Thank you God for 8 years

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Meggy
Meggy Member Posts: 530

I just passed the 8 year mark from when I started my ton o' chemo with no sign of cancer since.  I had positive nodes (one the size of a grape) and did neoadjuvent chemo.  I had some tiny remaining cancer in nodes upon surgery and followed up with yet more chemo.  (For me Adriamycin/Cytoxin took my palpable tumor and made it nearly gone...then followed up with Taxol which, it appears, did the clean up job it was meant to do....then after surgery, because it seemed that Taxol worked, I followed up with Taxotere....its cousin drug...and combined it with carboplatin.  I did 2 extra rounds of AC also which was insane...I wish I had just done one extra round at the time that we saw it worked so amazingly well (before surgery). 

In neoadjuvent chemo, when they can see a tumor collapse from a particular chemo....I really believe they should give one more round right then because we are so lucky when we have a chemo that we can see kicks our particular cancer's a$$.   There are many different versions of triple negative BC. 

My treatment was at Stanford Cancer Center.  I ran there after my diagnosis at another major medical center in Sunnyvale, CA.  If your insurance will let you...flee the marginal center and run to the best cancer center in your area or even beyond your area.  If you aren't covered by insurance, pay out of pocket for a second opinion from the very best.  It will be the best $500 you'll ever spend.  Stanford was so wonderful that even today when I walk through their doors, I feel peaceful instead of having bad memories.  They were amazing.  They started out as a second opinion that included re-analyzing my biopsy.  Not all labs are the same...the pathology report is so so so important. 

I did more chemo than normal because I am a single mom of two kids and my youngest was only 7 years old when I was diagnosed.  I really didn't have anyone to raise them if this bi$ch took me down. 

Also, I was really persuaded by the study that concluded that a low fat diet cut the Triple negative recurrence rate by something like 45%...But I waited until I was done with chemo...you need food to be ready for your next round....nothing replaces chemo.  I viewed the low fat diet as my targeted treatment like the women with hormone positive BC get to take.  I also did exercise...not tons, but walked almost everyday because another study found that exercise lowered the recurrence rate by another 30% or so.  (My numbers might be off.)  I recently reminded my super smart oncologist at Stanford that I did the low fat diet and she said, "that might be what saved your life."  I'll try to bump up my old post about the low fat diet....don't substitute good fat....all fat is to be cut way down.  I ate only about 20 grams a day...even less than they recommended....it felt so good to starve the cancer to (hopefully) extinction.

On another note, one of my kids is having really serious medical problems now....I'd rather he have cancer its so bad.....if you get a  chance please say a prayer for my son, Gabriel. 

Hugs to all my wonderful Triple Negative sisters.   

Comments

  • lovelifeBR
    lovelifeBR Member Posts: 41
    edited February 2016

    So glad to hear that you are doing well. I too am doing the low fat diet, cutting out sugar and exercising. I'm just finishing up radiation and will keep doing everything I can to hopefully not have a recurrence.

    I am sorry to hear about your son. I pray that the doctor's are able to figure things out for Gabriel and he will be restored to good health soon!

  • RuthElizabeth
    RuthElizabeth Member Posts: 103
    edited February 2016

    hi ladies. I have a question for you. I am also tn, and finished chemo Labor Day... Had gyno appt and he suggested having overies removed. Insurance declined it, so they sent in my cancer info. Just got call insurance will cover surgery. Now I'm having an anxiety attack.... Not sure what to do. Live in small city. Cancer doc says it's not necessary. My surgeon said if gyno says do it, I should.... I'm petrified about more cancer...... What do you think????

    Thanks, Ruth

    So happy to hear your 8 years out Meggie, but so sorry about your son... Will pray for him too

  • Yvette66
    Yvette66 Member Posts: 17
    edited February 2016

    Hi Meggy: I loved reading your post! Well done for 8 years; that gives me such hope. I was diagnosed TNBC in October 2015 and began chemo in November 2015. I have had four rounds of AC (tumor has taken quite the beating so I had a titanium marker placed last week in anticipation of greater reduction) and am two weeks into twelve weeks of Taxol/Carboplatin. After chemo will come the lumpectomy and radiation. Nothing new there...

    I enjoy reading about everyone's treatment as I am in Australia (from California but living in AU for eight years now) and things are done a little differently; I'm typically pretty healthy so haven't had to use the healthcare system until now. So far, I am really happy with my treatment and all seems to be a really current approach.

    Good on you for sticking with a healthy diet for eight years! I love the way you look at it like part of your treatment. I am a vegan and have already begun limiting my healthy fats. I'm fortunate enough to feel relatively good through my chemo so I have continued my workouts as well. I look forward to getting all the treatment behind me so that I can put greater focus on the "healthy" part of life.

    Sorry to hear that your son is not well. I sincerely hope his condition has improved of late. Thanks again for sharing your story; hearing successes is essential for hope!

    All the best to you and Gabriel!



  • 4everStrong
    4everStrong Member Posts: 118
    edited February 2016

    Hi Meggy

    Thank you so much for sharing your story. i hope we all follow on your footstep and kick the cancer bottom out of our bodies.

    my prayers with all tnbc sisters and your dear son Gab!!

  • AmyQ
    AmyQ Member Posts: 2,182
    edited February 2016

    Meggy, I'm terribly sorry to hear about your little guy Gabriel. I'll say prayers for an excellent response to treatment. Thank you for sharing your story, especially with such a wonderful outcome. Your experience gives hope to others.

    Hugs to you and your Gabriel. That's a very special name to me as my youngest grandchild is named Gabriel and he's had a number of difficult medical problems in his short 18 months, but he's great now.

    Amy

  • Sassa
    Sassa Member Posts: 1,588
    edited February 2016

    Ruth Elizabeth, give more credence to what your oncologist tells you. Your surgeon is just a surgeon, not a cancer specialist like your oncologist is.

    Non- cancer specialist miss the big difference between being hormone negative and being hormone positive. You are hormone negative and, therefore, your cancer cells do not have receptors for estrogen or progesterone. Having estrogen producing ovaries will not make a difference in the growth of your breast cancer.

    I remember my surgeon telling me upon receiving my pathology report of stage 1 breast cancer after my mastectomy that I did not need to worry about radiation (turned out to be true) or chemo. I would "just have to take a pill for 5 years" and I was home free.

    He overlooked the fact that I was completely ER/PR negative and HER2+. Mu oncologist did have me do AC and herceptin and my estrogen producing ovaries didn't factor into treatment or life style changes. She was highly amused that I was unhappy that after having no periods during chemo and the year of herceptin (I was hoping that the chemo was the push I needed to become menopausal), my periods restarted again at the age of 58.

    She told me I had cast iron ovaries.

  • Meggy
    Meggy Member Posts: 530
    edited March 2016

    hi RuthElizabeth, I believe the issue with the ovaries is that with Triple Negative cancer...many of us have a genetic mutation called BRCA....those who have that genetic mutation, if my memory is right, have an increased risk of ovarian cancer. I'm not an expert on this....I haven't read about it in a long time because I was BRCA negative. But if you do have that genetic mutation, that might be a legitimate reason. I think we should all be tested. I had to pay out of pocket but it was worth it.

    Aside from that issue, I've never heard of any reason to remove the ovaries. But get tested if you can and double check my info...I'm rusty on the subject.


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