Anyone else Starting 4 rounds TC chemo November 2015

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  • Nebraska917
    Nebraska917 Member Posts: 64
    edited December 2015

    December 14th as of right now! It'll be here soon enough.

  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2015

    Day 4 after treatment...Nothing except extreme tiredness....

    Sheila

  • Freakedout4sure
    Freakedout4sure Member Posts: 70
    edited December 2015

    awesome Sheila, You are blessed! Hope you have minimal to zero effects that continue! God bless!!!

  • mvspaulding
    mvspaulding Member Posts: 446
    edited December 2015

    thanks for posting the list of things to get Sandy, I feel so unprepared for this. I start a week from today and supposed to return back to work on Tuesday. I pray that I have minimal side effects and I will still be able to work through treatments. This is all so scary.

  • Freakedout4sure
    Freakedout4sure Member Posts: 70
    edited December 2015

    it is scarey for sure but you will do it. My anxiety was so high before I started. I was worried about the hair a lot but I learned it's not bad!! I have hats and a wig and it's not long term. I think I fell apart over the hair because I felt like cancer just takes everything. I was mad. But I'm coming over all that. Looks like myspaulding will go to work on day 6 - you should be able to - you will be tired so just crash when u get home. Round 1 I thought not too bad except for horrific acid reflux and I mean bad - but I got in meds snd it took time and it passed - round 2 I'm still feeling the reflux these first 4 days and the migraine it lasts two days, and exhaustion; I can't work the days 3-6 at all - too many little effects others here are ok! So you just don't know. The only thing I can say for me is that things change - it is for me the first week that is bad. Get to day 8 and things are better!!! But that's just me. I pray for our group here for all to have minimal or zero side effects! Guavaberry i am praying for you! I just bought sea bands for wrists helps prevent nausea motion sickness and I'm wearing them. Seem To b helping, for those with little effects I am so happy for all of you!

    Hugs! Sandy 50% done - 2 to go!


  • Smurfette26
    Smurfette26 Member Posts: 730
    edited December 2015

    Hi all. I'm catching up. Not been on much.

    Guavaberry75 I'm so sorry you are having such awful complications. Please update us when you can.

    Think I'm feeling a little better after round 2 than I was after number 1. I did have a Neulasta shot this time. Maybe it has made a difference. Was over a week after transfusion that I landed in hospital last time so I shouldn't get too ahead of myself. Two days out from my Neulasta shot and I haven't experienced any bone pain. Fingers crossed. I have never taken Claritin. On the day before my chemo I take steroids (Dexamethasone 4mg x 2), so 8mg with breakfast. I also take another 8mg with lunch. Chemo day 8mg with breakfast, then the infusion with my chemo. Day 3; 8mg with breakfast, 8mg with lunch. My Dr gave me a script for some more and said it doesn't hurt to "come down more slowly" off them so I took just one this morning and one at lunch. Will cut back to just 1 tomorrow then stop them. Nebraska917 don't take them late in the day. They can stop you sleeping.

    My taste is off but no where near as bad as last time. Well yet. LOL. Temp has been good. Felt quite well today and did some shopping. Not feeling especially tired though exhaustion wasn't really an issue for me last round either.

    Welcome dawntastic. Sorry you have found yourself here. My taste did improve between treatments 1 and 2 but I wouldn't say it was back to "normal". First round for me everything just tasted so, so salty. Even water. This time it's more metallic. I'm using plastic cutlery, seems to help. Think everyone's taste is so different. What tastes ok to some maybe awful to others. Ginger Beer, Ginger Ale and Lemonade were all awful for me. Found juices were easier to get down. Green Tea was ok too. Drinking through a straw helps.

    Try not to let yourself get hungry. "Grazing" seems to help keep nausea at bay. Almonds were a good snack for me. It's 3 days since treatment and I'm starting my oral anti-nausea meds tonight. Better to stave it off before it takes hold.

    Hope you are doing ok Gabby56b?

    Sandy hope you are feeling a little better soon. Have been thinking of you.

    Hugs all, Donna xx

  • mvspaulding
    mvspaulding Member Posts: 446
    edited December 2015

    has anyone had any weight gain or other side effects from the steroids? I'm not sure if I will have any before my treatment. They haven't said anything. Unless they call next week with prescription to pick up.

    Missy

  • Woodie
    Woodie Member Posts: 20
    edited December 2015

    Hello everyone. I just found this group searching for TC + neulasta + steroids. I begin my first cycle on Fri Dec 11. I spent the morning reading online and became very discouraged by the lists of side effects. I have been through chemo before - 18 years ago - and did not have a bad time of it at all. This group seems much more supportive and positive than others I have encountered. Just wanted to say I will read all the post to glean what I can from all of your experiences. Best wishes to everyone at what ever place you are in this journey!


  • Freakedout4sure
    Freakedout4sure Member Posts: 70
    edited December 2015

    welcome Woodie! Sorry you are in the chemo party chair! Hopefully your previous experience with chemo will be the same this go around. Minimal effects we pray! Don't freak out at all the effects, we are all different and some get different ones but all have been able bear them and you will too. Be prepared with over the counter meds and and scripts from your doctor. Are you a breast cancer recurrence? 18 years us a long time!

    Myspaulding, weight in first five weeks up 4 pounds but not noticeable - I'm drinking lots of water and think steroids contribute - this month no gain yet - but that's just me.

    Hang in there! Hugs!!!!

    Sandy,

  • Woodie
    Woodie Member Posts: 20
    edited December 2015

    Thanks for the well wishes. Yes, my initial diagnosis was 18 years ago last month. I had a lumpectomy + chemo + radiation. I feel lucky to have had 18 great years. This time, BMX, although cancer in only left breast. I do not plan to do recon so opted to have the bilateral. Going to live the flat and fabulous life! I like the chemo party chair phrase. My second cycle will be on New Year's Day. At least I don't have to worry about a party dress this year!

  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2015

    Woodie..we made the same choice. I also feel lucky for 10 years.

    good luck to you and to all of my sisters here


  • Freakedout4sure
    Freakedout4sure Member Posts: 70
    edited December 2015

    woodie, I'm BMX w left only too and no reconstruction and I'm really really good with flat and fab - my husband very supportive and there are lots of options !!! 😍.

    Day 5 cycle 2 I'm better each day! Laundry, walked for 30 minutes, cooked, cleaned, Christmas cards, and I'm still going!

    Ladies, we can do this!!!!

    Hugs, sandy,

  • Guavaberry75
    Guavaberry75 Member Posts: 20
    edited December 2015

    I met with the dr. Yesterday and he told me I needed to switch to AC. I'm likely allergic to the dilutant that is used with the Taxotere and Taxol. So my options are limited. I had a heart test, a MUGG test done yesterday to make sure my heart is strong enough to endure the Adrimyacin. I had the infusion without complications this morning. I'm relieved that's over. I've gone now 4 times for chemo and successful only twice. Now, like the first time, I wait and see what side effects will hit. Nuelestrashot tommorrow.

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2015

    Welcome, woodie!! We're glad to have you here, though we hate you have to be here.

    You've found a pretty fabulous group -- we welcome you warmly!

    Looking forward to hearing more from you as you navigate your treatment journey!

    --The Mods

  • Freakedout4sure
    Freakedout4sure Member Posts: 70
    edited December 2015

    way to go Guavaberry!! Thank God they figured that out! Your cocktail is a good one and I'm praying on you! Now you stay the course. We are all going to get through this! Breast cancer picked the wrong bunch to mess with,

    Hugs!

    Sandy,

  • Woodie
    Woodie Member Posts: 20
    edited December 2015

    Shelia, Happy to make your acquaintance. I know many have made the prophylactic decision but it nice to speak (almost) directly to someone else who made the choice. so close in time. Thank you for your supportive words!

  • Smurfette26
    Smurfette26 Member Posts: 730
    edited December 2015

    Nice to meet you Woodie. Welcome. Sorry you have found yourself here.

    Sandy glad you are feeling ok. I'm a little more off than yesterday. Hoping I feel a little better later.

    Guavaberry75 so glad you have managed a successful infusion.

  • JenP42
    JenP42 Member Posts: 11
    edited December 2015

    I want to thank all of you ladies who post updates. I feel great comfort in reading everyone's progress. Sandy, looks like we made it through round 2. I mean I think it should only get better over the next 2 weeks. I wouldn't say round 2 was worse for me but my side effects were alot different. Strange! Oh well, I'm feeling better than the last few days and hoping I'm over the bad stuff.

    Keeping all of you in my daily thoughts and prayers!

  • Freakedout4sure
    Freakedout4sure Member Posts: 70
    edited December 2015

    JenP42 I echo everything you said! I actually dragged my metallic tasting mouth with me Christmas shopping - candy canes helped! Lol! Sick of feeling yucky - it actually helped to be out and about! I know it will just keep getting better ...good nite sleep well all!

    Hugs, sandy

  • mvspaulding
    mvspaulding Member Posts: 446
    edited December 2015

    welcome Woodie, but wish you didn't have to be here. You and I are almost same schedule. My first treatment is the 10th so my second will be New Years Eve. What a way to bring in the New Year huh? Sure hope 2016 is better for all of us!

    Guavaberry, glad they found a combo for you that is working. Hope you feel the best you can with minimal side effects.

    Missy

  • Freakedout4sure
    Freakedout4sure Member Posts: 70
    edited December 2015

    i did not have the metallic mouth taste in round 1 - I have it now... Wish I could cut my tongue out.... Not! This too shall pass! Saw this picture on face book reminded me no matter what the storm, rainbows always follow! Huggs!!

    Sandy,

    image

  • mvspaulding
    mvspaulding Member Posts: 446
    edited December 2015

    I have been sick with what I thought was just a cold for a week. When I woke up this morning and still wasn't feeling better got nervous so I went to Dr. I have a sinus infection and on antibiotics so I can get rid of it before my treatment on Thursday. I just can't seem to catch a break.

  • Freakedout4sure
    Freakedout4sure Member Posts: 70
    edited December 2015

    myspaulding, The same thing happened to me before I started! I came down with a sinus infection and a bad sore throat I started a Z pack a week before I started my chemo . Then 10 days post infusion 1 my white count dipped and I needed the booster shot but not before getting another sore throat and needing levoquin. You'll be okay. It feels like it won't be but you will be, hang in there you will do this!!

    Sandy hugs

  • Woodie
    Woodie Member Posts: 20
    edited December 2015

    That is an amazing photo. Thanks for sharing. Hope the metal mouth does not stick around too long! Hope your week is a calm and peaceful one.

    Woodie


  • Woodie
    Woodie Member Posts: 20
    edited December 2015

    So sorry you are having a delay. From my previous experience, I know how frustrating that can me. I used to beg my chemo nurse to let me go ahead, even if my blood counts were low. Oh course, she never did. Hope this week brings good things your way. Will be thinking of you and everyone in the group!


    Woodie

  • Guavaberry75
    Guavaberry75 Member Posts: 20
    edited December 2015

    oh ladies, the nausea!! I haven't been out of bed much since Friday after my infusion. I can barely eat and the every half an hour hot flashes make sleeping nearly impossible. I know this chemo is my healing agent and I'll get through it, but wow does it suck. Any food ideas for me? I got the sea band for my wrists and that has seemed to help the nausea a bit but my stomach turns at the idea of eating. But I know I need to get something in me.

    This AC chemo is so different than the TC for me.

  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2015

    guavaberry..sorry about it..i know how AC chemo makes you sick.

    I got that one with my first diagnosis and got very sick..

    My daughters couldn't even cook in the house....the smell of the food made me sick

    Are you having mouth sores ? if you are they have something for it you rinse your mouth it helps with the sores.

    Once nausea gets better make milk shakes with fruits and whatever you like....I used yogurt not milk

    It will go away..i'm thinking of you and sending hugs

    Try to eat some plain pasta products like pastina or even rice.....

    Sheila


  • mvspaulding
    mvspaulding Member Posts: 446
    edited December 2015

    Guavaberry,

    I am so sorry you are having such a hard time. My MO did say that the TC regimen was being used more because the AC was so hard on people with more side effects. I hope you find a way to deal with them.

    I'm a little nervous about my week. I go back to work tomorrow after being off for 6 weeks and start my treatments on Thursday. I am in antibiotics for the sinus infection which is getting better but not gone. I did get one bit of good news today finally, my PET scan from last week is clear!

    Hugs to all,

    Missy

  • Woodie
    Woodie Member Posts: 20
    edited December 2015

    Congratulations on the pet scan results! What a relief that must be. Best of luck with your return to work. I know that seeing my colleagues always gives me a lift. Good luck with the start of your treatment. I follow in your footsteps this Friday. Anxious to get started. At least that is how I feel today!

  • Freakedout4sure
    Freakedout4sure Member Posts: 70
    edited December 2015

    myspaulding, I'm going to a new job today in my wig! This outta be interesting! 😃 wotking w special needs classrooms,

    I was on antibx before I started my chemo too snd levoquin after I started chemo - it was all fine - try not to worry about that you will do great!

    Praise a clear PET SCSN!!! so happy for you!!

    Woodie, I wish you well Friday! The steroids will help the first two days should be quite well - I get hit with symptoms days 3-7 - hair sheds day 12-14 - that is try for all.

    Prayers for minimal to No SE!

    Hugs,

    Sandy

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