April 2015 Chemo Crew... Starting in April? Please join us!

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  • AndreaC
    AndreaC Member Posts: 220
    edited January 2016

    ERNurse - congrats on your new job! So exciting! I am an ICU nurse, planning on returning to it but not till June or so (doctor's orders). I think flight nurses are the best...they have to be smart and think on their feet. I am not sure I could do it! Best of luck...not just in your new job but also health wise. 😀👍

    Andrea


  • KBeee
    KBeee Member Posts: 5,109
    edited January 2016

    ER nurse congrats!!!! I am a firefighter/paramedic; I have only flown in with a patient once. A lot of us are in a private Facebook group too. If you are on Favebook, pm me

  • ksusan
    ksusan Member Posts: 4,505
    edited January 2016

    ERNurse, congratulations!

  • Rpayton
    Rpayton Member Posts: 235
    edited January 2016

    ERnurse congrats!!! May all your flights be safe and your health remain excellent!

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited January 2016

    ERnurse, congrats! My husband is part of a shorthaul helicopter rescue crew. Blessings to you in your new job and be safe!

    Lynne, those haircuts are seeeeeexxxxxxy! Love the red one!

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited January 2016

    Eeerreeggghh! That's the sound of my self-restraint finally dissolving. In my brain, I know that this little hard lump is just a group of dead little fat cells. In my brain, I know that it is more likely to be a dozen other things before it's a recurrence of a tumor that I obliterated with A/C, Taxotere, and Carboplatin as evidenced by both mri and medical pathology. I know all that. But still...now that I know the u/s can reinforce what I already 'know', all I can think about is getting the u/s. So, I called today. I'll meet with pcp on Tuesday to get felt up and then get into u/s again...hopefully Wed or Thursday. I still feel calmer than i thought i would. It's obviously on my mind, but no ativan is needed and I am sleeping the same paltry 5 hours a night that I was before. Maybe it's because I know this potential adversary. If it is 'something' more than FN (and it's NOT!) I am familiar with my opponent. Don't get me wrong. I HATE the damn SOB, but I'm not going to let him make me hide under the covers. I beat the crap out of it once and I'll do it again if necessary. But i won't have to, because it AINT coming back! 💖

  • ksusan
    ksusan Member Posts: 4,505
    edited January 2016

    Kick its ass, girlfriend!

  • KBeee
    KBeee Member Posts: 5,109
    edited January 2016

    Keep us posted. Glad it is scheduled

  • ksusan
    ksusan Member Posts: 4,505
    edited January 2016

    Has a pretty different meaning for me than the manufacturer intended.

    image

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited February 2016

    Well.. Looks like my husband would like a woman with breasts. Rats. So, guess I will start looking into getting some! Any advice on where to start? I'm talking recon not prosthetics.

  • KBeee
    KBeee Member Posts: 5,109
    edited February 2016

    Ask around to get opinions on plastic surgeons. You want to get someone highly recommended. You need to decide if you want a DIEP flap (or similar procedure) or implants. Implants will have the fastest recovery and the least potential to impact you as far as range of motion or strength.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited February 2016

    In Montana, my choices will be fairly limited, but I could maybe go to Seattle. I'm thinking 2 to 3 years from now, probably. What are good indications of a good plastic surgeon? Also, aren't implants under your chest muscle? Kbeee, can you still Cary heavy gear and do strength training? Thanks!!!!

  • KBeee
    KBeee Member Posts: 5,109
    edited February 2016

    Yes, they are under my pec muscle. I do strength train, can haul hose, drag dummies, use all of the tools,throw ladders, etc. They are fine with my air pack. A good PS will be able to clearly explain pros and cons of all options. He/she should be able to show plenty of before and after pictures. A university hospital or a major cancer center would be a good place to start. Maybe meet more than one

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited February 2016

    Thanks! That's very reassuring. I started doing research today. My husband is at the bar with another woman, so I may have to move my time line up a bit.

  • ksusan
    ksusan Member Posts: 4,505
    edited February 2016

    And what do you want?

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited February 2016

    To have a long life and die unexpectedly and painlessly. To be successful at my very active job. Very far down the list is breasts, but I do want to be attractive to him and experience intimacy. I mean, its not like he ever sees my chest lol. I always keep it covered. Additionally, and this is very mercenary, but he carries the health insurance and when life was good he was a very good man.

  • AndreaC
    AndreaC Member Posts: 220
    edited February 2016

    Littleblue, best of luck to you in your boob journey. I hope you find an excellent plastic surgeon who listens to you and explains the options in detail.

    With me there was never an option. I want breasts. They were always my best feature, if I do so myself. And my hair, which will grow back...unfortunately boobs don't do that. The way I see it, cancer took a lot from me - part of my colon, my appendix, my breasts, my uterus, my ovaries...not to mention the hair thing. Then there's the sense of security about my health - I had always been healthy and this was a real shock. I think we all have a degree of PTSD. And it robbed me of the job I love - temporarily, but if I could I would sue cancer for compensatory damages. Can you tell I'm angry?

    Anyhow, onto a happier topic. I saw my family doctor today and I have to say, I absolutely love her. She gives me whatever I want. She did a physical exam and found that my right axillary area is larger than the left so she is sending me for a chest wall and axilla ultrasound. And I complained of pain I am having in my left thumb - the joint where it joins the hand is very sore, especially in the morning. I think it may be some arthritis but she's going to x-ray it just to be sure. And she's sending me for bloodwork - my oncologist just kind of left me high and dry although he did tell me to follow up with my GP so I guess he expected her to set up the bloodwork. I'm to have it every three months for two years. She also gave me a prescription for compression sleeve and glove for my left arm - I am to be fitted on Wednesday.

    Sometimes I think I am a bit of a hypochondriac, but I think I have earned the right to be after three cancers. She doesn't seem to mind though.

    Have a great week everyone!

    Andrea






  • KBeee
    KBeee Member Posts: 5,109
    edited February 2016

    Andrea, sounds like you have a great HP. I have not seen mine in over a year. I should set up an appointment just for a physical, cholesterol, etc.

    Dizz, Keep us posted on how things go

  • Scarlett152
    Scarlett152 Member Posts: 175
    edited February 2016

    Andrea - I have the same joint pain in both thumbs and it is starting to radiate up my wrist. I have a referral to a rheumatologist next month, but my MO things it is lingering side effect from chemo or Zoladex. We had the same chemo so maybe that's it. Frustrating!

    Little Blue - if you can fly to San Francisco, Dr. Karen Horton is the best and is amazingly caring! Www.drkarenhorton.co

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited February 2016

    Andrea, thanks! You have every right to be angry. Glad your Dr. Is so responsive!

    Scarlett, thanks for the recommendation. What kind did you get, if you don't mind sharing?

  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited February 2016

    Love the shirt, Ksusan!! SMIRK! I would wear that, give it as a gift. Inspiring ...that whole marathon thing

    Littleblue - argh....There are a range of breast experiences, so research well. PS with low infection rates is good. Mine was at a university hosp and was very talented. I do like my foobs. They are fine and the nipples are always hard. So I guess I am constantly turned on...have to watch the shirts and bras.

    congrats ER Nurse



  • KBeee
    KBeee Member Posts: 5,109
    edited February 2016

    Dizz, How'd it go with pcp???

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited February 2016

    Sorry to keep you waiting. I was unfortunately distracted with some tense news concerning my Aunt. She was diagnosed with lung cancer just over 3 years ago. She survived the whole cancer journey and was declared NED. Well...she fell for no apparent reason over the weekend. After being taken from her local community hospital to a larger University hospital, she was diagnosed with brain mets. She has 3 lesions. She is in surgery right now getting the smaller and easier two tumors removed. When they see how strong she makes it through this smaller surgery, they will come up with the next part of the plan to deal with #3. I am heart broken for her to have to jump back into the deep end of cancer. It SUCKS! I thought of her often during my treatment and almost felt some measure of comfort that I was traveling a path that she had already 'trail blazed'. It just makes me sick to think of mets and recurrence.

    I had my appointment with my pcp yesterday. It made me feel both good and hostile that she wasn't as concerned with my 'lump' as I am. "What do you mean it's only 1-2mm?" My original tumor had to start somewhere didn't it? It didn't just appear as a 10mm lump one day. Apparently I am the one wearing the pants in our relationship, however, because she agreed that she would gladly give me my referral to get the U/S if it would put my mind at ease. From the pelvic U/S, my lady parts were all pronounced to be in good health, albeit...it actually says on the report that they are remarkably small - which means??? PCP says it's probably due to my struggling hormones. Anybody else a little unnerved that we have to live with all kinds of things being normal because it's "PROBABLY" due to our cancer treatment? Since her next idea to handle the pelvic floor pain is to give it some time, I believe the next item on my list is to find a good gynecologist who has experience with patients who have gone through treatment. Maybe I'll ask her about my remarkably small lady parts. ;-) Bloodwork was all good, including the R/A factors and auto-immune sedimentation rate. The joint pain could still be osteoarthritis. Oh for joy...at the age of 41. Since I am going to be back at the imaging center to for the u/s, she went ahead and wrote an order for a hand and a wrist x-ray to look for physical signs.

    LITTLEBLUE. Sorry to shout, but didn't want it to get lost in the rest of the msg. My advice about surgeons is to find someone with a ton of confidence no matter what direction you choose to go. I read a lot about women wanting one thing, but getting talked into something else by a surgeon who is more confident with a different procedure. Change the surgeon if that is the case, not the operation. You should be the one who gets what you want! Not your DH, not the surgeon. YOU! Check out the different reconstruction sites here on BCO. Keep a notebook for pros, cons, questions. If it comes down to traveling for reconstruction, don't let that concern you too much. I worried about the travel too much. In the end, it was the easiest part. Also, you'll read a ton of negative stuff about recuperation time after DIEP. That stuff nearly scared me away from what I really wanted. It turns out that the stronger and fitter you are going into surgery (any kind) the easier your recuperation will be. So, just because it's really hard for many people, doesn't mean it will be so hard for you.

  • KBeee
    KBeee Member Posts: 5,109
    edited February 2016

    Dizz, I am so sorry to hear about your aunt. Cancer just plain sucks. It is frustrating when our provides do not share our concerns; it's so obvious sometimes that they have not been through it. My gyn last year told me that I had significant vaginal atrophy. I feel like my pain has eased some in the last month or 2, but it was really uncomfortable for a while. I was really glad that MO brought it up at my last appointment and offered suggestions from what previous patients had told him worked. He actually cares, which is nice. I am glad you got the U/S referral. Let us know how it goes. If the wrist x ray does not show anything, perhaps for an ortho consult or an EMG. I developed carpal tunnel after chemo the first time and know 3 other local gals who had the same thing. Surgery was a quick fix...but annoying to add something else to the mix.


  • ksusan
    ksusan Member Posts: 4,505
    edited February 2016

    Dizz, I'm so sorry!

  • KBeee
    KBeee Member Posts: 5,109
    edited February 2016

    Dizz, when is the u/s?

  • Rpayton
    Rpayton Member Posts: 235
    edited February 2016

    Dizz sorry you are going through so much. I hope the US is soon?

    Littleblue take your time, research and weigh all the options. Read as much as you can on this site. And definitely see more than one reconstructive Dr so you can decide. And if not comfortable keep looking. The important thing is that YOU get what you want.

    So yesterday had my MAMM and got the all clear nothing of concern. Whew relief! Waiting the half hour for the radiologist to read the test was mentally exhausting. Had to remind myself not to do the what ifs and just breathe. Now onto my other goals.....

    It's gonna' be a good year for us, chemosabes!

  • ksusan
    ksusan Member Posts: 4,505
    edited February 2016

    And LB, if you don't want recon, don't do it.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited February 2016

    Renee, glad you got the all clear. Whoohoooo!!!

    Dizz, thinking of you girl. Hang in there!

    Ksusan, I think I'm going to spend at least a year researching all my options before I make a decision lol. At diagnosis, I found out I had cancer on a Friday and boobs off next Monday, so no time to think. If there is a good option available. That works with my work schedule and life style, and a surgeon I like, then I may consider it. My husband and I had a talk last night about why he is such a dipweasle- seems like a lot is guilt for abandoning me during treatment. And he doesn't feel sexy. Um....I'm the one that looks the world in the eye and spits, remember? Whatever. Upshot is- operation NOOBS is his baby to research and I.element and take ownership. This should be interesting. Because I could go either way. The only thing about not having breasts that bugs me is sexually....and that's not that important. Otherwise, flat is fine. But maybe having noobs would help everyone who helped heal me move on? In which case, to see my parents less scared- I'd do it in a heart beat. We shall see.

  • Scarlett152
    Scarlett152 Member Posts: 175
    edited February 2016

    Little blue - I had a DIEP flap. Going in next month for a final "balancing" surgery and have a nipple graft. Also, I have decided to have an oophorectomy so that I don't have to monthly Zoladex injections for the next 5 years. I am a bit anxious about returning to surgery. Also, depression has been creeping up since the holidays.

    Anyone else feel like chemo brain is kicking in about now. I have been very forgetful and unfocused.

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