Before you were diagnosed did you "know" already?

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Peppa1210
Peppa1210 Member Posts: 11
edited October 2016 in Just Diagnosed

Intuition is pretty accurate, did you know in your heart there was a problem before diagnosis? Subtle hints from your body, life, pet, etc? Not anxiety per say, just a gut feeling.


Love and prayers!

«13

Comments

  • Denise-G
    Denise-G Member Posts: 1,777
    edited July 2016

    I knew the minute I found the lump that it was cancer. Something opened up within me, and it wasn't just fear, it was that I KNEW. It was like something pierced my heart, and I knew what I was facing. That night I had a dream about my beloved grandmother who had passed away 10 years previously. In the dream she told me, "You are not going to die from this." Then her voice got VERY STERN in the dream (in real life it never did) and she told me "Get to the doctor immediately!" That morning I called my doctor, and the rest is history!

    Looking back, I had some symptoms that I overlooked. Body odor was a huge one that summer before diagnosis. I NEVER had extreme body odor before, but that summer I did. Only a mother could tell you so, and my mother did - LOL! I would have to change my bra two times per day as my bra would smell bad. Also, that same summer, my cat would sniff my breast and she had never done that previously.

  • Annette47
    Annette47 Member Posts: 957
    edited July 2016

    Nope, not a clue ;)

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited July 2016

    It really isn't accurate at all. I've seen hundreds of women come through the not diagnosed boards convinced and sensing and intuiting and "trusting their guts" that something was wrong when it turned out there wasn't, and often it is the ones who are least likely to have anything seriously wrong based on various factors

  • Meow13
    Meow13 Member Posts: 4,859
    edited July 2016

    no I didn't know. Everything was fine.

  • ClarkBlue
    ClarkBlue Member Posts: 170
    edited July 2016

    Yep... And I "knew" all of the results along the way as well. I also felt like I shouldn't be specific when I was praying about things. Normally I would pray very specifically and directly to the situation, but I kept feeling like I needed to zip my lip. I didn't understand it and a lot of people were asking what I wanted them to pray for. Despite a whole lot of praying for my tests to be benign, everything was cancer. I was the exception to every rule, and it really shook my faith. Then I realized that if my prayers had been answered, then the invasive cancer would have never been found.

    In talking with friends much wiser than me I cam e to realistic that for me it was the Holy Spirit revealing these things to me, as He is the revealer of Truth. He was trying to prepare me for what was to come.

    -Keely

  • Artista928
    Artista928 Member Posts: 2,753
    edited July 2016

    I ignored pain in my breast for a long long while. Chalked it up to hormones as I'm that age. Then one day the pain was stabbing and breast was red, so then I knew. I didn't bother feeling for anything. Gave it a day to subside and it didn't so I went in.

  • edwards750
    edwards750 Member Posts: 3,761
    edited July 2016

    I didn't feel anything or notice anything out of the ordinary but when I think back now I had lost a lot of weight in a short period of time. I had cut out sugar so I assumed that was the reason. I didn't know for sure until I was called back in after I left the doctor's officeto have another mammo done. I was told the reason was one breast was bigger than the other. End of story. I had never been called back in before - ever. Ironically that day was 2 weeks since my mammo and I remember thinking I hadn't gotten my all clear card in the mail. I wasn't alarmed then.

    Maybe some women do have that gut feeling. I have had that same feeling sometimes that something bad is going to happen and unfortunately it has.

    Regardless we have been dealt the unlucky draw and have to play the hand we've been dealt.

    Diane

  • octogirl
    octogirl Member Posts: 2,804
    edited July 2016

    I had been worried about it for about eight months...just a sense that something wasn't right. I had a sister who had been diagnosed, so it certainly wasn't unreasonable to be concerned. I did breast self-checks obsessively but couldn't feel anything. I did start feeling pain and after three or so months of intermittent pain, I saw a change in my nipple and another day or two after that felt a lump underneath it. The moment I felt the lump I though, 'Oh crap, here we go...' Got in to see the doc about a week after that. and here I am, a year after surgery....

    Octogirl

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited July 2016

    No clue. Completely floored.

  • molliefish
    molliefish Member Posts: 723
    edited July 2016

    I knew with the odds being one in eight that chances were the lump I found would be malignant. Then when I had the oncotype, I knew when they wanted to send the samples out I would end up having chemo therapy. and here we are

  • Outfield
    Outfield Member Posts: 1,109
    edited July 2016

    I knew. I'm in medicine so I've done a lot of breast exams besides my own, which probably was a factor. I was in the shower and felt it and thought, "Oh, that's cancer."

  • Meow13
    Meow13 Member Posts: 4,859
    edited July 2016

    I should mention there was no detectable lump.

  • barbski60
    barbski60 Member Posts: 39
    edited July 2016

    My urine had a weird sweet/fruity smell a few months before ( Jan) I thought I was eating too much sugar. Was going to ask my PCP but got busy and I felt fine. had my regularly scheduled mammogram (Apr) and was asked if I wanted to pay an extra $40 for a 3d since insurance wouldn't pay. I did and was called back for an ultrasound. I asked to see the images and could tell it was cancer even before the biopsy. I had two friends diagnosed with bc in the past 2 years and I thought if it ever happened to me, I would go for a BMX.

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited July 2016

    Had no idea. My obgyn found a thickening and even then I was oblivious. As Farmerlucy said "completely floored

  • ddfair
    ddfair Member Posts: 109
    edited July 2016

    I knew immediately. Even though no less than nine doctors had examined me at the same time and had a conference about me. They were quite sure it couldn't possibly be cancer. Eight of them felt it was a fibroid tumor, one thought it was a silicone gel bleed granular tumor. All nine of them were WRONG! I insisted on a lumpectomy and having the silicone implants removed. Since they were certain it was benign, they put me on the surgical waiting list for 9 months while the tumor tripled in size. When I finally got to have surgery the anesthesia didn't work. I was paralyzed but heard and felt EVERYTHING.(pure torture) I will never forget the surgeon saying " oh sh*t!!!! it's cancer!!!! it's three different cancers!!! this is so bizarre!!!! I was laying there in agony thinking I tried to tell you but you all were so smug.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited July 2016

    I had utterly no idea anything was wrong, not even the day last Aug. I had my annual screening mammo. The tech said, “looks okay but we'll let you know in a couple of days if you need to come back." The very next morning I got the message in my patient portal inbox that they found a “focal asymmetry" not present on any of the previous three years' films, and that I needed to come in for spot-compression diagnostic mammo and perhaps ultrasound. Felt like a punch to the gut--the only time I'd ever gotten a callback before was 20 yrs. earlier when they were using a portable machine that shook when the L train rumbled by and produced a blur. I was having a pedicure that morning last Aug., so I looked it up on WebMD. I knew without any further Googling, and when my gyne phoned me on my way home urging me to make that followup imaging appt. I knew something was very, very wrong. When the radiologist showed me the pinky-nail-sized bean-shaped blob on the ultrasound screen she couldn't compress with the ultrasound, I instinctively muttered “shit." When she didn't try to reassure me, I knew it couldn't possibly be a cyst. The phrase "BIRADS 4, biopsy needed" didn't help, either. Oh, I read the stats that said 80% of those turn out benign, but while I was in New Orleans I got a revised report saying "BIRADS 4B, suspicious for malignancy." Instantly I knew my odds had gotten worse, and the gnawing uncertainty was replaced by a profound pessimism. Thus, when I got the call from my gyne’s partner the next night after the biopsy, I was prepared to hear “atypia" or at worst “DCIS" (which had been in the news a lot last summer) because how could anything invasive show up in only one year, and with no symptoms at that? The final punch to the gut, after hearing “invasive ductal...” was “grade 2.” I almost didn’t hear the ER+ part (and didn’t know tlll the next morning when my gyne got back from vacation and told me it was also PR+ and HER2-). Suddenly, I felt calmer. I knew that they’d get it out with clean margins and negative nodes. (I wasn’t prepared for it to eventually be 1.3 cm, since the ultrasound said “7 mm,” but the MO told me she was 90% sure she wouldn’t recommend chemo; my ODX score confirmed that).

  • BlueKoala
    BlueKoala Member Posts: 190
    edited July 2016

    No.

    The only thing was that we had been planning a trip for later this year, and I was always saying 'the plan is to go' not 'when we go', but it was a big trip we were planning and a lot had to fall in place to be able to go.

    In the three weeks between finding the lump and getting the diagnosis I had logically deduced that the only thing it could be was cancer. I was just hoping there was something I had missed, because I didn't really think it would be.

  • dtad
    dtad Member Posts: 2,323
    edited July 2016

    Had absolutely no idea. I wasn't even concerned when I got the call back. Just thought it was because my breasts were so large and they couldn't see anything. Took me a while before I was really concerned. I guess we are all different. Good luck to all...

  • marie5890
    marie5890 Member Posts: 3,594
    edited July 2016

    I can't even begin to tell you how many women have come thru here "knowing" they had cancer, and then find out they didn't.

    And by the same token, how many women thought things were ok, and found out they had cancer.

    The ones that seem to "Know" and "know" accurately, are the ones when they get their radiologist report, and in with the input of the radiologist's assessment, have the "know" experience, but again, that is based on actual medical data in conjunction with their "gut"


  • GraceB1
    GraceB1 Member Posts: 213
    edited July 2016

    I knew as soon as I found the lump. I don't have lumpy breasts. The lady doing the mammogram and ultrasound the next week kept trying to reassure me until she got to the lump. Then she shut up. I was ready to strangle her by that time because I KNEW. My OB/GYN that day said he thought it was cancer and referred me to a surgeon. The surgeon walked in the room and said flat out that it was cancer and here are the options. And then all the craziness started.

  • edwards750
    edwards750 Member Posts: 3,761
    edited July 2016

    I forgot to add when I went back in for the second mammo the tech said I would be going home and I could get dressed as in no worries so imagine my shock when the radiologist walked in and said "you arent going to like this it's cancer" and then proceeded to rattle off all these percentages, etc. I knew I shouldn't have put stock in what the tech said but I kind of did. Most of the time they have their game face on. Hadn't had the biopsy yet but I'm sure she had seen enough that she knew. I don't have a clue what she said even to this day. Given that happened it wasn't a surprise that I go THE call the following Tuesday night. The conversation went like this...good evening...by the way you have cancer.

    Diane

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited July 2016

    Peppa, people here aren't all going back and reading your other threads, so when you post in the "Just Diagnosed" thread it would be helpful to say in your post that you have NOT been diagnosed.

  • JuniperCat
    JuniperCat Member Posts: 658
    edited July 2016

    No clue at all, however, ten years prior to diagnosis I had had a needle biopsy in the same breast that showed ALH. Still, nothing had ever shown up on subsequent screening mammograms until last year.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2016

    I did. All that summer before the dx end of Sept, I felt like there was something looming out there. Just a bit of a darkness, like there was something affecting me, or going to affect me. I remember thinking randomly that summer when I looked at a pair of shorts that were too tight for me to wear, saying in my head "well, if I ever got chemotherapy I'd sure lose weight and fit into those" ( I was eventually right). Weird illogical thought since there were no physical symptoms at all before I just by chance found the lump.

    Claire

  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited July 2016

    If everyone who came to these boards "knowing" they had either a new cancer (or a recurrence) before getting their test results actually did have it, the numbers would be much higher. Anyone with a suspicious symptom - especially something like a lump - will suspect cancer. Some will be right.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited July 2016

    I did not know. I'm fact, I had a full physical with breast exam 3 weeks prior and my doctor never felt it. I had a tumor the size of a cherry in there, caught on a mammogram. Now, once I had the mammo results, I knew. It was BIRADs 5 and I have a strong family history of BC.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited July 2016

    I knew 24 years ago, when I had a bad mammogram and it was cancer. I knew this time. I had a clear mammo just 7 months earlier, went to ob/gyn even she thought it was an infection, etc, I told her I think it's cancer. It was stage iii ibc and idc. So those that say most think they know and they are wrong, I say some peoples guts are accurate. Unfortunately mine has been.

    I also feel, that self exam and being in tune with my body is what has saved me. If I had waited until my next mammo, I possibly would have been even further along.

  • Peppa1210
    Peppa1210 Member Posts: 11
    edited July 2016

    Thank you for the responses. I am still in the waiting phase, however I was curious to other people who had been diagnosed and followed their gut.

    I am not a breast cancer patient however I had survived brain cancer and had the gut instinct myself. If I had not followed it I wouldn't be here today. I deeply apologize if I stepped on toes but I have been the cancer route before and can. empathize. I am.still waiting on an appointment with my breast surgeon to do a biopsy... thanks again for all the stories! :)

  • msphil
    msphil Member Posts: 1,536
    edited July 2016

    Yes sweetie i knew also as i showered that mornin i felt the lump, and i Just Knew at the time i worked at a clinic before that 15yrs in Operating Room. i Just Knew but when i heard the diagnosis it still knocked me diwn i was 42 and planning Our 2nd wedding. But God i am now a 22yr Survivor i was nevwr meant to die but to INSPIRE. others with HOPE. GOD BLESS US ALL.😘 msphil idc stage 2 Lmast chemo and rads and 5 yrs on tamoxifen

  • gardengypsy
    gardengypsy Member Posts: 769
    edited July 2016

    Absolutely.

    I had feelings of intense dread for a couple of months.

    A month before I was diagnosed, a friend and I had a discussion about Breast Cancer, including how we'd treat it, if diagnosed.



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