Removing the breast

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AaronBronte
AaronBronte Member Posts: 21

My mother finished her, third cycle of chemo and well at the moment she is currently recovering not 100 % atm but recovering. We have an appointment for surgical coming up she was diagnosed with IBC but i was wondering if we wanted to remove the entire breast would that be ok ? i don't know if anyone have any advice about that ?

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  • dlb823
    dlb823 Member Posts: 9,430
    edited May 2016

    Aaron, I'm sorry about your Mother's diagnosis, but glad she's doing well with her chemo regimen. As far as which surgery to do, although a breast surgeon may assure a woman that a lumpectomy would be adequate surgery for her situation, the final choice is usually left up to the patient. The one thing I would urge you to do is to be sure your Mother's medical team is experienced with IBC, which is not a common bc. How it's handled initially -- including surgery -- may make a significant difference in outcome, and your Mother wants a surgeon who has dealt with many cases of it, which you probably won't find outside of the major medical centers listed here -- assuming you're in the US. http://www.cancer.gov/research/nci-role/cancer-cen...

    You might also want to ask your question within the IBC Forum here because the women who post there will have firsthand experience to share. Here's a link:https://community.breastcancer.org/forum/81

    Good luck. Your Mother will be in my thoughts & prayers! She's very fortunate to have you advocating for her, helping her make wise decisions! Deanna


  • AaronBronte
    AaronBronte Member Posts: 21
    edited May 2016

    She says she wouldn't mind removing the breast if she doesn't have to take anymore chemo my question is do you think there would be treatment after breast removal ?

  • dlb823
    dlb823 Member Posts: 9,430
    edited May 2016

    Aaron, unlike radiation, the decision re. the need for chemo is not dependant on whether a woman has a lumpectomy or a mastectomy, but on other things such as the type of bc, size and grade of the lesion, if it's gone into any lymph nodes, and specific factors regarding its aggressiveness. In many instances w/neo-adjuvant chemo, you are finished with it prior to surgery. Has anyone told your Mother that she will need additional chemo after a lumpectomy?

    The need for radiation, OTOH, is somewhat related to the choice of surgeries. Those who have an mx can sometimes (not always) avoid RT vs. those who have an lx and need it as further assurance any possible remaining bc cells will not regenerate in or around the original tumor site. But even some (like me) who have had an mx sometimes need RT due to specific concerns, such as a close margin.

    Hope this helps. Happy to answer any additional questions you or your Mother might have. Deanna


  • AaronBronte
    AaronBronte Member Posts: 21
    edited May 2016

    But there's no way where we could not get Chemo or Radiation afterwards ? idk it does take a toll i have heard negative things about radiation although i know little about it.

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited May 2016

    Chemo is systemic treatment; radiation and surgery are local. That is to say, the purpose of chemo is to destroy cancer cells that are floating around in the blood stream and lymph system, looking for a new home. Surgery and radiation just take out the cancer in the breast and/or nodes themselves. They have no impact on the cancer cells that have broken off from the tumor and are floating around in the rest of the body.

    There is one more systemic treatment: hormonal therapy, which seeks to deprive ER+ cancer of the estrogen that feeds it. Obviously, oncologists will only prescribe hormonal therapy if the patient is ER+.

    You haven't given us your Mom's data: size of tumor, grade, ER/PR status, or whether or not she is HER 2+. Also, it's not clear whether or not your oncologist is relying on the Oncotype test in determining whether or not chemo will be helpful to her. Hence, we can't say whether or not your oncologist's plan is typical or not for your mother's diagnosis.

    Best wishes!

  • dlb823
    dlb823 Member Posts: 9,430
    edited May 2016

    Aaron, I did radiation after my mx due to a concern about a margin and a lymph node with extracapsular extension, and I honestly didn't think it was bad at all -- really nothing to fear in most cases. Of course there are occasionally exceptions where women have complications; however, when you dig a bit deeper into those stories, sometimes there are circumstances not immediately obvious when you hear about the negative experience. I think the majority of women sail through RT w/out any problems.

    I am also highly in favor of second opinions, especially if you question or are not comfortable with anything she is being told by her docs. Sometimes just hearing something from another doc will help put it all in better perspective, even if the end recommendation turns out to be the same.

    As ElaineTherese pointed out, having more info on your Mother's specific stats will help us understand her dx, so that comments here will be more tailored to her situation.

  • Kicks
    Kicks Member Posts: 4,131
    edited May 2016

    It is impossible for ANYONE to tell you what your 'Mother's' TX might be.

    It is almost NEvER that anyone is Stage II when DXd with Inflammatory Breast Cancer! IBC is rare (only between 1% - 5% of all DXd types of BCl.

    What country are you in?

  • AaronBronte
    AaronBronte Member Posts: 21
    edited May 2016

    Hey guys thank for very much for responding to me, I will provide the information to my profile as i update my profile, i need to ask her where she has the paper with the information. Right now she is still nauseous and just vomited. I don't know if there is anything we could do to prevent this ? or to make the body feel better ? Thanks


  • Kicks
    Kicks Member Posts: 4,131
    edited May 2016

    There are MANY meds that legitimate Drs prescribe to manage nauseau!

  • BarredOwl
    BarredOwl Member Posts: 2,433
    edited May 2016

    Hi AaronBronte:

    Please have your mother call the oncology nurse tomorrow morning to report her nausea and vomiting. Perhaps if she is already taking an anti-nausea medication, and it is not working well for her, a prescriber on her treatment team might prescribe a different one or provide other guidance. People respond differently to drugs, so there can be some trial and error in finding what works best for each person. Adjustments of such medications are quite common.

    BarredOwl


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