I'm depressed and I want to stop treatment and surgery
I can't remember why I decided to fight this crap. My life is crap and it was crap before I got cancer.
I have invasive lobular carcinoma of the right breast that's really all I know about it.
I have had supersized Chemo for 8 weeks now 12 weeks of toxel and then surgery and weeks of radiation after that. I'm on week four of the toxel.
I've been in therapy for many years and it doesn't help at all. All they ever want to do is load me up with zombie drugs so that I feel nothing and I'm done with that.
Comments
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Trish.....please please please get help! I promise you that you won't feel like this forever! I don't know your stats soI can't comment on your treatment but its very possible your treatment is part of the problem and could be adjusted. Please private message me if you want to talk more. Im here for you....
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Dear Trish - We are so sorry that you are having such a rough time and we wanted to let you know that you're not alone, many many women in these forums have been where you are right now.
Please take a look at the information on our site about depression, and consider talking to your doctor about what you are experiencing. Maybe some therapy can help you to move through this tough time.
Keep us posted and keep sharing here what you're feeling, we know it is hard to do it alone!
HUGS!
The Mods
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Trish, sorry you are struggling. If you fill your tag line in, ( below your name, dx, treatment ) it is helpful. We know what you are dealing with. Ask questions, lots of ladies have good advice.
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Trish, it is depressing to go through this. In my mind my depression comes from physically looking and feeling worse during treatment. At the time of diagnosis, I felt great no problems.
I stopped my treatment and I feel worse actually. I thought when I stopped hormone therapy I would feel better.
As far as the extensive surgery I had, I feel more discomfort with my reconstruction everyday it seems like. At night I get nerve pain and tingling disturbing my sleep.
I am not giving up, I will try more exercise and working through the discomfort.
Trish, hang in, there are many of us that feel like you. I am so sick of the upbeat attitude everyone thinks we should have.
Anti depression meds help but don't beat yourself if you need a break from all the bc crap.
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I fell into a deep hole after dx. I faked it for the family and every night before I went to bed I begged God to take me. Sleep was my only refuge in those dark days. My dx did not go through the regular process so I got dropped through the cracks, no nurse navigator, absolutely no support. The day my DH took me to my PCP I couldn'teven raise my head off the table. I told him I couldn't go on living feeling like this. He looked me in the eye and said "You're not always going to feel like this, I promise." He said that several times. Somewhere in the darkness I heard it and I believed it, because, well, he promised. He helped me with the meds, my beautiful Stephen Minister from my church help me with the "talking it out" part.
Trish, I promise, I PROMISE, you are not always going to feel like this. It is the pits right now. We hear you. We are with you and for you. We would love to walk with you as you find your way out of the darkness. I'm so glad you reached out. You. Are. Not. Alone. Trish.
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Dear Trish,
I think the hardest part of the treatment was in the middle of the chemo. After the middle you get closer and closer to the end of it, and in the beginning it is still early, but in the middle it feels like you are under water and you can't breathe. So hang on. Take one day at a time. I remember feeling like it was too much and I couldn't see the end of all the treatments I had scheduled. I also had to go abroad alone for part of my treatment. It all felt overwhelming and impossible to deal with. I was advised to just tackle the next milestone - say the next chemo session. I was asked - do you think you can handle that and forget about the rest for now? And I felt I could cope with just one thing at a time. It worked for me. Get support and help from whoever you can. Spend time relaxing, and time doing something you enjoy. Pamper yourself with cream and lotion, and make-up, and do things you like. Watching nature might help, and even exercise will give you a boost - now I know during chemo you feel like you can't get out of bed - but if you do manage to go for a short walk you will feel so much better, even though you'll be walking at snail pace. (I used to make compromises - for example if washing felt too much that day, I'd dress up without washing, or with just sponging myself at the bathroom sink). If you just can't and you feel down - just remember that it is OK to feel down. We are always thinking that we have to be up and happy - but that is unrealistic. Have you ever seen a dog or cat get withdrawn when they are unwell. It's OK to feel that way. It's natural.
Continue reaching out. Let people around you know how you feel. You will get more support that way. Find a helpline or a support group or go to your therapist. Your life is worth it. You are precious. And if your life was crap before cancer - this could be your opportunity to turn a new leaf and make it worthwhile to you.
A big hug. It'll get better. Just hang on a bit more. Just think of the next chemo. You can get through that surely. Feel free to write how you feel and vent it off here. We know what it means.
XXX
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I live with my abusive ex husband and of course it's all about him. He goes around and eats up all the sympathy he can get for poor him and I sit stranded at home alone everyday. The only time I get out of the house is on treatment day. I'm not having any real side effects from treatment except lack of sleep and the constant dread of losing my boob. I have three kids and an elderly father but I have to pretend that everything is ok for them. My dad lives 70 miles from me so I don't get to see him much but when I do I put on my happy face so he doesn't worry too much. Lately all I can think about is just quitting treatment and not having the surgery. The reason I live with this abusive bastard is because I'm truly trapped with no way out. I have been trapped for 22 years with no hope in sight. I'm really starting to believe that death might actually be my only way out. I can only imagine what treatment I will get once I am in his words less of a woman not having two breast or possible none.
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Trish, listen to me, I felt totally like a worthless unattractive female at the thought of mastectomy. My God it was such an emotional hit, but if I only knew how good reconstruction would be, I wouldn't have given it another thought. Plastic surgeons can really fix it! I do feel however the adjustment of reconstruction but at least it looks good.
I used to dream about my American express card and driving to the airport and booking a flight to bananaland.
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I don't think my insurance will pay for reconstruction.
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oh yes it will. Bill Clinton passed a law that states insurance MUST cover reconstruction for bc patients. And it is a life long deal for "fix" ups.
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P.S. It is one of the reasons I love Bill Clinton.
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wow that's good to know. I just assumed mine wouldn't.
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Small comfort, I know, in the middle of all this crap....but yes: if the insurance covers the surgery which removes all or (I pray!) only part of the breast as part of cancer treatment, then it must cover the surgery to repair that.
I regret that I can't address the chemo, but definitely mention this to your MO! Depression is a not unreasonable reaction to the diagnosis, and the treatment; heck, I did, and I was at the "least bleeped" end of treatment.
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They truly don't seem to care about any pain I have and definitely not my mental well being.
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Trish, they really don't understand. There are so many on this site that do. I think stress with my husband may have caused my bc, I don't know. Try to take care of yourself. I don't have any chemo experience other than my doctor wanted to twist my arm to take it. After looking at the data I decided only do hormone therapy. But, the effects of the hormone therapy have left me in pain. Doctors down play side effects. Yes I am glad to be cancer free but I want to feel better. They don't get it.
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trish, I don't think it's uncommon to feel the way you do. Some people have PTSD due to cancer and other health conditions. I think most of us have had the dark cloud hanging over us to some extreme after DX. Like others have said, reach out for support. The American Cancer Society or a social worker at your medical facility may have resources for you. Behavioral therapy, journalling, support groups may help. Wishing you well. It makes me sad to read your posts. Please get some help sooner than later.
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I am on disability because I am supposed to be bipolar but I actually think it's from the 22 years of emotional abuse that I live with everyday. But I only make $700 a month and I can't live on that and he has trashed my credit so badly that I can't even get housing assistance. I have extreme social anxiety so I can't work around people.
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Does your doctor's office have a social health care worker? Unfortunately, my medical insurance wouldn't pay for the emotional help but some do. I would apply for any kind of social welfare you can.
I am hoping some of our BCO sisters can help point you to services. If you left this husband could you qualify for more assistance? Can anyone help Trish out?
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Trish, I feel really bad that you don't seem to have any support while going through this. Luckily I was not in that boat. Please remember that this is only temporary. I look back now and am amazed that it's been a year since my last chemo...Are you a church goer? I don't want to be preachy, but the ladies from my church were very helpful. I too wanted to quit about halfway through. But I'm glad I didn't. We need to fight this with all we have!!!
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DeniseKendal-
Welcome to BCO! And thank you so much for your kind words of support here. It's so comforting to hear from others who've been down this road. Congrats on the completion of your treatment!
The Mods
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I have no family that can help me and I get turned down from all assistance I have applied for because over the years he has hung a lot of bills and evictions on my credit in my name only. I divorced him in 2009 but he has be by the financial balls. I had been searching for help to get away from him for two solid years and every door was slammed in my face and the I found out I had cancer. He is a drunk and a pothead and stays out drinking all he wants and barely even keeps groceries in the house for me or the kids and cusses me out on a daily basis because everything is my fault. I'm in deep trouble tonight because I kept texting him when he was out having fun. He told me today I am impossible to deal with because I have cancer. He thinks he is a saint just because he works and sits through my treatments once a week. I am truly trapped and he knows it. I can't even get food stamps or insurance on my kids because I live in his house and he refuses to fill out any paper work they need from him. He knows I can't leave and I am in constant fear that he will throw me and my kids out on the street.
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Wow Trish. So sorry to hear. Any way you and your kids can go live with your dad or any fam member? I think even a women's shelter would be much better than where you are now. I know there are churches where very kind souls reach out to help people in need. I would check into women's shelters and churches, pastors---anyone.
I would tell the people who are giving you tx your story. You never know if someone doesn't know something/someone to help you out.
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My kids are teenagers there is no way I could take them to a shelter. I have zero family I could move in with. This is pretty much it for me. I have no idea why he keeps me around. He hates me and everything about me and he doesn't even like our kids. I wish he would just leave and some how I could try to just figure out how to maintain here.
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trish, if it's any help, the ACS has a program called "Road to Recovery", that provides a free ride to Dr appts. I know you really don't need that, but at least you wouldn't have to sit through your appts with someone that is non-supportive....and it might make him realize that you don't have to depend solely on him. Just an idea.
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Trish...Please get in touch with Legal Aid Association for help
It's free for low income people....
Keep posting we care
Sheila
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Dear Trish, you might not be in control of your husband and what he says or does/does not do, but you can be in control of how much you let it affect you. You need to place yourself as priority now. Don't waste energy on whatever he tells you that is negative. Focus on yourself. If you can select a few things which you need from him and demand them - for example if you need him to get you groceries - make a clear demand for them. He may or may not listen - but you will have a better chance of getting something positive out of him if you limit your requests to the essential. If he insults just move to another room - quietly without creating a fuss. Chances are that if he does not see a response from you he might actually cut down on his abuse. If he does do something for you, praise him - it might encourage him to keep it up and do more. It might help if you see that his abuse is his limitation not yours. If he is capable of criticising you or insulting you or offending you at this critical time, then he has serious limitations, not you. That is his problem - don't let it become yours. I love my husband dearly, but he has his limitations. Whilst on chemo, at the worst times of it, when my body was in pain and tired, I'd stay alone quietly in bed and I avoided letting him know what I was passing through - because at every crisis I have had in my life he created an enormous fuss about himself, shouted at me, offended me etc. I could see that it was because he had no clue how to cope. I ended up having to comfort him when I was diagnosed with cancer. I learnt not to thread on eggshells any longer. I learnt to value my needs and make demands for myself. It worked, and we are in a much better place. I don't know if this applies to your situation or not - you have to be the judge of that. Rely on your intuitions and discuss with someone who is wise and can see the whole picture. Your children are teenagers and they can also help out. It might not seem fair that kids have to help you, but that is what family do for eachother - they will be learning a very important lesson. Stand up for yourself. You deserve it. But be wise and limit your demands to the things you need or wish for most. And if you love yourself, just ignore his anger and insults. You don't afford that waste of energy - it is just not worth it. And make damned well sure you get your treatment cause you deserve to treat yourself well, and to be treated well. This involves a change in mindset - but if you see yourself as a person who deserves respect, you will get much more respect from others. It is a lesson I have had to learn at my expense - and I still find it hard to follow.
Care for yourself, particularly if others are not taking care of you.
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Thank you but I have gotten in touch with them before and there is nothing they can do for me. I hit a brick wall with ever idea I come up with. I left home 3 days ago and am staying at my fathers house while he is gone fishing to get a little peace and maybe come up with other ideas but as of yet I'm drawing a blank and I have to go home in the morning to get back to my kids. I dread going home but I have no other choice.
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I have cut him out of my treatments completely. I took his name off all my Dr stuff as an emergency contact. My oldest daughter and my father are the ones on all my things now. I go to my treatments alone now because I can't sit there and bare looking at his fake face. All I know is he is like poison in my life and he makes me not even want to life, which I do want to live. I love my kids and have super close relationships with them and I don't want to leave them. So somehow someway there has to be a way to get him out of my life once and for all. I just haven't found the way yet.
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Is anyone in his fam good? Maybe one of them can help somehow?
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