Fearing Chemo
I am new to this forum and was happy to come across it! I had a mastectomy a month ago and it looked as though my treatment plan was going to be taking oestrogen blockers for 5 years but the result of the mammoprint came back on friday last week as High Risk. Everything else is negative; lymph nodes unaffected and the only reason that they did the mammoprint was because it was a grade 2 cancer. When the doctor told me that 4 sessions of chemo would be a good option, and she saw that I was visibly upset, she said that the other option was to just have the tablets but that the chemo would increase the probability of the cancer not coming back in 5 years from 80 to 90%. I am really concerned about the side effects of chemo and the effect it will have on me and my 2 kids (I am a single m mum of 2). If the cancer was not in the lymph nodes, and it is 80% Oestrogen receptive, then surely with oestrogen blockers, it will be enough to stop it? Anybody had a similar experience? I should probably do chemo but i am concerned about pumping loads of chemicals into my body for 3 months.
Comments
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Hi Jane75,
First of all, I am so sorry that you are dealing with cancer.
Sometimes the cancer (especially a high risk cancer) escapes the tumor through the bloodstream and not just through the lymph nodes. You have to think about this at the very microscopic level. A single cell may have escaped and may be circulating in your blood and may set up shop somewhere else in your body later on. For high risk cancers, you really reduce the chance of it coming back through the addition of chemo. I had chemo, and it was nowhere near as bad as I thought it was going to be. I was by myself with my (at the time) 7 year old twins, and also continued working. Also, if you go 10, 15, 20 years out, the chemo continues to reduce the chances of the cancer coming back on a very long term basis, and the 5-year statistics do not include this latent effect.
In my opinion (and this is my opinion only), the best thing you can do for your kids is to do chemo for the next few months so that you can reduce your chances of this cancer coming back, and be there for your kids for many many years to come.
By the way, anti-hormonals are also very powerful drugs, but in high risk cancer, the addition of chemo makes a big difference, especially in the long term.
Best wishes to you.
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Thanks for that! I have heard lots of mixed reports about chemo and was worried about being completely knocked out for 3 months!
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Jane,
I had five months of chemo, and continued working throughout it. But it wasn't easy. I was lucky I was able to work at home and that I had a network of supportive friends and colleagues. Some women find chemo doable; others suffer from fatigue and other side effects. Some even end up hospitalized from infections and dehydration.
I was surprised that I did fairly well on chemo, but I wasn't Superwoman and I wasn't running marathons or anything. If you decide to go the chemo route, hope for the best and prepare for the worst. Setting up a network of friends/family to help you out with meals, picking up the kids, or house cleaning is highly recommended. Best wishes, whatever you decide.
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Jane75 do you know which chemo drugs they are recommending? I was also a grade 2, high risk mammaprint, and had four rounds of Taxotere and Cytoxen. It was not nearly as bad as I anticipated, and was able to work most days. Good luck!
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Glad to hear it was not as bad as your thought! will check which drugs they will use.
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So very sorry you have had to join us here Jane75. My oncologist recommended chemo so I did it. Personally I had a very difficult time and was hospitalised but not many people experience such severe side effects. Unfortunately all of our drugs have side effects including anti hormonals. It's a huge decision and only one you can make. Whatever you decide I wish you minimal side effects and a long, healthy life with your children. Hugs Donna.
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Hello! They want to give me Docetaxel and ciclofosfamida. Side effects look pretty grim and my doctor has no way of telling me how I will tolerate it.
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