Life does not end with a stage IV diagnosis (really!)

Options
1…4445474950…131

Comments

  • singlemom1
    singlemom1 Member Posts: 434
    edited April 2016

    Beautiful!!!!!! Congratulations!!

    · Share on FacebookShare on Twitter
  • funthing42
    funthing42 Member Posts: 418
    edited April 2016

    Hi I wanted to chime in on the thyroid issues. I also had uptake on the pet scan . One Doctor was slightly concerned the other was like that is the least of your problems.

    So here comes the strange thing is it possible that I could just have regional BC. Or am I In denial . I really need that question answered. I guess it doesn't matter.

    Oncotype doc said we are talking nodes out then rads.

    Now I'm taking the ibrance and faslodex.

    They told me they are not taking surgery off the table. ??? I guess they are waiting to shrink it in my nodes. but what happens once I stop. To get surgery for nodes.

    Or decide my ovaries should be taken out because this whole time I've been borderline menopausal. Should this concern me .

    Does anyone know if ibrance can make cancer ecellerate after you stop or make other treatments not work as well. Personally Radiation seems to just make my cancer resilient. Except for the 5 tiny superficial skin mets they blasted.

    My confusion is when you are first dx'd the first thing they like to announce is how many nodes are involved well I finally have 4 nodes out of ?? So now nodes do not matter. Doesn't taking them out help stop the spread of ds.

    Sorry for the tangent it seems like my mo lately. :)

    Runnnnnn on sentences :)


    · Share on FacebookShare on Twitter
  • artistatheart
    artistatheart Member Posts: 2,176
    edited April 2016

    Caryn, he is just fabulous! What a great little profile.....I love the picture of Frankie just gazing at him. Super congratulations, life at it's best!

    · Share on FacebookShare on Twitter
  • nancyh
    nancyh Member Posts: 2,644
    edited April 2016

    He's gorgeous!! Thanks for sharing with us, I just logged on tonight for the first time in a while, looking for good news posts, and this one knocked it out of the park!!!

    · Share on FacebookShare on Twitter
  • Wendy3
    Wendy3 Member Posts: 1,012
    edited April 2016

    Caryn congratulations this was a great surprise on my daily scroll through my pages. What a beautiful baby happy days for you and all your family. These are the best moments .

    Wendy

    · Share on FacebookShare on Twitter
  • reader218
    reader218 Member Posts: 19
    edited April 2016

    just thought i would let you know i am 10 years out from my stageIV dx with lung metaatasis. you have alot of life left. do what you need to do to get back to what you love. you are in my prayers


    · Share on FacebookShare on Twitter
  • screech
    screech Member Posts: 212
    edited April 2016

    I don't put in my two cents often here....but I just have to comment.....what BEAUTIFUL grandchildren!

    · Share on FacebookShare on Twitter
  • Nel138281
    Nel138281 Member Posts: 2,124
    edited April 2016

    beautiful baby - enjoy all the moments!


    · Share on FacebookShare on Twitter
  • artistatheart
    artistatheart Member Posts: 2,176
    edited April 2016

    Nancy!!! Yay! So nice to hear from you! That is my good news for the day. We miss your daily's and hope you are doing fine. I think of you often and wish you a beautiful and peaceful Spring.

    · Share on FacebookShare on Twitter
  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited April 2016

    Thank you all so much for your good wishes. I was in the room during the delivery and I can't think of anything more moving of life inspiring. It was amazing and my dd was incredible. She has been somewhat fragile at earlier points in her life but her strength and determination was awe inspiring. She only pushed for 45 minutes. My school is only 5 minutes from the hospital, so I dashed over there as they were preparing to be discharged. He is such a precious little peanut. Can't wait for the weekend to spend more time with him.

    · Share on FacebookShare on Twitter
  • Texasrose53
    Texasrose53 Member Posts: 354
    edited April 2016

    Reader...That is awesome!

    · Share on FacebookShare on Twitter
  • GatorGal
    GatorGal Member Posts: 2,550
    edited April 2016

    Reader, 10 years is awesome! That's what my onc told me I could do and it's been 8 years. It was hard to believe at the time but I can see it happening for sure. With new treatment combos being tried and the success some are having, I can see it going well past 10! So happy for you. Keep on trucking on!!

    Glenna

    · Share on FacebookShare on Twitter
  • artistatheart
    artistatheart Member Posts: 2,176
    edited April 2016

    That is so awesome Reader and Gator! Hope springs eternal!

    · Share on FacebookShare on Twitter
  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited April 2016

    reader,

    I'm sorry to take so long to congratulate you on 10 years. I hope to reach that amazing landmark too, one day.

    · Share on FacebookShare on Twitter
  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited April 2016

    Because a grandmother can never be too excited or proud, here is a new pic of my sweet baby, Miles.

    image

    · Share on FacebookShare on Twitter
  • Tina2
    Tina2 Member Posts: 2,943
    edited April 2016

    Reader, congratulations on 10 years. You are my inspiration!

    Caryn, we have two brand-new little ones in the family. I'm just an aunt, but I'm pretty pleased nonetheless.

    Tina

    · Share on FacebookShare on Twitter
  • artistatheart
    artistatheart Member Posts: 2,176
    edited April 2016

    He is perfect!!! Just beautiful! Tina, I would take Aunt or Grandma. We just need a new baby in the family......But the best would be one of my kids having one.

    · Share on FacebookShare on Twitter
  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited April 2016

    Congrats, Tina! I am just blown away by how life affirming babies are.

    · Share on FacebookShare on Twitter
  • Kandy
    Kandy Member Posts: 1,461
    edited April 2016

    Caryn,

    I don't typically keep up with this thread but looked to see if your grandbaby was here. Congratulations. He is gorgeous.

    · Share on FacebookShare on Twitter
  • Bliss58
    Bliss58 Member Posts: 1,154
    edited April 2016

    More pictures please, Caryn! I've just learned of Miles' arrival tonight, and he is just gorgeous! Congratulations to you and your DD and family. What fun to come! Thanks for sharing such good news.

    GatorGal and Reader, thanks for sharing your good news, too; 8 and 10 years, that is so awesome and inspiring!


    · Share on FacebookShare on Twitter
  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited April 2016

    Caryn, how sweet! Baby Miles looks so soft and cuddly.

    · Share on FacebookShare on Twitter
  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited April 2016

    Thank you, all. My family, particularly my grandchildren, are my joy and passion. Being an educator clearly comes in number two! My older dd and I are cooking today to provide the new family with meals for the week. The new mom loves a Chinese style rice/chicken and black mushroom dish that I make in the slow cooker. SIL hates mushrooms so she gets it all to herself. Frankie, decided that when we eat dinner, Miles would sit next to her in his high chair. She was very disappointed to learn that he's not ready for a high chair yet, just as he's not ready for hula hoops or trampolines (she had planned to teach him those things by next week).
    · Share on FacebookShare on Twitter
  • Nel138281
    Nel138281 Member Posts: 2,124
    edited April 2016

    Reader,

    Congrats on 10 years. I love to hear all these stories. It gives me such hope

    Caryn

    He is beautiful and love his name. Hula hoops and trampolines - next week perhaps!

    I need to remind myself it is the little things as well as the big things. Spent last night playing Apples to Apples and Scatergories with my ds (22), his girlfriend (22) and my dd (almost 18) And a friend who is having hip replacement surgery on Monday. The laughs were wonderful - my friend needed them and so did I. And my kids have another memory. This is a very unusual occurance in my house as dd and ds are often at each others throats!

    · Share on FacebookShare on Twitter
  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited April 2016

    Nel...LOL...I have a DS & DD that at 42 (tomorrow) & 40 (June) can still get each other's goat (whatever that means!), but when the grandkids are gathered...it's all about them :-)

    Reader & Gator...you are Rock Stars!!!!

    Yes...seeing Nancy's post made me smile!!!

    Caryn...Miles has his fan club!!! And if I remember correctly, a couple more sisters have pending grand arrivals!!!! Woohoo!!!

    · Share on FacebookShare on Twitter
  • ChelleG
    ChelleG Member Posts: 540
    edited April 2016

    Caryn, how precious could he be? Omg! Makes me all the more excited for the arrival of my grandson in August! Congrats, what a cutie

    · Share on FacebookShare on Twitter
  • txmom
    txmom Member Posts: 306
    edited April 2016

    Caryn, He is so precious.  Congratulations.  I'm so glad you got to meet him.  :)


    · Share on FacebookShare on Twitter
  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited April 2016

    Thanks txmom. I not only got to meet him but was present at his birth. My dd and SIL live very close to me, as does older dd and granddaughter , so I am very present in their lives. The bris is tomorrow

    · Share on FacebookShare on Twitter
  • Andi67
    Andi67 Member Posts: 423
    edited April 2016

    Congratulations Caryn, he is just beautiful... and I love the picture of his darling older cousin holding him and gazing down at him. You are very blessed and they are lucky to have YOU so close by! Makes me want to have grandchildren even though my own kids are still in high school and college. And - so funny that she thought he'd be ready for hula hoops and trampolines in a week!  Babies are absolutely THE BEST!

    XO

    Andrea

    · Share on FacebookShare on Twitter
  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited April 2016

    Just over a year and a half ago I was waking up from anesthesia after my port surgery and the doctor broke the news to me that I had bone mets (not that I didn't already know because I was in such pain). I was Stage IV from the start and still a bit unsure of what it all meant. I remember asking her if I would ever return to by Bollywood dance class. She said yes, but she never looked me in the eye.

    Well this week I returned to my dance class. I'm 10 pounds heavier, out of shape and given orders to wear shoes (we usually dance barefoot) and not to jump too much, but I was there in the back row waving my arms and swinging my hips.

    It feels so good to be back.

    · Share on FacebookShare on Twitter
  • 50sgirl
    50sgirl Member Posts: 2,527
    edited April 2016

    Shutterbug, That is fantastic. I have never seen anything about Bollywood dance classes around here, but I can imagine how much fun it is. It looks like great exercise for your entire body. It doesn't matter that you are heavier now or that you have to wear shoes and jump gently. I have a feeling you enjoyed that class more than anyone else there. Congratulations

    Lynne

    · Share on FacebookShare on Twitter

Categories