When to throw in the towel.

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donitadoll
donitadoll Member Posts: 18
edited July 2016 in Benign Breast Conditions

so last year I had the whole mri mri biopsy n finally removal. They found Right breast, lumpectomy:
Radial scar and associated fibrocystic change including usual ductal
hyperplasia, sclerosing adenosis, apocrine metaplasia, cystic dilatation,
fibrosis, and microcalcifications in benign ducts.
Evidence of previous biopsy site also identified.
Negative for malignancy. So now this year found another 8 mm mass on lefty. Go in for uttasound biopsy in two weeks. (Mind u this is my third mammo ever) Wondering when this comes back benign as well (fingers crossed) would it be way outta line to talk to the dr about mastectomy? Or some sort of solution to my busy boobies? This is killing me going thru this every year. Thanks n I'm so happy I found this place. Seems like some of the ppl you talk to make you feel your blowing it out of proportion but you can't help what your mind wanders too.

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  • leaf
    leaf Member Posts: 8,188
    edited July 2016

    Yes, its so easy to go to the 'worst case scenario'. We all want to be ready for whatever is ahead for us.

    Everyone's situation is different. If you have an extensive family history of breast/ovarian cancer, you may want to be evaluated for that. I know you don't want to go through this anxiety every year. But there are downsides to having bilateral mastectomies, besides the obvious. Some people do really fine after surgery, but some definitely do not. So it ranges from A-OK (except of course without breasts, at least initially, and drastically reduced sensation) to continual infection, continual ongoing pain, difficult reconstruction (f you want reconstruction), etc.

    I have classic LCIS (which is thought to confer a higher risk than any of your listed conditions), and my breast surgeon refused to do PBMs. Normally they reserve PBMs to persons who have an extensive family history. You may have problems finding a) a surgeon who would do this and b) get insurance coverage to do this, even if your heart is set on this. Many LCIS women on this website have had PBMs.

    Of course, you can ask your doctor whether there is anything you can do about your condition. I would be VERY surprised if (s)he recommends PBMs unless you have an extensive family history. But everyone's circumstances are different. There's no harm in asking your doc if there is anything you can do.

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  • donitadoll
    donitadoll Member Posts: 18
    edited July 2016

    Thanks for the info. I'm just tryout I figure stuff out. Head is going a million places at once.

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