LCIS Surgery

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Momof6littles
Momof6littles Member Posts: 184
edited April 2016 in Surgery - Before, During, and After

I'm finally at the point where we are talking surgery. I'm trying to understand how much tissue they take out and really any other info relevant to surgery with LCIS. They would be doing the surgery to be sure there is nothing invasive. I was diagnosed with a core needle biopsy.

I have a lot of risk factors (dense breasts, family history, LCIS) so I'm still weighing lumpectomy vs double mastectomy.

Anything anyone wants to add would be appreciated.

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited April 2016

    As far as I know, standard of care on first diagnosis by needle biopsy is excisional biopsy to confirm nothing else is lurking (about 20% of cases get upgraded). My surgeon told me she took a hunk about the size of a walnut or golf ball, but that likely varies depending on your imaging. I had an MRI first to make sure they didn't see anything else, but they were being careful with me because I had just had surgery for ovarian cancer. On mine she went in on the outside underneath corner of my breast. Scar only about an inch and a half long and virtually invisible in the fold of my breast. I am pretty small busted, but it is toally unnoticeable as far as volume, but I van feel a good sized "void" under the skin in the area. It is like a hollow spot when you press down.

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  • Momof6littles
    Momof6littles Member Posts: 184
    edited April 2016

    Thanks Melissa. I think you have said you go to a high risk breast clinic? University of Chicago has one and I think I'd like to see (crossing fingers) if I can get my insurance to approve it. Do they do imaging, exams, etc? I just don't trust my local clinic. I'm hoping a high risk clinic would be a bette fit for me. My aunt was just diagnosed and they totally missed it over the years.they were getting ready to do a biopsy last year and said, oops, it's not necessary.

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited April 2016

    Indiana University & Purdue both have NCI Cancer Centers too. I think they all have "one stop" high-risk clinics or sevices for evaluations

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