I decided to completely forego any further " C industry care" ?

macb04

I let them butcher, fry and poison me. NEVER AGAIN!!!!!!!!! I find so many here are going through the endless sea of misery inflicted by the medical bc industry. I was terrorized and manipulated into letting them torture and abuse me, like so many, many others, all in the name of "treatment ". I HAD ENOUGH! I go the Naturopathic path now. When I finish with my last reconstruction surgery in the summer or fall I plan to never step foot into the medical dumba**, morally defective (md) territory again.

Meow13

macb, I have my MRI in Seattle on May 13th I have a bad feeling. Let me know where you are being treated now. I can't face a recurrence and medical treatment.

macb04

Hey Meow13, I am sorry you have all these worries. I see a Naturopath who is oncology trained through Bastyr University. Her name is Dr Jeannine Wilmes . Her number is 206 282-5386. Hers is the third or fourth option, I forget. She introduced me to another Naturopath, Dr Margie Ikeda, her number is 206-535-7527. I GET IV Vitamin C there as often as I can afford. My insurance won't pay. IV vitamin C kills cancer cells.Look up the following article on Google : Intravenously Administered Vitamin C as Cancer Therapy, three cases. I am hoping that doing these extra things will save my life. Certainly makes me feel better. The Vitamin C has no side effects, increases my white cells and red blood cells when I was anemic during chemo. There are other things to try too. I take Artemesia which is also a cancer killer. There is an Naturopath practice I read about with Whole body Hyperthermia, it is up in Canada, near Vancouver. Hyperthermia is known to kill cancer, cancer can't take the heat. They use it at several clinics in Germany and Europe. They are just starting to use it in the US.

I hope some of this helps. I will send lots of good energy and blessings to you that you are ok. I say this affirmation when I get worried.

ALL SHALL GO WELL. NOUGHT SHALL GO ILL. JOY SHALL RETURN AGAIN TO STAY. SO THIS I SAY.

Let me know how you are. I will PM you.

leggo

Hi macb....nice to "meet" you. Don't know how I missed your post, but glad I saw it now. I too have given up on traditional cancer treatments, though I got to that point by necessity. Traditional treatments failed me. If you ever want to "talk", feel free to pm anytime. If I'm not posting, I'm hooked up to get pm notifications through e-mail so I won't miss it. Hope you're doing well!

Leia

macb04, I did have a lumpectomy to remove my 2cm IDC. In 2006. But I refused all other "treatments."

I was lucky, though. My lumpectomy resulted in a huge hematoma to my breast. There was no possibility of these other treatments, at once. That gave me the time to read up on them. After which, I promptly rejected them all.

Because they make no sense. Treatments for cancer which include radiation and chemotherapy; known carcinogens in their own right, makes zero sense.

abigail48

youth is a plus, there are other considerations for surgery: do youbleed easily, in the same (vein) do you live in a rainy or dry region.surgery isn't going to cause hair loss, I absolutely sympathize there, I doubt if it ever grows back the same, & hair after all is a sign of beauty & health

macb04

I deeply regret that I listened to the bastards. They terrorized me and guilted me about my kids. They ruined my life. I was never told I was cured. No one even said NED. Leia, I agree with you that their carcinogenic frying and poisoning makes absolutely no sense. That's why I finally told them to stuff it, stopped their "treatments" before they were finished. I have so much damage from what they did to me. I Just wish that I had told them to fuc* off sooner. This reconstruction bs is just pure misery, I have had 10 surgeries for it in the last 2 3/4 years, and I am not done yet.

Tash-Blum

I am new here. I had a mammogram on the 23rd, a biopsy the same day and told the news the next day. I have an ultrasound in two days then meet with the surgeon on Monday. I've been doing a lot of research and I'm just not sure I want to go the conventional route. My husband is kinda worried about that and my daughters won't be happy about it either. I have told no one about the news except those three people due to the fact I don't want any negative energy or feed back from anyone. I'm just trying to figure things out. Do you all know of any success stories of women taking a different route? I keep finding info about cures related to raw eating and Vitamin B17 and the Vitamin C injections as well as may others. I don't want to rely on the medical industry for the rest of my life. I know I can do this, heal, but I'm looking for input from others who have been there. Any info will be greatly appreciated!

Tash

Italychick

Definitely not an alternative approach, but both my breast surgeon and oncologist said surgery is approximately 70% curative. And my primary care physician said I have to do chemo, but recognize it can create other cancers in the body and I will have to be vigilant. I don't think there are any easy answers

sandcastle

The...ONLY answer is, It is YOUR journey and your choice.....You, can only ask for support from your Loved one's whatever your choice is.......and I Hope that will happen for ALL of us.....Liz

Tash-Blum

I'm really confused about it all though. I have been doing a lot of research, as I'm sure you all have as well, and I'm really beginning to question the traditional protocols. I will find out Monday what their recommendations are. In the mean time I'm continuing the search.

Momine

MacB, I am so sorry that you have had so much trouble with the recon. This is one conventional "treatment" I did skip, and I have yet to regret it.

macb04

Tash-Blum - look into an oncology trained Naturopath if you want the natural way. I wish I had done that to start, I was guilted and manipulated into doing what other people insisted on, not what I felt was right. DON'T LET THEM BROWBEAT AND TELL YOU WHAT TO DO.

Remember that just because thousands of people think they are right , doesn't mean they are. Millions of people thought the Earth was flat.Duh! Almost all the doctors should join the Flat Earth Society, their treatments haven't advanced much beyond leeches.

Sparkle2014

increase vit c, get vit d increase and 2,000 day and b17 in pumpkin seeds,,,, lemons in your beverages,,, shots lemon juice, suck on orange slices, eat raw berries and try apple slices during week try to add things in slowly and replace bad junk foods,,,

abigail48

& even though the earth IS a bit flat: (flattened at the equator because of the spin), doesn't make what the they tell you is true

Deblc

MacB so sorry to hear you had such a hard time. From the get go, I refused reconstruction, because to me, that was cosmetic and I wasn't doing anything I didn't feel was absolutely necessary. Treatment is hard enough as it is !!!! Did you have major problems with the other parts of the treatments? It is a hard road for sure, and this is what stops many people from doing it. I keep hoping that they would discover a gentle treatment THAT WORKS !!!

PLEASE keep us up to date on how you're doing. I really would like to hear the success stories of people who have NOT done traditional. Do you mind me asking what your stage etc is, and how much traditional treatment you have done?

Thanks.

kittysister

I would also love updates from others not doing the traditional route, or refusing further treatment. Not because I am being nosy, either. I've just read and heard of too many heartbreaking stories of those that did do all of the "required" treatments and are no longer around to tell about it. I also know of a couple in my personal life. I think to myself "all for .. what?"

macb04

I did the "traditional butchery, poisoning and frying " I won't dignify it with the word treatment. Had uni mx July 9, 2012, the Devils Day. Then I got manipulated into CMF poison once per week for 5 months. I stopped a month early because I started to realize that it was causing a lot of permanent problems with a very low rate of effectiveness. Onco at the time told me for ILC, chemo is 90 to 95% ineffective. She didn't share that bit of info at the start or I would have refused the poison and told her to go stuff it. Then in the midst of poison they stopped that for a while to start burning me to a crisp. Was burned 5 d per week for 5 weeks. Had open bleeding sores all over my chest. They would write on the sores with markers. I was in so much pain I had to take narcotics around the clock. I refused getting a boost, so skipped the last week of rad. The idiot rad md gave me a sample cream to prevent burning after I was burnt. In a panic I ordered more of the cream from Amazon for $80.00. When the cream arrived it said "NOT TO BE USED ON OPEN WOUNDS " What a fucking moron dr christine fang at scca is..

I hate what I look like, I want to be whole again. I know it will never look great, but I am going to do this reconstruction crap till I get some relative degree of symmetry. I understand wanting to never let the butchers touch you again. For me, the desire for wholeness, to never need to wear fake shit in my bra outweighs that. That is just me. Everybody is different, has to do what works best for them. No wrong paths.

I like the idea of keeping this thread going, me and others who gave up on or never started the traditional bull shit. I am in Seattle, trying to start a support group for women like me. I don't want any lectures about my choices, just support. Let any Seattle sisters who think this sounds good PM me.

abigail48

they lied to annie fonfa, not sure what or how. she's had a double mastectomy & I heard always wears a sleeve so she must have gotten lymphademia. she has no breasts, no reconstruction, famous activist for our trouble

Leia

macbo4,

You are so right to be bitter against this "medical industrial complex." They just lie. And you were caught up in the lies.

I do believe in surgery to cut out a cancer; what I don't believe in is all of this other crap. Truly, in 50 years people will look back on us and wonder, "How could they have been so barbaric?!"

As I said on another thread, cancer is just a symptom. We need to cure the underlying disease. And we do that by strengthening our immune systems. To fight off the disease. Number one, increase your D3 level to 80-100. And there's Turmeric and Krill Oil and so many other natural treatments that will bolster your immune system.

Because that is the key, for all of the body's ailments; build up your immune system. If you give your body what it needs, it will cure you.

And if you give your body radiation and chemo, which suppresses your immune system, it will kill you.

juneping

i am just so fed up with the medication on the market....each and every single of those medication has a range of side effects. it's like playing russian roulette....

i think sometimes it's pretty clear that clean diet and exercise are two crucial factors about beating cancer....the debatable subject always go back to the conventional vs alt....can you imagine if all those money invested in those promising natural cure instead of patenting or making "better" drug, or all those drugs to make chemo much more tolerable??

the problem is the western medicine is not willing to step back from chemo/radiation.....so i can't be sure 50 years from now there'll be a cure. if there's a cure it sure won't be from this multi-billion industry network. it will come from some place else...somewhere is less driven by money. or when more than half of the population under the age of 30 have cancer...then there will be a genuine cure. hopefully the medical system will not be collapsed by all those burdens.

as long as the majority of the ppl think it's other ppl get cancer not me...it will never be any changes. it will only change when ppl get cancer left and right...then ppl will start to think.

pipers_dream

I'll chime in tho it's way too soon for me to claim myself as a success story. I haven't done any conventional tx except for tests like bx, bone and ct scans. I hired a holistic MD and bio dentist and did what they prescribed. There've been times when I thought conventional might be easier but I doubt it. One and a half years later all I can say is it's not growing. I have another friend who is 6 yrs in and she says the same thing--we have cancer still but not getting sicker. What I have discovered with my highly hormone + BC is that fat on my body and stress will cause it to start acting up so I need to keep my weight down. Recently I had gained 10 lbs back and my tumor started to grow so I fasted and it went right back down. Some bad stress at work didnt help.

Meow13

My MRI came back good. I am on top of the world for me I knew chemo was not the answer even though oncodx was 34. I am 3.5 years from dx and feeling happy with decision. Doing exemestane but I don't think that is really working. Eat right, exercise, live without stress be happy.

sandcastle

Meow....YOU...have it right......eating healthy and exercise gives us more control then we think.....Liz

pipers_dream

Yes Liz, but I do think it depends on the person. For those who were already eating right and exercising before they even got BC, it may not make as much of a difference, though I've found that many times people don't eat as well as they think they do. I know that my BC was tied into my weight b/c I had metabolic problems such as big belly and pre-diabetes, so for me fasting kicks it back quickly. I still have some lbs to go so having this illustrated to me so dramatically lately has motivated me to go ahead and get those last 20 lbs off. I'll still have a little cushion but I figure I'll need that "savings acct" if anything ever happens.

Stress though--I've found that you must not ignore it! Do whatever it takes.

sandcastle

Piper.....Savings Account??  I sure have that covered......and yes STRESS can be the worst....Liz

dixiebell

Here is a life calculator for breast cancer tx. It is strictly based on outcomes ... if I do this I will extend my life by this... it really helped me make my decisions based on science not emotion.

http://www.lifemath.net/cancer/breastcancer/therapy/

macb04

Hi all,

I think that we all need to be advocates for change. I recently saw a dermatologist for treatment of the rad damage to my skin. She went berserk over my wanting to also get rid of the rad tattoos. I told her I am not interested in any further "cancer industry treatment ". She refused to allow me the right to decide my own care. She said, what does your oncologist say? I told her I don't see an onco. She nearly had a cow with that. Then she changed tacks, said we all know some one who died young of bc. I then told her of my friend M, who is 34, went from a stage 2 to 4 in 2 years. M 's done nothing but what the cancer industry hacks have told her to do, yet she keeps getting worse. Now her arm is fractured from bc and she needs surgery to fix it. The dermatologist got more and more alarmed. I guess she believed the cancer industry bullshi*.

I said to that derm what I say to everyone, if someone is of sound mind and makes an informed choice, then it is their right to decide what is best for them.

lyzzysmom

I am thinking of giving up on the traditional meds. I got through rads unscathed apart from fatigue but the tamoxifen did a number on me. Already an insomniac I was getting hardly any sleep, felt fatigued and unable to concentrate at work. Fortunately I was allowed to switch permanently to part time and do less stressful work.

After 3 months I ditched the tamoxifen, did not follow up with my MO and was exercising regularly, doing 5k on the treadmill, and feeling better and able to concentrate more as I got it out of my system. I was at peace with any extra risk of recurrence and not beating myself up over it. Anyway I went for my annual physical and my primary care who I really do respect, pursuaded me to try effexor generic in order that it may make it easier to go back on the tamoxifen.The side effects are worse than the tamoxifen itself. I can sleep but I can barely get out of bed, just tired and sleepy all day, yet tense. A couple of days I have been too lethargic to even clean my teeth! I have had some dizzy spells when I stand up .I missed a pill intentionally when I knew I would have to drive a long way but I forgot the next day and missed it for 2 days and found my breathing labored. Yup a withdrawal effect so I took one and breathing was OK.

I am going to make an appointment with my doc to see how I can wean off these. If I see my MO I know he will try and put me on an AI next and I am 60 and just not ready to feel like an old lady just yet. I just want QOL above anything else, not quite ready to spend the rest of my life in bed watching TV!. I will up my vitamin C and D and put something that will make me feel more healthy in my body instead of crappy. Perhaps I will look into the IV vitamin C.and finding a naturopath too.

macb04

Hi lzzysmom, and all,

Tamoxifen does a number on you because it causes L-tryptophan depletion. Look it up. It is used in neuropsychiatric trials to cause rapid tryptophan depletion. The tryptophan is the precursor of serotonin and I think Melatonin. There was even a trial where they gave tamoxifen for treatment of bipolar mania. Bet the docs didn't mention that crucial little tidbit. I am not even sure that all the onco's know that. They are woefully uneducated about such important side effects and how these drugs screw us all up and rob us of quality of life.

I take DIM and since it gives me some hot flashes I feel like it is working to improve my estrogen metabolism. I also try and do ground flax several times per week.

Lzzysmom, try tapering off the Effexor with the help of a Naturopath. I hear it is one of the harder ones to get off of. Don't give up. You can feel better, sleep better. It just takes time. I am so glad to be off tamoxifen. It was literally driving me insane. I couldn't sleep and had mood swings. I would get rapidly, furiously angry at nothing. Screamed at my kids, broke my tablet, broke my pressure cooker. I never knew what would set me off. I would get angry without warning, like a volcano errupting. Wouldn't have a chance to calm down or count to ten or anything. I even frightened myself. The last straw was when I saw my 8 year old cry because I was yelling like a maniac.

Quality of life is a valid reason to choose one course of action over another. The doctors might tell you different, but they don't have to live with these horrible consequences.

lyzzysmom

Thanks macb, I am going to find a naturopath. My husband takes flax. He adds it to smoothies so I think I will join him.

I can relate to you frightening yourself. Years ago I had a pager and could get called by work at all hours of the night. I wore it on the waistband of my pjs at one time so it would just vibrate and not wake my husband up. Yes really!! I got so stressed that I would jump if my tummy just rumbled! I ended up being prescribed Wellbutrin for stress by my doc. I took it for only about 10 days as I have never felt so much anger for no reason. It was scary. It was messing with my brain. We finally settled on an occasional low dose lorazepam to help with sleep and I never had any problems with that..

I thought that maybe effexor would be ok as it is not an SSRI but I guess it is somewhat similar and it came with its own side effects which they never tell you about! Fortunately I have not been taking it for too long. I can only imagine the problems that people who have been on high doses for years must have when they try to stop.