Starting Chemo March 2015

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited February 2016

    ok, I'll bite.... What it a bigfat O?

    Clueless in Oregon

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  • Italychick
    Italychick Member Posts: 2,343
    edited February 2016

    Katy, I think O stands for.....Orgasm lol!

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  • Trvler
    Trvler Member Posts: 3,159
    edited February 2016

    Yup.

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  • ksusan
    ksusan Member Posts: 4,505
    edited February 2016

    Are you worried about the partner part, the technical sex part, or the orgasm part?

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  • Trvler
    Trvler Member Posts: 3,159
    edited February 2016

    D) All of the above. :)

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  • ksusan
    ksusan Member Posts: 4,505
    edited February 2016

    What about having him help while you do it? +Astroglide.

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  • rleepac
    rleepac Member Posts: 755
    edited February 2016

    Allison - my labs were great except for iron deficiency but I just had iron infusions a few weeks ago so I should see that improve in about 6 weeks. But the Timor markers were within normal range.

    A big 'O' can be great but in my experience, it's temporary and then everything comes back just the way it was before

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  • eheinrich
    eheinrich Member Posts: 792
    edited February 2016

    Hi everyone

    Just checking in - hope everyone is having a good weekend.

    xo

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  • ksusan
    ksusan Member Posts: 4,505
    edited February 2016

    Hi, Eileen. We spent the better part of two days mulching and distributing soil in the garden and yard. Plenty more to do, but we will pause for re-roofing before having more mulch dumped in the driveway. I've also been doing my usual weekend clean-a-little, write-lesson-plans, and grade-papers tasks. We went out for Indian food for my cancerversary and went to a friend's for dinner another night. My wife is starting a new job, so there are implications and emotions to be discussed. So, a pretty normal weekend. And you?

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  • Italychick
    Italychick Member Posts: 2,343
    edited February 2016

    Hi Eileen and Ksusan! All normal here, bike riding, walking, mundane chores like grocery shopping, etc. and how nice it is to be doing ordinary, normal stuff!

    New jobs - six month learning curve in my opinion. Sometimes they can be exciting, but also stressful for those first six months. Why the job change? Better opportunity

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  • ksusan
    ksusan Member Posts: 4,505
    edited February 2016

    Ja. Same money, but more variety and a health plan, making us not dependent on my job and health plan. Less scut work. More community engagement.

    Also, maybe, time for our focus to be on her for a few months!

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  • molly1976
    molly1976 Member Posts: 403
    edited February 2016

    I'm on a minivacation this weekend in Charleston to celebrate the end of Herceptin/port removal and just saw a woman in a restaurant I was 95% sure had post-chemo hair. I overheard her saying something to her friends about radiation so later when I saw her in the restroom I said something to her and we ended up having a good talk about our treatment plans and hugging! I have to say, meeting you guys and other people who are going through this has been the saving grace of the entire experience. It's a shitty club to have to join but its members are pretty awesome

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  • avmom
    avmom Member Posts: 324
    edited February 2016

    Hello, all. Just a quick post today. I had a quiet week, nursing a lymphedema flare up. My arm seems much improved after a week of rest, but I have an area on my trunk that still feels strange.


    Otherwise, I spent a good part of the day today "shopping in my closet". I am determined to,get my BMI down under 23, as there is some research that suggests there is a recurrence and survival benefit to being lean. I'm down more than 25 pounds since November, so I have been packing up the "big" clothes, to donate, and trying on the "medium size" clothes. I still have a way to go to get into the smallest clothes in my closet, but I am making steady progress. I should be there before the end of April. It's kind of a kick to have new wardrobe choices, without the aggravation of having to shop. I even got my scarves sorted.


    I'm looking forward to getting back into the gym tomorrow, but will have to monitor my LE arm and the side of my torso. Until then, I'm pretty tired - sorting, steaming and ironing isn't intense, but I did quite a lot. This evening, DH and I are watching the Canadian Women's Curling Championship on television. I do miss curling, but between the neuropathy in my feet, which would make sliding on the ice pretty hazardous, and the strain of sweeping - it is very vigorous and probably very risky for LE, I'll have to be satsfied with watching. The rocks themselves weigh about 40 pounds, but you don't actually pick them up as dead weight. It is very much a strategy game, so it is interesting to watch, if you know how to play.

    Hugs to all.
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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited February 2016

    hello ladies! Just popping in to say hi also. My niece and BF came yesterday and helped with a meal and a lot of honey do jobs. It was a great but short visit.

    Molly that's a great story, I've had a couple of encounters like that too. I have always ended up talking about this group here, and how much it helped me. I hope you eat your way through Charleston! That's a great place to celebrate port removal and marking your intentions to getting back to enjoying life!

    Ks- best of luck to your wife in her new job. It sounds like a good move, but it isalways stressful changing- it is very nice to think of this as a time for her now. I know her year can't have been easy either.

    E- what news have you? A big appt. this week? Which day/days?

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  • pboi
    pboi Member Posts: 663
    edited February 2016

    So nice to hear about everyone's weekend! Our family went house shopping, exciting thinking about a new home yet daunting thinking about managing a move!

    Have a great week everyone!

    PB

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  • eheinrich
    eheinrich Member Posts: 792
    edited February 2016

    I also did a bunch of yard stuff - it's spring! Spent time w/ 3 different girlfriends.

    Katy: my appt is Thursday. I'll let y'all know when I hear from the surgeon. Blech

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  • Trvler
    Trvler Member Posts: 3,159
    edited February 2016

    My weekend was tough. DD#2 was a nightmare. She gets mad and then gets defiant and I just don't know what to do. Sometimes I feel like the worst mom on earth.

    Avmom: Congrats on the weight loss. That's awesome.

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  • ksusan
    ksusan Member Posts: 4,505
    edited February 2016

    Ease into that yard work--two of my friends developed LE after raking! Go slowly, wear the sleeves, stay hydrated, and do MLD.

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited February 2016

    here's Jack today at the school K9 Ambassador program. The K-2nd kids get a flip chart guided talk on safety around strange dogs, how to be a responsible dog owner, and a poop puck up demo with a bag and a plastic turd. Too cute. Then it's cuddle time. Jack thinks tests the only reason he's there.

    image

    image

    image

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  • eheinrich
    eheinrich Member Posts: 792
    edited February 2016

    Allison - how old is your daughter? When mine were 11 I wanted to punch them in the throat most days....

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  • pboi
    pboi Member Posts: 663
    edited March 2016

    Katy...aww cute Jack pics!

    So sorry you're having trouble with your daughter Allison. My daughters both turn 11 this summer. So far they have been pretty good, but I know the pre-teen and teenager troubles are coming...

    PB

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  • SueH58
    SueH58 Member Posts: 632
    edited March 2016

    Theresa - Congrats on your last herceptin!

    Avmon - I'm so impressed with your physical accomplishments. My goal for 2016 is to lose weight and eat more healthy. Great job.

    And, thanks, my sisters. My mammogram was AOK yesterday. SOOO relieved!!!

    Hope you are all having a good week.


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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited March 2016

    That's great news, Sue! 🎉🎉🎈🎈🎈🎉🎉💃🏿💃🏿

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  • Trvler
    Trvler Member Posts: 3,159
    edited March 2016

    Daughters are 10 and 12. Driving me crazy. Thanks, Eileen. Makes me feel better to know I am not the only one.

    Yeah, Sue!

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  • eheinrich
    eheinrich Member Posts: 792
    edited March 2016

    Allison: at one point we started charging our older daughter money to get the last word. She always had one last thing to say when the conversation was over. I'm not saying it always worked but it was a little bit funny.


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  • Trvler
    Trvler Member Posts: 3,159
    edited March 2016

    The strategies that we come up with! I finally figured out to tell them tuck in was at 8:15 and if they aren't ready, they don't get a tuck in. So far it is working. Sometimes things are so obvious and I just miss them. We are having quite the struggle over the retainer wearing. Ugh. God, just get me through the next 7 years.

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2016

    trvler - my now adult DD is both ADD (no H), and ODD. I found the approaches that worked best were to find what was important to her and leverage that for both discipline and reward, to fully explain what my expectation was for the outing, event or assignment - and what would happen if the expectation was not met. That way she was making informed choices. I also modified my approach to asking her to do things - it always worked better if I could make her think it was her idea. She was not medicated until high school and discovered a classmate who had committed suicide while they were on a class trip. She had moderated herself well enough at school and socially, but after that she needed more intervention. FWIW - the age between 11-16 is a challenge regardless - they are so in-between with so many hormonal changes, social awkwardness, trying to understand human interaction and the world - it's a lot.

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  • pboi
    pboi Member Posts: 663
    edited March 2016

    Thanks for sharing SpecialK. My girls are just on the brink of the teenage years and I found it very helpful. Had not given a lot of thought before about all the changes coming up for them in the next few years. That and the fact that I always worry about how my diagnosis has affected them. They are just now starting to develop breasts and when they felt the breast bud immediately asked me Do I have cancer too? It took everything I had at that moment not to break down in tears. Their development into women I think will be hard for me. I feel angry that so much of my womanhood has been taken from me, my hair, my breasts, my ovaries, my estrogen...it's hard emotionally to let go of it, yet explain it all to them

    PB

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited March 2016

    thinking of Sharon...... Anybody hear anything? Shaz if you are reading, could you pop in? Miss you.


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  • rleepac
    rleepac Member Posts: 755
    edited March 2016

    My 14-yr-old DD is an angel one day and a psychotic, irrational, angry turd the next day. Everyday is a surprise LoL.

    I know she loves me and she's been trying really hard to overcome hormonal surges but sometimes the hormones win out and I lose my girl for a while. Then she returns just as sweet as ever. I told her that God made 'thou shall not murder' as one of the Ten Commandments because of teenagers..

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