Having a scan? Waiting on results? The waiting room is open!

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  • pajim
    pajim Member Posts: 2,785
    edited January 2016

    Thumbs up!!

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  • GoldenGirls
    GoldenGirls Member Posts: 608
    edited January 2016

    Nice to see all the good results on this thread recently! Happy for you all and biting our nails right along with all of you waiting.

    Scan results tomorrow for my mom. It's especially nerve-wracking since it's her first one since rads and making the switch to IV chemo after progression. Other than leg pain from hip damage that will be getting rads soon too, her symptoms have all resolved so hoping that's good news. At last scan the mets, though extensive, were still just in bones, but some symptoms that started between scans and before rads and new treatment seemed (I think) like those related to liver mets so we're especially on edge about these results.

    If stable she will get one more chemo tomorrow and then get a "break" from AC and finally be able to get rads to that hip. Fingers and toes crossed!

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  • singlemom1
    singlemom1 Member Posts: 434
    edited January 2016

    Hadmy first scan on Monday and am getting the results tomorrow. Big anxiety!

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  • singlemom1
    singlemom1 Member Posts: 434
    edited January 2016

    Goldengirls, I hope your mother had good results!

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  • Aoibheann
    Aoibheann Member Posts: 555
    edited February 2016

    CT scan tomorrow. Nerves jangling, I'm afraid to think. Dh's friend's wife died last night and she was only dx last November. Hate this.

    Hope singlemom1 and goldengirls' mom had good results.

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  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited February 2016

    Aoiba. It stinks. There's no rhyme or reason. Hope you have something to help you sleep. In the bag for tomorrow!

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  • singlemom1
    singlemom1 Member Posts: 434
    edited February 2016

    Good luck Aoiba! My results were good. There was no progression and a little decrease in one! I wish you all the best, the anxiety can be so difficult!

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  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited February 2016

    Just scheduled an Echocardiogram, Pelvic Ultrasound, CT, and Bone Scan. Not to mention the next 2 Herceptin and Perjeta infusions and the 6 week appointment with my Oncologist. Oh the glamorous life of an MBC patient!

    I'm not technically waiting yet, but sticking my head in to see how crowded it is here. Can I get anyone a coffee? A Starbucks run maybe? I'll be joining you all soon....

    Hoping for good results for all who are waiting.

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  • mirryp
    mirryp Member Posts: 41
    edited February 2016

    I had a ct scan on Monday and was dreading the week of waiting for results at my doctors appointment 8 days later. I am going to retire and

    apply for social security disability so I thought to ask at the desk about being mailed a copy of the results. She said she would phone me when

    the results were typed up and she did, 4 hours later!! Stable, yeah. So nice to have 8 days of anxiety eliminated and even if it was bad news at

    least I could research and be prepared before the next appointment. Why isn't it standard practice for the patient to get a copy?!!!

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  • Aoibheann
    Aoibheann Member Posts: 555
    edited February 2016

    Singlemom and mirryp, glad to hear your good news and even gladder to say that my scans are stable too. woo hoo good news tg. Thanks Zills for your good wishes

    Shutterbug, best of luck with your forthcoming tests. Thanks for the coffee, I'll pop back in with one for you later,,,

    Hugs xxx

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  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited February 2016

    HA!!! ย I got Starbucks for the secretaries & GS's teacher today...how I wish I could've ordered for ya'll too!!! (Seriously, they just opened the 3rd Starbuck's within 2 blocks of each other!!!). ย Anyhoo... I'm so happy to see good results!!! ย I'll be telling the powers that be we want all good news for you, Shutter...that's quite a laundry list ya got there. ย Most people would wince at 1 procedure but hey...to us, it's another day at the races, right...ugh. ย Thinking of everyone...wishing stable, Ned...you name!!!

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  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited February 2016

    I'd like a decaf latte, please. Shutterbug, do you ever add up your appointments to see how many per week you average? I have and it helps explain the state of my house.

    Mirryp, it's great you thought to ask for the report. I'm with you; I'd rather get even bad news alone than experience the anxiety of waiting. At the first hospital I went to, they would only give results at appointments, which were very hard to get. So I would make a special trip to get the reports from medical records. My current onc calls me the same day or the next with results and I appreciate that sooo much. Then they always give me a copy at my next appointment.

    Aoibean and singlemom, I'm so glad to hear that you had good results.

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  • artistatheart
    artistatheart Member Posts: 2,176
    edited February 2016

    Yes, wow Shutter that is quite the list! I hope you do not work on top of all that.....I am so happy to hear of the good results!

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  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited February 2016

    Got a decaf latte here for ShetlandPony and a big ol' mocha with extra whip for me. Hearty congrats to Aoibean and Singlemom!

    Looks like I now have a brain MRI to add to the list. When you wake up several times over the past month or so smelling toast and no one in the house is making toast your doctor has you scheduled for an MRI faster than you can say craptastic. Wednesday morning, 7:40 arrival.

    At work now trying to concentrate and not cry. Looking forward to getting home and leaning on my friend Ativan. I intend to sleep tonight.

    Anyone know how long it should be to get results back from a Brain MRI? I had one at diagnosis that was negative, but i was pretty out of it trying to come to terms with the enormity of everything back then, so I don't remember.

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  • singlemom1
    singlemom1 Member Posts: 434
    edited February 2016

    Good luck Shutterbug. Thoughts and prayers are with you. I may be having MRI soon also on brain. Conflicting opinions by two different oncs.Please let us know how you are doing.

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  • Becs511
    Becs511 Member Posts: 303
    edited February 2016

    Hi Shutterbug. I literally just went through this last week. I'm out and about now, but I'll PM you when I get home

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  • scrunchthecat
    scrunchthecat Member Posts: 269
    edited February 2016

    Thinking about you, Shutterbug. Let us know how it goes.

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  • josalive
    josalive Member Posts: 76
    edited February 2016

    Hi Shutter - I also just went through this because I was having unexplainable headaches. I waited almost a month before my doctor got it ordered and I think it's been one of the more difficult months mentally for me since diagnosis. I went in to get the MRI in the morning and my onc called that afternoon with the results so it was very quick. Luckily it was clear for me and I'm hoping it is for you as well. Hang in there as I know the stress and anxiety can be a b*tch as we have to continually go through these scans. you will bein my prayers tonight.

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  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited February 2016

    Can I just say shit? ย My darling Shutter will totally get it (as my fingers maybe have misspelled her name at least once...lol). I refuse to believe there's anything wonky with your brain! ย Maybe you're dreaming of some fabulous breakfast place in a Paris bistro...that smell must be delicious. ย In any case, I gave up chocolate for Lent & I just ate choc-covered almonds, because that makes me feel better. ย I will be praying like a saint for good news Wed! ย And Jos & Becs...so extremely happy that your scans were clear. ย Love you all.

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  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited February 2016

    Becs...hope I assumed correctly.

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  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited February 2016

    Thanks everyone and thanks for the laugh Ronnie! Believe me I've been stress eating enough chocolate for both of us!

    It's funny how I was totally NOT worried until they said they wanted to do an MRI, then I freaked out for a bit, and now I am somewhere in the middle. Cautiously optimistic that it is just one of the wacko things my body does. I also read somewhere that inflamed nasal passages can cause phantom smells as well, so I'm holding on to that. :)

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  • Goodie16
    Goodie16 Member Posts: 446
    edited February 2016

    Thinking of you Shutter. My brain MRI results are nearly always given the same day. I hope that's true for you!

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  • artistatheart
    artistatheart Member Posts: 2,176
    edited February 2016

    Shutter, My MRI took one day for results. A very long day for sure. But try not to stress too much, many things can trigger this suspicion. Let us know, we are thinking of you!

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  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited February 2016

    Just woke up (to the same Fixer Upper episode I fell asleep to hours ago!) and poppin in to say we'll all be with you at 7:30 am (4:30 am for Artist & me...hmmm..thinking Michigan is only 2 hrs ahead). ย Anyhoo...inflamed nasal passages sound like a perjeta se to me so I'm going with that! ย I've wanted a brain mri for about 2 years now & neither onc will do it. ย Guess I should be relieved but there's always the fear & anxiety that comes with not knowing exactly what's going on in our bodies. ย Whenever I'm in the security scanner at the airport, I think of how nice it'd be if that was how we had a full body scan. Step in, arms up, spread your legs, done! ย Someday :-). XOXO

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  • artistatheart
    artistatheart Member Posts: 2,176
    edited February 2016

    That kind of scan would be ideal Ronniekay! Hey I am an HGTV addict! Always daydreaming of fixing up a new home again.....Let us know Shutterbug!

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  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited February 2016

    Thanks for your good thoughts everyone, I definitely felt them in the MRI machine, along with all the clanking and hammering! I should get results on Monday.

    Love the airport scan idea Ronnie Kay. Lickety split as my grandma would say. Instant results would be good too!

    Love to all!

    Donda

    PS. Gee, this is the first time I'm signing my real name. It feels strange. In the beginning I didn't want anyone to google my unique name and find my posts, but I guess I don't care anymore! An open book...that's me! :)

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  • Almosthere
    Almosthere Member Posts: 197
    edited February 2016

    I wonder why some of us get a brain MRI as routine metastatic screening, at least once at the beginning and others of us only if we are symptomatic. I am scared to ask for one, terrified of the results. Shutter it will be good to have that question answered!

    Hugs to you all!

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  • Almosthere
    Almosthere Member Posts: 197
    edited February 2016

    Hum probably should have posted that in the other discussion board, oops!

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  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited February 2016

    Came in for my Herceptin and my infusion nurse asked if I'd gotten a call with results yet. I said no and she said I can tell you it is NORMAL! What a relief! I almost started to cry! Thank you for the support ladies.

    Becs - you are on my mind and in my heart this week. Sending love

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  • diana50
    diana50 Member Posts: 2,134
    edited February 2016

    Becs thinking about you. Sending good vibes.

    This afternoon meeting with onc for results of brain MRI, chest and abdomen. 5 months of gemzar. Hoping liver mets and kidney mets responded. Nerve wracking. Get rid of those pesky cancer cells. ๐Ÿ˜๐Ÿ˜

    Best to all.

    Diana.

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