I decided to completely forego any further " C industry care" ?

Thanks macb04,

I posted a thread called "Port? What Port?" in the depression section a few days ago. There's another one about Doctors who take Pharma money in Alternative Medicine. I sort of got my rants out. Each of those docs are the ones I fired.

The MO was insisting on another CT scan instead of a PET. I put in writing, attached to a copy of 2/16/2016 CT scan, instructions for him to please cancel my CT scan. I put my phone number on it and told his assistant, "If doctor has any questions he can call me at the number on the note."

My surgeon looks at me sideways when I say I just want to get this over with and get back to my normal life. I feel as if they're trying to handcuff me to the medical community and keep me until my insurance runs out. I have other ideas on how I might want to live the next 12 months.

I made a post about the Genetic Counselors. They just seem like sales people trying to market to my genetically mutant family.

I'm not nice to them, I'm non-compliant and learning to embrace the negative title.

cb

Momine,

You always say the right thing.

Sadly, no one ever has to remind me to be a bitch. I was so overly pissed off the first time around that I've make it a point to be nicer to everyone this time. I really have to force myself to try to remember that their feelings about what they do, run as deeply as my feelings against what they do. I'm as nice as I can be but I get home and hate on them all. I do my research and go back to them loaded for bear.

My insurance had denied the PET in 2014 and earlier this year when my surgeon ordered it so I started searching around and found that it's not as useful a tool as the CT. I found that out AFTER dealing with the MO. But I had the February CT results in my hand and no desire to drink the barium again. I liken it to drinking the Kool-Aid.

So funny, none of them understand that figure of speech, drinking the Kool-Aid. Sometimes I wonder if it's a cultural thing or a generational thing or if they're just dense. But I find it crosses my mind often in these situations.

I'm not leaving this MO over a CT scan, I'm leaving him because he takes the pharmaceutical money offered by the sales reps and I can't trust his possibly biased decisions. I wish I could blindly follow along with whatever the doctor orders, but I don't trust any of them. It must be really nice to be able to trust your doctors.

cb

cb123 - I just wanted to say I get your posts and support your decisions. So far, I only trust one doctor who is my GP. He knows I have a medical background and is not put off when I ask specific questions or discuss medical treatments. He is confident enough not to be insulted. He actually warned me that some doctors would be turned off by my direct questions. It is very hard to find these type of doctors who get to know us as individuals instead of a case file. (In the past, I have succeeded in "blunt" conversations with my former MO, surgeon and radiologist who were all happy to view me leaving their office.)

I have endured surgery, chemo and just finished rads, but I don't believe that without these methods, I would still be here. I do believe it saved my life, but I also saw a naturopath throughout my treatment, which helped a lot of the side effects of conventional treatments. It also helped me to rectify all of the risks that were in my control, which can contribute to getting cancer. I think there is a lot of emphasis on conventional methods and early detection, but not enough on metastatic research and the causes of it in the first place, because there must be a significant number of things out of whack in people's bodies before developing the big c.