Hard Not To Worry

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  • Seedsally
    Seedsally Member Posts: 260
    edited February 2016

    Heidi. I am so sorry about your diagnosis and so scared to get my results. I should find out tomorrow. I just hope the results are back. I have a sister who is a survivor of about 14 years with no recurrence and that gives me hope.

  • Danni1016
    Danni1016 Member Posts: 16
    edited February 2016

    Sorry to hear Heidi. Please post anytime. We are hear for you. I'm waiting too. I will know by Friday.

  • Seedsally
    Seedsally Member Posts: 260
    edited February 2016

    I am upset. I was supposed to get my biopsy report today but I got a call and was told the results aren't in yet. It's been 6 days. I have another biopsy scheduled for Tuesday. I am worried that it's not good news since it's taking this long. The doctors office is supposed to call me when they get the report. Meanwhile they set me up an appointment at my hometown clinic for next Thursday while saying I could drive the extra 23 miles if they came in sooner if I wanted to. If course I will make the drive. Oh man the anxiety of waiting is hard.

  • 786tex
    786tex Member Posts: 42
    edited February 2016

    That is horrible that you have to wait so long. I am supposed to get mine today or tomorrow (its looking like it will be tomorrow since it is 4pm here now) I would go crazy if I had to wait that long. Hang in there!

  • LisaAlissa
    LisaAlissa Member Posts: 1,092
    edited February 2016

    "I am worried that it's not good news since it's taking this long."

    Hi Seedsally!

    I'm so sorry to hear that they're making you wait after the promised delivery date. But I wouldn't assume the delay meant anything. It could be a paperwork mix-up. A delivery problem. Maybe lab employees were "out" in the pathology lab, causing tests to be backed up. Who knows? We could probably speculate on what happened all day. (There's a lot of possible reasons for the delay.) But I can't think of any pathology lab which would hold back results if they had them.

    Did your doc's office say anything other than "the results aren't in"?

    I'd probably call back tomorrow (Friday) and ask if they had talked to the path lab. If not, ask them to do so. If they usually get results via fax and there was a transmission problem, the path lab may think they've sent them. You might be able to get them almost immediately if they only need to be re-faxed.

    If the tests really aren't done, I'd ask when you can expect the results. If they don't want to chase them down, perhaps they'll give you contacts at the path lab and let you call them. (Ask to speak to the office manager. You'd like your doc to have them by Monday so that if anything in them might help the person performing Tuesday's biopsy, that into will be available.

    HTH (and good luck!)

    LisaAlissa

  • Seedsally
    Seedsally Member Posts: 260
    edited February 2016

    Thanks Lisa I appreciate your suggestions. Monday was a holiday and the biopsy was done Friday afternoon so that may be the reason. After I posted earlier I saw my ultrasound report It was given a Bi-rad 5 reading (highly suspicious of a malignancy) so I think I am for sure expecting bad news now. But I will deal with it. Just hard when you can't know whether you need to form a plan. And what plan you may need to form.

  • 786tex
    786tex Member Posts: 42
    edited February 2016

    I think that is the hardest part for me as well, not having a plan. Its like you are in limbo because there is nothing you can do while waiting but worry. I hope they don't keep you waiting much longer.

  • Seedsally
    Seedsally Member Posts: 260
    edited February 2016

    Tex have you gotten your results yet. I hope they are good. I haven't heard yet today. Did you see your category on your ultrasound. I was wondering if my category 5 means the same as my Bi-rads 5.

  • iammags
    iammags Member Posts: 216
    edited February 2016

    I know what you mean about waiting. It's so hard. The days after my biopsy were kind of difficult but I think that I was in shock. I wasn't surprised when my radiologist called with news that it was cancer. I just had a feeling. In fact, I upgraded my health insurance the week before, because something was just telling me that I'd need more coverage.

    Now I'm waiting for the MRI pathology. It's been one week and still no word. My BS is out until Monday so I couldn't even call her. The waiting is the hardest part because my mind seems to wander and I start thinking that every bump or every lump, or spot is bad news.

    I'm having surgery on March 2nd and I'll have to wait several days for that pathology report so I guess I'd better get used to waiting.

    But it's hard..


  • heidi16
    heidi16 Member Posts: 79
    edited February 2016

    Seedsally: The results not being available yet could be a good thing. The slide might be hard to interpret/bordeline so several pathologists might need to take a look at it. My case was considered an urgency and had results in 2 business days. If they were really concerned they would rush it and if benign they take their time to get back to you. Good to hear your sister had no recurrence in 14 years! You have good genes :) May I ask what type, grade, stage and PR/ER/HER2 receptors she had?

  • Seedsally
    Seedsally Member Posts: 260
    edited February 2016

    Heidi I asked her but she doesn't remember. We lost our father a month after her mastectomy. And she was losing her husband of many years from bone cancer at the same time. Then soon after she found out she has leukemia so the stress, illness, and grief has taken a toll. She amazes me with her sweet and patient personality. I don't know if she could of made it without her 4 grown daughters, good son in laws, and several loving grandchildren.

  • heidi16
    heidi16 Member Posts: 79
    edited February 2016

    Seedsally: I am so sorry about your sisters multiple traumas in a short period of time, that must be really hard but love and support from loved ones and a positive attitude can beat both bc and leukemia! Regarding your test results: Hope for the best but prepare for the worst.

    iammags: Less than 1 cm is tiny so you are most likely in an early stage.

    Danni and 786tex: Any results yet?

  • 786tex
    786tex Member Posts: 42
    edited February 2016

    I was supposed to get results yesterday but was told lab couldn't release them because the pathologist never signed the report so now I have to wait until Monday.

  • iammags
    iammags Member Posts: 216
    edited February 2016

    Heidi16- Yes, I'm sure that it's early stage and highly treatable, thank goodness. I'll feel better after the MRI pathology report. I'm hoping it doesn't show anything else!

    786tex- You and me both! Monday seems so far away. Good luck!

  • Seedsally
    Seedsally Member Posts: 260
    edited February 2016

    Tex I know exactly how you feel as I was supposed to get my results Thursday and they postponed me for another week saying results weren't back. I got so anxious I called the surgeons office yesterday afternoon late and was told they were having a meeting. The nurse called back as I said in another post and wouldn't say whether they were back or not and wouldn't be told by phone anyway. Also told I have to wait until he sees me after my next biopsy on Tuesday. So I guess I have to wait until my rescheduled appointmentthis coming Thursday. I was aggravated but now I guess I'm just too anxious and upset. I actually feel better and more prepared. I can wait until then and meanwhile get some research done for my next step and what questions to ask if the results aren't good. If the results are ok I would just be upset unnecessarily. I actually feel like I am forming a plan now. Already started a file notebook for all tests, visit info, and expenses-along with insurance info EOBs, contact numbers and anything else I think I might need. One other thing I am going to do is write out some instructions for my family in case something should happen to me during this.

  • Mamalala333
    Mamalala333 Member Posts: 13
    edited February 2016

    I am totally new to the forum, and breast cancer discussion at all. My story sounds almost exactly like TX though, so I'm very interested. I have been looking all over the Internet and gotten no answers. One day I just woke up with some breast pain. I felt a large lump and kind of like a swollen muscle. It is just above my nipple. Only one breast affected. That was 2 weeks ago. I went into GYN, he sent me to get a 3-D mammogram and ultrasound. Doc said he thinks it's cancer because it's an irregular shape. But it came on literally overnight! No trauma to the breast that I can think of. No redness, pitted skin, or heat. Ihave a biopsy in a week. Extremely afraid of what it could be. Any advice??

  • 786tex
    786tex Member Posts: 42
    edited February 2016

    Mamalala. I hope your doctor set you up for a biopsy since that seems like the next step. Im sure there must be other reasons for lumps in the breast but it's hard to know without all the tests. I still keep hoping mine will be something else but won't know until I get the results. Please talk to your doctor about what to do next keep us updated

  • Mamalala333
    Mamalala333 Member Posts: 13
    edited February 2016

    I have a biopsy a week from tomorrow (Feb. 29.) The docs all seem knowledgeable. And then I guess it will be a few days after that before I get some real answers. Hard to wait

  • Logang
    Logang Member Posts: 421
    edited February 2016

    My mass came on very quickly as well. Wishing you luck mamalala! Glad you have a biopsy scheduled! The waiting is the worst part!

  • 786tex
    786tex Member Posts: 42
    edited February 2016

    it feels like the whole process is one big waiting game probably because we just want to get it over with and find out so we can deal with it. I hopefully get my biopsy results today though I am not feeling really hopeful about the results.

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2016

    Hi Mamalala333,

    Sorry to hear your going through BC worries at the moment.

    Everyone can relate to the waiting being the worst part unfortunately.

    We're hoping for a benign result for you! Keep us updated.

    Hugs from the Mods.

  • ckfelix79
    ckfelix79 Member Posts: 17
    edited February 2016

    Hi everyone! I'm 36 and just had my annual obgyn appt. In late DEC 2015 everything was normal. On valentines day I decide to do a self breast exam and felt a small knot in my right breast. Went to see my obgyn that tues and did mammogram with ultrasound. Radiologist is very concerned and gave me birads 5 rating (95% chance malignancy)! I have to get lump and lymphnode biopsied this Wednesday and am so nervous this will not be treatable :( Im glad I found this site and have been so encouraged and blessed by everyone sharing their stories! I have everyone praying for me and feel more at peace Even though obgyn is thinking I'll need aggressive tx chemo, radiation and mastectomy, I'm fine with it all and want just to beat this ;)

  • Seedsally
    Seedsally Member Posts: 260
    edited February 2016

    Welcome ckfelix. You are so young I hope everything comes out ok. I went for a screening mammogram and wound up here after I had some more tests and a biopsy on right breast. Tomorrow I am getting a different type of biopsy on my left breast. I also am a birads 5 category. My surgeon is supposed to give me results of both tests Thursday. I feel settled in my mind and want to fight it. I don't really feel too frightened right now. Maybe because I don't know for sure and it doesn't seem real. I don't know how I will feel if I am told I have BC. It may depend onhow bad it is. Keep us informed and I'll do the same.

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited February 2016

    Hi, ckfelix. Sorry you're going through this. This forum is a good place to be. I just got diagnosed 1/29 and I'm going for my double mastectomy Thursday. Hang in there and keep us posted. Prayers work and I'll send up some extras for you.

  • 786tex
    786tex Member Posts: 42
    edited February 2016

    ckfelix - sorry you had to join this site, it is a great site and the people are wonderful but I am sure you know what I mean. keep us all updated on how you are doing

    heidi - how are things going with you?

    I finally got my results, infiltrating ductal carcinoma in the both the breast and lymph biopsies. They couldn't tell me what stage (guess we need to see how far it has gone) but stated it is very aggressive. Thankfully, I was able to get appointment with surgeon tomorrow so I will know more then.

  • heidi16
    heidi16 Member Posts: 79
    edited February 2016

    786tex: Sorry about your diagnosis. Do you know the size of the tumor? Let us know what the surgeon says tomorrow!

    I had a chest MRI last week which showed a second small suspected area in the same breast so was scheduled for an ultrasound guided biopsy. However, they could not find it by ultrasound so will attempt a MRI guided biopsy Wed.

  • Mamalala333
    Mamalala333 Member Posts: 13
    edited February 2016

    Tex, I'm glad that you at least have a diagnosis to concentrate on now. I'm sorry that it's not a benign diagnosis, but it sounds like you were as prepared (as you could be) for the news. I'm preparing for my cancer diagnosis too.

    I didn't realize until reading this board that there was a report about my ultrasound/mammography. I guess they sent it in the mail, but I don't often check my mailbox. In a random gift from God, the secretary/patient coordinator at the breast cancer center is someone I know. I called her and she immediately emailed my report from mammogram/ultrasound.

    Not good. Birad rating of 5. Suspected cancerous lump of 4cm. Suspected cancer in lymph node. I was a bit surprised, as I knew the doc had seemed serious, but didn't think it was as serious as that!

    I talked to my patient coordinator "friend" (more of an acquaintance, but she will surely be my friend now) and asked if I could get my biopsy moved up if there were any openings (mammogram was 2/19 and biopsy was set for 2/29.) She moved me up to this Thursday, and also set my MRI for that day, as well as an appt with a surgeon for next week.

    Just like the doctor, she is certain I have cancer. Said there was almost no other explanation. So I'm coming to terms with it now and not waiting for the official diagnosis to get the ball rolling. I'm thinking my cancer is pretty aggressive, so the sooner I do it all, the better! But still hard to wait for all the real answers






  • Logang
    Logang Member Posts: 421
    edited February 2016

    Mamalala, I am a firm believer of the saying "plan for the worst, hope for the best". Glad you got your biopsy moved up! I did want to say that I had a lot of lymph nodes that were abnormal via MRI vs. the unaffected side. I had one node the looked abnormal on ultrasound that was biopsied prior to my surgery that was found to be benign. My surgeon ended up taking 31 nodes during surgery because they looked abnormal and he didn't feel comfortable leaving them in. They were all cancer free! Please keep hoping for the best!

  • Seedsally
    Seedsally Member Posts: 260
    edited February 2016

    Tex I am so sorry about your DX I don't know what else to say. Please keep us informed

    Heidi that's tough you are having such difficulties wishing you well on Wednesday.

    Mamalala I also have a Birad of 5 with suspicious mass. It's my right breast-already had biopsy but no results yet. I go tomorrow the 23rd for stereotactic biopsy of clustered Calcifications of left breast. I'm sitting here with a head cold wondering if they'll go through with it if I'm not a lot better in the morning. I sure don't want to postpone anything as I am like you and want the ball rolling. I want answers hopefully benign ones.

  • marie5890
    marie5890 Member Posts: 3,594
    edited February 2016

    For those expecting a Dx of BC here is a link to a great thread that will give you some great practical advice by many of the women who have been a part of BCO over the years.

    Good suggestions that you to help get things in order and ducks in a row.


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