April 2015 Chemo Crew... Starting in April? Please join us!

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  • Scarlett152
    Scarlett152 Member Posts: 175
    edited April 2016

    Good luck Little Blue! I just did fat grafting in March. I found compression binder and spanx really helped with swelling and recovery, even though it was not so comfortable!

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited April 2016

    Oh nice! I'm in spanx! How long did you compress for?

    Fran, how are you lady???? Thinking of you!

  • Scarlett152
    Scarlett152 Member Posts: 175
    edited April 2016

    About 3 weeks, although sometimes I had to take a break, especially at night. Too much chafing! I had no bruising. I also took arnica, chlorophyll, and Gota kola which I'm guessing helped too.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited April 2016

    Reporting back from the lipo trenches....zero pain, spanx are itchy, tiniest bit woozy still. PS just called to check on me, and said he got quite a bit of fat injected, and 2 or 3 more times and I may have a perfectly flat stomach! Silver lining! Another weird thing-I have been having neck, jaw joint, and armpit tightness and pain. My MO did an ultrasound and said it's just tight muscles and cording. Well, woke up today with no pain from cording! Guess all it took was a grease injection! Feeling very cautiously optimistic....drinking lots of protein and veggie smoothies, popping bromelian and zinc and probiotics. We shall see! Radiated side already looks better. Go stem cells go!

  • lovlilynne
    lovlilynne Member Posts: 405
    edited April 2016

    Hi Ladies, I haven't been on the db for weeks, I guess that's a good sign that "regular" life has taken over.

    Fran, so sad to read of your setback - yeesh, WTF? Trying to see the positive in that they found it - kudos to surgeon, Thinking of you.

    Re: hot flashes, I get this mini hot flashes. They come on suddenly, and I just feel hot all over and usually have to take my fleece off and I'm better. I realize that this is not too bad as far as hot flashes go. The rest of the time I'm cold. I'm still wearing sweaters and my fleece at work.

    I finished up with my physical therapy at the end of March. I'm not sure that it really did anything - hard to tell, my feet are not better, but not worse? I bought some Oofos slides and clogs to wear for support and comfort. I also bought some ceramic socks to wear at night, but I haven't been very good about remembering to wear them, so cannot say for sure about effectiveness - they did seem to help when I did wear them.

    Last fall when I had my eyes examined, I got a prescription for glasses for myopia. I had Lasik done in 2008, so I scheduled an exam with them to see if I need an enhancement. He said that he thinks my issues are more with dryness and prescribed Restasis - is anyone else using it? He prescribed OTC drops every 2 hours until the Restatis kicks in (guess it takes a month), then I can drop down to 2-3x a day. I knew my eyes were dry, but not so bothersome to do anything about it, and my other doctor didn't seem so concerned. Part of me wonders if it's just the Lasiks place trying to get out of doing an enhancement.

    Tamoxifen has been a non-issue for me, I have had few to no side effects. I still have a bit of a dry mouth, but that could be from my other medications. I've stayed in "chemopause" - LMP was Feb. 2015, so officially done.

    I don't feel like I've regained my pre-cancer energy. If I have one bad "side effect" this would be it - exhaustion. I need to lose about 50#, but just cannot muster up the energy needed to exercise regularly. I'm barely keeping up with work, house, meals, kids activities, laundry, etc. It doesn't help that my work sucks. I'm trying to do something about it, but boy, when you have a health issue, you feel a bit trapped with medical insurance, etc. TG no more "preexisting condition" issues, though, right?

    On a fun note, my daughters and I had a good time in Florida last week. Oh, and does anyone watch "Homeland"? DH and I started binge watching it a few weeks ago, and we are hooked.

    TTYAL,

    Lynne

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited April 2016

    Littleblue, you need to hydrate like crazy...alternate water and electrolytes. Your tissues are going to suck up your fluids while they heal and leave the rest of you dry. I used Arnica too (there is both a tablet and a gel form available). Also, it's kind of a 'pain honeymoon' immediately after fat grafting. My pain was at its worst 5 to 7 days after...bruising at its worst by about 10 to 14 days. Also...Target caries Jocky brand high waist 'shapers' that are easy to wear and slightly more comfortable than spanx. The compression really does help you heal and reduces swelling so you can see results faster.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited April 2016

    Thanks Dizz! Good advice. I was wondering if there was some more comfortable option out there. Good to know it's gonna get worse befor it gets better lol. That will keep me from freaking :) did they give you oral antibiotics after your fat grafting?

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited May 2016

    No oral antibiotics...they may have put some in my IV overnight. (I was kept one night since they were also doing stage 2 of the DIEP process.) I hope you're still feeling great! In case you're not, I forgot to mention that Ice bags were awesome after Fat Grafting. I did on/off 5 minutes at a time anytime I felt uncomfortable.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited May 2016

    Hi Dizz! Yeah, my PS must not have taken too much fat from me. I just feel like I did a bunch of situps. Really, the compression shorts are the worst part- punched myself in the nose when I tried to pull them up just now. PS said they gave me IV antibiotics during surgery, so I don't need to take the oral antibiotic now. Guess it was just to cover their bases. Do you know how long it takes befor they know if the grafted fat will take root and grow? I can't find much online. Hope you are doing well! :)

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited May 2016

    I hear you about the compression shorts....most uncomfortable article of clothing ever. As far as results, you'll get a good idea of what you are dealing with once the swelling goes away. However, from what I understand, there are many factors from then on that determine how much of the fat sticks around and how much reabsorbs or dies. Some women are told not to do anything other than walk for 6 weeks. No jogging, no lifting, nothing that messes with body composition for six loooonnnngggg weeks. My P.S. was a little more lenient and said nothing for 2 weeks and then no high intensity stuff (like I'm able to do that anymore?) and very light on the weights until 4 week check up. All restrictions were lifted at 6 weeks. Trying to figure it out online is confusing. I'm at about the 7-8 week mark. All swelling is long gone and I can see areas where the fat obviously filled in some 'divots' and other areas that were once swollen, but are now hollow again. When I saw P.S. a couple weeks ago, he was able to tell me that I'm most likely in for at least 1 more round of fat grafting, potentially 2.

    I'm glad that you aren't hurting too much. If you end up needing another graft, you won't have a horrible memory to look back on.

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited May 2016

    Forgot to mention, I had fat taken from abs, flanks, hips, and back of thighs (under butt). My worst pain and bruising was the under butt part. I was sore around my waistline, but nowhere near as bad as my thighs. Putting those shorts on over my thighs was a nightmare. next time, we're grafting from the inner thigh.....I'm already crying just thinking of the pain. Silver lining....I guess I'll be getting me some 'thigh gap' in my search for less hollow boobs.

  • Fran2014
    Fran2014 Member Posts: 140
    edited May 2016

    Hi All-Thank you all for checking on me. Seriously, it's so nice to reconnect with everybody-you all are so sweet and caring!!! First, off-OUCH Dizz-holy crap none of that fat grafting sounds too pleasant-hang in there! I'm happy to report that I'm back to zapping those freakin misbehaving cells again. Tolerated my "double dosing" of Herceptin/Perjeta very well last Thursday (although the stupid port was "clogged" for several hours b/c it had not been used in 4 months-never a dull moment!). I have an appointment on Friday morning to see if I'm a candidate for Proton Radiation (whatever that is). Don't think I'll hear anything about the clinical trial for several more weeks. I can't tell you how wonderful my co-workers have been & what a saving grace it is to be at work and distracted from my own nutty thoughts. With only 35 more school days left, I get there and I'm all-consumed with everyone else's issues-it's kind of nice!!! I must say, I am very blessed with fantastic people all around me (you all included!!). Decided to make summer vacation plans and see how it rolls as we go. My kids have always wanted to "cross the border" (yes, they are wacky!!)- so we are going to Quebec City in July! How about you all-any vacation plans yet????

  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited May 2016

    Fran, I have heard great things about proton radiation. A friend of mine is getting this type of radiation right now. So glad you have good support ... We are here for you. No matter what, this is a longer road than anyone planned for.

    Compression shorts, Dizz and Littleblue? Sounds like some interesting ordeal...I am trying to wrap my imagination around that one

  • AndreaC
    AndreaC Member Posts: 220
    edited May 2016

    Hi all -

    I haven't been on here for a while, but am caught up on your posts. I have been quite interested in the fat grafting experiences, Dizz and littleblue...I will be undergoing that as well once I lose some weight. It's tough on vacation but we go home in a couple of days and I will get back to normal. My PS is great and assures me I will have a nice flat tummy after all is said and done. I am so looking forward to having cleavage again!!

    Fran, I am on the other end of the country from Quebec City but have been there a couple of times and loved it! It is so beautiful and very European-looking. My vacation plans are happening right now...Spain and Portugal for the past almost 3 weeks. It has been lovely!

    Wishing you the best...always.

    Andrea


  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited May 2016

    Hi Dizz- yeah I will 100% need another grafting session, maybe 2. :( Wondering if I shouldn't save some fat for touch ups later? Do you know if they can use a donor site multiple times? Really, I'm the worst patient, though. Yesterday I had a melt down just from the frustration of not being allowed to do my normal routine. So, I'm really hoping this fat takes and I only need one more session at the end of the month.

    Andrea, it's not that bad though! I'm just a huge whiner when it comes down to it. I haven't had any pain, except from the stupid Spanx!

  • ksusan
    ksusan Member Posts: 4,505
    edited May 2016

    http://www.naturalmedicinejournal.com/journal/2016...

    Breast Cancer and Fat Intake

    A history and critique of our understanding of the relationship between dietary fat and breast cancer risk

    By Jacob Schor, ND, FABNO

    Abstract

    In the 1980s national policies directed at lowering fat consumption emerged. One of the many reasons for recommending fat restriction was the apparent association between high dietary fat and breast cancer incidence—an association based on epidemiological and case control data. We now know that epidemiological studies and case controlled studies are poor predictors of how dietary patterns influence cancer risk. Furthermore, newer, prospective studies no longer support the association between dietary fat and breast cancer except in a small subset of cancers. This paper reviews the evolution of the evidence on fat intake and breast cancer risk.


  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited May 2016

    Aaaak! So what I glean from this, is that a low fat diet might be helpful for us -3 ladies, but that we should swill olive oil like sailors on leave? Or maybe we should just lose weight? Does that sound about right, ksusan? That is for posting this!

  • ksusan
    ksusan Member Posts: 4,505
    edited May 2016

    Losing some weight while swilling olive oil sounds like a neat trick.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited May 2016

    Right? Well, its good info anyway. Just not sure how to apply it IRL. :)

  • Fran2014
    Fran2014 Member Posts: 140
    edited May 2016

    Hope all you great moms out there had a wonderful Mother's Day!!!!


  • KBeee
    KBeee Member Posts: 5,109
    edited May 2016

    Happy Mother's Day Fran! How are you doing? I have been thinking of you. Do you have a plan yet

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited May 2016

    Yes. Very hard not to put on the pounds while swilling olive oil. However, this makes me feel better about all the kalamata olives I graze from the fridge. Same thing about Avocado oil. So those chips I bought made with Avocado oil are good for me.....okay, maybe not. But I feel better and less deprived having my weekly PB&J date with DS each week. Once a week we've always had a weekly PB&J date. When it's cool enough, we pack it up in a picnic and head to the park. Since we've 'cleaned' up our pantry, now it's natural peanut butter and non-HFCS Jelly on whole grain bread), kettle potato chips fried in avocado oil, carrot sticks, and chocolate avocado brownies.


    So 15 months ago, we lost both our dog and our cat to old age (16 and 20). Six weeks later, I had BC DX and it seemed like the universe was just crapping all over us. Eventually, we realized how much easier our lives were (dealing with BC treatment) without nursing our senior animals. Every once in a while we'd get an emotional pull that made us want to get another dog, but mostly, we've enjoyed being able to travel and run around town without worrying about the animals waiting for us back at home. So, last week, we had a few days of Springish weather and everyone was walking their dogs around the park. In a moment of weakness, I asked DH if it was time to think about adopting another dog. To my surprise, he was all over the idea and so was DS. Well...like a snowball rolling down hill, this idea hit it's momentum pretty fast and now I introduce you all to LIZZIE!

    image

    Ya'll! Don't get me wrong, she's super sweet and such a good girl, but WHAT THE HELL WAS I THINKING! We were so free. We could stay out all day and go anywhere we wanted on a moments notice and now we're all tied down again. DS loves her. She slept all snuggled up to him last night. He's been having so much trouble sleeping since my DX and is always wanting DH to sleep in his room with him. So, maybe this will help DS feel less alone at night and improve his sleeping. DH has been feeling a little bit of what I've been feeling too, but we are both animal people and so that emotional tug is just too much for us. We feel so guilty feeling any regret for deciding to get a dog.

    So, we now have a dog again. We're going to get her acclimated to our local animal boarding/doggy daycare facility right away. Since she's young and healthy, she shouldn't be as much work. It's not like with our senior animals (bladder problems, medications for chronic illnesses, etc). It was hard and expensive finding places to watch them when we were away. Fortunately, so far, she's quite a couch potato and sleeps in quite late. We'll see how long that lasts. Our biggest issues are that she only wants to eat dog food if we feed it to her by hand and she broke out of 2 crates yesterday while we tried to introduce crate training. Apparently crate training isn't happening.

    Poor dog was abandoned in an apartment with 14 other dogs (6 of them were her nursing puppies). The Humane Society took them in early April. The puppies were taken from her early last week after they were weaned and then placed into foster care until they're old enough to be put up for adoption. She was spayed on Wednesday and we found and adopted her on Friday. She's had one hell of a Spring. I hope we can help her feel more secure and part of our family.


  • KBeee
    KBeee Member Posts: 5,109
    edited May 2016

    Congrats on the dog Dizz! She's cute! Furbabies do wonders for us emotionally

  • Rpayton
    Rpayton Member Posts: 235
    edited May 2016

    Congrats on that new furbaby! They are the best therapy. I love doggies too but my preference is kitties. They are low maintenance for freedom to leave home, incredibly funny to watch, and super relaxing for the blood pressure.

    Hope you allenjoyed mom's day. May is going to fly by pretty fast and memorial day will be here before we know it!

  • Fran2014
    Fran2014 Member Posts: 140
    edited May 2016

    Hi KBee-had a really nice (yet busy) Mother's Day weekend overall (thanks for asking). Friday my DS surprised me by coming home from college for a weekend visit (his finals start soon so I didn't think he was going to make it). Unfortunately, the "timing" wasn't all that great for me b/c I had just met with the radiation oncologist who gave me a whole lot of crappy news (but at least he "has a plan"-a "complex and complicated plan" but a plan nonetheless). So... apparently nothing is ever easy with this damn disease. I need "regular" radiation on the RIGHT lymph nodes (3 of them) but I need Proton radiation on the LEFT breast (since it had previously been radiated with the "regular radiation" 5 years ago when this whole mess originated). We can't Proton radiate both sides (long explanation but all I know is it can't happen). So..one facility will radiate one side (in one town) and the other side will be radiated IN ANOTHER TOWN (45 mins. apart from one another) b/c they are not both available together in the same damn town. So for three to four weeks I will be driving up and back each day, Monday through Friday for two different radiation treatments-see what I meant about crappy news! I ended up in a crying mess on Friday night with my 19 year old son just holding me-talk about mommy/son moments. I tried so hard to get it together but I just couldn't. He was so sweet and understanding but I so wish I didn't have to put him in that position. I just think that I kind of lost it for a moment. Today, I'm much better now that I've had a few days to digest it all. (FYI-on Saturday night I treated him to see the new Capt. America movie to make up for all my blubbering on Friday night).

    Dizz- Congratulations on your new addition...SO, SO CUTE!!!! I know that dogs are a ton of work but again, SO, SO CUTE!! Enjoy!

  • ksusan
    ksusan Member Posts: 4,505
    edited May 2016

    Cute dog! She's had almost as hard a year as you.


    Fran, uccchhhh. I'm glad there's a plan.

  • KBeee
    KBeee Member Posts: 5,109
    edited May 2016

    Fran, I cannot believe you will have to do all of that driving. I am glad you have a plan, but am beyond frustrated for you for all you need to do. Perhaps you could set something up like a meal train...I think there's a site called lottahelping hands...or something like tat. You could list 3 or so days per week and have a friend sign up to go with and drive you. As much as we hate to inconvenience people, you probably have a ton of people who all want to help, but have no idea how. Having someone drive a few days would make you less tired, and would give you some quality time with friends. Just an idea. When my friends made meals and drove me to chemo, I always had to remind myself (and they reminded me often) how much they want to help. They feel helpless and helping actually helps them...if that makes sense.

  • ThePrincess
    ThePrincess Member Posts: 424
    edited May 2016

    Fran - that really stinks, I'm sorry - I wish it could be easier!

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited May 2016

    Oh Fran. I'm so sorry to hear about the radiation hassle. You have every right to be frustrated to tears. Dealing with this stupid disease is horrible enough. Medical red-tape and logistics make it down right torture sometimes. I'm so glad that your son was able to be home with you and support you through this time. Kbee is right about asking for and accepting help. None of us are good at it, but it's as much about letting people help us as it is about us getting the help. I'm sure your son will feel empowered that he was able to support you. Have an awesome night out at the movies!

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited May 2016

    I had Rheumatology follow-up today. He doesn't feel like it's sero-negative R/A, but the U/S does show synovitis (joint swelling). So, we're treating the symptoms of R/A that I have even though I probably don't have R/A. It will take 6-8 weeks for Plaquinil to build up in my system and potentially diminish my symptoms. "IF", the symptoms go away, I'll stay on the Plaquinil for about 6 months and then slowly reduce the dosage while seeing if the pain returns. If it doesn't, hooray! If it does, I'll be back on the med for another 6 months before we try to reduce it again. Sigh! At least it was a fairly cheap prescription. Oh, and the DEXA scan confirms osteopenia at -2.3 and 10 year fracture risk is only 3%, so I shouldn't need meds for that and hopefully the bone density will improve as I get further out from chemo.

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