January 2016 Chemo!
Comments
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had second infusion yesterday and my forearms are so itchy I think I might scratch the skin off! Has anyone else experienced this? I have tried over the counter and prescription itch cream and no relief. I don't know if Benadryl would help, but I'm taking clairitin to counteract neulasta and not sure if I can mix the two.
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Ah my husband's ever tactful aunt. We are visiting family for his Grandpa's birthday, I walk in the door and the first thing she says to me is, "You gained weight!". I managed not to burst into tears until I was alone in the bathroom.
Honestly, what was she hoping to accomplish by saying that? I had my cancerous thyroid taken out 6 weeks ago and am still trying to get the right dosage of my new medicine, which causes weight gain when it's too low. Plus the chemo steroids, being sick, and limited energy certainly don't help! How about, "Gee Brenna you've been to hell and back these past 8 months. Way to have a positive attitude and great spirit!"
I'm doing all I can to exercise, eat well, and be healthy. There is nothing else I can do and I'm working hard to be okay with where I'm at, but she really hurt me tonight.
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I'm sorry MissBee. That's awful. (((Hugs)))
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Day 5 since first TC and have a sore throat. Anyone else having this issue, no pain meds helping. Also never ending headache still here
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oh yes the sore throat after my first TC was among my least favorite SEs. It did go away after about 7 or 8 days though. I didn't take any pain meds - just drank ice cold smoothies and tea with honey. Hope someone else has a better pain remedy
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MissBee123...So sorry you had to deal with such a thoughtless comment. Often people just don't know what to say and they really say the wrong things. It's very hard to ignore hurtful comments. Hope the rest of your weekend brings you a lot of happiness celebrating Grandpop's birthday.
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Gee Auntie, you look great too. You should have told her it's the steroids. People are clueless. I took steroids for months on end for lupus. A lady came into my office and told me how puffy my face was. As if I didn't know!! Ugh, people can be so insensitive.
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Missbee, I'm sorry you weren't able to enjoy the birthday celebrations. Some people have no filters! ! Perhaps with all you have been thru she expected skin and bones. Even though we know most people do not mean to hurt intentionally it hurts just the same. Just know you are an inspiration to us here!
I thought I would be having chemo in January, then February as I was obtaining second opinions on treatment. Turns out my oncotyoe score came back at 13 so I have decided to opt out if chemo and move on to rads and AI.
In the meantime I have a tumor, which they suspect us cancerous, in my thyroid, actually have one over a cm and a couple smaller ones, swollen lymph nodes in neck as well. I receive the resuts from biopsy on feb9th.
MISSBEE, was your thyroid cancer, thyroid cancer or breast cancer?
Hugs, Mariyn
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Miss Bee! I somehow keep forgetting you went through thyroid cancer stuff too recently. Having walked that road myself (albeit a long time ago) I just want to say you are a freaking hero. The fact that you are even functioning, much less smiling and cheering on others, while they sort out your thyroid meds and you undergo chemo is incredible. I remember extreme lows soon after surgery with my emotions, weight gain and just feeling plain old exhausted down to my bones. I'm so sorry she hurt your feelings. People can just say the dumbest stuff. I am in awe of you that you'd even go out and do something social at this point with what you've been through
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Miss Bee, sending you a bighug tonight.
Some people......
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jensgotthis, i had somewhat issue with passing stool on my first cycle too. first few days was quite slow in that department. i tried dried prunes and ate plenty yoghurt, i think that helped after about two days. hope this helps.
sheri, i woke up with terrible sore throat and headache on my day 3 after tc as well, onco gave me Nystatin to gargle and swallow, which helped within a few hours and Celebrex for headache. hope you feel better soon.
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missbee, aunty is full of .... ! some people just are totally out of line, if they can't say something nice wish they would just keep their mouth shut.
anyway, please remember you are an inspiration to all of us.
wishing all the lovely brave women a wonderful Sunday!
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I'm sorry you had that experience MissBee. This disease and treatment take away so much of our identities, physical and otherwise. It's not helpful when others point out something that we are already struggling with.
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As this journey begins I can't help but get waves of how stupid this all seems. I'm fine. I feel great. And yet I'm about to poison myself in the worst way imaginable. It makes all those years of worry about what I ate seem a little silly. Sure, I'm glad I'm in good shape going into this but all that worrying about what may give me cancer has a whole new perspective. My boobies ache a little from the biopsies. Makes me appreciate them just a little more and wonder how long I'll have them. The realization that once you have cancer it never really goes away permanently is blowing my mind. The new normal isn't what I signed up for, I had other plans. Readjusting to this change is weird at best. I know I'm strong. I know I'll get through it but really? Do I need to do this? Can't I just phone this one in? What doesn't kill you makes you stronger. Thank you Captain Obvious. I'd prefer to skip this whole thing and carry on the way I was going. This must be the part where nothing stays the same. Change isn't easy for me. I love my life. I loved my daily rut and the lack of stress and luxury to wallow in my ennui.Wherever you go there you are- always a tad worried about what could or should be. How funny. My reality changed in the blink of an eye. The whole world turned upside down. But I've never been one to walk a straight line any way.
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I hear you Myra. I am 42 years old and was at a great place in my life. I just started a new job, was planning my daughters bat mitzvah, ran a 15k when I got diagnosed. I'm so angry when I think about it.
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Hi there! I hope I get this posted properly because I don't have much experience posting on boards. I was diagnosed with breast cancer a few weeks ago and it's been a whirlwind. I got my port on 1/27/16 and my first treatment of TCHP on 1/28/16. I had my first bout of nausea last night. Thankful for this community
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This is my first time posting on this thread.I have been on the lumpectomy one. At first I was given the impression ( or somehow I got the impression) lol that chemo was not on the horizon. I had an appointment with RO to start radiation.Even she was surprised when she learned that I was going to see a MO. Then this past Tuesday I learned that they were considering chemo. I freaked out! Luckily I was able to get in to see my cardiologist the next day. He was a big help in calming me down. I have been seeing him for the last 10 years since my open heart surgery in January 2006. By the time I left his office, I was grounded again. lol He reassured me that my heart would be okay with chemo. He also knows the MO I had an appointment with and said he was the best and to go listen and follow his suggestions.
Friday I met with the MO.He went over the pros and cons of doing chemo, listened to my concerns,gave me some literature to read on Taxol and said it was up to me. He sent me home to decide and let him know Monday(tomorrow). Before I left I asked him," If it were your mom, daughter,...( he added wife), what would you tell them to do?" He smiled and said," Since I don't have any intentions of trying to get rid of any of those 3 in the near future, I would strongly recommend that they do the chemo."
I have decided to do the chemo.I will call his office tomorrow morning. That was the easy part. Now comes the hard part...making myself go through with it. I am SCARED! Don't ask "scared of what?" because I am not even sure. Scared of the side effects, scared of what it could do to my body at my age, etc. I have constant butterflies in my stomach when I think about it.
I need to go jump in the shower and get dressed to go to church. Thanks for "listening".
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Hi Coloradomom, and welcome to Breastcancer.org! We're glad that you joined this group, although we're sorry that you have to be here for this reason...
Unfortunately nausea is a very common side effect of many breast cancer treatments including chemotherapy, radiation, hormonal therapy, targeted therapies, pain medications, etc. For tips and information about it you may want to take a look at the article: 10 Ways to Manage Breast Cancer Treatment-Related Nausea. Let us know how it goes!
Best,
The Mods
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I so appreciate the chance to share this with my BC sisters. I know you all understand. The most well intentioned loved ones apologize when they hear the diagnoses and I can't help think "you're sorry?!" I know there's nothing else they can say and they mean to give comfort. We'll get through this but knowing I have a place to be myself and let go helps an awful lot. Thank you all
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Miss Bee, I wonder if she expected that you would have lost weight with chemo, and she was surprised that instead you had gained, but it was supposed to be a positive thing? That's what I would hope, sorry she was insensitive.
RE constipation - forget whose question it was - Miralax is really good for helping this, if the prunes/licorice/fibre thing hasn't worked. The typical dose is a lidful ( 17 grams) once or twice a day. Other thoughts, drink warm water, that is supposed to help…
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I find the days leading up to chemo so hard. I am start to feel normal and back to myself, and anticipating next cycle sucks!! I try to tell myself to embrace it, that it is the treatment I want, but crap, it is not easy!
Vent completed. Back to positive mode.
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My nurse had me buy magnesium citrate for constipation, but I ended up not needing it. Yet. I plan to be much more proactive for the next round.
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Smooth move is awesome! Have had no problems thru chemo with it. I drink it 2-3 a week and only let it seep 5-6 minutes. I wish I would have used it for years. I've struggled my whole life, drank lots of water and done lots of fiber. I think it's a miracle.
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I am also a runner and was planning on training for my second full marathon this year before I was diagnosed. Now between chemo and an upcoming double mastectomy, I will be lucky to be able to run 2 miles by June. I have to constantly remind myself that this is all temporary and the "price of life", that I am lucky mine was caught early and is treatable. That I go through this to be able to get back to myself and my life, and to keep being able to be there for my son. It's just hard sometimes. One foot in front of the other.
Stupid cancer
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MissBee sorry about the aunt's insensitive comment. Even though we know people don't know what to say and often say hurtful things it doesn't make it easier to be on the receiving end. We are all going through enough as it is, right?
I'm joining the group of us dreading the second round of chemo. Trying to stay positive and enjoy feeling mostly normal but it is hard knowing in a couple of days I'm going to feel like total crap. For a while too. I'm having a dreadful time trying to sleep at night. I've had mild hip pain for years but since the first chemo treatment it is so much worse and I wake up every thirty min or so in pain, roll over and repeat all night long. I assume the joint/muscle pain that is a SE has made an existing problem even worse.
One foot in front of the other, one day at a time
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I'm sorry she hurt your feelings MissBee. If it makes you feel any better, I thought of you earlier today - I was feeling royally annoyed that I still have 12 infusions to go, and thought to myself, "Holy $%&* that poor Miss Bee had to go through this twice plus the thyroid." So in a way, you virtually grabbed me by the armpits and lifted me up to keep going. Remember YOU did that, just by being here.
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I had my second TC infusion on Wednesday morning and can definitely say that my worst time is the Saturday through Monday afterward, and then I start to come back very slowly over the next few days/week. The cruel irony is I don't sleep well during this time - I think I must have gotten up to tinkle 5 times last night (maybe the steroids leaving the body and releasing the fluids it had been holding?). It feels like a long time since my first infusion but I'm holding onto the fact that I got through the first round and that everyone else got through too. You ladies inspire me
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I had infusion #2 Tuesday...Wednesday, Thursday and Friday were mostly okay...Saturday and Sunday blech. Steroid withdrawal made me tired and just so blah and brain foggy! Hoping to wake up a bit tomorrow!
Love you ladies. Good luck to those starting or going back soon! We've got this.
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Hi everyone,
I've been reading your posts in an effort to be prepared for the possibility of neoadjuvant chemo and Herceptin starting in a couple of weeks. Is everyone on a three week cycle with chemo? We have a week long family vacation planned for early March, and I am hoping to make it if at all possible. It's not the number one priority, of course, but making those memories seem more important now than ever.
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brandysands...I'm on a three week cycle. Can you plan your infusions so you'll be feeling well in time for your vacation? I'm on day 12 of my first infusion and feel pretty much like myself. From what I've heard week three is when you rebound from any side effects
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