So scared

Options

I had a recurrence in January/February of this year, only 14 months after BMX and 4 rounds of TC for my nice little early stage, node negative tumor from 2013. I've had 4 rounds of AC, 12 of Taxol, been fried to a crisp with radiation (which ended in October) and have been taking Letrozole. A little over a week ago I discovered a new lump. My cancer in 2013 was in the upper, outer quadrant, and the recurrence was in the same place. A second tumor was found a few weeks later a few inches away, also in the same quadrant.

A little over a week ago, I discovered a thickening along the scar line from my exchange surgery (I had skin sparing BMX, so exchange surgery had a new scar at bottom of reconstructed "breast"). Within a couple days it was a full fledged marble sized lump. BS's nurse does not see these things as a priority at all, so the appointment is 9 days later. That's coming up in 2 days. I've been having a lot of abdominal pain that I'd just figured was healing from rads, but now my mind is taking me to much darker places. I am usually not a worrier and am generally a really positive person, but knowing that if this is cancer, it means all of the treatments have failed and it's on the move, it's just been excruciating. I am hoping it is just scar tissue, but I have been having horrible nightmares telling me otherwise. I can't believe this is all happening so soon. I was hoping to at least have a few worry-free months of normalcy. Uuuugh. I hate this. I hate cancer. I want to at least see my kids graduate.

«1

Comments

  • ml143333
    ml143333 Member Posts: 658
    edited December 2015

    KBee - I am so sorry you are going through this and pray that you can find a few moments of peace while you are waiting.  I will also pray that this new lump is just scar tissue. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2015

    Oh KBeee, I'm very sorry you're having to deal with this again. You've been through too much already. I think they typically don't get too excited because so many of the lumps we find after surgery turn out to be scar tissue or fat necrosis. They don't take into account just how scared we become to start this whole process all over again. Our mind can go to some really dark places. I call it going to Crazy Town. We even started a thread about those scary feelings we have.You just got to keep believing that you WILL see your kids graduate and this isn't a recurrence. You've got many women here that will help see you through these next couple of days. Please feel free to send a PM or drop by our Crazy Town thread any time. You are not alone. Gentle hugs to you!!

  • KBeee
    KBeee Member Posts: 5,109
    edited December 2015

    Thanks for the thoughts. I appreciate them. Last time they were 99% sure it was scar tissue. The only reason they weren't 100% is because they never say 100%. I requested a biopsy because my gut told me otherwise and I am thankful I did. They were 99% wrong. It was cancer. Hence, even if they think it is just scar tissue this time, we'll definitely need to biopsy it...which of course means more waiting. I am hoping they can just poke it in the office and be done, but not sure they'll do that because of implants. We'll see. I just went for a 4 mile walk. That helped my psyche immensely.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited December 2015

    KBeee - You have been through more than anyone should have to go through. I'm sending out positive vibes to the universe that it really is scar tissue this time. So sorry this is happening. We're all hanging with you. Let us know. Gentle hug.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited December 2015

    You're not alone Kbeeee. Keep talking to us. We are listening!

  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited December 2015

    (shyly) Coming back around for you, who was so brave as to post pictures of her transit through rads for my fall group. It may be cancer again. It may be that the oncologists are right. But that makes no never mind until the test results come back. And then some. It's all crazy. And we're here for you in the crazy.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2015

    KBeee, Just checking on you. I know night time is typically the worst for me when I'm waiting to have something checked out. I hope you're able to get some sleep tonight. :)

  • KBeee
    KBeee Member Posts: 5,109
    edited December 2015

    In all of this, my initial gut instinct had been 3 for 3...... in 2013, I was sure a lump was cancer and it was. In 2014, I thought a new lump was not cancer, but feared it might hide cancer that could come up later. It wasn't and it did. In Jan 2015, I thought it was cancer and it was. My first gut instinct with this lump was scar tissue. So far, it looks like I am 4 for 4. BS said the lump felt like scar tissue. He offered 3 options: 1. Watchful waiting (he did not recommend), 2. ultrasound (not invasive, but would show us pretty clearly what, if anything, is in there), 3. surgical biopsy (probably over aggressive, but would definitively tell us). I chose ultrasound because surgery on such recently radiated skin may not heal well. They got me in right away in the afternoon. The ultrasound did show the lump/mass which was a little disconcerting. Somehow, I was hoping it would simply show nothing there, and I could go on my merry way. The radiologist was confident that the mass was scar tissue because though there is blood flow around it, there's none to its core. (I think I got white when she said that though because when they removed my lump in January, the surgeon said it's definitely scar tissue. It looks like it, feels like it, and had no vessels feeding it; it's just a lump sitting between the muscle and the skin.) The radiologist then said that based on the fact that my second tumor (in February) was missed both on ultrasound and MRI and the other one did not look like typical cancer to the surgeon, it would be fine to do an ultrasound guided needle biopsy to just be 100% sure that something is not presenting oddly again. She's pretty certain it isn't and I am pretty certain that my initial gut reaction is 4 for 4, but I am very glad that I'll know 100% next week and will hopefully be able to begin 2016 with all of this behind me. Ultrasound biopsy is Tuesday. I am no longer stressed or worried (though I might be Tuesday night). It felt good to sleep last night.

  • fralaliso
    fralaliso Member Posts: 63
    edited December 2015

    So happy to hear this excellent news KBeee!

  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited December 2015

    You'll come back to let us know the results of the biopsy, one way or the other, right?

  • KBeee
    KBeee Member Posts: 5,109
    edited December 2015

    I will :) With my luck it'll come back inconclusive just to mess with my mind more, but sure hoping for the big all clear!

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited December 2015

    Good God KBeee. I don't know how you do it. Thanks for letting us know. Crossing my fingers and toes.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2015

    Good news KBeee. Sending best wishes for a 100% scar tissue result!! Hang in there.

  • Molly50
    Molly50 Member Posts: 3,773
    edited December 2015

    Karen, I will be praying for your biopsy results to be negative. You have been through so much!

  • KBeee
    KBeee Member Posts: 5,109
    edited December 2015

    Thanks. 2 more days. I'm getting more nervous the closer it gets! All these docs are so "sure" it's scar tissue, but they were "sure" last time too, so it's soooo hard to be confident. I'm trying though.

  • Italychick
    Italychick Member Posts: 2,343
    edited December 2015

    Karen, we are all anxiously waiting with you. Fingers and toes crossed it turns out to be fat necrosis or scar tissue. You definitely need a break

  • octogirl
    octogirl Member Posts: 2,804
    edited December 2015

    KBeee, sending lots of good thoughts your way and keeping fingers and toes crossed also!

    Octogirl

  • kyrani99
    kyrani99 Member Posts: 4
    edited December 2015

    Hope you get the all clear.
    I have had spontaneous remission and can explain it to you. Mine was from ovarian stage 4 cancer, which the doctors said inoperable because some of the metastasis was in both lungs. I have had several battle but needed no surgery and now can be confidently free of cancer.

  • wrenn
    wrenn Member Posts: 2,707
    edited December 2015

    Karen, you deserve a break from this crap. You were one of the most supportive and kind members back in august 2013 when we were starting out. It isn't fair that you still can't put this to rest. Enough already. This cancer game is torture. No wonder so many end up with PTSD. I trust your intuition that it is fine but can't wait for the official answer. xoxoxox

  • KBeee
    KBeee Member Posts: 5,109
    edited December 2015

    Thanks ladies!

    Wrenn, you're right; I can't seem to catch a break. I sure hope all comes back benign this time or it'll be a whole different story as far as my future. I'm pretty stressed. How are you doing???

  • wrenn
    wrenn Member Posts: 2,707
    edited December 2015

    i can't imagine having such a sustained drawn out time of uncertainty. I am doing great physically and yet i am still anxious about unknowns. I am pretty sure i could not handle what you are having to endure.

    I am sending all the thoughts of peace to you even though i trust it is scar tissue. You need a break from this shit NOW. Take care x

  • KBeee
    KBeee Member Posts: 5,109
    edited December 2015

    Thanks Wrenn. I am sooo not normally an anxious person by nature, and I usually just brush things off and push forward with whatever I'm dealt, but this time that's very hard. It's been so many weeks of uncertainty, and knowing that if it's back again, it's likely elsewhere is really hard to deal with, especially having my 3 kids. I just want to live long enough to see them all graduate. Anything beyond that will be icing on the cake at this point.

  • wrenn
    wrenn Member Posts: 2,707
    edited December 2015

    Keeping you in my thoughts today and hoping for a peaceful worry free holiday season. I know the worry never goes away and benign results will only give relief until the next symptom but you need a break and hopefully good results bring you some peace. xoxoxoxo

  • KBeee
    KBeee Member Posts: 5,109
    edited December 2015

    The biopsy took much longer than I expected; just because they did the whole thing (core biopsy) where they make a tiny incision, put the catheter in, etc. I thought it would be poke it and go home. I was there 90 minutes. She said she got 2 good chunks, so she should have plenty. She did not make any predictions (and I did not ask for any), and just said she'd pray for good results. That was a little disconcerting, but I am guessing she says that to everyone. I should have the results tomorrow, unless they have to do additional staining; then it would be Thursday. Now the real waiting begins.

  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited December 2015

    Chewing my nails along with you.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited December 2015
    Glad they are being so thorough. I know my doc was quite gun shy about saying anything after so many disappointments. Hopefully they'll put a rush on things.
  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited December 2015

    Hopefully, they can get you some answers by tomorrow afternoon. I can just imagine how anxious I would feel, in your shoes. Even if it's bad news, I think it's better to know than not know. Best of luck to you, crossing all my fingers and toes.

  • SueH58
    SueH58 Member Posts: 632
    edited December 2015

    KBeeee - Just wanted you to know you are in my mind, thoughts and prayers today as you await the results. I hope this long wait will be rewarded by good news of scar tissue. Get the champagne ready!

  • slv58
    slv58 Member Posts: 1,216
    edited December 2015

    Sending positive thoughts and prayers Karen, {{{hugs}}}

  • KBeee
    KBeee Member Posts: 5,109
    edited December 2015

    Finally got a call late this morning. Radiation fibrosis and scarring. I am not excited that fibrosis has started so soon, but it sure beats the alternative!

    Thanks for the thoughts and prayers!

Categories