TRIPLE POSITIVE GROUP

Great news, SpecialK!

great news Special K!

Special K-Good news on all fronts! I have never looked back at being smaller, although I wish we could have made it to the original plan. I was really big before, and had always been a full B until I had my second child. Then I had engorged breasts, (not fun), didn't lose the weight I should have after the caesarean and they were BIG! I was never comfortable with them. Shirts that should fit just didnt look right. I'm a die hard stomach sleeper and can still do that...took a while and I have to kind of position my pillow. I can run around without a bra if I want (although I wear something that doesn't really require a shape when I do that). One thing I don't have is a lot of upper pole. I have to get a serious pushup bra to get those girls up where I like them to be in some lower cut tops. Cleavage takes work.

Susan BP-Once I got going with my PS, I had a whole slew of questions of things I had been reading on this site and others, prep wise and post. He told me to quit reading stuff. I told him if he would give me the information I needed, I wouldn't have to ask those questions, lol. Most were just what to expect things. He promptly gave me his cell phone and told me to text him any time I had a question. I love that guy, lol.

I do like to think that I am smart enough to sort through the dated things. I don't really qualify anything more than a couple years old. I just feel better when I can be a part of the conversation with my ocs, and not just on the receiving side.

I didn't get Perjeta because, as Lago said, it wasn't available then. My onc talked to me about it as they were doing some testing and said he hoped it would be effective for those of use who might recur and it would be one more thing in the arsenal.

I also participated in a three year vaccine trial (as did Special K). I try to keep up on any announcements on results from that. I think my version may turn out to be helpful to triple negative. Special k had a different vaccine as our bloodwork was different for what they were treating. I believe hers may potentially have legs for her 2 folks.

You all are motivating me to get back off sugar again (after I ate three cookies tonight, lol) It needs to be done and now.

Hi fluff queen I am right where you are with the fear and investigation. This whole thing is like a car accident that keeps on giving! What a shock! I have been all over the place but I keep coming here for hope and strength to gain acceptance. This whole board is a fantastic legacy of reality and how we deal with it. I am Her2 triple positive stage 3c. I need to change my screen name to something more hopeful!

Specialk I am so glad you are alright. It's so wonderful how you all hang around to help us newbies

Awesome news Specialk!!!

Kathy

Thanks all! Have been sleepy since on Rx antihistamine - am supposed to stay quiet since my PS removed the incision glue prematurely. So just hanging out reading magazines and watching tv

Special k have a Bon Bon !

Just got back from the check up with the NP at the oncologist. This is a no scans, no marker gal. She said that with "early stage" (stage 2) BC they go for a "cure". I feel like I'm always waiting for the other shoe to drop and have to be very careful about everything in order to avoid a recurrence. Do your doctors talk about stage 2 as being cured?

On a side note the NP had zero compassion for the aches and pains of Tamoxifen. If only I could give her a week of these symptoms.... I know, happy to be alive, but still, I'd like her to hear the change that will be around forever.

I was Stage IIIA; my oncologist has never used the word "cure" with me. Sorry to hear that your NP is so unsympathetic. My MO is very concerned that I'll stop taking my AI because of SEs. She always sounds a little tentative when she asks about the AI. "Are you still feeling OK? Are you still taking it?" Of course, I've been pretty lucky with my AI, but I expect some of her other patients have plenty of complaints.

Thank you

Susan - you are so right! I've been reading Anticancer: A New Way of Life and Dr. Susan Loves Breast Book and they talk about creating an environment that supports healthily neighborhoods in the body that don't allow cancer cells to stick around. We do have a say in this

Time to post my speeches again:

SEAT BELTS:
You don't assume you will get into a car accident every time you get in your car. You do put on your seat belt and drive carefully. Same with breast cancer. Eat right, maintain a healthy weight, exercise, and take your hormone therapy (if prescribed). No reason to think you are going to get mets until you actually have a symptom.

SHIT HAPPENS:
Some people win the lottery and become millionaires too but do you really think that's going to happen to you? Shit happens. Sometimes good shit, sometimes bad shit, but most of the time shit doesn't happen. Don't assume shit is going to happen to you.

WHAT IF'S
Remember the word "if" is in the middle of the word "life" for a reason. As long as you have life you will always have "what ifs". It's your MO's job to worry about those cancer "What Ifs"

BTW I still haven't won the lottery

KateB79 your Lithuanian Oncologist has it right. Before breast cancer you did that. Felt you were OK till you weren't. Why let it change you?

jump ship,

I totally understand....when I didn't achieve PCR with my Stage 2A diagnosis. Was so freaked out, I even asked my MO to give me chemo for a little while longer(even though God knows I didn't want it). I figured I have done it for 18 weeks and while I have no hair I might as well do more now instead of having a recurrence and having to go through it all again. I researched clinical trials too with no luck...I never wanted to go through this again. But he reassured me that with the Herceptin for a year and the Tamoxifen on board I should be covered. I prayed and stayed positive but you know any ache or pain you have your mind turns to "C". My Dr doesn't do routine scans or tumor markers either. After I was done with Herceptin I asked for a Pet scan for my own sanity. It showed NED in April 2015.....and not to scare you but I was just diagnosed with a pituitary tumor, 1 cm liver tumor and a smaller spot on my C7 spine. I don't blame my MO, cancer just sucks and you can do all the right things but it has a mind of its own. I have gone organic with food, products and cosmetics. Have cut way down on sugar and exercise. It is such a new diagnosis I am still trying to process and keep asking " why is this happening to me". At 41 years old with 3 beautiful kids to raise. I know there is a reason and I will figure it out but that's where I am at now.

God bless....we are all in this together,

Kathy

Thank you Lago for words of wisdom. Thank you Kathy for sharing your story. I'm praying for you and all of us. And I agree with Elaine.. Cancer does suck!!! I'll keep you all posted.

Regarding pet scans, even though I talked my late onc into a couple, he always emphasized that just because it showed nothing on that day, didn't mean that it would be nothing a month later. I still wanted one.

When I was blogging throughout my treatment, one of my topics was about waiting for the other shoe to drop.

I still feel like I am clutching that other shoe in a tight grip at all times.