An Interesting Breast Cancer Story
I'm not sure where this belongs, but I decided to put it here. I recently spoke with an old family friend that I'd not seen or heard from in years. Actually, she was a friend of my mother's and after Mom passed away we lost touch. Anyhow, she told me her own mother had been diagnosed w BC about 2 years ago, she'd found a lump in her breast, confirmed to be ER+ by needle biopsy, imaging showed a 3+ cm tumor and several nodes looked to be positive. This friend and her brother, along with their mother, interviewed 3 oncologists about recommended treatment plans. Two suggested the regular: surgery to remove the tumor and lymph nodes/chemo/RADS/AI therapy-throw the book at it stuff.
The third said look this patient is NINETY-TWO years old, if the surgery doesn't kill her, chemo and RADS surely will. At this age full recovery from a UMX and node removal with or without RADS would be unlikely, more likely would be loss of mobility in the arm if she survived and so this doctor recommended AI therapy only due to her age and physical condition. They went with the last doctor's recommendation. Two years later her mother is 94, still well, if somewhat frail and forgetful (she is 94 now!) but more interestingly, her last imaging showed no signs of BC in the breast or nodes!
I thought this very interesting for a couple of reasons. One being that 2 out of 3 oncologists consulted were so wedded to the" standard of care" that they were willing to throw everything at this BC despite the patient's advanced age of 92 (a co-morbidity surely-should standard of care really be applied to everyone regardless of age and other health problems?) and the other being the amazing regression she experienced w AI only treatment. Obviously, this wouldn't be the care offered to or chosen by most. We do know that surgery in the most curative of our treatments-or a least we think we know that. Not many women w BC who aren't very, very old go without surgery and there are no studies that I'm aware of that have looked at hormonal therapy as the only treatment. Still, this gave me pause. Just thought some of you might find this as interesting as I did.
Comments
-
That IS very interesting Labelle. Thanks for sharing.
-
An ER+ bc at 92? Duh. I think any oncologists who’d have tortured this woman with major surgery & rads (G-d forbid, chemo!) should have their licenses pulled. When did patients become their tumors instead of living, breathing people with comorbidities and feelings??? I think every medical school curriculum should include teaching a sense of perspective and proportion!
I had a long-time client who was diagnosed at 91 with non-Hodgkins lymphoma. I asked what treatment she was getting, and she replied “watching & waiting--I feel fine; and when I start feeling not fine they’ll just try to make me feel better until my number’s up.” She made it to 95, with only home hospice in her final month.
-
Apparently we can't trust the doctors with good judgment.
-
there are some clinical trials using neoadjuvent AI treatment. I guess this case shoes why it may work for some
-
Ha, I just started reading a book about how so many dr want to try the same treatment (radiation, chemo and/or drugs) for all cancer treatments. Its not a cookie cutter situation where in my situation, the oncologist said "here, take this drug and we will see you every 6 months to monitor if the cancer has come back or not. I don't want this stuff to come back and don't wont to wait until cancer cells have already set up shop again someplace inside my body to become a tumor!
I have found out there is a blood test that can be done by a lab in Greece (not CellSearch in the US) to see if there is any circulating tumor cells still in my blood stream. The dr don't tell you about this test because insurance wont cover it. I have sent an email to my dr to inquire about it and will pay out of pocket to find this out. I would rather know this information and do something about it now rather than treating a tumor again.
If you are interested in this and a lot more eye opening information, google a book called Cancer Free, Are You Really by Jenny Hrbacek. I am shocked about how the dr don't try tell you more about wellness and the things we can do for ourselves rather than depend on radical treatments and drugs.
-
Interesting story and point of view. I completely agree that common sense should dictate that a 92 year old newly diagnosed ER+ breast cancer patient skip surgery, chemo and rads.
What I also don't understand is the application of linear breast cancer treatments....chemo or surgery first, then rads, with anti-hormonals bringing up the rear.
I was diagnosed with highly ER+ breast cancer at the beginning of December and there was no doubt that AI's would be in my future. I have never understood why I was not prescribed an AI immediately. The whole process of making a surgical decision and then waiting for oncotype DX results to make the chemo decision, meant in my case that it was 2 1/.2 months before any active treatment (surgery) started and another 2 months before chemo. I guess it might make sense to stop the AI during chemo, but where is the science that we can't take AI's until we have had our surgery and chemo? There are some oncs who do not prescribe AI's until after rads are done, so at least I was able to start AI as soon as chemo was finished. Just seems silly to me.
If I had it to do over again, I would have insisted on taking an anti-hormonal right away and "perhaps" stopped while chemo was in progress. What if the administration of AI's in that first 4 1/2 months was a game changer?
MsP
-
Thanks for sharing her story. I agree that all doctors, oncologist or not, need to take into account the whole person and their personal life as well. My oncologist recommended chemo as a "standard of care" because I had a lymph node positive. But I insisted on the oncotype test which came back low risk. I would have gone through chemo with minimal to no benefit other than suffering the side effects. I'm on Tamoxifen now and I adjusted my diet, and this story gave me more confidence that hormonal therapy is more effective than we think.
-
Nice story. I was wondering about treatment changes. My mother had BC in 1999 at the age of 71. I have a copy of her pathology report from the biopsy, which says "infiltrating ductal carcinoma. Maximal tumor diameter 1.1 cm. Resection margins: Negative, but tumor approaches to within less than 1mm of the superior margin. Histologic grade, II, Nuclear Grade: II". It was also negative for ER and PR. They didn't test for Her2. So she was likely triple negative. I know that she had a UMX - not sure if she was offered a lumpectomy with rads or UMX but she chose UMX. I recall reading her mastectomy path report - it said no cancer found - they got the entire tumor in the biopsy. But my question is, do you think a woman today with a triple negative 1 cm IDC would have such little treatment? no rads, no AI's, no chemo. By the way, she is 88 and still doing well. thanks
-
Wow! That is an amazing story. Did any of the surgeons suggest just lumpectomy and SNB, and then just AI?
My Mom just had a lumpectomy with SNB at age 79, and then a second surgery for more nodes. She had rads and hormone therapy. Meanwhile, we needed to get a second opinion because my Dad kept insisting on chemo to "get all the cancer." My brother & I were so relieved when the second opinion confirmed no chemo.
After reading your story, I wonder if Mom could have skipped the rads? I doubt either Dad nor Mom would have skipped the lumpectomy.
I'm glad to hear your family friend is doing well at age 94.
-
Marijen, well, at least we could trust doctor #3 for good judgment.
-
My friend's mother was dx'd with BC around age 90, and the only treatment she was given was rads. I don't think my friend knew any other details about the BC profile (stage, type, receptor status, etc). Her mom did pass away about five years later (well into her 90s, but I'm pretty sure the cause of death was not BC-related.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team