January 2016 Chemo!

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  • Cancerpickedthewrongone
    Cancerpickedthewrongone Member Posts: 33
    edited January 2016

    Miss Bee I just finished my 2nd AC infusion yesterday and my hair is still in tact!! I am shocked. Same as you no strands shedding, nothing! So now of course I am anticipating the tingling , numbness feeling that's been described and mentally I think I'm making myself feel it! Lol I hope it doesn't fall at all, I will wait till the last minute to buzz it & I have wigs in stand-by just in case.

    Sorry haven't been posting much the 1st infusion had me in bed for 8 days lost almost 10 pounds, and I felt terrible. My MO tweaked some things on this infusion so fingers crossed this one will be smoother.

    Wendi you are rocking that wig!

    Thank you to all who are constantly on here, you truly helped me get through those not so good days!

    Hugs

    Allie

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  • buttaflydiva
    buttaflydiva Member Posts: 88
    edited January 2016

    coconut milk ice cream sounds divine. im one week since my treatment and I still have that yucky metallic taste. its better than it was and not that big a deal. I can deal with anything but the nausea. I feel almost normal today, with the exception of that weird taste and its seems like all of a sudden its hard to swallow. have any of you experienced swallowing problems?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2016

    Ice cream! Now there's a remedy for mouth funkiness I can get behind. :) Better get the hub to go to the store, stat. Scraping my tongue with the little plastic scraper my dentist gave me and the baking soda/salt rinse both seem to help temporarily too, and my Lemondrop Basil Cannabis lip balm seems to be giving my buzzy lips some relief too (it's supposed to help with cold sores so I figured it might help this. If nothing else it's good moisturizing!)

    Feeling pretty good today on Day 2, no pain or nausea and no digestive issues yet (drinking lots of water!). The wired/twitchy feeling of the steroids seems to be wearing off so maybe I'll even get a nap in today. I'm hoping I can make it to my son's elementary school Variety Show peformance tonight. He's doing a standup comedy routine and is a pretty funny little dude, if I do say so myself. :) Bracing myself to see what other things develop over the weekend, but taking it one day (and one SE) at a time.

    Hope everyone else is having an easeful day and for those that aren't, sending you comfort and strength.

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited January 2016

    MissBee, I started the same day as you, same hair status. Trying not to jinx myself. I've been treating it very gently.

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  • fightergirl711
    fightergirl711 Member Posts: 300
    edited January 2016

    My shedding is fast and furious these last few days. Although I had my hair cut short right after New Year's I'm headed to the mall tonight for it to be cropped. Still shy about buzzing it, figured I'd crop it really short first. Although I doubt it will last long the way it's falling out! I'm also in a funk. I think I'm still upset about the Pats losing, disguised as Cancer Blues.

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  • Sheri64
    Sheri64 Member Posts: 113
    edited January 2016

    Well day four since first TC treatment SE not bad just a never ending headache and not sleeping too well. Cried a little thinking about my hair coming out but I already have short hair so it shouldn't be that much falling out just haven't starting looking for a wig yet. Got a couple of soft nite caps at doctors. Blood work next week and again before the second TC on 2/16


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  • Geeper
    Geeper Member Posts: 164
    edited January 2016

    LovesToFly- My taste buds are a little off too. I don’t have the metallic taste, but berry smoothies don't taste the same. I gave up processed sugar and I look forward to my organic fruit smoothies and sherbet.

    MissBee123- today is my 19th day of treatment and my hair started falling off 17th day of treatment. I have a ton of hair (lioness hair) and it's shedding. I am trying not to shave it until it starts to really thin out. Hopefully you are one of the lucky ones and get to keep your hair.

    Paulinek- I agree with you!We are all bad ass, cancer fighting chicks!

    Cancerpickedthewrongone- I am sorry your 1st infusion did not go so well. I am hoping your 2nd infusion goes smoother, now that your MO tweaked your meds.

    buttaflydiva- I am sorry, but I have not had any swallowing problems. Some ginger tea with honey may help. Hope you feel better.

    fightergirl711-  My hair use to be to my waist and I cut it shoulder length a week ago. My hair is shedding and I am holding out. I am not cutting it until it starts to really thin out. My hair is thick and wavy. I look like a poodle right now, since I cannot straighten itfor fear of losing more hair.

    Hope all of you have a great weekend and feel better :)

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited January 2016

    Anybody have wig brand recommendations? My cancer center store uses Jon Renau. I need a petite. I've been looking at TLCDirect.org from the American Cancer Society. Their colors seem a little off. Thoughts

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  • Citrinetiff
    Citrinetiff Member Posts: 88
    edited January 2016

    Wendi, I love the wig!!

    I am day day 3 after AC, and I have both nausea and heartburn. Not a great combination! Anyone have any suggestions? I'm taking my anti-nausea meds, and drinking lots of water. Has anyone tried Perrier or San Pellegrino water?

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited January 2016

    They prescribed Zantac twice a day for me. Seems to be doing the trick. Hope you feel better soon. Remember, small meals, more frequently.

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  • Paulinek
    Paulinek Member Posts: 117
    edited January 2016

    Citrine, I'm not sure if it would help but I got ginger candies at trader joes and they seemed to help when I was queasy

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  • jensgotthis
    jensgotthis Member Posts: 937
    edited January 2016

    my two favorite wig lines are the Jon Renau for the quality of the hair and cute styles and the Raquel Welch for comfort

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  • mltdd
    mltdd Member Posts: 87
    edited January 2016

    I just had vanilla ice cream. Thanks ladies for the info.

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  • Citrinetiff
    Citrinetiff Member Posts: 88
    edited January 2016

    I will call my pharmacist for Zantac and I'll also try ginger candies. Thanks for the suggestions.

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  • Paxton29
    Paxton29 Member Posts: 221
    edited January 2016

    Lab work today, my white blood cell counts are low. I was surprised how upset this made me. I was hoping to have a medium rare steak soon but I guess not now that meat has to be well done. Bleah.

    I hope that those of you with hair hanging on get to keep it

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  • DoxieMomof3
    DoxieMomof3 Member Posts: 14
    edited January 2016

    all this ice cream talk is so funny. This is my second time doing chemo ( the first was just over 2 years ago, TC x 4) and both times the first week after chemo all I could stand was MIlkshakes!!! Didn't matter what kind just needed that creamy coldness. My husband would think of new different flavors every night. My MO kind of gave me a hard time because I gained a few pounds when I did chemo last time but everyone was bringing me milkshakes and who was I to refuse since it was the only thing I could taste lol and it has been exactly the same with my first AC treatment!

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited January 2016

    Paxton, as low as my counts were last week, they were actually in the normal range this week thanks to the neupogen. They haven't been normal in over three years!


    Thanks for the recommendations, Jen.

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  • Myraknits
    Myraknits Member Posts: 264
    edited January 2016

    ...adding vanilla ice cream to the list for my care package..good to know.

    So today was MRI assisted biopsies on both breasts. What a bizarre experience. Who thinks up these things?!

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  • Geeper
    Geeper Member Posts: 164
    edited January 2016

    I am on my third week of chemo and saw my MO yesterday. My lab work is good, no anemia, and liver enzymes are good. I have not had neupogen shots or neulasta. I eat a lot of beets, broccoli, kale, spinach, and celery. Substituted caffeine with ginger and energy level is good.

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  • robyn31024
    robyn31024 Member Posts: 51
    edited January 2016

    miss bee- hoping you will be in that small percent that keeps hair this time! That would be awesome. Mine is just patchy now and irritating. I run around in a soft hat when not using wig. My head is to cold!

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  • robyn31024
    robyn31024 Member Posts: 51
    edited January 2016

    doxie- that so sounds like me. Icecream and milkshakes are one of the things that still taste normal and make me feel better. My co-workers are always bringing them to me at work. So i will prob gain weight too! My tastes changed for the worse after this second tx. I never know what is going to be good!!!

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  • keepsake
    keepsake Member Posts: 59
    edited February 2016

    Hi. Had cycle 2 Thursday. Friday knew I had caught a virus. Elevated temp, sore throat, runny nose - ugh! Scheduled for another infusion Thursday. Hope this doesn't cause a delay. Just what I was trying to avoid with starting chemo in winter.


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  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    Yes my head is cold all the time! I ended up buying a bunch of fleece hats from Old Navy, they were like $1.99 each, I wear them around the house and to sleep. I have cuter toques for wearing out when I don't feel like wearing a wig.

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  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    Ugh keepsake, hope you start feeling better soon.

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  • jensgotthis
    jensgotthis Member Posts: 937
    edited January 2016

    any tips to lessen the constipation? I eat lots of veggies, drinking 3 liters of water a day, taking Senekot every day, exercising, skipped Zophran after my last infusion because of how bad the constipation has been for me, eating black licorice. About to drink some smooth move tea. Sorry for the TMI in advance, but I've had blood accompany each BM since Tuesday (not in the stool, just in the toilet water). They are finally starting to soften up a little bit - I know this got off track because I strained trying to eliminate and it took three sessions to move anything. I don't want to end up at a gastronintestinal doc or in real trouble here - so I'm also trying to figure out when to throw in the towel and make an appointment. I've never had hemorrhoid or anything like that so I'm a little out of my element here. Thanks in advance for any good ideas and sorry again for the tMi

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  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited January 2016

    Jen I haven't had this problem ( I am not quite as regular the first few days after chemo, but not constipated either so I don't really have any advice for you, but I really hope you find some relief soon, and please don't worry about how much you are sharing! I hope somebody else has some better advice.

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  • keepsake
    keepsake Member Posts: 59
    edited February 2018

    jensgotthis - You may find the info in the forum "Constipation - problem with so many of our drugs" helpful. Hope you will feel better soon

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  • jensgotthis
    jensgotthis Member Posts: 937
    edited January 2016

    thanks keepsake - I didn't know about that forum! I will go check it out now.

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  • buttaflydiva
    buttaflydiva Member Posts: 88
    edited January 2016

    I found my post chemo days nausea to be a lot like morning sickness during my pregnancies-the thought or smell of food makes me even more nauseous,but if I don't eat something every few hours it will make the nausea even even worse,so it's a struggle to find anything that I can tolerate. But in addition to vanilla ice cream I can also stand mashed potatoes, grits, chocolate pudding cups and plain applesauce. I'm going to limit these to the really bad days though


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  • buttaflydiva
    buttaflydiva Member Posts: 88
    edited January 2016

    Have you guys seen these hats with the built in pony tail? My best friends daughter was going thru chemo years ago and designed a line of these.she wanted something she could just throw on if she was just going to the store or chemo or whatever but wanted to look normal. So she got one of those fake hair etensions from the sally store,sewed it into the back of a cap and voila. The ladies doing chemo with her got her to start making them for them and later she launched the company. She eventually sold out but her mom kept a few caps and gave me this one. I love it. I might go buy me some hair ext entensions and make a few moreimage

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