Eye issues while taking letrozole or maybe Ibrance

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phrogger78
phrogger78 Member Posts: 115
edited April 2016 in Stage IV/Metastatic Breast Cancer ONLY

Has anyone had eye issues with letrozole? Particularly ptosis (drooping of the eyelid). I now have this in my right eye and it happened after I started taking letrozole and Ibrance. I don't know which one could cause it, if either did but I will bring it up with my oncologist at the next appointment. Of course it could be a brain met and I haven't had a brain MRI, but it happened after I started meds so I'd like to think it is from the meds instead.

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  • dlb823
    dlb823 Member Posts: 9,430
    edited April 2016

    phrogger, there's been some very recent discussion about this in the FB Ibrance group. If you're on FB, PM me and I'll tell you how to find the group. But the bottom line is, several women have experienced it, and in some cases are attributing it to Bell's Palsy, which I know nothing about, but the eyelid issue seems to be one of the symptoms. I've actually been wondering if I'm developing that too because I've noticed, especially in photos, a difference in my eyes I never recall having before, and as a result, I am constantly pushing my upper eyelashes up with my finger, to minimize what I am now self-conscious about. Until the FB discussion, I had attributed it to lack of sleep, because some days it's much more noticeable to me than others. So now I'm wondering if that's what it is.

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  • phrogger78
    phrogger78 Member Posts: 115
    edited April 2016

    Thanks I just joined the group, I am checking it out.

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