Confused?!

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Nina27
Nina27 Member Posts: 77

Hello Ladies,

I am a bit confused.

I have an aggressive tumor Er- pr- and her2 + IDC not staged yet... Either stage 3 or 4 depending on my further biopsy's on Tuesday.

However my skin has been red and hot almost since the start of the lump and now my skin is noticably dimpling with the orange peel affect near the cut where they did the original biopsy of the breast tissue.

When I spoke to the surgeon initially he did mention inflammatory response since its migrated to the skin but can it be IDC and inflammatory breast cancer all in one?

xxx

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  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2016

    Nlunn27, yes, it's possible. When a pathologist notes the presence of breast cancer, Inflammatory bc is a clinical diagnosis--something a doctor would diagnose based on the "clinical" appearance of your breast.

    I noticed a 3-inch circle of light red skin, that had orange peel (peau d'orange) texture within it, and my gyno sent me for a diagnostic mammo and ultrasound. They discovered a 0.8 cm lump under the "umbrella" of redness and peau d'orange, and a needle biopsy proved IDC cells in the lump. Then we were in high gear...everyone concentrated on the lump, ignoring the red skin. I had a lumpectomy and it was a big nasty surprise to discover the extent of my lymph node involvement. I did notice that during the first couple of days following the lumpectomy, the red spot had turned very bright red and angry looking, and had become significantly larger. This effect faded somewhat as the incision healed.

    It wasn't until I saw my oncologist for the first time that the red spot was even mentioned. She had a look and wanted a skin biopsy. Sure enough, there were IDC cancer cells in the lymphatic channels of the skin, which is the basis for an inflammatory BC diagnosis. Clinically, to make a formal IBC diagnosis, the redness/swelling/rash (however an individual's IBC manifests itself ) must involve at least a third of the breast skin (which mine did not, but it was pretty close).

    Redness and swelling next to the lumpectomy incision could simply be a response to the trauma of surgery. But keep asking, and think about getting a medical oncologist involved. IBC is pretty uncommon, and many physicians have never seen a case.

  • ibcmets
    ibcmets Member Posts: 4,286
    edited March 2016

    Mine was both ibc & invasive idc almost 7 years ago.

    Terri

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