Can we have a forum for "older" people with bc?

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  • carolehalston
    carolehalston Member Posts: 6,887
    edited March 2016

    Sandra, I will be sending positive health vibes to you and Mike. I cannot imagine how frightening what lies ahead is for both of you, especially Mike. I know a woman who has survived two bone marrow transplants and has extended her life quite a few years. She is now enjoying their only daughter's two young children.

    Anne, the new little grand daughters will be coming into a world with a loving grandmother. That's a given.

    I played golf this morning, went grocery shopping at Walmart, and then went shoe shopping at Sports Academy. I brought home two pairs of athletic shoes. My intention is to put each pair on and walk around to check for comfort. Right now, though, my "crippled" left foot hurts too much for more walking around. The New Balance shoes I've been wearing as golf shoes are about worn out.

    My golf game was better today. I'm feeling encouraged.

    Greetings to everyone.

  • stellamaris
    stellamaris Member Posts: 384
    edited March 2016

    Sandra - thanks for your encouragement.Sending you and your husband positive thoughts. The cherry trees are starting to bloom now and when the sun shines it is absolutely glorious spring here. Can't wait to get the kayak out! We take it down to Point Roberts, Wa., and paddle along the coast. We have even paddled in the middle of a school of dolphins, there, where they were jumping out of the waves all around us. My DH jerry rigged his fishing rod to the kayak - he is determined to catch a salmon lol.

    image

  • enjoyevrymoment
    enjoyevrymoment Member Posts: 334
    edited March 2016

    So glad to hear, my "surgery buddy". Nice to see you on the boards again. Sorry you went through some concerns it sounds like! Hugs!

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited March 2016

    Anne, your story about turning the car around on the narrow mountain road makes my heart pound just reading it!

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited March 2016

    Sandra - holding you both in my thoughts. Keep in touch when you can.

  • termite
    termite Member Posts: 241
    edited March 2016

    Sandra, Keeping you and Mike in my thoughts and prayers. Please keep us posted

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited March 2016

    Sandra, Praying for the best of outcomes for you and Mike.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2016

    Courage doesn't always roar.
    Sometimes courage is the quiet voice
    at the end of the day, saying,
    "I will try again tomorrow."
    - Mary Anne Radmacher

  • Teacher64
    Teacher64 Member Posts: 840
    edited March 2016

    Sandra - think of you and Mike.

    Enjoyevrymoment - glad you are on. Is all well with you.

    Weather is supposed to be nice this weekend so it will be time for me to begin weeding beds. This year I'm determined to do it without getting into any poison ivy. Last year I was especially watchful and ended up with it anyway. I will be on high alert.

    Just watched news that said Astronaut Kelly has come back taller. I guess that is the only way I would be able to get taller. Not happening

  • ritajean
    ritajean Member Posts: 4,223
    edited March 2016

    Sandra....keeping you and Mike in my thoughts and prayers!

    Carole.... glad that your golf game came around for you today. I never seem to know who is going to show up to golf anymore. My game has been very "off and on." At least the course is finally starting to dry out and I am getting some of that much needed roll, since I am not a long ball hitter. Carole, do you ever get the urge to write another book?

  • cactus_pearl7
    cactus_pearl7 Member Posts: 5
    edited March 2016

    Reading posts of those with stages I-VI going through the hell of chemo. I have felt guilt since I found out mine is only DCIS with no nodes involved. Is that kind of likesurvivor's guilt?

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2016

    Hi cactus pearl

    Welcome to our thread. DCIS is still cancer. I'm sure when you first heard those dreaded words and didn't as yet know, you likely reacted like myself and many others. Terrified for yourself and your future. My life ( like they say about near drowning ) sped along before my eyes since it felt like it might not be taking place for nearly as long as I had hoped and dreamed it would. I was imagining in an instant it seemed, how to say good-bye to my loved ones. So, ALL cancer is serious.

    That said, all of us have a survival instinct --- so while chemo can often be difficult, and sometimes debilitating for awhile ( though in Stage IV you usually are on some kind of chemo always ) we likely all looked on it as only a temporary "hell" that would help us remain on this Earth with our loved ones and great friends and find great joy and peace. We all do what we have to do --- if not chemo, it might be a number of things that stress us and our loved ones to the max.

    I can't speak for the others, but when someone can present a diagnosis line like yours I am thrilled for them. Life is difficult, and through life who knows how many challenges we might have. It is a beautiful thing that you care but I hope you will get past any guilt you might feel. We are all different here --- some were fortunate and their dx. came while their disease was a lot less advanced. Others found out later on and had to do more or different things including chemo. You are one of us, no matter what stage or treatment. Your challenge was a very large one --- it just didn't include chemo. We really don't judge here. We all have had the same challenge.

    Blessings

    Jackie

  • stellamaris
    stellamaris Member Posts: 384
    edited March 2016
    Cactus Pearl, welcome, although I'm sorry you find yourself a member of the 'club' Jackie said it so well. The dx of BC at any stage is traumatic and frightening. I hope you don't continue to feel guilty. You were caught early and I am happy for you. We are all 'caught' at different stages, and some of us have a tougher row to hoe than others. This forum is a place where we can offer each other empathy, compassion, support and encouragement. Here is where we can share our fears and experience and form friendships with wonderful, strong women who are living the best life possible in difficult times. Hugs

  • Wren44
    Wren44 Member Posts: 8,585
    edited March 2016

    Sandra, Keeping you and your family in my thoughts. Mike is strong and the match is perfect. It will be a few very hard months, but you'll come out on the other side. Hugs.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2016

    My whole attitude to life is spiritual--a feeling of
    identification with all nature, all mankind, all life,
    the whole of the past, the whole of the future.

    Fenner Brockway

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2016

    Prayers and much thought and care Sandra. Out of our hands and sending positive thoughts to the Universe to be distributed to all involved today. Holding your and Mike's hands and walking with you.

    Jackie

  • Anneb1149
    Anneb1149 Member Posts: 960
    edited March 2016

    Hi Cactus

    Welcome. I imagine what you are feeling is somewhat like survivors guilt, which is also misplaced guilt. We have no control over who survives a wreck or crash, and we have no control over who gets cancer, what type or stage it is when diagnosed and no crystal ball to tell us what to do or how to handle it. I was stage IIIb and had Her2+. If tha wasn't enough, I had triple the amount per cell than most people had. But, by the grace of God, I had excellent care and have been cancer free since Jan 2014. My amazing Dr's chose to do chemo before surgery, so I was actually cancer-free for my mastectomy and radiation.

    That said, I agree with Jackie and Stella- a caNcer diagnosis is one of the scariest things you will ever face. And having been part of this group for two years now, I've learned that while the actual diagnosis might differ, the emotions and fears don't. It is not so much the accurate diagnosis as much as it is the word Cancer. I took my son, daughter and son-in-law to my first Dr's visit because I already knew it was cancer, aNd knew I wouldn't hear or retain anything the Dr said. She was nice enough to draw pictures which days later, my daughter explained them to me.

    We are a group that supports each other, whatever way needed, whenever it is needed. You are part of this group, not because of , again, what your specific diagnosis is, but because you have joined us on the cancer planet. If you hang around, you will find cancer is the glue that stuck us together, but it is the genuine caring for each other that makes that glue stick. We talk about cancer when needed,but we also talk about families ( good or bad), traveling, gardening, golf, birdwatching, crafts, cooking, the weather, and sometimes what's on the news. We try to stay away from politics and religion, although both come up occassionally, but more as interesting topics rather than personal beliefs.

    Just to get you started feeling like you know us, I am a 66 yr old widow in Ft Lauderdale. I lost my husband of 42 years in Aug 2012 to complications of long term diabetes. I have 5 children, three biological and two adopted. More importantly I am the grandmother of six at the moment, the oldest is 17, the youngest will be three in June and just got a big girl bed two nights ago. Sometime this month my seventh grandchild will make her appearance and sometime in June, another little girl is arriving. My oldest daughter lives near Atlanta with my two oldest grandsons, my oldest son lives in SC with my youngest granddaughter. My other 3 kids live in Ft Laud, one lives with me and her 13 yr old son. So I travel frequently between here and Atlanta with road trips to my son from Atlanta. I travel so often that when friends or family call me on my cell, their first question always is : where are you?

    Obviously, family is every thing to me, and my personal commitment is to be with each grandchild on their birthday. I am very blessed that each of my children and their spouses welcome me whenever I can be there, for as long as I want.

    Other than family, my favorite thing to do is reading - I read all the time and have since I was in fourth grade. My newest passion is coloring. I thought, as did my other kids, that a coloring book and 12 colored pencils was a crazy gift from my daughter-in-law for Christmas, especially when I heard her mother got jewelry. I thought it would be a gift that ended up on my closet shelf, but one day I opened it up. I now color every night, have at least twelve books, and have gotten my 10 and 7 year old grandchildren involved as well.

    I can say that as a group, we are sorry you have cause to join us, but we welcome you with open arms and will be here when you need it. By the way, venting your anger, or fear, or frustration that you don't feel comfortable giving voice to with your family or friends is totally acceptable here. We will listen, we will confirm throughour own stories that you are not alone, and we will not judge.

    Wow - I got thru that with no hesitations on my keypad! Maybe my computer fixed itself. Yay!

    Anne


  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2016

    Hooray Anne, fingers crossed.

    Jackie

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited March 2016

    Lew and I had planned on driving to Minneapolis this weekend to visit my dad and attend the annual Marscon Convention. Instead we're staying home and nursing colds, thanks to the young man who rode with us to Roseau last weekend and coughed and sneezed and blew his nose in our car the entire trip. I sent him an email this morning and told him in the future to remember that his actions have consequences for others.

  • carolehalston
    carolehalston Member Posts: 6,887
    edited March 2016

    Puffin, I don't blame you for feeling annoyed. Hope you recover from the cold soon.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2016

    Without forgiveness, we remain tethered to the person who harmed us.
    We are bound with chains of bitterness, tied together, trapped.
    Until we can forgive the person who harmed us,
    that person will hold the keys to our happiness; that person will be our jailor.
    When we forgive, we take back control of our own fate and our feelings.
    We become our own liberators.
    Forgiveness, in other words, is the best form of self-interest.
    This is true both spiritually and scientifically.
    We don't forgive to help the other person.
    We don't forgive for others.
    We forgive for ourselves.

    Desmond Tutu

  • bonnets
    bonnets Member Posts: 769
    edited March 2016

    Puffin, Sure hope you guys don't have the "cold from Hell" we both had it in January. DH had it for 2 and a half weeks, I had it for a month, went to bronchitis, laryngitis and some pneumonia! Finally got Levofloxin and started to say bye bye to it! Everyone I know who had it , had it for up to 6 weeks. Hope you have just the ole winter colds.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2016

    Success

    They have achieved success
    who have lived well,
    laughed often, and loved much;
    who have enjoyed the trust of
    pure men and women,
    the respect of intelligent people and
    the love of little children;
    who have filled their niche and accomplished their tasks;
    who have left the world better than they found it
    whether by an improved poppy,
    a perfect poem or a rescued soul;
    who have never lacked appreciation of Earth's beauty
    or failed to express it;
    who have always looked for the best in others and
    given them the best they had;
    whose lives were an inspiration;
    whose memory a benediction.

    --Bessie Anderson Stanley, 1904

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited March 2016

    Puffin, so sorry you had to pass up Marscon. But there's still Minicon on Easter weekend. I used to go every year--in fact, the band I was in at the time were 1985's Musician Guests of Honor.

  • carolehalston
    carolehalston Member Posts: 6,887
    edited March 2016

    Election day here in Louisiana. I went by the polling place after I got all sweaty at the gym with my hair in wet strings! As usual there wasn't a line for my precinct though there was a line for the other precinct. This state has closed primaries so if you're a registered Democrat, you get to vote for a Democratic presidential candidate. If you're Republican, you vote for a Republican candidate. If you Independent, you don't vote.

    It's a pretty, sunny day. DH is at the golf course and I have a peaceful house to myself. I plan to spend some time in the kitchen, starting tomorrow's dinner at my mother's house. I'm making beef stew with veggies. Today I'll cook the beef until it's almost tender. Tomorrow I'll add small potatoes, carrots and onion quarters. I'll also make cauliflower mash and a tossed salad tomorrow. My mother will cook rice in her rice cooker.

    Today I also plan to make a batch of stuffed colored bell peppers with ground turkey, brown rice and other ingredients. I'll freeze the extras for future meals. My WW eating plan is going well. I consider getting my weight back under control a birthday present to myself. Another present will be a vacuuming robot called a Rumba. My birthday is next Tues., March 8th.

    Happy Saturday to all.

  • ritajean
    ritajean Member Posts: 4,223
    edited March 2016

    Welcome Cactus Pear. This is a good place to hang out....lots of good conversation with a great bunch of wonderful ladies.

    We played a round of golf today with a couple from North Carolina. We have really enjoyed their company this year and they are about ready to head back in another week.

    Sending healing vibes your way, Puffin! Colds are just so miserable!

    I went to the library this week and came home with a bag of books. I think it's time to drag one out and start reading! Everyone have a wonderful weekend.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2016

    Character cannot be developed in ease and quiet.
    Only through experiences of trial and suffering
    can the soul be strengthened,
    vision cleared, ambition inspired and success achieved.
    - Helen Keller

  • Teacher64
    Teacher64 Member Posts: 840
    edited March 2016

    I just finished reading Sarah's Key, a story of a young girl in WWII intertwined with a modern storyline. Good read.

    Since I'd broken my foot last fall, the weeds had taken over my flower beds so I spent a couple days attacking the weeds. Today my husband decided to scalp the yard, which drove me inside. I just couldn't take the dust it kicked up. We are supposed to be getting rain all week so the weeds will probably find a way to come back.

    I had hoped to take my granddaughters to a movie but was told that Zootopia would be to scary for them and there was nothing else appropriate for them to see. I asked about lunch and got another rebuff. I just want to spend time with them. My DIL complains about no "me" time but insists she has to be present for any activity involving the girls so they can share and talk about it. I'm just frustrated

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited March 2016

    Fourth day of Mike's pre-transplant heavy chemo regimen and he hasn't had one moment of nausea or any other side effect. He is half way through. They are giving him 2 kinds of chemo plus 8 other meds. So far, so good. He will get the bone marrow stem cells on Thursday. It's a wonderful facility...only 8 patients currently for 10 rooms. There's always 10 nurses on duty plus various medical assistants and 3 doctors. Mike has a good appetite and goes to the in-unit gym every morning. The nurses say next week he won't be so chipper but marvel at his good attitude and absence of complaints.


  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2016

    Oh Sandra, so glad you stopped in. Glad to get such a great report on Mike. I'm sure the nurses are right, but doing well and going into this w/o backlash from chemo and meds surely must be a positive thing. Hope you are finding some time to look for a little peace --- even just for any small tiny bit of time. I'm still finding sand between my toes while we walk. I hope things continue to go well and you know you have a very, very large cheering section in all who are here. Grateful I can be around with outlandish amts. of hope and peace and all sort of healing energies and praying all the while they get to you and Mike.

    Jackie

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