Anyone else Starting 4 rounds TC chemo November 2015

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  • Guavaberry75
    Guavaberry75 Member Posts: 20
    edited December 2015

    so far no nausea!! Last time it hit withinh hours. Try the acupuncture ladies. It's six needles in one ear. They are very, very small. You just leave them in until they fall out. Do it day before infusion. I also wore the sea bands. I'm thinking about skipping the steroids the next few days and preempting with zofran. If I start to feel even a but nauseas l take the steroids. I'm just trying to eliminate the steroids.

    That was a rough start to your birthday! 😟 You'll celebrate big next year

  • mvspaulding
    mvspaulding Member Posts: 446
    edited December 2015

    It got better, my family took me to dinner and I am working from home today. Of course my face and chest are flushed today from the steroids they gave me yesterday again, guess I can look forward to that every time now. Here is a pic from last night with my birthday gift. Still have hair for now. But I can tell it is thinning a little and has lost shine/body. Also a pic before I got it chopped off. Bald pic coming soon, ha

    image

    image

  • mvspaulding
    mvspaulding Member Posts: 446
    edited December 2015

    Day 12 for me today and so far there are no signs of shedding my hair. It feels a little dead and thinner to me but I am not waking up to hair on the pillow or in the shower. Maybe i will keep it though Christmas. What is the latest you all had hair on this TC regimen?

  • HawaiiMom
    HawaiiMom Member Posts: 113
    edited December 2015

    hi...lost it all on day 18. 8 (

  • Smurfette26
    Smurfette26 Member Posts: 730
    edited December 2015

    By day 17 my hair was dropping everywhere so I buzzed it to about half an inch. Not only was it all over me, the floor, the furniture but it was getting in our food too. That was the worst. My head was hurting especially around the crown. By day 19 it was very patchy. All just falling out in the shower so I buzzed it to the shortest blade. My head is still spiky all over. Not bowling ball smooth.

  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2015

    Day 20 pulled and cut my hair.

    today i had my second infusion...

    I was gonna get it in regular drips...2 minutes later my head started to burn and was traveling to my shoulder

    I was really scared...they stopped it and continued with very slow drips which took over 2 hours...

    I have a terrible headache and a heavy chest...

    thank you for reading.

    Sheila

  • Smurfette26
    Smurfette26 Member Posts: 730
    edited December 2015

    Hope you're feeling better soon sheila888. Rest up.

  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2015
    Smurfette26

    Thank You.....for caring

    Sheila



  • mvspaulding
    mvspaulding Member Posts: 446
    edited December 2015

    so sorry to hear that Sheila. My first infusion I had burning up my arm and they had to slow it way down and hang a bag of fluids with it.

    Thanks for sharing your hair stories :

  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2015
    mvspaulding

    ..I still have some hair still attached and i'm covering them with a scarf otherwise they are all over the place including kitchen counter

    Have a good night

    Sheila


  • Guavaberry75
    Guavaberry75 Member Posts: 20
    edited December 2015

    I can't remember when my hair started shedding. Day 15 maybe. I buzzed it and then about two weeks after that buzzed it shorter. I still have some hanging on--it's not like my head is smooth.

    Sorry you had such a reaction sheila. I know how scary it is--I went into anaphylactic shock on two occasions. That's why I had to switch to AC.

  • JenP42
    JenP42 Member Posts: 11
    edited December 2015

    ~Hoping everyone is feeling well enough to enjoy the holidays! ~

  • Woodie
    Woodie Member Posts: 20
    edited January 2016

    Hi all, Have not posted for a while and do not see much activity on the board since the holidays. I have made it through my second cytoxan/taxotere infusion. Taking "use or lose" annual leave this week and plan to return to work on Monday. I don't think I could have worked at full potential this week. Mostly tired and a little tummy upset. My big news is that I declined the second Neulasta injection. The first time, I had a constellation of side effects. I called it "going down the rabbit hole" like Alice in Wonderland. Worst was total lethargy and wondering why I had even chosen chemotherapy. The feelings and aches, pains, muscle spasms, etc. lasted a good three days. I felt as though I had no real chemo side effects - just the Neulasta. My oncologist agreed to let me skip. She did not even put up a fight. So now I can only hope that my next infusion will not be delayed by low white count. But that is the tradeoff. Just throwing this out for anyone else who was hit hard by Neulasta.

    I hope everyone is going well. Some of you ladies should be nearing completion of your treatments and I wish a swift recovery.

    Best to everyone,

    Woodie

  • mvspaulding
    mvspaulding Member Posts: 446
    edited January 2016

    hi Woodie, a lot of us are posting in the December chemo group.

    I too was wondering what had happened to Sandy and why she hasn't posted lately. She might be about done, just hoping everything is going good for all.

  • Woodie
    Woodie Member Posts: 20
    edited January 2016

    Thanks! I will look there for news.

  • Guavaberry75
    Guavaberry75 Member Posts: 20
    edited January 2016

    I have my last infusion Thursday. Overall, AC hasn't been terrible. I've just been unbelievably tired--like can't get out of bed tired. Could be much worse so I won't complain. Just grateful Thursday is my last day.

  • mvspaulding
    mvspaulding Member Posts: 446
    edited January 2016

    Congrats Guavaberry, that is awesome, you are done!

  • Woodie
    Woodie Member Posts: 20
    edited January 2016

    That is excellent news! Hope the rest of your recovery is without challenges. Best wishes!

    Woodie

  • EcWilde1953
    EcWilde1953 Member Posts: 1
    edited January 2016

    Last of 4 rounds of chemo and neulasta last Wed. Feeling weak, tired, feverish all day today Sunday. I left a message on my dr vm earlier. I am assuming I will be seen somewhere tomorrow.  My 3rd round was on December 23, neulasta 24th, and then a week in hospital with diverticulitis,  so I started out at a deficit for #4! They will take care of me, I am sure. One thing has plagued me unmercilessy is eye twitching! I asked onco about it,  she said there was no connection to chemo, then I searched this site today and come to find out many people have it! Would like to know if there's something that can be done about it? I have followed this thread since my first chemo was Nov. 12. Eleanor

  • ksusan
    ksusan Member Posts: 4,505
    edited January 2016

    Congratulations as you begin winding the TC up!

  • HawaiiMom
    HawaiiMom Member Posts: 113
    edited January 2016

    ecwilde...my eyes have been twitching for the first couple days after each infusion with tc, and I'm on my fourth of six. Guess it's the least of their worries.

    wishing mild side effects for everyone this Martin Luther King holiday!

  • mvspaulding
    mvspaulding Member Posts: 446
    edited January 2016

    that's so weird. I have had eye twitching and this past week my cheek muscles were twitching. Glad to hear I'm not the only one.

  • Twirp26
    Twirp26 Member Posts: 178
    edited January 2016

    I have eye twitching as well for the first week after treatment!! Annoying!!

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