Hard Not To Worry

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  • Mamalala333
    Mamalala333 Member Posts: 13
    edited February 2016

    I didn't talk to the doctor because it was a rush to get the results (I had my biopsy Thursday around 3pm and got results Friday around 4pm). I just talked to the coordinator, and she said I was positive for HER1, which I guess I took as being triple positive but then I did research and was confused because HER1+ is also considered HER2-. So maybe I'm not "triple positive" but somewhere in between?

    I'll get a copy of my report on Monday and it can answer more questions. Pretty sure my grade is 2 because coordinator said I had "high intermediate" which would maybe be a 7 on that scale.

    Feeling a tiny bit confused but happy I got my results!!!

  • Tinkerbell49
    Tinkerbell49 Member Posts: 222
    edited February 2016

    Hi ladies

    My nightmare started 5 months ago. I went in for a regular mammogram and I was called back for more views. They found calcification clusters and one was suspicious. I found a breast specialist that is an hour and a1/2 away. I had a core needle biopsy done and it came back that I had 2 micro foci of adh. Adh is a marker for cancer so I had to have an excisional biopsy done. None were painful.in my excisional biopsy the results were benign nothing was found not even adh. Thank God. Now I'm on a 6 month surveillance and my first follow up is March 24. A couple of days ago I felt something in the upper region of my left breast around the biopsy area. It feels like a welt in my breast , flatlike. I can't really define them when I push down they kind of disappear or go back in my breast. I've never had a lump so I don't know what they feel like.

    Can you ladies please describe what you felt when you found your lumps. I'm terrified of cancer I've seen a lot of loved ones loose the battle. Not breast cancer I know there's a lot of advances for cures. I'm thinking maybe they may have missed something. I have no family history of bc.

    Please help the anxiety and waiting is driving me nuts.



  • Mamalala333
    Mamalala333 Member Posts: 13
    edited March 2016

    My cancer was hard and round(ish.) Also rather large. I have no idea what yours could be, but there are many benign options. Ask a doctor

  • __asher__
    __asher__ Member Posts: 147
    edited March 2016

    @tinkerbell I don't know if you've ever breastfed, but my mass felt almost like an engorged duct. It was hard, and not very mobile.

    Sally and Laura, I'm so sorry to hear about your diagnosis. I agree with what Sara said about trying to stay away from Dr. Google. Breast cancer is so different, even if you share the same grade and type. There have been amazing breakthroughs in treatment in just the past few years.

  • Tinkerbell49
    Tinkerbell49 Member Posts: 222
    edited March 2016

    Thanks. I go for an mri March 15 crossing my fingers.

  • kwhit
    kwhit Member Posts: 59
    edited March 2016

    I had surgical biopsy in October of 2012, three specimens were removed and now it feels like i have a huge hole there. I don't even like to touch it when I do self exams because it scares me! I know that sounds stupid but it does! Two of the places were completely benign, the surgeon only removed them because I don't think she was sure she got the right spot (how comforting is that)! The suspicious area ended up being minimal focus of flat epithelial atypia, calcifications, and other things. I was put on 6 month watch, now I'm back to yearly. My surgeon, who was watching me closely, has now moved out of state, so I have now decided to freak out and second guess everything after googling FEA! I am going to see a BS on April 27, 2016 to get her opinion on follow up for the FEA.

    All of the ladies on this site are amazing, I must say! I have learned so much from reading your post!


  • Heathet
    Heathet Member Posts: 257
    edited March 2016

    it is hard not to worry. I had my ultra sound biopsy on Wednesday March 2nd and at that time my radiologist told me he strongly believed itwas cancer. It was very hard waiting for the results, I had many moments of just breaking down and crying. I met with my GP on the 8th and he confirmed it. He recommended a good doctor and I was contacted by them. They have ordered a few more test and my surgeon gave me some more information which has helped to put my mind at ease. It's a process and my doctor explained surgery will be anywhere from 3 to 6 weeks. My reaction was wow and he reassured me that was normal. I was thinking surgery would be next week! He explained this is the info gathering period so we can plan my treatment. I have DCIS in the left breast and that's all I know at this point. Stay strong and I know how hard the waiting is.

  • Tinkerbell49
    Tinkerbell49 Member Posts: 222
    edited March 2016

    Thanks for everyone who responded. I guess what I felt was nothing more than scar tissue. My results came back birads 2 some cysts and scar tissue. But it was a long day and yes it was very hard not to worry. I'm thankful it's over and all is good.

    Heathet sorry for your results I hope you can get all your answers soon. Praying for you.

    Kwit I hope you get some answers I was dx with adh 6 mo ago and went for my first follow up. Now they said mammogram and us once a year and mri every 18 mo. I know women with less than adh that are being followed every six months for two years. I only did one six month follow up and they want me to go yearly. Like u I also googled adh and I am freaking out too.

    Good luck to all.

  • Strongnserene
    Strongnserene Member Posts: 3
    edited March 2016

    One week ago today I had my annual mamm. A 3 D. Never gave it a thought. In my large, multigenerational family I have never heard of anyone having any female cancers. Rarely is there any cancer. I got a notice that my results were on my portal, I looked and (shock!!) found out I had a spiculated nodule concerning for malignancy. I'm still stunned. Most of the time feeling surreal, numb, in a daze. I have diagnostic mamm and ultrasound Tuesday. In the meantime trying to #1 build a support network (thank you breastcancer.org!) #2 learning all I can, #3 already found a surgeon should I need one and #4 talking to other friends/acquaintances that have had 'scares' and had actual malignancies. 5 days down in waiting and 5 more days to go for my next round of tests. My friend who is a surgeon (not breast) told me I'd almost certainly have a biopsy. I go home from work and curl up in bed with a book and half the time can't remember what I've read. Waiting, for me, has to be one of the worst things I've ever went through. (I know, I know that if I'm malignant THAT will be much, much worse!!) Thank You God for this forum and all the people who belong to it.

  • Strongnserene
    Strongnserene Member Posts: 3
    edited March 2016

    I think I goofed. I'm new to this site. I think I'm supposed to respond to 786 TX - that this is her page??? I'm sorry if I did it wrong, talking about my own issues.

  • Tinkerbell49
    Tinkerbell49 Member Posts: 222
    edited March 2016

    strongnserene

    I understand what you are feeling I was dx with adh last Sept. The waiting is definitely the most stressful of all. Try to keep calm til you get your actual results. You probably will get a core needle biopsy or a sn biopsy. I got a core needle biopsy wasn't bad at all I didn't feel anything. That's when they saw adh and I went for an excisional biopsy ( lumpectomy) that showed nothing. That is usually the process. The breast center I go to are pretty quick in regards to tests and results. Good luck we are here for you. You can post anything here pertaining to hard not to worry so you are in the right place. I'll be praying for good results... Keep us posted.

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited March 2016

    CONGRATULATIONS on your benign results, Tinkerbelle!!


    Strongnserene, believe it or not, the wait was much worse than the treatment for me. I'm one of the lucky ones who only had a mastectomy and won't need chemo or radiation, and haven't started my antihormonals yet - BUT the waiting was much worse than the mastectomy and the tissue expanders and fills and seroma.....the mental is so much worse than the physical!

  • iammags
    iammags Member Posts: 216
    edited March 2016

    If there is one thing I've learned from having cancer is: this is one long road with loads of waiting. And waiting. And waiting.

    It is so hard not to panic. I'm hoping that it will be alright for you. The worst thing is not knowing. At least it is for me.

    Good luck to you.

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