Choosing to NOT do the "BOOSTS"
I am nearing the end of my 16 Rad treatments, and my RO wants to add 4 "Boosts" - which I am considering to NOT go ahead with...I am wondering what other's experience has been with this more intense/localized radiation treatment.
My understanding (albeit limited) is that in addition to being more intense and localized it has a higher risk of penetrating lungs and heart...as an Ex Smoker I have a nagging anxiety around some kind of future lung disease with the Rads in general.
Comments
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The risk of recurrence goes up if you do not finish rads, so you need to talk with RO about how much this would increase and then weigh that risk against the risk for lung or heart damage and decide what is best for you. Your RO should be able to show you your computerized illustration/mapping soyou can see how much it hits the heart & lungs.
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I too am a former smoker (been quit for good almost 10 years). I had 23 rads and 7 boosts four years ago on my left side. My cancer was located towards the midline of my chest and I used an active breathing machine to hold my breath at critical points. I was told that rads AND boosts both had the potential to hit my heart and lungs, and they were open with me that they'd do everything they could but yes, I'd still likely have some minimal damage. Until recently was running and doing yoga and hiking and having no problems breathing (im finishing my final chemo right now, in fact). A recent CT scan reveals a small area of radiation fibrosis; I wouldn't have otherwise known it was there, I have no symptoms.
i was recently diagnosed with a local recurrence that apparently survived previous chemo and radiation and boosts, and is now TN. I still have no regrets, though, about having done either. I was aware of the potential risks but felt I needed to do everything I could. This time I can't do radiation again so am having an mx in 5 weeks.
Good luck to you in your decision. Weigh the risks vs. potential rewards/long term survival. Ultimately, though, the decision is yours.
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Your greatest fear should be about a potentially lethal cancer recurrence, rather than vague lung issues. Just saying and best wishes whatever you decide.
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I just have to say that despite the name, the "boosts" in my case were less powerful, shorter, smaller area. It was explained to me as just a little extra right on the MX scar, which is where a local recurrence would be most likely to pop up, I guess. It did not cover my whole chest or penetrate right through the shoulder like the regular rads. My skin did not get any redder during the week of boosts, in fact it started healing. I certainly would not be afraid of that part. Don't let the name mislead you, it's actually the easiest part.
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I would strongly echo Karen and Jennie's advice specifically, as well as the other comments.
I had 7 boosts, which I felt were extremely important, due to a very close margin and the fact that my tumor was very, very close to the chest wall. I had no issues with the boosts, which surprised me, and the rest of my skin started fading during the boosts. Physically it did NOT add to my discomfort and, in my opinion, it would have been stupid for me to do RT without the boosts. And I say this who really, truly did not want to have to do RT. (I would have had to do it even with a mastectomy, so there truly was no choice.)
I did have a bit of radiation pneumonitis seen on a later CT scan but without symptoms. I have some radiation fibrosis in the tissues but would have had that anyway.
Planning for the boosts is very, very precise and targeted - ask to see your mapping, as it will probably increase your peace of mind considerably.
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Ask you doctor for more specific information about the boosts. Mine were more intense but shallower as they were aimed just at the tumor bed (post-lumpectomy). They specifically said they would not penetrate as deeply as the whole breast rads, but would be more intensive over a smaller area. During boosts my skin turned red in the area right around my incision - I hadn’t had any redness prior - but it was no worse than a mild sunburn.
For what it’s worth, I am more than 3 years out and have had no lung/heart problems to this time (and for other reasons went through chest x-rays and cardiac testing a year ago).
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When I finished the 16 zaps, my breast, especially my nipple, was getting kind of tender. The boosts to the tumor bed addressed only a very small area, so the rest of my breast began to heal, even while I was still having treatment. Initially, I'd balked at the very idea of boosts, but found myself really happy, both then and now, that I had decided to go ahead.
Every tumor bed is different, of course. Do speak with your RO and find out exactly where the rads will be targeted, where they will not, and what vectors (or whatever they call those things) can be adjusted to give you the best combination of effectiveness and protection. Do keep in mind that the reason the boosts are aimed at the tumor bed is that area is the one most likely to harbor the occasional nasty leftover cell. It might help to think of the boosts as insurance.
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