Son of mother diagnosed
Hello all, I am new here and I apoloize if this is the wrong area to post. I am basically looking for any help I can get at the moment. My mother (53 yr old) had just been diagnosed last week with IDC. Current staging "2a-3".
My mother is single, has no other family besides myself around to help care for her. My only brother passed at age 21 in a car accident 7 years ago. So... It's just me to be there for her. I have 2 young children, a wife, and a business of my own, and this diagnosis has hit us like a brick wall. I just don't know how to cope with this all. Only thing I know for sure, is I cannot let my mother go to these appointments alone. Which puts a massive burden on myself, but I have to be there. It's my mother.
The surgeon has opted to have 6 months of chemo, prior to the surgery, due to the one and a quarter inch size of the mass. After surgery, another 6 weeks of radiation which will be 5 days a week, 45 min at a time. This is just unbelievable to me. I have been at the hospital and cancer center more in the past week than I have been in my entire 30 years of life. I am so stressed, worried, afraid, I cannot seem to find a way to cope. And feeling this way, makes it very difficult to be a completely different person around my mother, as I try my very best to be an extremely positive and supportive son.
All in all, I am so very LOST. I need and want help. Although I have never been one to ask for help, no that I need it desperately, I have no idea what avenues to wonder down, what doors to knock on, to be completely honest, I feel absolutely helpless. Helpless in the way that I have never felt before. And that feeling, is absolutely sickening. Please, if anyone could help, in any way, whether it be just sending me in the right direction.. I would be forever grateful.
Thank you all for your time. And God Bless every one of you.
Comments
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HelpfulSon, you are dutiful and loving indeed. Just by accompanying your mom to her appointments you are being supportive and doing exactly what you need to do. (Had I been diagnosed at 53 and not 64, I don't know how my son--who’d have been only 20 at the time--would have handled it--he doesn't drive, and my husband works long and late hours as a cardiologist and can take very little time off).
Your mom is 53, and I assume intelligent and in full possession of her faculties. I know the temptation is strong to "knock on doors" for her and take charge of the logistics (including information) of her care; but you need to pick up on her cues and let her be her own advocate to the extent she wishes to be. Don't feel pressured to take charge unless she requests it or appears clearly unable to call the shots and ask the questions herself. She's still your mom--as the decades go by, roles may eventually shift--but be there to help her physically with transportation, errands, and whatever housework and such that she can't or shouldn't undertake until she regains her strength. The most important thing you can do is to just be there--whether to do things she can't or just plain listen when she needs to express her fears and frustrations....and then hug and cherish her.
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Everything chisandy said, and you are a good son to be so supportive. Your mom will be fine. She will be tired a lot and not feel well, but she won't be debilitated. You will not need to be with her every day. Go to appointments with her to provide a second ear. Find out if your hospital has a nurse navigator program. That person will be able to guide you and her to all kinds of resources. Call the american cancer society and they can offer free counciling for the patient and family members like you, as well as financial and social resources. Breathe. She will be OK. Blessings!
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You sound like a wonderful son, and you and your mom are obviously very close. But ChiSandy and Littleblue are right. I'm in the ballpark of your mom's age, and I went to nearly every appointment on my own. And I own my own business. The only time my husband came is when I had the pre surgical consult and obviously for the surgery. You and your wife need to talk to your mom and see what she's feeling, and find out where she really needs help. Odds are pretty good she can get herself to and from chemo, and if not, maybe that's where friends or the hospital social worker can help. You don't need to be there constantly, but maybe you could do a grocery shop once in a while, make sure she has some meals in the freezer from time to time? Find out how debilitating the chemo is likely to be. There's a huge difference in chemo types; some are really rough and others kinder.
Pace yourself: chemo is a marathon, not a sprint. Look after yourself. Don't forget about your wife and kids--and your business. Your mom already knows how great and supportive you are; start a conversation and find out what she really needs. If you feel as if the load is more than you can take, talk to a social worker at the hospital and see what resources they might have.
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HopefulSon, please breathe. Your family will get through this, and you will help each other. And friends and strangers will help, too. Things will settle down into more of a routine soon.
My opinion is that you should personally do the things that only you can do for your mom or that you do best, and call in reinforcements for the rest. For me, I really wanted a close family member with a clear head (in my case my husband) to go to appointments with me where treatments would be explained and decisions would be made. For chemo, I wanted someone there but once I got used to it, I was fine with it being someone else. Radiation appointments were no big deal and I often went alone. So see how your mom feels about it. Then let others help with things like house cleaning, meals, shopping, etc. Your mom can have a list ready for when people say, "Is there anything I can do?"
I also want to say that it takes a lot of energy to "be positive" all the time. Just be real. Your mom may need a pep talk sometimes, but she may also need permission to be sad or angry or tired or whatever. Just by letting her know you care, you are doing something important, even though it may not feel like doing.
And do ask the hospital social worker what support they provide for family/caregivers.
I hear your fierce commitment to help your mother, especially as she is single and you are her only living child, and I honor you for it. I am so sorry about your brother.
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You are at the worst part right now, everything is an unknown. Chemo is quite do-able & while your mom will probably appreciate you being there with her, the worst days in the cycle are a couple of days after infusion, when she will be tired & feeling off. Food for me was a big deal during chemo, we would eat whatever sounded good to me at dinnertime, so we shopped at 5pm, alot!
A lot of women work during radiation with the centre being able to book the appt around your mom's timeline. You won't really need to go with her, you can if you want to, but you must think of your own family as well.
While my husband went with me to chemo, it was his choice, I didn't "need" him there, but I appreciated it. I went to all 6 weeks of my radiation by myself.
You have been given alot of good information here. Take your cues from your mom, obviously she is a strong woman & you are a good son. You will get through this with her. GG
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It's nice of you to accompany her to her appts especially in the beginning because it's always better to have two people hearing the doctor say something than one. You'll have an idea once she starts going to chemo how she'll react to it and/or how tired she gets. It's scary right now but there are many women who work fulltime throughout all their treatments so it can be done. She'll definitely need assistance when she'll have a fatigue day or to pick up food. If she has a close group of friends or church friends, those would come in handy when she needs a ride to the hospital for infusions. Like someone else said, she'll be able to drive back and forth to radiation. When I had my surgery, I had drains that needed to be emptied twice daily. Luckily, I had my brother fly down and help out a week as I couldn't reach well to do it (although I've read that other women who were able to do that alone.) But that's a long way out. This coming up year will be filled with her treatments. During my third or fourth month, I got kinda depressed (after hair loss and friends scattering) but that didn't last long. She'll come through this just fine and I'm sure she's very grateful you're there for her. If she doesn't yet, she definitely will soon.
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I agree with everything the ladies have said to you in the previous posts. Right now is the most overwhelming time when everything is so new and your whole family is still reeling from the cancer diagnosis. With time, that will settle somewhat. I only have one thing to add, if your wife and mother get along well, it would make the situation more manageable for your mother to move in with you if it gets to the point where she does need more help during chemo and surgery. My husbands mother is a widow. She went through a medical issue that required her to have help. We had 2 young children at the time and we both had full time jobs. We had her move in with us during that period of time, it's easier to move her than to move the children, and my husband and I worked out our schedules so someone could be home with her while the other was working. Talk to your wife and see if she would be willing to make it a family effort to get your mom through this. As many have said, your mom will be able to do a lot of it on her own, but for the part she can't, I'm sure she feels blessed to have you.
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I'm very sorry - and I SO MUCH appreciate your wanting to help your mom!! Myself, my sister and I were all diagnosed within 3.5 years with breast cancer. We are now experts - LOL! My sister and I were 55 at diagnosis. We both preferred to go alone to chemo or with each other. We liked to talk with other patients. I drove the 120 mile round trip to chemo by myself every time. My sister and I are both single, she has children, I do not. We had to reach out to people to help us - we hated it, but it helps!
You will need to keep your sanity - so pace yourself. My suggestion is once you have the schedule, make a plan. It will relieve a lot of the stress for you and your mom.
The most important appointments to attend are the ones with the Medical Oncologist and Surgeon. The patients mind goes blank and needs someone there to write down what is being said.
We made it through in our family -- you will make it!! I PROMISE! It gets easier once a plan is in place!!
It is all so overwhelming and as others said, you are in the worst part right now.
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I'm very sorry to hear of your Mom's diagnosis, i understand how scary this is for you. I was diagnosed with Stage III IDC May 23, 2013. It was unreal to hear the news even though I've lived my whole life thinking that I would some day be diagnosed since I lost my mother to Breast Cancer when I was 11 yrs. old.
Now, 3 years later I can tell you that it is a rough road but life is good. I've been through all the treatments, chemo, radiation, Bilateral Mastectomy and two Reconstructive surgeries.
I was able to get through everything with the help of my family. You are doing just what she needs by being with her and loving her. Sending prayers for her recovery and peace for you all.
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What area/hospital are you in?
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