Starting AC dose dense Monday - any tips?
I'm 33yo and will be starting AC dense dose on Monday. What can I expect for that day? Will I already start feeling the effects? Or will that come the next day? Does is really take 4-5 hours to get both? Will I feel better by the second week? Also, should I expect the same side effects each time or will they get worse with each round? Sorry for so many questions
Comments
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When you get there if they haven't done recent CBC and CMP lab work on you you'll get labs done. While waiting for results for that they will take your weight and vitals. They send this info to pharmacy and they prepare the chemo. That usually takes up to an hour. About 1/2 hour or so before you receive chemo they give you premeds which are mostly to help with nausea. Adriamycin is about 15-20 minutes to infuse. Cytoxan is about a couple hours, so plan on being there awhile. 4-5 hours sounds right. It also depends on how busy they are. Mine was short staffed so a couple of times I was there longer. Don't plan for anything too close afterwards just in case.
Monday (day of chemo) you won't feel much of anything. First dose. The next day for me at least was some nausea starting to creep up. Drink tons of liquids (water, broth..) and take your nausea meds even if you don't feel it on schedule. Chemo is only working for an hour and it takes 48-72 hours to leave the body which is why the first 2-3 days after drinking is more important than eating. Fatigue was another than slowly set in. Many had issues with constipation too. Prunes was my friend during those times. Chemo is cumulative so as you get into it the SEs can go up. I was very lucky with not having it as bad as many. And my #2 was the worse one over #4 so it doesn't always follow the last one will be the worst SE. For me the first few days after the first day after were the worse. Theoretically you get better the further out but again, it varies with person and also which dose. You'll get an idea of how your body reacts after your first dose but the others can be different. The only thing that didn't let up as I went along was fatigue but I got through it. I've been in this entire journey by myself with no help so it is doable. But if you do have help enlist them when you need it.
Are you getting Neulasta the day after? This helps boost up your white blood cell counts which take a dive with chemo and compromises your immune system. You may want to ask about it if you haven't already. The SE from this shot you get the next day is possible bone pain but you take Claritin the night before, day of and day after the shot.
Good luck. East a small breakfast before you go and take snacks/water if your center doesn't have much in the way of this.
PS: Join the May 2016 chemo group to follow along with others together. Sharing of info helps in such threads.
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Thank you Artista for all your advice and info! I am suppose to get the Neulasta injection, but the scheduler said sometimes insurance doesn't cover it saying the person is too healthy for it. Crazy!
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My MO fought for it as she's very pro patient care. She said it's either the shots or being admitted to the hospital with infection after educating them on how your immune system is compromised during chemo. They may have to push and should. The office should be able to tell you if it's auth'd on Mon.
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hi Arista and oaj,
@oaj: I have been reading your posts on the May 2016 forums and then decided to find out details on dose dense AC chemo. Thankfully you already started this thread too!
@arista: thanks for the tips!
My experience with the dose dense AC started within a few hours. I am achy all over and cannot eat. soup is a good idea. And I think I can handle eating fruit. I have read fruit should be avoided for a few days after chemo. Any truth or validity to this?
Thanks for all the helpful input! Hope you all have a great weekend!
Laura
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Hey OAJ2013, I did the same chemo treatment as you. I am 35 years old. I felt ill within the first few hours. I found the first 3/4 days to be the worst- generally feeling unwell, drugged up/spacey, metallic taste in mouth, real sense of strong odours, sick feeling and tired. By the second week, I was absolutely fine and back to normal. I wasn't tired, I could do exercise and then the fun started again..when I got the next AC administered. I started losing my hair by 15 day and shaved it off.
The dose dense is a good option though, it goes so quick, that now I'm 3 months out it seems like a distant memory and it will for you soon enough 😀 -
Thanks Lottemarine! This week has not been too unbareable just really exhausting. Yesterday was the hardest, I was so tired I almost felt depressed. Just saddened at not being able to really get up and go which is totally unlike me! Today, I already feel better. Obviously, we want our bodies to have a break, but I'm ready to just get on with the next round and be done with this all! Did you do weekly taxol after
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My MO didn't say stay away from anything. She was more concerned I get something down, with a big focus on protein. Every MO has their ideas so that being the case if it's so personal with them I don't take it seriously. If it was a big no then they'd all be on board. I trust my MO as she is certified and has a PhD in oncology as well.
My RBC was low so she put me on ferrous sulfate type of iron. I took/take Alive Women's Energy, calcium and Vit D. I believe that's why I didn't get so sick/sidelined like many of my fellow sis did at the time. You aren't eating right so you need to supplement, imo.
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Hey OAJ2013, i did fortnightly taxol for 8 weeks.
Most people say they do better on taxol, but I found I didn't. I was a lot more tired and had muscular pain for the first 3-4 days. By the second week i found i was better, but as time went on it took a lot longer to bounce back. It was probably the accumulation as well of being on AC and then taxol, its a lot for our bodies to deal with.
I found I had to have regular afternoon naps by this point and rest when my body needed to.
I also found it harder to exercise and I remember my nurse saying I had to push myself a bit, even a 30 min walk a day, as it actually counteracts the tiredness. However I did find the general unwell feeling on AC in terms of metallic taste and sickness, to be nonexistent on taxol.
Let us know how you get on 😀 -
Hi ladies. This has hit me like a ton of bricks. I can't eat and feel faint and nauseous. Would appreciate tips on eating. The only things I can eat are fruit and soft boiled eggs. I had some mango cantaloupe and oranges. I had no idea this would be so hard. I am sleeping a lot too.
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Hey Laura, I'm so sorry you are unable to eat much. I have not had the same SE, so I'm not sure what to suggest. Did you get my private message of all the meds I took? Did your Drs give you enough anti nausea meds? They gave me Dexamethasone, Zofran, Reglan, and if needed lorazepam. I only needed the Dexa and Zofran. I also make sure to eat small meals often. Good luck.
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hi oaj. I think the trick is to eat early and often. I am feeling better after eating today.
To everyone reading this: it is very important to keep up your strength by eating. I fell asleep for hours after the initial AC and didn't eat dinner. Then there was a bad cycle: I was nauseous and took the nausea pills but fell asleep while waiting for food bc my husband would start making food after I took the nausea pills. Then when I woke up I was both hungry and nauseous again. Needless to say it was not a good situation. Earlier today I almost fainted.
I have never felt so down and it is obvious I underestimated chemo. For the next chemo I will make soup and broth and veggie dishes beforehand. I am looking for a personal chef for a few weeks. Anything to get through these few weeks.
I had nausea during pregnancy but this is something brand new on a higher scale. I am so sorry and sad for those who deal with this alone. I have my mom and my husband with me and of course my son. But we are barely surviving bc I am so down.
Also one more piece of advice which I should probably put on the just diagnosed board. Do not have your chemo start too soon after the chemo port surgery. Mine was less than two days before chemo started. I have a lot of pain there and it doesn't help with the chemo symptoms. Also doesn't help that my son still likes to climb on top of me when he sees me lying down. Not sure if the aches and pains are from sleeping funny on my side or from the neulasta. Sorry this is such a downer message. I just want to share my experience in case anyone can learn something from my many mistakes. Xox and hugs everyone.
Laura*
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Ah Laura, Sorry to hear you've having a difficult time, but know that nearly everyone who experiences chemo, feels similar. I'd say your aches are from the chemo drugs. Try having epsom salts in a bath and also manganese supplement pills, i found they work wonders! I also found going out for 30 mins walk a day actually helped with achy muscles, its sounds strange, but getting out and about was good for me mentally as well. I had horrible metallic taste in mouth from AC for the first few days after chemo was administered, i found i probably ate a bit less, but made sure it was nutritional (green smoothies etc) and what my body needed. I stuck to bland food, like chicken soup etc.. the blander the better. Fruit is fine, i found watermelon great for getting riding of the metallic taste. Make sure you stay away from grapefruit, apparently it can cause adverse effects on BC, which is not what you want.
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Lottemarine. thanks for the tips. I will definitely try the Epsom salts and try to find the manganese pills.
Just to help others learn from my mistake: be proactive. Take the nausea pills at the first sign.
All of the health issues I ever had came up during chemo: had a little nausea during pregnancy and got that again badly. Have had dizzy spells when not eating and got that with chemo. I Get cold sores when stressed and got one of those too. For the cold sores I put a dab of witch hazel with a cotton swab and the blisters are not growing thankfully.
Going into the work today though!
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ladies,
so how are you doing? i am ok but not like my usual self, i feel as if i am walking in a fog. i can go through the motions but i am just not there...i called the nurse and told her about the chest pain and she thinks it's the neulasta not the chemo port
*
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Today, I started my period and am feeling very lightheaded. Not sure if it's from my period or just from doing too much yesterday..
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I really liked frozen fruit bars while I was on AC . They had some nutritional value and were soothing to my dry tongue. I also kept water or Powerade at my side and sipped on it frequently
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Was going to mention the water too. I never slept after mine and was constantly drinking water and I think it helped me a lot. The "red devil" urine would be at most showing 2 times I drank so much. I also took all my a it-nausea meds exactly as precribed and never had nausea. I would nibble during the day. Of course in week 2 the horrid indigestion would start.
I will be doing my last Taxotere in 2 weeks. One thing is for sure with both regimens I had, the SE's cycle through each treatment almost exactly the same time and get no better (dealing with the mouth sores now)
Hydrate is the number 1.I can't do water as much now so always have ginger ale that I made flat as well as flavoured vitamin water.
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hi oaj. I got my period on time the day after chemo. I had a horrible horrible next few days and was very faint and lightheaded. Keep up your strength by eating as much as you can. Good luck! It gets easier day by day. Hope you feel better soon.
Karen and keepongoing: I have 3 glasses of water at my bedside to get me through the night!
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Hello ladies I'm so nervous reading y'all comments but I will get true it... I'm starting chemo may 23 and I'm asking God for strength to get true it.. hello Karen I'm on the same as you Cyclophosphamide and Epirubicin for 2 month how was it what the side effects?
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I just finished 4 treatments of Ac now I started taxol . Don't forget to take the nausea pill before what they give you wears off I did and was real sick during the night but only because I forgot that pill you'll get through it I just ate a lot if small meals as soon as I felt hungrey I ate also I was told to take a Claritin everyday because the shot you get the next day is suppose to give you body aches and for some reason Claritin helps my Ac took about two hours and I got through 4 treatments you can do it
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bmg and everyone else
What did you take for indigestion? That's what I have constantly.
Also I still have nausea even tho the chemo was a week ago. Should I keep taking the pills? It's 10 pm and I am nauseous. I am not planning one eating so I was wondering if I should try to go to sleep or just take the nausea pill.
Thanks. Laura
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I took Zantac all last week bc my indigestion was so bad! It helped, but some nights it was still hard to eat. If you're still nauseous, I would take the meds. No sense in being miserable
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Brandford the FEC (first 3 chemo ) were much much easier than I ever anticipated. Drink lots of water, all the time. Follow times to take anti nausea meds and start taking a laxative the night before chemo for a few days. I was shocked how manageable it was. I was never sick, just tired from the small crash off the steroids on day 4. Taxotere is a bit of a different story, not as easy but certainly doable. Again follow all times to take meds, and include clariton if you get the neulasta shot
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I took Gaviscon liquid for indigestion. Never really had to take nausea pills beyond days prescribed except once or twice just for assurance. I was told to take them whenever I even started to feel nauseated to keep on top of it. I would recommend the same
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hi ladies,
So my personal experience with dose dense AC #1: I felt back to normal after one week. Remaining Side effects are fatigue, inability to eat spicy food, chest pain.
I went shopping for a wig Friday and Saturday and picked one out. It was a severely jarring experience for me. Please ship for the wig early and call ahead. A lot of places told me I needed an appointment. One place I went to basicalLy would not even show me one wig since I didn't have an appointment. Btw even synthetic wigs are expensive and I don't know why. I got one for 325 and it's nothing spectacular. The wig doesn't feel that great on my head either. And finally I looked for wraps and turbans to have around for the house. Again they are expensive and the ones available in stores are not exactly the glamorous ones. I paid 25 for a bit of polyester nylon. I am not complaining just honestly telling you what I went through.
Tmi alert: it's been 11 days since the chemo and my pubic hair is falling out. I would not normally share these details but we are all sisters in this together and this it may help someone be emotionally prepared when it happens. I was not expecting it and I felt a severe shock since I had never read this anywhere or heard about it from anyone. I truly want to help you (the ones reading this) in any way I can during this very difficult time.
Hugs.
Laura*
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Hi Ladies,
I hate that we are all going through this but am extremley grateful for forums such as this. I am 32 was diagnosed with triple negative invasive dutal carcinoma on march 31 2016. As soon as I left the hospital with my best friend, we ate our way through montreal. I wanted to feel normal for the afternoon and not worry about anything other than tasting everything lol.
I started AC chemo on May 5 and I feel great. My husband and I together shaved my head in order to get ahead of the chemo, it really was cathartic. I have only had one round so far and go again this week as i am one week on one week off. 4 rounds followed by taxol and some other one i have not heard of before. I have to give myself neupogen shots everyday. I feel great though. maybe becasue I am still working everyday and follow a vegan diet and take lots of vitamin D and B12. I walk everyday to keep my mind clear and my body strong. YES VEGANS GET CANCER TOO! DO NOT LET ANYONE CONVINCE YOU OTHERWISE
is it just me or is anyone else annoyed with the lack of stores that carry caps for cancer patients? I do not want a wig and am ok with being bald but i work in a restaurant and do not want to scare anyone lol
I haven`t taken any of the meds that they gave me except for the magic mouth rinse. Staying hydrated and drinking protein shakes are very effective. Sleep well and eat well, practice breathing exercises, i`m hoping I will continue to feel well through out this journey, A positive attitude goes very far.
Best of luck to all of you!
ps never be afraid of sharing the tmi stories. you`re not alone!
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Hopefully this list could be helpful (we're collecting tips from our members!)
Things to purchase BEFORE you start Chemotherapy
1. Buy the best food
Fresh fruit likes pears, apples, berries, bananas
Dried fruits like prunes, dried apricots, raisins, figs
Prune juice
Nuts like almonds, pecans, and walnuts
Lemons or limes to add to water
Grains, cereal, and pasta with high fiber
Unsweetened applesauce
Fresh, high-fiber vegetables like carrots and broccoli
Protein and iron-rich roods (nuts, fish, tofu, nut butters, meats)
Crackers
Sugar-free gum/candy/mints
Tea -- all different flavors!
2. Get things for the kitchen
Plastic or bamboo silverware
Supplements: Some dieticians recommend Calcium Citrate, Magnesium, Vitamin D3 to combat bone loss
Freezer storage containers so you can cook and freeze meals ahead
Rubber gloves for washing
3. Hygiene
Biotine oral wash (plus one in travel size)
Unscented moisturizer (plus one in travel size)
Sunscreen: Visit the EWG sunscreen guide
Lip balm
Hand sanitizer (plus one in travel size)
Toothbrush sanitizer
Packet of new toothbrushes
Waterpik (in lieu of flossing)
Pack of flushable moist wipes
Squirt bottle for cleansing irritated skin/privates
Tissue box and on-the-go tissue packs
4. Cleaning
New or washed shower curtain liner
Lint roller for pillow
Disinfecting wipes (e.g. Clorox or Lysol)
5. Medications
Artificial tears for dry eyes (Renew or Similasan)
Immodium
Acidophilus capsules for yeast infections
Laxatives such as Colace, Miralax, or Senekot
Pain reliever such as Tylenol or Ibuprofen
Regular Claritin (for joint pain)
Pepcid AC or Nexium reflux/indigestion
Thermometer
Blood pressure machine
Ask your doctor about an anxiety medication
Ask your doctor about a sleeping medication
6. Comfort
Soft, seam-free hat for sleeping
Satin or silk pillowcase
Slippers
Hair net
Comfortable, stretchy pants, and cozy sweaters and shoes
A wrap, pashmina, or blanket
7. Practical Tips
Have a hair plan if you are going to lose it: Cold caps, wig, scarf. Consider getting your hair cut short before treatment.
Discuss fertility preservation options with your doctor, if relevant.
Get your teeth cleaned before treatment begins.
Order a temporary handicap placard
Talk with your employer ahead of time about time off, and Family Medical Leave Act (FMLA) forms.
Automate your bill-paying
Consider organizing cleaning help
Hire someone to help mow the lawn or take care of your garden.
Start a blog or CaringBridge site to communicate and organize logistics
Get thank you cards for the gifts and meals you may receive.
Get a refillable water bottle for carrying around
Gather plenty of good reading material
Download movies onto a laptop or tablet
Download favorite music and consider a meditation CD.
Prepare a "chemobag": Assemble a small, portable, makeup-type bag that includes some of the stuff that's good to have on hand when you're out and about: Digital thermometer, Tylenol or ibuprofen, toothbrush, toothpaste, breath mints, lip balm, unscented hand lotion, eye drops, antibiotic ointment, sanitizer or hand wipes, saltines or animal crackers, tissues, thin cap to ward off any sudden chills, mouth rinse, Maxi pad in case of any port or drain mishaps.
Looking after yourself during chemotherapy
Plan your infusion-day clothing well: should be comfortable and have elastic band.
Exercise, or move around, every day to give you more energy and lift your mood.
Moisturize whenever possible. After each shower, cover yourself in a high quality, paragon-free, hypoallergenic moisturizer from head to toe.
Stay hydrated by drinking lots. Make it interesting by adding lemon or lime.
Wear slippers around the house, especially if you have hard floors to prevent neuropathy. Forget about wearing heels during chemo!
Sleep, rest, sleep, rest!
Plan something special that you can look forward to after each chemo.
Make a point to laugh and also to relax as much as possible.
Support your immune system with iron- and protein-rich food
If getting infusions, download movies on your mobile device and don't forget your headphones!
Infusion tips
Some chemotherapy medications can be hard on the veins. At some hospitals, women may automatically have a port surgically installed. Others may be given the opportunity to use their veins with an IV.
If you can use an IV, the goal is to keep your veins in good enough health that you can use them for all 8 treatments. Another goal is to 'start low' on the arm so that if one vein is blown, then they can work their way up. A nurse can go to a higher vein for attempt number 2, but she cannot go lower.
If you're getting a port, the nurse may clean the port by injecting Heparin into it. A horrible taste can sometimes be avoided by holding your nose while the Heparin is injected.
A numbing agent may make entry in and out of the port less painful.
Nail care tips
Some women swear by the OPI Nail Envy and Avoplex cuticle treatment set: http://www.amazon.com/Opi-Say-Hi-to-Fortify/dp/B00F6MNCGQ/
Use the Nail Envy as directed, and apply the Avoplex twice a day or more often if you can remember. Keep one bottle of the Avoplex, one at work, and one at home.
Keep your nails very short to avoid snags and tears.
If you are going to get a manicure or pedicure during chemo, you'll want to bring your own tools. Even if you are not, you should probably at least have your own nail clippers or scissors at home that you do not share.
If your treatment will be turning your nails black (e.g. sometimes seen with Taxotere), then paint them a dark color before starting the treatment! Also ask about ice gloves that can help nails not turn black or fall off.
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Well ladies, I made it through the first round and start my second tomorrow! Overall I was tired, had heartburn, and my feet are starting to tingle. Being tired was the hardest part since I have two young ones. I felt like a failure of a mother most days. No hair loss yet, but I did read that pubic hair is the first to go. It will be nice not to have to maintain down there! Haha. My head was super sore, almost felt bruised the other night, so I assume it's getting close to start falling out. I feel more anxious for the second round than the first now that I know what to expect. I didn't have that bad of SE, but I'm dreading the exhaustion already. But hey, if that's the worst, I'll take it. Love and prayers to you all
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hey everyone.
if you chew on something cold during the infusion, it helps to avoid the mouth sores.
Congrats to everyone who already did one or more doses!
OAJ: I wore a camoflage skirt and tank top to my first chemo and went out to eat afterwards. For the next one I am bracing myslef to not run out screaming when they inject me. Now I know why everyone brings a support person!
But I am happy to lose the hair esp down there! the hair loss is a sign the chemo is working!
Hair grows back. Remember Ella from "the gift of the magi"!
Life is still good. We have clean drinking water and food unlike many others.
Laura*
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Ladies,
i have a technical question: anyone else with high eosinophils counts? i have had this finding for years and it's still high.
dr. google suggested it's my body fighting cancer. just want to know if others have it. i will ask my onco and report back when i see her.
i have access to all my patient records so i just went through my blood work results and saw the eosinophils were double what they should be.
laura*
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