Toenail issues, a year after chemo

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ksusan
ksusan Member Posts: 4,505

I kept my nails during chemo (April-June 2015), though with small areas of lifting on my big toe nails. These nails have had air pockets since chemo (and all of my toenails are somewhat crumbly). They're grown out to the point where the leading edges of the pockets are exposed at the top of the nails. The pockets don't seem to be resolving at their bottoms, though--about half my nail is still lifted. In other words, the pockets don't seem to be growing out. There doesn't appear to be an infection or nail fungus (I've never had nail fungus and I've been very careful about wearing socks at my exercise places). It doesn't hurt.

Is there something I should be doing to help resolve the lifting other than basic care and a clear nail lacquer to give them some strength? For example, should I be taping them? If so, how do I do that? Some other intervention? I really don't like the possibilities of acquiring an infection under the nail, or that it will snag on something and tear off.

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Comments

  • Peppin
    Peppin Member Posts: 29
    edited May 2016

    Hi ksusan. I have a similar problem but worse in my fingernails. I have two fingernails completely detached from the nail bed and others that are partially detached like your toe nail. Sometimes I get throbbing in my finger which subsides when I soak in a strong salt solution. I am now 14 months after the end of chemo. I am starting to wonder if my nails will ever grow normal again. I would also appreciate any advice on this. My oncologist tells me it is unusual that they did not grow normally by now.

  • debiann
    debiann Member Posts: 1,200
    edited May 2016

    I didn't lose any nails, but I did have nail trouble. After chemo the big toes on both feet became ingrown. My podiatrist said that's because chemo makes the nail curve. Both of these toes plus one other turned yellow with ridges and crumbly at the tip. I don't know if it was actually a toenail fungus, but they looked ugly. The podiatrist wouldn't prescribe anything, he said it would grow out. I'm about 18 months pfc and its still not grown out. I read that the camphor in Vicks vaporub might help so I tried it. After four treatments the yellow was gone. They still have ridges and some crumbling, but they are looking much better.

    I only had problems with one fingernail, it is still peeling at the tip, even when I use polish.

  • rleepac
    rleepac Member Posts: 755
    edited May 2016

    Mine are similar - no air pockets but they just seem to be brittle at the tips. I thought it would have resolved by now (10 months PFC) too but I guess I just have to keep waiting.

    image

  • pumela115
    pumela115 Member Posts: 231
    edited May 2016

    Hi ladies!

    I'm almost 6 years out and I did get a nail fungus in both of my big toenails during chemo. I was on lamisil two times for it and it got rid of the fungus, however both of the nails are still pretty thick. My doctor says that your immune system can't fight the infection while doing chemo. I now get pedicures, because they are hard to cut and they file them down and that seems to be working. It also feels like I'm pampering myself a little which I like and they look pretty.😃 I also heard Vicks will help, I tried for a while but I'm not very diligent about stuff like that. Sorry I couldn't be more helpful.


    Pam

  • KBeee
    KBeee Member Posts: 5,109
    edited May 2016

    I lost one nail

    Not long ago. My others are brittle

  • doxie
    doxie Member Posts: 1,455
    edited May 2016

    It may be you have a low grade fungal or other infection left over from chemo.

    I had my toenails separate during chemo and concurrent toenail fungus. The nails grew back ok but I could not get rid of the fungus. It would flair over winter and subside in summer when I only wear sandals. Vicks works great at controlling it but I may have stumbled on something else.

    I stopped eating wheat/gluten when I acquired a nasty rash on my hands related to gluten intolerance. In addition to another symptom, my toenail fungus went away. This was in February which is the height of fungal season. Totally surprised, but pleased.

  • Myraknits
    Myraknits Member Posts: 264
    edited May 2016

    I'm heading into my last chemo next week and since the last one I feel like both nails on my big toes are ingrown. Lots of pain even after soaking. The nails look normal and there's no redness or swelling, just seriously sore. I'm pretty sure they aren't actually ingrown since the nails have grown past the nail bed but that's the best way to describe the pain. Is this a common side effect

  • GraceB1
    GraceB1 Member Posts: 213
    edited May 2016

    I lost all my nails eventually. I was taking biotin as I was told that was good for hair and nail grow. If it did help I shudder to thing what I would have been like without it. Things improved over the first year after chemo but I still had major lifting on a couple of finger nail beds and crumbling. The lifting finally resolved 6 months after completing herceptin but they're still somewhat crumbly. I have to keep them as short as possible. As to pain, I have several pairs of shoes that I wore comfortably before chemo and now can't walk 50 feet in them due to toenail pain. I really need to get out and try on some new ones. I don't think the pain is going away (it could be part of the neuropathy I have).

  • Smurfette26
    Smurfette26 Member Posts: 730
    edited May 2016

    Though my nails held up well during treatment, (I iced them during every infusion), now 4 months post chemo they are sore and yucky. ksusan they look like yours. Mine are smelly. Disgusting I know. Sorry. Does that indicate a fungal infection? I showed the Oncologist when I saw him last but he didn't seem concerned and didn't offer any advice on caring for them. My right thumb nail has torn right across more than halfway down the nail despite the fact that they are very hard. My toe nails seem ingrown too and cutting them was such a chore even though I soaked them first. Pam I think a pedicure maybe the way to go.

  • AmyQ
    AmyQ Member Posts: 2,182
    edited May 2016

    It's been almost three years since my last chemo and like clockwork, I lose the same nails on alternating feet every few months (about 6) my nails just lift from the skin and eventually drop off, but by the time they do, there's another nail already growing. It's the strangest thing I've ever heard of. I've had my feet looked and no one felt I had a fungus -all agreed residuals from chemo, even though I iced too.

    Sorry you're going through this.

    Amy

  • ksusan
    ksusan Member Posts: 4,505
    edited May 2016

    Might be worth seeing a dermatologist.

  • wintersocks
    wintersocks Member Posts: 922
    edited May 2016

    I think I might have a fungus thing going on and this is 4 years post chemo. my big toe nails have some yellowy stuff going on and it kind of crumbles when i cut them. I too have sore toe nails. Does anyone know if it will go away on its own or if we have to get some treatment for it?

    I never had this before the chemo. I think I might Google this now!

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