Lumpectomy Lounge....let's talk!
Comments
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Sloan,
Back in April I consciously cut out sugar and Breads/crackers. I lost 25 lbs in 3 months. Also increase my exercise. I felt better than I ever had and then the routine mammogram changed everything. I had a highly aggressive fast growing cancer with a lot of necrosis and it has a high rate of spreading to the lymph nodes. The Dr. at my 2nd opinion thinks my change in eating habits may have saved me from worse diagnosis. I have continued that pattern of eating although I will admit the holidays have been a bit of a challenge.
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MLP3, don't let them hurry you along. Make sure you understand each treatment they are proposing and why and, more importantly, that you agree that it is the best option for you. You really do need some time to digest this. If you can, read Dr Susan Love's Breast Book. It tells you everything and more that you need to know. Of course anything on BC is outdated in some ways before it is printed but it is a worthwhile start. You did good making your settings public. Boy, I am confused why they would say expect "surgeries" next week. Two? Most of us have time to plan our lives. I had to have my sons come in and stay with DH while I had surgery and they needed to get time off work, plane tickets etc. So I needed the 6 weeks I had.
HUGS!
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Oh My Gosh! I can't keep up with this thread LOL, I admit all you guys are posting in a different time zone, so I miss alot, hard to keep up!
Loves to Fly - You are so incredibly prepared, I too was like you, I dont think there is more you need to buy etc., I found until I started Chemo I just wasnt going to know how I'd be and what I'd need. I bought some scarves from hatsforyou.net and I bought a good wig! Strangely, I only wore scarves to treatment, used my wig relentlessly, nobody could tell was amazing! They do get irritating so you may find you'll mix it up a bit. The picture of me on my profile is a WIG! One thing to mention is make sure you rinse morning and night with salt water, thats to help with mouth ulcers. My Oncologist said Id be off the first week of treatment but able to work the 2nd two weeks before treatment again. Ummm NO out of those 3 weeks I worked 1 week, unfortunately I wasnt well and was in hospital for 3 days after each treatment. I had ALWAYS been in control of my weight am slim, I put on 11lbs, this is due to steroids, mostly I found I was off food alot, apart from when given steroid I ate everything lol. The nausea was the toughest part for me, until we got that under controll. That was 4 treatments, 3 weeks apart, the 2nd course Taxol was weekly which was completely different. I was told again Id be able to work 3days out of 5, I worked ZERO, and yet I was determined to work through it all. I actually sat back and realized I had to listen to my body, and believe me it really wasnt an option as Im a single parent of 2 teenage kids, its been super tough, with hardly any support and the biggest support Ive missed is my MUM and have no sisters. You will find your Rhythm, and have a feeling you'll sail through all of it!! I've been super positive all the way through..
Gemma - Welcome! I've had 2 lumpectomies in 4yrs, the last one removing nodes as well, both times went fine, no problems or complications, hoping it all goes well for you, and hoping for clear WIDE margins and no node involvement, thankfully this was my pathology results.
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My lumpectomy is going to be this Tuesday. Did anyone take a calm pill before? As well what pain meds did you take after? How soon can you start to workout? I have been told no lifting but could I just use my other arm?
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Brightsocks - You could take a calm pill, though you will be having a general anaesthetic?? so not necessary. Your surgeon will prescribe your meds for you and recommend over the counter ones as well. In terms of working out, you'll have to wait and see how you feel, again your Surgeon will be able to tell you exactly how long before lifting as you dont want to cause complications. Be guided by your body after surgery, then you'll definitely know what you feel you can and can't do and when you can.
Good luck!
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My day on Tuesday will be going from one clinic for the wire then drive across the city for the operation. So it will be a long day. How does one get back into clothing or a jacket? First stop is 9am then to the hospital for 11:30. I am booked in for 1:30. I was then told about 3 hours later finished.
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Brightsocks - Will you have someone with you? that will drive you? if you are anxious, then yes I'd take a pill, just something mild. The wire is quite quick and they give a local, then twirl the wires up under a bandage, so no problems popping on a jacket. Are you staying in hospital?
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BrightSocks: that's pretty much how my wire localization went too--drive from pillar to post, but the wires really are that fine, and they taped them down under a bandage so I could put my street clothes back on for the drive.
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Brutersmom - Amazing story and a testament to healthful eating. Ultimately most of us will never know what caused our cancers, but I sure don't want to aggravate nor encourage it! I struggled over the holidays with sugar, but fortunately I didn't gain weight last month. But, honestly, in the back of my mind I get scared that the cancer was growing before I could get on the Tamoxifen. I guess that's why I'm not objecting to much that I'm on 40mg/day...
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I didn't know you still have cancer Sloan, how did that happen?
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Sloan - Gosh I'm like you, Ive struggled with sugar through the holidays so far, I have bought a Ninja and have started healthy shakes, and on a mission to cut sugar out of my life too. You know none of us know, I guess we do all the right things and pray we're on top of things. 4yrs ago I had a lumpectomy, clear margins, did rads and tamoxifen for 4yrs and checkups yearly. I had a recurrence in the same spot, was a devastating blow in June this year. I'm waiting to see Oncologist 25th Jan for my new hormone pill as Chemo threw me into menopause. Am praying I've beaten it this time..but am positive and doing all the right things especially with diet..theres no rhyme or reason, but its how we rise to this challenge...and boy don't we!!! Amazing women!!!
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Marijen - There are always cancer cells in our bodies; our immune system NK cells just normally attack them and keep you healthy. That's was diet can prevent some things, but once the cancer you almost always need medical treatment. So, when I talk about cancer, I'm just being realistic that if I have 37 TRILLION cells in my body, the chemo probably did not get all the cancer cells. That's why your CA15-3 and CA125 tests have a range for healthy. Chemo and rads kill enough cancer so your body can be healthy again.
This is only about 5 years away! You've probably heard of it as the cancer vaccine. Right now they are using it on many types of melanoma and other cancers, and they think a TN vaccine might be next.
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I call myself cancer free, though!
I earned it!
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My docs won't give me those tests, they say they're not accurate?
Sloan I want to get into that trial!
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thanks melclarity. I am planning to work take off my chemo weeks, and work the two weeks after, but of course I will reassess if required. The oncologist says many people are able to do that, but some aren't, so I will see what happens. Luckily for me it's not really a financial issue, because I am unionized I have excellent benefits and sick time it's more because I tend to get very depressed when I get lonely, and if I am feeling well enough to work, I will be better off doing so. Your wig looks great!!
Brightsocks: I started walking right after my surgery, within three days I was back up to 10,000 steps a day. A week after my surgery I got back on the spin bike. I did not do any weightlifting with my right arm until my post op appointment (11 days after surgery). Once I got the OK, I started with later than usual weights and am back up to my 15 pounds. Went to yoga last week, I was a bit nervous because of all the planks and downward dogs, but I had no problem at all, I even rocked a handstand!
I am in the best shape of my life right now, in the spring I started really limiting my sugar and upping my strength training (I'm a runner and I've always done a lot of cardio, but not enough strength), and lost the 10 pounds or so that I wanted to before our summer vacation and my daughters bat mitzvah (it was November 21, less than a week before surgery, and incredible!) I know I won't be able to keep up this level of fitness throughout my chemotherapy, but I'm hoping to be able to keep it up enough, and my weight down enough, but I won't have a huge struggle getting back here when I am done treatment!
I'm sharing a picture of my family at the bat mitzvah, I hope you guys don't mind I feel so close to you already. As you can see, I've got a lot to fight for! As we all do!
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Yes my friend will be talking me as my husband will do the children school drop run. I will make the call for the calm pill. I am not that stressed I just want it out so I can stop dreaming about it each night.
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(((hugs))) brightsocks. Waiting for surgery is so hard! Somebody told me that they will give you Ativan in the waiting room for surgery and procedures, I never asked for it so I don't know if it's true or not, but a lot of people say it helps so why not?
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Brightsocks, I was offered and took a Valium at the surgery center. It is a breast cancer center so I was just shuttled from room to room. That was the first thing they did. Then before surgery, I was offered a Dramamine for nausea. I figured why not and took it too. No nausea post-surgery. I did take a pain pill (whatever it was) in recovery and filled the prescription for pain pills but I never took any - just regular Tylenol. And I was fine with it.
Please keep in mind THIS IS MAJOR SURGERY. Just because it's your boob and not cutting into your abdomen, does not lessen how it effects your body. It needs rest to heal - even if you feel good (which you certainly may). Don't rush things. Rest rest rest!
HUGS!
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Brightsocks - Loves to Fly is right...Ativan believe it or not was the ONLY thing that worked for me through Chemo and its purely a relaxant but they also use it for nausea. I was allergic to Maxolon lol. Am super drug sensitive, but Ativan worked a treat!
One step at a time absolutely great attitude Brightsocks!
Loves to Fly - You are so on it!! and your attitude is everything. I like you didnt want to be at home at all, I love working and never had time off, and it was so great that I too was so organised and I had a plan going into it. As the time went on, I just had to keep readjusting to the plan and what I found for me was through it, my most valuable lesson was putting ME above everyone else, something I have never done. The fact I couldnt work in the end was my bodys way of saying to stop...strange how life works and it gave me time to reflect and really spend time with myself. A valuable journey, Im a selfless Mum, and my Kids saw the ups and downs through Chemo..but they saw a strong positive resilient woman who got up every time. It gave them a chance to be selfless too through this, made us even closer..being their Mum you are their world and tough on my kids 2nd time in 4yrs and on our own. Am super proud how we all came through it. Im 3 weeks post chemo and really starting to feel better. The other thing was though, I wasnt able to exercise not even walk through Chemo at all, another thing I planned on doing staying on top of. You are going to do amazing!!! keep us posted!!
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Ativan reminds me of the women from the Man Men generation. I will keep that image in my head as my Tuesday adventure begins. On the way to the OR I will just think I am on the way to a fancy cocktail party.
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BrightSocks, I walked to the operating room!! THAT was empowering. It said that I'm not sick!
HUGS!
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Brightsocks - I love your sense of humor...I am laughing!!!
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BrightClarity: (laughed out loud) I'll keep that thought in mind, should *I* need surgery again. Thank you, and may things go smoothly tomorrow.
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Humour is going to be along for the ride for there is so much I don't know at this point.
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so those of you that have done chemo, were you able to drive home afterwards? My husband will be taking me for my first infusion, he will take me for all of them if needed… But Id prefer he not miss much work. He is an accountant and tax season is coming
I know my mother would be happy to take me, but she is kind of anxiety provoking, I would actually rather find a homeless person with a drivers license that's looking for a warm spot and a cup of coffee than have her with me
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LovesToFly- I chose to have rides to and from. The first one especially because I just didn't know how I would react to the chemo as well as all the pre meds. The bag of benedryl made me pretty loopy then drowsy. If needed I could drive myself at this point, but I have family who really want to help and I do like the company.
My mom went once.......she was a nervous wreck and anxious.....I wish they could have given her an Ativan (she is very sweet - just doesn't handle stress well).
Cyndi
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Loves to Fly - I couldnt drive for the first hard hitting chemo which was once every 3 weeks, but drove for Taxol when it was weekly no problem. My Oncologist did say thats how it would be, that generally you cant drive for the first round. x
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New here too. Had a lumpectomy 12/30/15. Positive energy and thoughts I am receiving from all of you although I don't know you. I'm healing well but anxious about full pathology report and treatment.
Speaking of Ativan- I asked for some before the wire procedure and I was not given any. I definitely should have been more persistent. Just something I need to work on in my life in general. And I am.
Nice to meet everyone,
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LovesToFly, call me crazy, but I drove myself to and from chemo, and even rode my bike the days I had infusions. The steroids had me so jacked up I needed the outlet to release my excess energy so I could sleep. But that's me. I chose Thursday mornings for my infusions because the third day after seemed to be the worst day for me. My employer was nice enough to let me work the Day of infusion and the day after from home.
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Nice to meet you Noranurse!
Lovestofly your chemo drugs are different than mine, so not sure if what you're having will have the same effect. With Adriamycin/Cytoxan combo that I had first, I could have driven, but with Taxol the Benadryl administered with it (as CyndiNic noted) made me really sleepy so I was glad I didn't have to. (My mother is also anxiety-provoking!)
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