28 year old female just diagnosed with Intraductal Papilloma

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sk4521
sk4521 Member Posts: 5
edited May 2016 in Surgery - Before, During, and After

Hey ladies!! I need a little feedback. I am 28 years old and recently went to my nurse practitioner and she did my yearly physical. She found a small, easily moveable nodule in my right breast under my nipple area. I have had no tenderness, and no discharge at all. My aunt died at age 41 from breast cancer on my fathers side and was diagnosed with breast cancer in her middle 30s. Her breast cancer came from this type of tissue so my family wanted me to definitely look into it. I went for a breast biopsy and it came back as an intraductal papilloma. The radiologist recommended I see a surgeon to get it removed just in case. I have had my surgery and got the results back from the pathologist and everything came back benign (whew). I know most studies say that these occur in women starting in their 30s. I know I am almost to that point but if anyone has more information you could offer on the subject and if me being younger then most to have this alreadyis a very bad sign for future things to come. I obviously will be following up in 6 months for an ultrasound and I will be doing my regular breast self exams. Thank you for any information

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  • I_Spy
    I_Spy Member Posts: 507
    edited May 2016

    Hi sk4521: I think it is worth a call to your breast surgeon to ask him/her their feelings about you having this so young. The breast surgeon truly is the expert (assuming they are an actual oncological breast surgeon and not just a general surgeon). I too had an intruductal papilloma, but not until I was 51 -- and it came after I had already had a lumpectomy for DCIS and lots of other abnormal changes in my right boob, my mother and her sister died of breast cancer, and I tested positive for a gene variation that is linked to higher incidence of breast cancer. So my situation is much different than yours. I do know that in general, boobs are not supposed to grow things; they are supposed to just sit there and be boobs lol. If you ask your bs, you may hear "I am not worried at all about this, we will just monitor you a bit more closely," or he/she may say "Yea, this is unusual for your age." Either way, you will know. I wouldn't trust what us chickens on here have to say about this particular matter. We are great for support and encouragement and what to bring to the hospital or how to set up your bedroom for after surgery, but this is a question I really think you deserve an educated answer to; it is a valid question and you should ask it and get a very thorough answer from an oncological professional. I hope this helps? Normally I love to jump in with an opinion, but this is a really important question and I want to make sure you get your answer from the correct source! But ask me something else cuz I want to help. :)

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  • sk4521
    sk4521 Member Posts: 5
    edited May 2016

    Thank you ipsy!!!

    He was a general surgeon :/. My breast specialist told me that this is their protocol for these types of diagnoses and referred me to a general surgeon to have it removed then send the sample to the pathologist. I live in a rural community and the nearest breast surgeon is about 3 hours from here. Would I (in your most humble opinion) be waisting my time over a benign result to go to one? I'm thankful it is benign but I wanted more or less advice on what to do now, if I went to a breast surgeon WOULD that be jumping the gun for a benign biopsy excision, etc. This website has a wonderful discussion board with wonderful help and motivation for others and I wanted to ask someone who knows way more about this either with experience on the matter or knowledge in your journey.

    Basically, what would be your opinion to do now? :)

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  • sk4521
    sk4521 Member Posts: 5
    edited May 2016

    Post a reply

    14 minutes ago sk4521 wrote:

    Thank you ipsy!!!

    He was a general surgeon :/. My breast specialist told me that this is their protocol for these types of diagnoses and referred me to a general surgeon to have it removed then send the sample to the pathologist. I live in a rural community and the nearest breast surgeon is about 3 hours from here. Would I (in your most humble opinion) be waisting my time over a benign result to go to one? I'm thankful it is benign but I wanted more or less advice on what to do now, if I went to a breast surgeon WOULD that be jumping the gun for a benign biopsy excision, etc. This website has a wonderful discussion board with wonderful help and motivation for others and I wanted to ask someone who knows way more about this either with experience on the matter or knowledge in your journey.

    Basically, what would be your opinion to do now? :)

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  • SharonMR
    SharonMR Member Posts: 2
    edited May 2016

    hi, I've just joined this group, I thought I might be some positive encouragement on here. I'm 58 ( I know I'm not young) BUT I was diagnosed at the age of 27 . I know at the time I felt very much alone. This type of forum would have been a Godsend for me. I'm STILL HEAR. we hear too many bad things about this cancer. I had 2 very young children at the time, so, I hope by me just still being here is of some encouragement to you all 😃💜💜

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  • SharonMR
    SharonMR Member Posts: 2
    edited May 2016

    what I forgot to say is to sk4521,it's never a waist of time to see any qualified person where BC is concerned. Before I was diagnosed I was told my large lump appeared to be normal! I know things have changed now. It's more so in the treatment area. Always always get further tests if your gut is telling you. If I had left my lump in I wouldn't be posting this now ? I had a good go who said I still want it out, I said so do I !

    Hope this helps 🌺

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  • I_Spy
    I_Spy Member Posts: 507
    edited May 2016

    sk4521 no it is not an overreaction. I would schedule a consultation with a breast oncologist surgeon. A lot of these you can do on the phone -- you call and make the appointment, send them all of your film and path reports, and then they talk to you on the phone. I would do that. Go online to any NCI cancer center and look at their website and I bet you will find a phone consult possibility. You can then take the data they give you and decide where to go from there; if nothing else it will put your mind at ease!

    sorry I didn't answer sooner I went to sleep haha. :)

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