Diagnosed, Lumpectomy January 4
I was just diagnosed with an invasive DCI on Dec. 9. I am 63. It's still not real to me yet. No family history, no lump was felt. It was found in a routine mammogram (exactly to the day from the last annual mammo I had.) I will have a lumpectomy and sentinal node biopsy. I don't even know the receptor analysis yet.
My question to all of you who are or have experienced this shock, disbelief and then acceptance of what is about to happen: What do you wish you did before surgery to prepare yourself mentally and physically or just to nurture yourself? And did you share the news with all the people close to you or keep it private?
Thank you,
SofiaC
Comments
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Sofia, I'm sorry to hear of your diagnosis and at such a difficult time of the year. Be good to yourself. Get involved in the things you usually do during the holiday season. The shock will be there until you get a plan of treatment in place and I don't feel the disbelief disappears and acceptance ever truly arrives!!! I went through this a year ago--at new year's eve I was between the LX and radiation. I, too, had not felt a lump and no family history--also similar age to you. Read through some of the other "just diagnosed" threads on this forum but try to avoid Dr. Google. Once you know your cancer type spend a little time searching/reading some of the other threads here.
Personally, I didn't tell too many people--only about 10 know to this day, and especially don't tell people before you know the details so you can avoid questions you don't yet have the answer to.
All the best to you and let us know how you're doing.
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So sorry you've been given news that brings you here!
Yes, the acceptance does come eventually, though how much and how fast varies from person to person. But be prepared for a rollercoaster of emotions as you go through treatment. (Not saying it's inevitable. Just that random fountains of tears are an entirely normal reaction.) Don't be shy about asking for psychological help--it's a devastating diagnosis regardless of where in the spectrum you fall.
I told my immediate family, and my neighbor--queen of the nosy parkers, so she'd have guessed anyway--and the two clients I was working with at the time to explain why I might be late returning their manuscripts. But then I didn't go through chemo, so kept my hair.
What to do to prepare yourself? Make sure your surgeon spells out any activity restrictions (for me, it was lap swimming and weight lifting), and what the incision's likely to look like. Try to enjoy the holidays! Do something especially diverting--a trip? a massage? a few hours volunteering at a soup kitchen? depends. Make sure you have tasty appealing meals available for the first few days after surgery.
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Thank you. It's lovely of you to share your experience. How are you now? Did you work through the whole thing. I am a consultant and a professor and have a class to teach. I haven't said anything to my partners or the school yet because I am hoping I'll be able to get through it all and keep working. I don't know if I need Chemo yet.
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Thank you. These suggestions are great. I have only told my domestic partner, my daughter, my sister and one very good friend who is a registered nurse. I'm inclined to hold at that until I have more answers. The surgeon told me I would have a scar in both places - armpit and top of breast. I've never had a surgery. I keep wondering what my new body will look like. It's hard not to. Just trying to take good care of myself now. I like your suggestion of a massage.
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For me, this wasn't my first surgery--I'd had two major surgeries the year before--so wasn't completely blindsided by the physical recovery. (Spine fusion was far worse!) But I wasn't prepared for being startled to see my reflection in the mirror. Depends on what the surgeon needs to take.
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sofia, sounds like you are doing a great job working through the questions and thinking ahead about the "after." I don't see that you said how big the lump is, but that could make a difference after a LX. I had a 1cm lump taken out and a SNB--right side. The scarring is minimal and I have a slight (I do mean slight) depression where the lump was taken out, but I also have large breasts so proportionally not much removed. This depressed area seems to have filled in a little and has become less noticeable after a year. It would be quite different if I was an "A" cup and had a 3cm tumor. I did develop a seroma, a collection of lymph fluid, where the SNB was, which lasted about a month making the healing of that area take a little longer.
Do you know if you'll have radiation? I had twice-a-day/5 day multiple catheter radiation and have a little scar from that procedure too. At my age, I don't mind seeing a few scars in an area before I put on my bra!!
I recovered quickly from the surgery itself. I went home within a few hours, and within 48 hours was driving and sat in a 3 hour meeting. I didn't really have pain from the LX but more from the SNB location although I never felt the need for pain killers. I wore a breast binder for first few days and then off and on for weeks, and also during radiation. I felt better with tight fit, especially when sleeping. I have similar work background to you and I had no work restrictions on teaching. If I were an elementary school teacher, I would have worried about students running into me, but otherwise you'll do fine with adults. It's restrictions on lifting your arms, carrying heavy objects, and other full movements you'll want to discuss with your surgeon.
Keep asking questions. I hope your breast center has a nurse navigator available to you also. They were very helpful to me before and after surgery.
Be good to yourself, pamper yourself while you have the chance. You'll be back in routine before you know it!!!
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Sorry to hear you have breast cancer. These are early days, so don't feel like you have to digest it all at once. Even when you have the results staring you in the face, it's hard to comprehend that you're reading about YOU.
Like you, I was inclined not to tell a lot of people, at least not at first. I only told my mother after I had the results of my biopsy in hand and had seen the breast surgeon. After my mother, I told all my siblings and my sister-in-law. Only after it was determined that I would need chemo (this was 2 months later) did I tell friends at church and extended family. I figured they were going to know something was up when I lost my hair. And besides, I knew I'd need their support.
One thing I have held the line on is Facebook. I have no intention to post anything on FB. I have a lot of friends from high school and college on there, people I haven't seen in years but we keep up via FB. I don't particularly want to be the object of idle gossip and since I don't see these people, I figure there is no reason to tell them that I have breast cancer.
I just want to encourage you: this will get better once you have a plan in place. The lumpectomy is the first step. My doctor made one 4" incision in the fold of my breast under my arm--it's barely noticeable. My sister had two much smaller incisions and hers have disappeared entirely. The shape of my breast hasn't changed, nor has my sister's. Once they take a look at the tissue, they'll figure out which direction to go next. Ask for an Oncotype DX score--this will help you and your doctor to know how aggressive the cancer is and therefore, how aggressive you need to be to eradicate it. Getting a plan in place will probably give you a lot of relief--I know it made me feel so much more in control once I had a treatment plan.
So for now, stay off Dr. Google. Unless you are a medical person and can easily interpret analytical papers, it might just scare you more. There is a lot of misinformation on the web. There's a lot of GOOD information here on breastcancer.org, however.
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Ceanna and others,
Thank you so much. It is so good to hear from someone who has been through this. My lump is 1.3 cm. They will of course take out more than that in the surgery and the incision will be at the top of my breast. I don't know my prognosis or my treatment plan yet. Still waiting for the receptor analysis and the LX itself. I am certain I will have radiation but don't know anything about how that will work yet nor about the amount of time. And, chemo is still a question. I love what everyone is saying about "Dr. Google". The first time I looked at it and saw images - I abruptly shut my computer and pushed it out of my mind. I don't do Facebook at all, much to my family and friends' chagrin, so that won't be an issue for me.
Breastcancer.org is wonderful so far. I had done a little searching and this one seemed the most organized and reputable. Everyone has been so kind. I appreciate all the good wishes.
Thanks again.
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Thank you for your comments. I really appreciate knowing your experience. I'm so glad I reached out on breastcancer.org. It's so much better than googling to talk to real women who have been through this.
I'm hoping for the best for all of us.
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Hello Sofia, so sorry to hear of your diagnosis. I, too, was just diagnosed about 2 weeks ago and go the ER/PR results early this week. I am ER + PR + and HER2 negative. The lump was found in my left breast by self exam (because I started getting "bee sting" pains in it). I found it at the end of October. Sadly, I haven't had a mammo in nearly 6 years. NEVER in my wildest dreams did I think this would happen to me.
I'm 54, and understand how you feel ~ it does all seem so surreal. If you have a good support system (family, friends, etc.), then by all means I think it's good to talk and share. I only just broke down in tears and sobs last night after we had visited with my surgeon to go over my options. I am so extremely fortunate to have a caring and supportive husband and family.
Hugs to you, and don't hesitate to contact me if you'd like to share experiences or need a virtual hug. Your surgery is scheduled for the same day as my visit to the radiation oncologist, so I'll be sending you lots of strength and healing vibes that day!
~Snowy
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Thank you so much. I will be sending you healing vibes too on that day. I'm lucky to have the support of my daughter who will be with me when I come out of surgery and my wonderful husband. I'm trying to fill the days now with wonderful, life filling things to do like a visit to the Met today, The King and I tomorrow, dinner with our kids on Sunday and next week - reiki and a facial. Really trying to stay calm and relaxed so that I go into the surgery strong. I wish the same for you. Hugs.
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That's wonderful, sounds like a great plan! Reiki is beautiful, I have friends up the road who are Reiki Masters and they offered it to me any time I feel the need. Hugs!
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