I have Cancer
Those three words are all I can think right now. I am 29 and I have cancer. I am mad, I am scared, I'm sick, I am overwhelmed. I noticed pain in my left breast exactly a month ago. I then looked at it, and noticed my nipple was pulling in. Upon feeling it, I felt a very large lump at 12 o' clock. I saw my OBGYN who ordered an ultrasound, followed by a consult, and finaly a biopsy. Honestly, I was just going through the motions being "better safe than sorry". Never in a million years did I expect to see Invasive Lobular Carcinoma when I went to pick up the preliminary pathology report today. My doctor isn't in until Wednesday and I just wanted to pick it up, see the word benign, and enjoy my weekend.
I got back to my car, opened the envelope and there it was. Invasive Lobular Carcinoma. I don't know anything else right now, because it had to be sent away for further pathology and my Dr. isn't in until next week. I don't know what to do or how to process this right now. We have a 5 year-old daughter who is smart enough to know when something is wrong, so we told her it is cancer, but Mommy is going to be okay. It's hard to be strong in front of her right now. I don't want her to worry. It's really really hard knowing that is inside if me growing and I can't do a thing about it right now.
I'm trying very hard to stay off of Google, because I feel like no good can come of it, but I want answers. I'm most concerned that this giant lump came out of nowhere and was measured last month at 5.5 cm by 2 cm by 1.7 cm, it is HUGE. I'm scared.
Comments
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Oh hioney, I am so sorry that you are dealing with this. Does your OBGYN have someone on call who could give you some support or do you have a PCP you could contact? This is the most difficult time...when you don't have all the info and you don't know what to expect. Try to take one step at a time. You may need some anxiety medication to help you through these first days, so that is why I am suggesting you find another doctor to consult with. What I did was to constantly say..."I'm not falling off the cliff, I'm not falling off the cliff" and cleaning out all my drawers and closets, trying to keep busy and be tired so I could get rest. Gentle hugs to you!
MsP
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I am so very sorry you have to be here, but I hope this forum will provide information and support whenever you need it. Once you have a treatment plan you will be able to direct all your anxiety and energy into getting it done and kicking cancer butt. It's not easy, but you have all of us rooting for you. Try to take each day as it comes. We have your back.
Hugs to you!
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WMT, I'm so sorry you were DX'd. That must have been a huge shock to you. There are many resources to guide you through treatment and beyond, including other young women on this forum. You are right to stay off of Google, even though it is hard to do. You were right to get your report, even though you got bad news. You seem like a very level headed person who intuitively knows what to do. That will help you tremendously while you are in treatment and trying to make decisions. LIke MsP said, this really is the hardest time and it will seem like forever before you get started with treatment. Dr's may want to get more testing done, so try to take one day at a time. Once you start a treatment plan, you will most likely feel some relief and empowerment. Meanwhile, BREATHE! Prayers to you and your family.
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WifeMOm,
Seriously not fair that a 29 yr. old has to deal with this. ( my daughter is 29 ) if you need some anti-anxiety meds, call your Dr. Office & tell the nurse. I waited 7 months after dx & chemo, during rads for meds. That was a mistake. Also if you are not sleeping, they can give you meds to help. Hard to be tough, when you have little quality sleep.
I also have Lobular Breast cancer, they call it the "sneaky" Cancer because it is more difficult to detect.
Did they biopsy a node in your underarm?
You have every right to your feelings, mad, sad or distressed. When I was dx, it felt like my legs no longer functioned like before. I was a speed walker, that did 1/2 marathons. This website has threads for lobular, young ladies, different chemo reginims. It's a lot to learn in the beginning. You can be honest here, we get it.
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WMT,
My lump was big, too (5 cm.+). In retrospect, size didn't matter much. I had my chemo first, which wiped the cancer out in my breast and compromised lymph node, and I was able to have a lumpectomy.
You're young to be a BC patient, but there are some advantages to being young. You may bear treatment better than someone who is older or more fragile.
Take it easy, and take care of yourself. Best wishes!
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As another person wisely pointed out to me, Google can be useful for help dealing with symptons/what to expect during treatment. I would not pay attention to survival stats which are a popular one to check out when first diagnosed for sure. You will go through a roller coaster. When it first happens, everything you are feeling is normal. Take people with you to appointments as may have been pointed out, they can hear what you might miss. At first, the information is overwhelming. When a treatment plan is in place, you will feel better. Let doctors know what you are feeling, when you are feeling it. There is medication for most side effects. Due to the emotional/physical trauma we go through upon diagnoses and due to some treatments, pharmaceutical help may be needed for depression, anxiety or sleeping. Take them as needed. Ask family or friends if you can for help for things like rides, housework help, shopping or meal prep if possible. Take advantage of any programs your cancer centre may offer for support whether it is physical, emotional or spiritual. I am sorry you are dealing with this, you are young. Take it one day at a time and do not project to far into the future. As far as google, there is nothing wrong with learning about your cancer through a legit website, I am thinking this website, or actual medical websites but try not to take the survival stats as gospel. You will be an individual and how you may respond or do with treatment also depends on your overall health. Be prepared to change your mind several times about treatments along the way and be aware even that is OK too. Best of luck with however you deal with your diagnosis and my best to you and yours. I am sorry you are having to deal with this.
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So sorry you find yourself here. I too have ILC. My oncologist told me once that it is "old lady cancer" but you are far from old. ILC is typically slow to grow, and is a sneaky sucker - rarely shows up on imaging, so lucky you found it.
I recommend you go the ILC thread, as IDC and ILC ARE different cancers. For example, studies show chemo for ILC pre-surgery is typically not as effective as it is for IDC.
Please do not hesitate to PM me if you have ILC specific questions. I think we still need more information to be too much help...other than to "breathe", find your happy place (mine is a hot bath), and stay busy until you see your doctor again. The next few weeks will be one test after another....a real roller coaster. But it does get better once you have a plan in place.
Seriously, ILC is slow to grow and hard to spot. Odds are, you've had it for some time. I tell you this so that you know you have time for testing, results, and developing a treatment plan.
Hang in there! We're here if you need us!
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I'm so sorry. It really does suck.
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Am so sorry you have to deal with all this. From my experience the hardest time is right now when you don't have a plan in place to take care of it all. It gets better. The saying goes how do you eat an elephant?... One bite at a time. This is a huge deal, but try to take one bite at a time. I got diagnosed with ILC 17 months ago and am doing great. Sending hugs and prayers
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Please don't google information right now; wait until you are farther into your journey and even then I don't advise it. The time after I was first diagnosed was the worst for me. It seemed like everything was moving slowly, I had so many questions, and I was terrified. Once plans were put in motion regarding surgery and treatments, I began to feel more in control because at least I was taking action instead of waiting for the unknown. I would never tell you this will be easy because it is not easy, but I will promise you that cancer is doable. I am sending prayers and many hugs your way. This is a road no one wants to walk, but please know that we are walking right beside you.
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Hey wifeteachermum, I'm sorry to hear about your diagnosis. It's comes as a total shock, but know that you are not alone and we are here for you. The first month can be the most terrifying, but once you know what you are dealing with believe it or not things do become easier.
I was diagnosed at 34 years old and I remember being so scared when I heard my general surgeon say that I had a 8cm tumour, I couldn't believe it, how did I not notice etc! However, they managed to cut it out with clear margins and completed chemo and rads. I changed my lifestyle for the better and now feel healthier than ever.
I know it's bigger than you first though but that doesn't mean that's it, you will get through this with an appropriate treatment plan. It's hard but you have to be strong. You are young and this will help you in the long run with treatment, strength 😀 -
I really feel for you but try and stay strong. This will probably be your worse time. It definitely was for me. I found that once a treatment plan was put in place, you begin to see light at the end of the tunnel. I finished rads on 1st March this year and that light is getting brighter every day. Hang in there and take every day as it comes. Try not to google or jump ahead and as another lady on here said, just breath.
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I am sorry that you have to join us.
My middle daughter was 5 at diagnosis. It's a hard age because they know enough to know that something is wrong, but it's hard to really explain it. I got the book Mom and the Polka-dot Boo Boo from Amazon. Kinda a good very simple explanation about side effects of treatment (hair loss, feeling tired) and that eventually mom will be better. She and her sister are also going to Camp Kesem this summer. Camp Kesem is a 6-day summer camp that students at different universities throughout the country put on in the summer for kids who lost a parent to cancer, have a parent in treatment for cancer, or their parent is past cancer treatment. Camp is free (the students put a lot of effort into fundraising) and lets the kids go have a normal summer camp experience with other kids who have gone through the emotional stuff or are currently dealing with it.
But for you, you are in a hard place where you have limited information. Once you start meeting with the main players for your medical team, it will get better. Having a plan in place really helped me shift from worrying and wondering to getting ready to tackle it.
My surgeon also gave me the contact information for a support group made of mostly younger women. It's been a fantastic group of women. Some are in treatment and quite a few are beyond treatment. Mostly breast cancer but some other cancer types. So maybe check out Young Survivors Coalition and see if there's something near you.
Also Cleaning for a Reason was wonderful for house cleaning during treatment. Such a blessing.
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Thank you all for your wonderful words. I am slowly moving onto accept this reality and trying to find my strength. I am one of the most persistent and hard-headed people I know, so I will find my way around this. I also have an incredibly supportive husband, a very intelligent and sweet daughter, and a very large and strong family support system back home.
I have my first appointment with my Surgeon and Oncologist this Friday. My husband got a job four hours from our home almost a year ago so it's just us and our daughter right now in a very rural area. Our hometown of Morgantown is the best option for treatment in our state, so I will likely be spending a great deal of time back at my parents house with our daughter.
Everything is so up in the air right now, and I will be very happy once we have a plan and some more answers. I rotate between being scared for myself and worried about how everyone else is taking it. My father lost his mother of breast cancer when he was very young, so I worry about him watching me go through the same thing. My husband has been incredibly strong on the outside, but I worry about how he's taking it. I feel like my emotions cycle constantly and I might be okay, frightened, mad, and completely in tears from one moment to the next.
I have tried Xanax for sleep, which didn't help Friday or Saturday. I ended up at the ER last night and was given Ativan to take when I got home. I slept about 4 or 5 hours, which was the best I've had since before I knew. I can barely eat. I don't have an appetite and when I force myself to eat I can only manage an apple or some yogurt during the entire day.
I want to start becoming progressive in my treatment with the things I can control. I'd love to know what kind of diet I should be on, if there is anything I should or shouldn't do. I know I can't get it out of me quite yet, but I know there has to be something I can do.
Again, thank you all. I know I will be needing you all throughout this journey.
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Wifemomteacher, that's good you have the oncologist app soon, once you know what you are dealing with, you can tackle it head on. It's also great that you have a strong support network and probably staying at your parents is a good idea. It will be hard on them, as it is in you, but treatment for bc is better than ever and there are a lot of survivors out there, so stay strong and you can beat it too.
Once I also got over the initial shock and could eat again, I cut out all the crap.. I started to feed my body what it needed, nutrients. I followed a mainly plant based diet with some fish and chicken. I steered clear of red meat, alcohol,processed, sugar and dairy. All lifestyle risks that can be associated with BC. I also got rid of all cosmetics and toiletries with parabens etc so many mainstream brands contain it..basically I detoxified my life and went organic and natural. I completely changed my outlook from diagnosis but it wasnt that hard. I upped the exercise, tried to destress (I know ironic) and started putting me first, all things I should have done years ago and now I feel like what I have put into my body has paid off, it also helps relieve some of the side effects of treatment (chemo/rads). Good luck and keep us posted. -
Wife -
A cancer diagnosis is one impacting the entire family. And every family member handles it differently.
My husband, the dragon slayer, was stoic, very upbeat, and appeared disinterested; I'd find out later he was a research machine and knew far more than I did. He had a hard time talking to me about it as he was very worried and didn't want me to know.
My daughter, the upbeat, positive being, was nothing but inspiring and seemed to be handling things well, only to find out later that she'd fall apart at work. She frequently came home with pink socks, pink ribbons, a variety of knick knacks with the cheesy warrior sayings.
My son, the quiet one. Stoic like his dad. He was supportive in a different way. He would come home from college and fix me healthy meals, take me for long walks. But every time he came home, he had a new golf hat with the breast cancer logo, or a shirt supporting breast cancer. And the biggest surprise of all, a custom tattoo of an angel with the breast cancer ribbon surrounding her like a halo. All in support of his mama.
I did my part by trying to stay as upbeat as possible, not letting them see the panic while waiting on test results. If I needed a pity party, I'd come here and unload so as not to burden my family.
So, to all reading this. Be there for the patient. But do not forget about the families. They are as panicked, probably more so, than their wife, mom, sister.
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Wifemomteacher, - lots of good suggestions posted, but for right now eat what ever you can that is nutritious! When I am stressed I lose my appetite right away, - but i can always tolerate a scrambled egg and piece of toast! While on chemo, too, I lived on eggs, toast and maybe some chicken soup. Ginger ale, too.
You will feel better when your plan i in place!
Hugs from NYC
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I was given lorazapam which help me cope the first month. For me I kept wanting it resolved, the fear of treatment and the unknown. How many years do I have left. It is really Hell at first, but once you get it out and start your treatment it gets so much better.
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I agree NOT to resort to Dr. Google until you have enough emotional energy to sift through all the BS and old research and find the good stuff you'll need to ask your doctor. We have a fairly active ILC thread on this board, linked at the bottom, so join us there if you can.
I HAD (I have to use that past tense) ILC, like you, and like you lost 8 lbs by chemo time and then four more following that. It's okay. You can gain it back later if you want to, or not. Main point is that you will be okay, and ILC is a bit different from IDC but usually treated about the same.
ILC has a tendency to be more multi-focal and show up later in both breasts which is why I had a BMX for prophylactic reasons.
You are going to be okay. This is just a bump in the road, and eventually will be in your rear view mirror, I promise.
Claire
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Again, thank you all. Waiting for the PET scan and finding out if it is anywhere else is probably my biggest concern. It's funny how perspective changes as it goes along. At first it was please don't be cancer, then please don't be in any lymph nodes, now it's just please don't be anywhere else in my body.
I've been breaking down less each day, and focusing more on the treatment ahead . We homeschool, so it's just me and out 5 year old daughter at home all day while Hubby works 13 hours a day. We moved to a new area for his job less than a year ago, and I don't have any friends down here. Withe him gone during the day, I'm lost. This week we're not doing school, and just doing whatever my daughter wants. But Hubby has to keep going to work, knowing there will be many days ahead that he'll need off.
Thank you for being there, until I go home with my parents for a Friday's appointment I feel so alone.
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I am sorry you are feeling alone, Wife. Please come here for as much support as you need.
Just curious what insurance you have to get a PET. The most I got was an MRI.
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Wife - bless your heart I'm sure it's tough in a new city. We have a number of support groups where I live and I was also assigned a patient advocate by the hospital. She was awesome. The support groups were godsends. I became friends with several of the ladies. One of the support groups is through my church. That's another opportunity to meet people. You might also meet other women who home school. I relied on my support groups to get me through.
Hope your pet scan is okay. Keep the faith.
Diane
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i was just reading ur post as ive read tons of posts here to pass the time until i have my appt may 11th to see if my lump and symptoms are anything to be concerned about. I wanted to comment here and to u bc im 37yrs old and i live in fairmont wv...i will be going to morgantown as well if the results find it necessary. The Betty Pushkar Breast Center is definitely an amazing place for treatment. I used to work at WVU hospitals and everyone is so friendly and supportive. My thoughts and prayers are with u!
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My Dr at WVU opted for a MRI. The tests ordered by the previous surgeon were canceled. My MRI is Monday.
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Thank you Kelli and I pray that your lump is only good news!! I am also from Fairmont, Barrackville, and will be staying there with my parents during treatment.
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Hello, WifeMomTeacher(FIGHTER!). I am also new to this board, recently diagnosed. Though I'm older than you, I'm also "young" to have cancer (early forties), and I, too, have a five year old. I have invasive mammary carcinoma, stage 3. There is no history in my family. I was blindsided. I also started with breast pain, but was not particularly moved (I've always heard "cancer doesn't hurt" - untrue), but became terrified when my nipple retracted and the areola was pitted. I knew then. I knew.
My heart goes out to you, and your family, as I know well how you feel. Telling my children absolutely broke my heart. It's so difficult to explain cancer to a small child and to appear strong, positive, unafraid. But, you've already done it. (one hurdle, jumped...there will be many)
Please don't bother googling. There's just too much and there are too many variables. Talk to your physician, and if access is going to continue to be an issue, find a doctor who IS available, well-credentialed, and informative. If you don't feel comfortable, switch. Your body, your call.
When I started chemo, (I'm a week in) I noticed I was the youngest in the room (and so did everyone else). Over the two days, I met several other breast cancer patients. These wise women were a wealth of information and encouragement and strength. Your youth will be an advantage in this fight, I assure you. My heart goes out to so many who are battling this in advanced age, just as it does the younger women who will be robbed of the luxury of a simpler set of complications life brings at this stage of your life. I am so sorry you are going through this, also.
Though I am a newbie, I have noticed something that has actually helped me: One of the most difficult things about this experience is discovering all the "firsts"...when you first noticed the pain/nipple retraction)...when you first received your diagnosis...when you first said out loud, "I have cancer", etc. Every "first" will make you want to cry, but every first is a hurdle jumped, and it is one of many you will jump. As your body endures the treatment you must undergo, your mind MUST grow stronger, because it will make you stronger. There are so many "firsts" ahead, I promise you. But, you will get through each and every one, and you will grow stronger in doing so.
Please be encouraged that whatever comes, you are not alone and you are stronger than you know.
My prayers are with you and yours.
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Thank you DefiantMe. It is very true that the "firsts" are the hardest. Right now, I just cannot wait to get started! I feel like once I have these babies taken off I'll atleast feel like I've made progress. While I am young, I have no attachment to these things that are trying to kill me. I want them gone for good and soon. The best part is my husband has been amazing through all of this and I know he will support me no matter what.
I also wish you a quick recovery from this beast. We've got this!
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We are definitely very close to each other! My daughter had a track meet tonite at north marion and barrackville school was there. Such a nice distraction! I think ive actually convinced myself that im perfectly healthy..im over reacting and im just getting it checked to disprove my worry and prove its nothing. Im a lil more concerned now bc ive read several women on this forum think Clomid may be linked to their BC..i took many rounds of Clomid. I just want to see the test with the negative reading. My heartbreaks for u and even tho we are strangers we are Mountaineers and u can reach out to me to chat anytime.
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WMT And Kelli. I'm also in Wv Salem area. And originally went to UHC to have a lump removed the Dr there Missed it. My family Dr then referred me to WVU. They are wonderful! I go for another biopsy there in the morning. I'm so sorry to hear of your diagnosis and am sending my thoughts and prayers your way. Kelli I pray for benign results for you.
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sweetie i know how u feel as do most of us here i was older 42 preparing for my 2nd marriage Happy makin wedding plans when i found lump out of nowhere in shower. Please know we are here for u when all treatment is in place the anxiety will slow up be INSPIRED with HOPE N POSITIVE thoughts like I WILL BEAT THIS. Praise GOD i am a 22yr Survivior this yr. msphil idc stage2 Lmast chemo and rads n 5yrs on tamoxifen.
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