazon.


  • labelle
    labelle Member Posts: 721
    edited July 2016

    I drink Matcha tea too, but have yet to find any brands I actually like. Personally, I think they all taste like grass clippings, but with enough stevia and some almond milk and a LOT of stirring, it is doable! I sometimes drink Tazo or Bigalow greens teas because I like them, but I'm not sure they have nearly the health benefits of Matcha.

  • dlb823
    dlb823 Member Posts: 9,430
    edited July 2016

    I had recently saved this blog that compares a few Matcha brands, and thought some of you might also be interested.

    http://matcha-tea.com/matcha/the-best-of-the-best-...

    And here's another article that compares 12 different brands. http://oolongowl.com/matcha-comparison-matcha-tast...

    Oh, and if you've never made it, there are several "how to" videos on YouTube. I just learned while watching one tonight that there's also a "Premium" grade, which is in between the two grades I mentioned above.

  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited August 2016

    Thank you so much dbl :)


  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited August 2016

    I receive acupuncture and counseling at an Institute for Health and Healing center in Northern California and am so very grateful that my practitioners abide by these tenets. We share a similar orientation toward life and healing. And we truly care for one another and others who come to the center. http://www.cpmc.org/services/ihh/clinic

    xxx

    The IHH philosophy is included in this is a really beautiful article on Integrative Medicine:

    Wherever the art of Medicine is loved, there is also a love of Humanity. --Hippocrates

    The Big Idea Behind Integrative Medicine

    --by Alan Briskin, Aug 04, 2016

    Integrative medicine is an ecosystem of support for pursuing your own health and well-being. Inside that ecosystem is someone who cares about you. Integrative medicine is emerging from a successful history of treating physical ailments that often eluded Western modalities of care to become an ecosystem of support for health and wellness. Possibly the most visible sign of this development is the increasing attention of integrative medicine to primary care, where prevention and regard for the whole person is most critical.

    What distinguishes integrative medicine as an approach is that it distances itself from the traditional model of a patient dependent on an expert. Rather, it embraces a genuine clinical partnership in which both the patient and the care provider have something to offer in pursuit of the patient's optimal health. The care provider embodies not only clinical knowledge, which is the result of his or her training, but also qualities not always associated with experts. These include curiosity, emotional support, collaboration, humor, and the ability to articulate options and alternatives without judgment. Patients are participants as well, offering knowledge of what has worked for them in the past, providing information that can't be quantified on a medical report, and finding meaning and purpose in their response to the challenges faced when confronted by illness.

    The power of integrative medicine comes from acknowledging the multiple dimensions that can cause illness and an equal respect for the various modalities that can address healing and cure. Freed from a traditional repertoire of either pharmacological or surgical solutions (pills or knife), integrative medicine practitioners have expanded the treatment landscape to include nutrition, bodywork, chiropractic, mindfulness-based stress reduction, integrative psychotherapy, and ancient healing practices such as Chinese and Ayurvedic medicine. From exploring the optimal chemistry for our digestive tract to treating autoimmune conditions to finding novel ways to address trauma, integrative medicine is showing us a whole new way to educate ourselves about health and take responsibility for our own well-being.

    The emerging field of integrative care is as much an idea as a set of practices. The idea is of an ecosystem of support, an intersecting set of relationships that address the whole human package — body, mind, heart, and soul. And at the center of this ecosystem of support are people who care about you. The ability to be seen by a team of providers and staff who value you as a whole person is a central premise permeating all other techniques and practices.

    I am reminded of the support that the poet W.H. Auden gave Dr. Oliver Sacks when he was composing Awakenings, a book about his work with a group of patients who had been in a decades-long sleep and were now coming back to consciousness. Auden wrote: "You're going to have to go beyond the clinical. … Be metaphorical, be mystical, be whatever you need." I find here the implication that it is our deep regard for the human condition that moves us beyond the complacent and routine. It is in our profound respect for service to others that we touch mystery and wholeness. At the heart of integrative medicine is a bold invitation to go beyond the clinical, into regions that capture our hearts and imagination. Caring is fundamental. Nothing else really matters without love as an organizing principle. Or as one patient I know told her physician, "I just want someone who gives a damn."

    Caring relationships can and should be with our care providers, but they must also be evident in our social networks, our family, and our community, and in our relationship with nature. Beyond the particular type of care we receive is a broader view of health that includes the social and relational. Caring is about how we manifest love in the form of looking out for each other, witnessing, supporting, provoking, and optimizing our capacity to face health and illness, life and death, with dignity. Wise old Hippocrates had it right: Where the art of medicine is loved, there is also a love of humanity.

    I had the opportunity to talk about all this with Dr. Jeff Draisin, co–medical director of the Institute for Health and Healing. IHH operates a network of clinics in Northern California and has pioneered integrative medicine practice there for nearly 25 years. Here are seven distinctions he articulated about the emerging field of integrative care. I think he captures something here of essence, particular themes that direct our attention to what matters most and the attributes that together make a whole. Integrative care does the following:

    * It shifts our understanding of care from a focus on illness and shortcomings to a focus on well-being, personal growth, and transformation.

    * It cares for the whole person by addressing mind, body, and spirit as three interacting elements that together result in health and well-being.

    * It helps individuals craft healthy relationships with their physical bodies, mental outlook, and emotional well-being. Beyond fitness and exercise is the relationship we have with our whole self.

    * It treats nutrition — what we put in our body — as medicine. Beyond diets and supplements is an understanding of what helps our body to feel vital and how best to decrease the effects of toxins.

    * It embraces the latest discoveries of neuroscience and mind-related health for personal well-being — from mindfulness stress reduction to the benefits of awe and wonder.

    * It creates a true partnership that joins the best of Western medicine with ancient healing traditions and complementary modalities. The guiding intent is to restore harmony and address imbalances that detract from optimal health.

    * It values psychological and spiritual forces as food for the soul. Feeling valued, having purpose, and finding meaning are all essential elements of healing and health.

    If we pursue health practices and policies along these lines, we will transform health care and bring the art of caring into the heart of medicine.

    xxx

    Alan Briskin is the co-founder of the Collective Wisdom Initiative, and a consultant, artist, and researcher. His co-authored book, The Power of Collective Wisdom, won the 2010 Nautilus Award in the category of Business and Leadership. Follow him on Twitter.

    http://www.dailygood.org/story/1353/the-big-idea-behind-integrative-medicine-alan-briskin/

  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited August 2016

    Interesting insight into stress & health from Barking up the Wrong Tree blog:

    This Is How To Get Healthy: 6 Research-Backed Secrets

    Too Little Stress Can Be As Bad As Too Much

    No doubt, studies show too much stress can be bad for your health. But the important words there are "too much." Some stress can be also be healthy.

    You need to strive toward goals to get the most out of life. If you want to perform — and live — optimally, you don't need zero stress. You need a Goldilocks-style "just right" amount.

    What happens when you retire and stop challenging yourself? Your brain turns to mush, that's what:

    We find that early retirement has a significant negative impact on the cognitive ability of people in their early 60s that is both quantitatively important and causal.

    Now what if you stress yourself to the max… but you love what you're doing? The Terman Study found:

    Those who stayed very involved in meaningful careers and worked the hardest, lived the longest.

    If you're unhappy and frazzled, yeah, you might need to ease up. But if you love your job? If you find it worthwhile and fulfilling? Work your ass off.

    xxx

    Tips explored include:

    • Get your act together: It keeps you healthy.
    • Relationships are essential: Got someone you can call at 4AM? Or someone with 4 legs?
    • Work someplace that treats you fairly: If you think 30 minutes on the treadmill makes up for 40 hours of misery, think again.
    • Don't be a jerk: Ignore Billy Joel.
    • Too little stress can be as bad as too much: Retirement is brain death followed by death-death.
    • Forgive others. And yourself: If there are typos in this post, I forgive me.

    http://www.bakadesuyo.com/2016/08/how-to-get-healt...


  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited August 2016

    I took disability years ago, about 2002, for Lupus and secondary chronic anemia. And I can tell you there are days when I would give almost anything to have a job to go to!

    Question to you ladies. I have been a coffee drinker my entire life, my dad started me off at about 10 with half coffee half milk. To this day I take my coffee with cream and sugar. I have a serious problem getting started in the day without it and then I crave it if I don't have it. Considering the suggestions to change to tea, I wonder if one cup of coffee with cream and a sugar substitute (thinking coconut sugar) will still mess with my immune system? Any ideas would be wonderful :)


  • dlb823
    dlb823 Member Posts: 9,430
    edited August 2016

    Gracie, I wouldn't obsess about one cup of coffee a day. If you are motivated to do so, maybe try cutting back some (you can do it slowly) on the sugar and/or substituting the coconut sugar you mentioned, or even a bit of natural maple syrup (sounds weird, I know, but I use it and it tastes fine), as well as maybe adding a cup of green tea for its antioxidant and energy-giving benefits. You can also try almond or other plant based milk. It'll take a few weeks for your taste buds to adjust, but if what you're doing concerns you, maybe try experimenting with healthier options. Cup size is another thing. At one time, my two morning "cups" of coffee were made in an 18 oz. mug, and a large Starbucks or similar is 20 oz.

    As far as not working, I'm sure many women here who must hold down a job for insurance or other reasons would envy you. But whether we're dealing with an illness or not, we all need purpose. Do you have any hobbies or other interests you actively pursue? Hope so!


  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited August 2016

    Thanks dlb :) I use a regular coffee cup only, so probably a little over 8 ounces, maybe 12 total. Does maple syrup cause the sugar spike? Will try that! I love maple syrup. I am adding a couple of cups of green tea (Matcha) daily, so hopefully that will offset my coffee intake. I do have hobbies, scrapbooks, knitting, etc., but right now I just can't keep my mind on anything for any period of time. I hope that gets better! Thanks for your answer :)

    Have a great day!

  • Momine
    Momine Member Posts: 7,859
    edited August 2016

    I am liking this discussion of autonomy and stress. If you have control, "stress" can be exhilarating, fun etc. I don't think being busy, engaged and striving is bad for you. It is only bad when you feel you have no control and/ or that your efforts are pointless.I have always believed that being constructive and productive is a fundamental human need. So the point is not to sit on your hands. The point is to be productive in a way that makes you feel happy and in control

  • Momine
    Momine Member Posts: 7,859
    edited August 2016

    Gracie, coffee is good for you. Seriously. Also, about the sugar. I avoid sugar. BUT, I don't think a spoon of sugar a day is going to do anything terrible. What is bad is eating a lot of processed crap with hidden sugar, drinking sugary drinks all day and eating donuts etc as a regualr thing

  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited August 2016

    Momine thanks! I don't eat a lot of sugar and am not a pop drinker at all.. But being celiac I can see where my carbs are... I use a gluten free bread which has a lot of carbs and then any gluten free snacks are way high on carbs so I know I've probably gotten way too much just trying to substitute for things I can't have. I've cut those out already almost completely. Would be really glad to have my coffee in the morning without worrying about if I'm feeding my cancer every time I do

  • Wendy3
    Wendy3 Member Posts: 1,012
    edited August 2016

    Morning all

    Gracie I was a heavy coffee drinker it took a few months and a few headaches but now I'm coffee free. Once in a while I treat myself but most mornings it's smoothies or juicing and I don't miss it at all. I was a big sugar hound too and now if I eat something sweet I find it horrible. Our tastes can change and we can find those fresh cherries as wonderful as we found that oh Henry bar in the past. I feel great and wish I would have changed my diet sooner . But hey better late than never right?😁


    Wendy


  • artistatheart
    artistatheart Member Posts: 2,176
    edited August 2016

    I agree with all of the above regarding the thinking that obsessively dieting and over regulating your diet is not a good idea. I too read a lot of literature, make an objective assessment, try one new thing at time, and if it sounds reasonable for me personally, integrate it into my life. I do not obsess about having a piece of chocolate or a very occasional steak dinner or glass of wine. As ClarkBlue practices, once I have one positive change ingrained, I make another until it becomes like second nature. I take the RR book as just a litany of suggestions for a well rounded feeling of wellness that may or may not achieve NED or remission. I enjoyed reading it and intuitively felt that most of the suggestions were worthy of trying in order to get my life, body and spirit more into balance. And while it does indeed inspire some hope I don't fool myself into thinking it is the Holy Grail.

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