Life does not end with a stage IV diagnosis (really!)

Options
1…4546485051…131

Comments

  • Bliss58
    Bliss58 Member Posts: 1,154
    edited April 2016

    Good for you Shutterbug. You go girl!

    · Share on FacebookShare on Twitter
  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited April 2016

    Shutterbag, so happy that you have been able to get back to doing something you love.

    · Share on FacebookShare on Twitter
  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited April 2016

    Shutterbug! Dance, dance, dance! Adapt if you need to and have a good time. My most unalloyed times of happiness are when I am dancing. I was recently invited to join the advanced performing group where I dance. I'm so happy; it is like a dream come true. My post-chemo short hair, however, is not the right look, so I think I will have to wear a wig for some performances. Not happy about that, but must adapt.

    · Share on FacebookShare on Twitter
  • artistatheart
    artistatheart Member Posts: 2,176
    edited May 2016

    That is great Shutter! Dance your heart out and I'll bet those extra pounds will melt off in no time. It feels so wonderful to do the normal things we used to do.....Nice going Shetland! Living the dream!

    · Share on FacebookShare on Twitter
  • teacher911
    teacher911 Member Posts: 853
    edited May 2016

    Caryn , Congratulations on the newest addition to your family, he is precious. Love seeing his pictures.

    Congratulations to Reader and Gatorgal, I think that long term survivors help lift all our spirits.

    I am great aunt to a 3year old girl and a 10 month old girl. I love to spend time with them. They always make me feel so alive.


    · Share on FacebookShare on Twitter
  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited May 2016

    Thank you all for the good wishes on Miles' birth. He will be two weeks old tomorrow. Here's a pic taken today after he finished nursing, It's titled "Milk Drunk"

    image


    · Share on FacebookShare on Twitter
  • 50sgirl
    50sgirl Member Posts: 2,527
    edited May 2016

    Oh my goodness, Caryn. That picture is priceless! He is one beautiful happy baby.

    Lynne

    · Share on FacebookShare on Twitter
  • Wendy3
    Wendy3 Member Posts: 1,012
    edited May 2016

    Caryn he is so beautiful , you are a lucky thing.😊

    · Share on FacebookShare on Twitter
  • GatorGal
    GatorGal Member Posts: 2,550
    edited May 2016

    Caryn, adorable picture! Great title .... Milk drunk! Love, Love, Love.

    · Share on FacebookShare on Twitter
  • artistatheart
    artistatheart Member Posts: 2,176
    edited May 2016

    Oh LOL! That is so great! Gosh he's so cute!

    · Share on FacebookShare on Twitter
  • dlb823
    dlb823 Member Posts: 9,430
    edited May 2016

    Milk Drunk, LOL! That is so cute!!! Thanks for sharing the baby joy with us here!

    · Share on FacebookShare on Twitter
  • 3-16-2011
    3-16-2011 Member Posts: 559
    edited May 2016

    Caryn

    The best picture. How can he be smiling so soon. Clearly a genius as well as so handsome

    Thanks for sharing the joy

    Mary

    · Share on FacebookShare on Twitter
  • Juli24
    Juli24 Member Posts: 90
    edited May 2016

    Normal is just a setting on a washing machine. I measure daily life by how I feel mentally since that is the only thing I still seem to be able to somewhat control.......with the help of antidepressant/anxiety meds. I hurt so badly when I wake up that I want to vanish from life - not end it - just step off the planet for a break. Since that isn't a viable option I "decide" what to do next. Most days the pain doesn't subside but my decision is to get up and try moving one foot in front of the other. Some days I manage to eat a little something, dress & make it to my "chair" to read. Other days my best intentions are just that but that is ok. Acceptance is my best friend. I cherish that friendship. May each of you have an acceptable day

    · Share on FacebookShare on Twitter
  • GatorGal
    GatorGal Member Posts: 2,550
    edited May 2016

    This is my new halo wig that this precious grandson made possible by growing his hair for me! There are no

    words to describe how much I love him!


    image

    · Share on FacebookShare on Twitter
  • artistatheart
    artistatheart Member Posts: 2,176
    edited May 2016

    Gatorgal, What a sweetheart of a young man and quite handsome as well! Very cute pic!

    · Share on FacebookShare on Twitter
  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited May 2016

    That is amazing! Not only is it amazingly beautiful, but it is an amazing gesture of love. What a wonderful young man he is

    · Share on FacebookShare on Twitter
  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited May 2016

    My union.has been in contract negotiations with our school,district all this year and things haven't gone well. Today, we started work to rule. It was odd leaving exactly st 3:00 pm and not responding to parent emails or correcting papers once I got home or the myriad other things teachers do for their students.
    Am I complaining? Only a tiny bit, but mostly very grateful to be doing what every other teacher in my district is doing!
    Glad you all enjoyed Miles' photo as the milk drunk baby. He has gained over a pound since birth. My grandchildren have been the best medicine. For those who don't know, my older dd found out she was pregnant three days after my dx. That pregnancy and the thoughts of the coming baby sustained me through those early months of bc and treatment. Baby Miles is the sweet bonus and an extra dose of good medicine.
    · Share on FacebookShare on Twitter
  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited May 2016

    jharris,

    I am sorry that you are having a difficult time. Stage IV comes in many varieties, with respect to QOL. I started this thread as a place to encourage and inspire those who are living well with stage IV as well as help the newly dx'ed know there is hope. This is not true for many and I acknowledge the pain and suffering that many endure. May things get easier for you


    · Share on FacebookShare on Twitter
  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited May 2016

    GatorGal, I'm sitting here with tears in my eyes over the loving gesture of your wonderful grandson and the beautiful photograph of the two of you. A picture is worth a thousand words. You are blessed.

    Caryn, I know you and your family are loving that new little boy; he is super cute. Good luck with the contract negotiations and let us know how things are working out. Those things are never easy to go through.

    Jharris, I admire your resolve to continue moving forward with life.

    · Share on FacebookShare on Twitter
  • Texasrose53
    Texasrose53 Member Posts: 354
    edited May 2016

    Gatorgirl! I love the halo wig!!!! It looks amazing! And you have an Amazing grandson!!

    · Share on FacebookShare on Twitter
  • dlb823
    dlb823 Member Posts: 9,430
    edited May 2016

    Amazing grandson, GatorGal! And the little one photobombing you gave me a big smile too!

    Sorry about the work issues, Caryn. I hope any related stress that comes with it is balanced by what sounds like shorter hours, at least until things get resolved.

    · Share on FacebookShare on Twitter
  • steelrose
    steelrose Member Posts: 3,798
    edited May 2016

    Caryn, this is belated but I wanted to say congratulations on your gorgeous grandson, Miles. What a wonderful addition to your family! The picture of Frankie holding "her baby" is my favorite:)

    All best wishes…

    Rose.

    · Share on FacebookShare on Twitter
  • Rosieo
    Rosieo Member Posts: 262
    edited May 2016

    Caryn

    The beauty of a new born baby and the sweet contented look on his face. May God bless him always with such contentment.

    jharris, We must keep thinking positive. I find myself if I get up and have some kind of purpose for the day, everything works out better for me for the day. I understand it must be so much harder for you if you are in constant pain. Isn't there anything your doctors can do for you to eliminate the pain. Have you checked with your MO.

    My thoughts are with you and I would hope your Dr can help you.

    Rosieo

    · Share on FacebookShare on Twitter
  • Kandy
    Kandy Member Posts: 1,461
    edited May 2016

    Caryn, your grandson is absolutely adorable. I am so looking forward to getting mine. What a blessing he is.

    · Share on FacebookShare on Twitter
  • Bliss58
    Bliss58 Member Posts: 1,154
    edited May 2016

    Gatorgal, love the halo wig, looks awesome, and what an awesome grandson you have. Hug him big!

    Caryn, loved that milk drunk photo of Miles; too funny.

    Best to all.

    · Share on FacebookShare on Twitter
  • artistatheart
    artistatheart Member Posts: 2,176
    edited May 2016

    jharris, I too am sorry to hear you are having a very hard time. As Rosieo was wondering there must be something your Onc can do to alleviate some of your pain. Keep looking around the threads here as there is so much help and advice for every concern imaginable.

    Kandy, is your grandbaby due in August? And how are you getting around these days? Hopefully well enough to go revel in your glorious yard!

    Caryn, I am an Admin Secretary in the middle of spending season and WISH I was working to rule! Hahaha! Best of luck on negotiations!

    · Share on FacebookShare on Twitter
  • Kandy
    Kandy Member Posts: 1,461
    edited May 2016

    Artistatheart,

    My grandson is due August 28, I am so excited. I am doing rather well. I only use one crutch now which is awesome. I am still trying to rebuild strength in my leg which is taking longer than I wish it would. Dr says that he is planning on dropping the other crutch in a month hopefully. Definitely plan on walking before the baby gets here. It would be difficult to carry holding onto a crutch. My DH got the pool open last weekend so the resort is about to open, lol. I am hoping swimming will help me build strength in that leg. Wishing everyone the best.

    · Share on FacebookShare on Twitter
  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited May 2016

    Kandy, it's so nice to read your update and here that you are healing a little at a time. So happy for you.

    · Share on FacebookShare on Twitter
  • GatorGal
    GatorGal Member Posts: 2,550
    edited May 2016

    Kandy, can just seeing you holding that grand baby for the first time! Glad you're down to one crutch. Just think where you were just a few months ago!

    · Share on FacebookShare on Twitter
  • artistatheart
    artistatheart Member Posts: 2,176
    edited May 2016

    Yep, swimming should really help build up the strength for sure. I love swimming and can't wait for our clubhouse to open this summer. Although when I go there I get bombarded by little school kids! LOL!

    · Share on FacebookShare on Twitter

Categories