The human cost of greed within our healthcare system
This is a really interesting article about something those of us here already know about -- the obscene cost of cancer care.
http://www.fredhutch.org/en/news/center-news/2016/...
Comments
-
Thank you for posting this, dlb!
And note the link to their upcoming Value in Cancer Care summit (free to patients) at the bottom of the column. Separately, there's a link to an earlier article that is mentioned in this article:
Cancer, bankruptcy and death: study finds a link
-
This is terrible. And then when treatments are able to be produced generically and prices go down, the drug companies sometimes stop producing them to meet the need. Three times in the last 6 months I couldn't get my Tamoxifen refilled promptly at local pharmacies because they were out and they were waiting on the drug companies to restock them..when I mentioned this to my MO, she said that she's seen that with chemotherapy drugs and that folks with metastatic cancers who were responding to a given tx couldn't get more of the medication. She told me that at one point several years ago there was a lottery for, if I remember correctly, Taxol. Her
-
Why are drug companies doing this? BECAUSE THEY CAN! (Never knew when I wrote that song, based on personal experience, back in 2002, that it would concern matters of life & death).
Anyone here wanna take that little weasel Martin Shkreli, string him up like a piñata, and hand out baseball bats? (Louisville Sluggers, not aluminum).
Back when we lived in Seattle (and my husband was in med school doing a rotation at the Hutch), I was in private law practice across the lake in Bellevue. I did dozens of bankruptcies--and only one was due to profligacy or credit card abuse. The rest were ALL caused by catastrophic medical expenses, and most of those folks had supposedly adequate health insurance. Mind you, this was back in 1976-8, when cancer drugs were nowhere near as expensive as they are now.
The most outrageous thing about the drug companies is their disingenuousness--“research & development costs?” Oh, really? So other countries won’t let them charge gov’t providers “list price,” therefore R&D costs have to be recouped on the backs of Americans instead? Get real: marketing & advertising takes a much bigger chunk of change off the bottom line. Because of Federal rules, drug company detail-persons can no longer spend megabucks wooing doctors; but what about those TV commercials and magazine ads for prescription drugs? They used to be limited by law to physicians via medical journals and continuing-ed programs on medical cable TV channels. But now it seems they are about to outnumber even car commercials. In magazines, they take up annoying multi-page spreads that make it annoying to have to follow “continued on page...” articles. On TV, it’s even worse. They’re at least a full minute long (a royal pain even when fast-forwarding via DVR) and many of them are for drugs that Medicare and most insurers won’t cover, to treat diseases that most people don’t have, with side effects worse and often more dangerous than the diseases, often requiring yet another drug to treat. The average consumer doesn’t know a biologic from a Bufferin and used to be able to rely on physicians to tell them what is available and appropriate to treat their ailments. Now they’re bombarded with ad copy mentioning diseases they never knew existed (indeed, most drugs being advertised were developed first without determining what they would treat) and told to “ask your doctor" if it “can help you” (leading to unnecessary doctors’ appointments as well).
A good start would be to outlaw prescription-drug advertising in any media geared to the lay public. It wouldn’t be a free-speech issue, since SCOTUS has upheld bans on broadcast tobacco advertising and tobacco or alcohol-ad billboards within a certain distance of schools. It would allow drug companies to continue those coy “do you have (name of symptom)? Ask your doctor about a treatment that might help you” commercials; but they’re shorter and cheaper--the cost could be re-routed into responsible research or eliminate a barrier to Congress allowing Medicare & Medicaid to negotiate drug prices.
-
Which presidential candidate will take on the pharmaceutical industry and the health insurance industry? Donald Trump.
Where the candidates stand on healthcare:
-
From your link:
Donald Trump
Trump does not have an official health care proposal on his campaign web site, so the following is based on information gathered through published interviews.
Obamacare: Repeal it. Allow consumers to buy plans from insurers in any state, no matter where they live. Trump supports the use of health savings accounts to pay for medical expenses not covered by insurance.
Drug prices: No information available.
Health care costs: No information available.
Medicare: Preserve Medicare by growing the economy to strengthen the program, but there's no detailed information available.
Medicaid: Trump says the government must provide assistance to those in need. No detailed information is available, but he says the government will work out a deal with hospitals to provide care for low-income people.
Abortion: He thinks it should be banned at some point in the pregnancy, but he supports abortion in the case of rape or incest or when the mother's life is at risk.
-
Complete repeal of the ACA would be utter disaster. Premiums would be whatever the market would bear, with no subsidies. Medicaid wouldn’t be expanded any further than it already is, And every currently uninsured person with any preexisting condition could find it prohibitively expensive to get coverage--if any insurance company were willing to cover them at all (not just for that condition). Yup--that includes cancer. Even a basal cell carcinoma could make it impossible to get coverage for breast cancer.
Sanders would take on the drug industry, but barring a total shakeup in Congress he would likely get nowhere. (Scalia's sudden death today certainly foretells judicial inertia for months, if not years, to come). Clinton, when she gets the nomination, would likely be pushed somewhat towards a more progressive position on healthcare if only to keep Sanders' supporters from sitting out the election.
Bloomberg could at least buy up all the drug companies. (It's a JOKE, relax).
-
Martin Shkreli, the "Pharmaceutical CEO" has been demonized for doing in a flamboyant and outrageous manner, what all the pharmaceutical companies are now doing, buying up the generics for critical drugs and increasing the prices - in his case x thousands. It is a shame that he is taking attention away from the major pharmaceutical companies which are doing the same thing but are strategically keeping the new inflated prices to something the insurance companies can swallow. Why do the R&D necessary to create new drugs, when there are profits to be gained by simply jacking up the prices of old drug?. Of course they will still scream when their drugs go off patent, but they obviously can wring a significant profit out of those generics that specific populations desperately need.
This is capitalism pure and simple. marketplace medicine -disgusting. -
Shkreli is essentially creating monopolies for treating certain diseases. He is utterly shameless and transparent---and what he’s doing is, unfortunately, legal. This, of course, does not excuse the pharmaceutical industry’s predatory behavior.
-
well it's nice a few of us are following current events. I think cancer treatment should be free, that'll get them moving
-
I look at Flint and think, who pays for the human costs? Who profits from ignoring the data?
-
I thought I would chime in. On what Shkreli did (drove up price of a generic) - shouldn't there be more competition in generic drugs, given that there is no patent proptection? Why isn't there? Look at the FDA, which has been dragging its feet to approve new manufacturing facilities. New producers need FDA approval, but government bureaucracy slows this down, perhaps aided by pharma.
-
The problem with companies taking on amd manufacturing generics is that many times there is virtually no profit in it. Many manufacturers are dropping drugs that practically cost them money to produce
-
"Because They Can" sums it up perfectly...(Love that song!)... for actions on the part of BIG Pharma. BIG contributions to FDA... 1000+ BIG lobbyists ....follow the money trail.
Television networks are losing viewer market share to the internet, thankfully due to popular brilliant websites, such as this one.
Only TWO (2) countries in the entire world reportedly allow and/or promote TV pharma advertising of prescription drugs to general consumer audiences. You guessed it.... USA and New Zealand. Guess why? Follow the $$$.
Please read BIG Pharma articles posted at DrugWatch.com
Well said, sisters! Thanks for the links.
..
-
I'm unclear why pharma companies make these huge expense claims for R&D when the majority of news articles and breakthroughs are being done by major universities some with affiliated medical centers. The big pharma companies can pick and choose what research they wish to pursue to market. They should NOT get credit for this research - they are making huge profits from research already done by others.
All these PhD and MD researchers are not employed by these pharma companies. They are out there in the universities and teaching hospitals IMO.
Please correct me - when reading reserach and news articles has anyone noticed WHO funded the research? Was it some pharma company or in some cases NIH grant funds?
-
cp, you are so right about the claims by pharmaceutical companies that research is the reason for these outrageous prices! Although federal funding has been drastically cut in recent years, organizations like The American Cancer Society and Stand Up To Cancer donate millions each year via grants to cancer research. And actually pharmaceuticals do employ PhD researchers. But according to my hubby, who is in medical equipment manufacturing, the cost of research gets written off. So it's totally bogus to point to that as such a major factor for outrageous drug prices.
Here are a couple of recent videos I've posted elsewhere on BCO, but they also illustrate the synergistic relationship cp brings up between universities and pharmaceutical companies.
https://www.facebook.com/su2c/videos/1015298932190...
http://www.cancermoonshot2020.org/
I had also posted the original article above on my FB page, and my brother, who lives half the year in France, brought up a couple of interesting points. First, that medical (including cancer) care is virtually free in France. And when I wondered aloud about survival stats, he found data that shows France is #3 in bc survival, while the US is #9. So clearly, the problem of cost is with our delivery system.
-
I just posted an article for MBC in WallStreet Journal where it discusses funding for research. There is NO mention of funding coming from any of the BIG multi-BILLION dollar pharma companies. However, they will profit from the research if they CHOOSE to take any potential therapy to market. They are in control IMO.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team