Breast cancer metastasized to Colon

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YellowRoses
YellowRoses Member Posts: 20
edited July 2018 in Stage IV/Metastatic Breast Cancer ONLY

Wonderful having this website to connect with. (I am new here.)

Anyone else out there wiht BC mets to colon (very rare)?

Original BC DX in 2001. Lobular BC stage 3, Hormone Pos. Discharged in 2010. One year later during routone colonoscopy found breast cancer cells in colon. Very rare site for BC mets. Put on Arimidex (anastolzole) and later PET/CT scan showed those BC cells gone. Yay! But about 1 year ago, breast cancer cells found on spine (C4) not a great place. But, very small (so no symptoms), ony confined to soft tissue inisde spinal chord, and, it has remained same size.

In Jan. 2016, first of 4 incidents with GI probs invilivng ER visits-last one while away on vacation 2 weeks ago. ER scan showed thickening on wall around colon. Seeing the same colo-rectal surgeon who first found the mets on colon in 2012, tomorrow for a consult.

Would be grateful for any hopeful words. Thank you!

Treated at Memorial Sloane Kettering in 2001 (living up north) and at Johns Hopkins since 2002 after moving to VA. Am fourtunate to have been receiving great care. Know of one women diagniosed with breast cnacer mets to GI tract-higher up the system and therefore closer to breast. She is still around 20 years later. Cancer keeps popping up elswhere,for her too, but like "whack- a -mole" we just keep hammering it back down.

Again, thanks for any helpful words.


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  • Tina2
    Tina2 Member Posts: 2,943
    edited March 2016

    YellowRoses,

    This site/forum is all about good company and hope. There are women here who have been living well for many years with metastisized breast cancer.

    I don't know anything about colon issues related to BC, but someone may be along soon who might.

    Are you still on Arimidex? Are you post-menopausal?

    Tina

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  • YellowRoses
    YellowRoses Member Posts: 20
    edited March 2016

    Hi Tina,

    Very encoraging words already. Thank you.

    Yes, have been on Arimidex since they first found the BC cells on colon. Will be on it forever-which i hope is a very long time. There is a chance it may stop working, but trying not to think about that. Staying very much in the present, well most of the time..Thanks again!

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  • YellowRoses
    YellowRoses Member Posts: 20
    edited March 2016

    And yes, am menopausal.

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  • Tina2
    Tina2 Member Posts: 2,943
    edited March 2016

    YellowRoses,

    Just so you know, I've been on the other side of menopause for a long time, and on Faslodex every since mets were found in my lungs in 2011. I was scared, but Faslodex got me to stable within less than two years. I'm still in monthly treatment, the mets are still metabolically inactive, and I lead an active life.

    Tina

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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited March 2016

    YellowRoses- there is another site called Peritoneal Carcinomatosis that talks about mets to the peritoneum and colon, ascites etc. There are several members who have had lobular cancer mets to the colon. I for one. I started faslodex a month ago and am doing much better on it. I had been very sick (like hospice sick) prior to having doxil and herceptin fail.You don't list which meds you have tried or if you are ER/PR+ which can help members decide if their journey and stories might benefit you. Once the faslodex kicked in, the cancer grip on my colon eased and I was able to eat again and digest food. I hope you get on a treatment that kicks the mets to the curb. Wishing you success!

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  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited March 2016

    Hi Yellow Roses,

    I have mets in that region and also ascites (fluid in the abdomen). Not much gi tract involvement (knock on wood), but I had half my colon removed as a baby, so am used to dealing with that and gi tract blockages.

    Keep asking for what you need and we'll do our best to shorten your learning curve. Of course, you'll be left with all the curves and bumps along the way, but companions like us can keep you company. :)

    Here's the site that Rosevalley mentioned:

    https://community.breastcancer.org/forum/8/topics/...

    Warmest healing wishes, Stephanie

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  • monax5
    monax5 Member Posts: 17
    edited March 2016

    Mets to stomach and colon


    https://community.breastcancer.org/forum/8/topics/819182?page=1



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  • YellowRoses
    YellowRoses Member Posts: 20
    edited March 2016

    Thanks to everyone for responding. I will check out that site 2 of you menitoned. Having lots of trouble entering this message. For some reason it keeps disappearing or jumping to a different page. Am now too tuckered out to post much more.

    Will say that i have estrogen positive lobular. Have been on Arimidex since 2102. Saw colo-rectal guy today for consult. Love him. Trust him. He is the one who found the BC mets on colon during routine colonoscopy. Next Tuesday doing another colonoscopy. He will biopsy an area even if looks normal. More later. Grandson just arrived and will spend next several days here. He is 8. Just what I need to keep my mind off things. Also, when I first log in, how do I easily get to this page. Each time it takes a long time to find it.

    Gotta go now and hope this gets posted. More another day.

    Thnaks again everyone. You are all great!!


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  • YellowRoses
    YellowRoses Member Posts: 20
    edited July 2018

    Am a little late in posting (like 2 yrs!) but had gotten a bit distracted. This is a great site for me and I hope to be more active.

    Good news is, it HAS been 2 more years since last post. Am and STILL here. Yay.

    Since last posting, BC mets still in colon but also in bones and most recently to inside of skull and now at top of spine-at C4 to those in the know. June 22 had last of 5 daily radiations to skull- is considered to brain, but I prefer less intimidating sound of skull.During that week a Spine MRI showed a compression fracture, that after more consults, has resulted in me being told need to have more radiation this time to that area ofmy spine.

    Still dealing with after effects of June’s radiation. Feeling more wiped out than I thought possible. Having very ominous feelings about being able to withstand yet another bout.When mets to bone Was found in 2016, put on Falsidex, Ibrance, Xgeva. Seemed to be containing cancer till spread to brain and now spine. But still in bones, so docs waiting until results if follow up MEI’s and a PET in Sept. B 4 deciding to switch mets.

    I could go on, but I do tend to say too much these days.

    Hope the kind ladies who responded earlier are all doing well.

    And the beat goes on.


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