Starting Chemo March 2015

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Comments

  • slothabouttown
    slothabouttown Member Posts: 449
    edited December 2015

    those Genie camisoles have been my favorite compression tank so far and I'm accumulating a drawer full of other things I've tried. I agree with Theresa about the under armour fabric being too "slick" and not breathing. Those bike tops look good.

    My LE therapist reminded me that the main purpose of a compression garment is to provide constant massage to the lymph so it's not necessarily how tight and "sqeezy" it is, but more about how it touches and then moves over the skin in as many places as possible as you go about your day. She also said if there is a pattern like dots or lines woven into the fabric that is helpful at providing that massage. I think that's why the more nylon and less silky type of shirts seem to work better. The genie material is like a thinner version of the material my sleeve is made of. I've always been one to prefer thick organic cotton and clothes that don't "hug" my less than shapely form, so all this nylon and spandex has taken quite a bit of getting used to!

    I always buy the shirts in a size smaller than I regularly wear. The boobs parts of the genie camisole flatten out just fine if you aren't wearing boobs. I don't have a waist so my only complaint is that the bottom rides up. The armpits are for sure the most comfortable. In my other compression shirts I started getting short sleeves instead of sleeveless because they are more comfortable and effective with the armpit swelling.


  • Italychick
    Italychick Member Posts: 2,343
    edited December 2015

    One more - sorry, I get obsessive sometimes. They are starting to make this one in a woman's style, but I don't think it is available for sale yet. It does a great job of showing what a true compression top should do. You can see all the areas where they have thought out how to configure the compression material in the best way. It is called the Zoot Recovery 2.0 CRx LS Top. Maybe searching for it could lead you to other possibilities. And tops truly designed for exercise, not the Under Armour stuff that I think is designed for looks, will not ride up. My Descente shirt never, ever, ever rides up on my belly because of the way it is designed. Can you imagine riding or running with something that ends up as a belly top?


    image

  • eheinrich
    eheinrich Member Posts: 792
    edited December 2015

    I'm collecting addresses for holiday cards. PM me yours plus your e-mail if you want to play.

    Happy weekend everyone!

  • rleepac
    rleepac Member Posts: 755
    edited December 2015

    Fortunately, I haven't had any lymphedema problems (yet) but I'm bookmarking and taking notes just in case!

    I'm feeling frustrated today about my hair. I know it's growing just because it has to be but I don't SEE any more growth so it's hard to feel good about it. Blech..

    It's 11:20 Sat morning and I am perfectly happy sitting in my chair and doing nothing. But I am going to force myself out of the house and try to get a few things done.

    Hope you all have a great Saturday!

    Bekah

  • slothabouttown
    slothabouttown Member Posts: 449
    edited December 2015

    This is my favorite compression shirt. It's 82 % nylon. You can see it has the different patterns woven in, similar to the ones Theresa posted. I think it works the best at moving the lymph plus there is the added experience of feeling like an obese power ranger when I wear it.

    If anyone recognizes the brand or can make out the logo that would be great, I got this at a thrift store and I can't read the label which is a real drag because I'd buy another in a heartbeat.

    image

  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015

    Pearl Izumi is the brand.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited December 2015

    I was so proud to see Jack recognized as part of this year's library programs. He is on the bottom left with a little girl reading to him

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  • shaz101
    shaz101 Member Posts: 718
    edited December 2015

    avmom. Wow it's freezing where you are. I don't think I could take the cold. The heat in south Australia is fairly dry. In Northern australia it gets humid.

    Thank Theresa. I had a quick look yesterday. But in all honesty I'm embarrassed about my body now. I don't want shop assistants looking at me to work out my size. I can't even bear looking in the mirror anymore. I hate my hair/face and body. My daughter took a photo of us and put it on Facebook yesterday. Apart from outing me (I haven't told people I don't see about the BC) I feel sick that people are liking it and making comments.I just want to ask her to drag it down.

    Sloth, you made me laugh a lot at your comment about the power ranger. I can just picture me stuffed into one right now!

  • shaz101
    shaz101 Member Posts: 718
    edited December 2015

    katy, you must be one proud mumma

  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015
  • Italychick
    Italychick Member Posts: 2,343
    edited December 2015

    Sloth, that looks like a great shirt, and Ksusan is right about the logo being Pearl Izumi. It is a bicycling shirt. And I bet it is super comfortable.

    Go Power Ranger!

  • Italychick
    Italychick Member Posts: 2,343
    edited December 2015

    Oh, and the higher nylon content is great because that means it won't stink like polyester can. And nylon is a better fiber health wise

  • rleepac
    rleepac Member Posts: 755
    edited December 2015

    Sharon - I know what you mean about not liking what you see in the mirror. I'm ok with my body, but I feel like I've aged 10 years in my face and I hate my hair short. But people are constantly telling me I look great. It just makes me cringe every time.

    Please know that the last few pics I've seen of you are truly beautiful. I know it's not the former 'you' but you have an inner beauty that shines through and I think you are absolutely gorgeous. I also know that YOU don't see yourself that way and that's ok. I just want you to know that people aren't lying to make you feel better...you really are beautiful even if it's not your former beauty that you're used to. 😘

    Bekah

  • Trvler
    Trvler Member Posts: 3,159
    edited December 2015

    It's funny because I have a lot of the same feelings that Sharon has. I don't like looking in the mirror and before I had my surgery I was thinking, I just won't look in the mirror afterwards but you kind of have to when you are creaming up after rads and such. You are forced to. I often wondered about women who had to have mastectomies…and how they would deal with it. I didn't know about DIEP then but mostly I hate that big huge scar across my abdomen. For some reason, my foobs don't bother me much. I feel pretty sure that I will feel better when my hair grows out. You try to tell yourself it's just hair but it really gets to you a lot sometimes.

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited December 2015

    Well said, Bekah.

  • Italychick
    Italychick Member Posts: 2,343
    edited December 2015

    Sorry people are feeling bad about body image. It totally sucks, I have no words of wisdom, just sympathy. And a picture. Ignore the bimbos in the background, the words are what matter. Xoxo


    image

  • shaz101
    shaz101 Member Posts: 718
    edited December 2015

    thanks Bekah. That is so kind. But I only put up photos that are more flattering. Lol. And I agree. I've aged terribly over this past year. I keep hoping that it will get better. But it won't. I just need to get comfortable with the new me. I HATE the compliments. I take them as pity remarks. I keep telling myself that it's my health that matters, but even that is doubtful atm. I can't wait for tomorrow to come. I need to find out what this indent and lump is.

    I know that most of us feel the same. So it helps me to know that I'm not alone thanks Allison . I'm sure once our hair grows or gets styled it will help soften my features.

    Theresa, a big thankyou. I keep telling myself that there are more important things but sometimes I just can't take another bitemail of this shit sandwich.




  • shaz101
    shaz101 Member Posts: 718
    edited December 2015

    omg...I'm laughing my head off. I've come to a big shopping mall to get out of the heat. I've never been here before and I've forgotten where my car is parked!!!

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited December 2015

    Bekah- I know so many of us struggle with this, and you struggled with it yourself during chemo. And I have never heard it said so nicely. Your words meant a lot to me too.

    Sharon- I know convincing words cannot change a heartfelt opinion, but I've seen you on Skype. I know getting past this upcoming week, whatever it entails, will be better than the limbo. You are very beautiful and special to me. Try to think that "beauty is in the eye of the beholder" did not become an overused cliche because it was not true. It's because it is.

    Theresa- that was an amazing and powerful image and so helpful for me to keep those three things in mind. I have an extremely difficult time with my body right now. But I know I can improve how I see it. Thank you.

    And now for a funny (sort of) story. I really didn't want to go, feeling the way I do, but I DRAGGED myself to the Furry Friends Christmas party. It was a 45 minute drive each way, alone, and dogs weren't invited. I went because several people called and asked me please to come. So all right. As you all know, I've been way past commando for months, but my hair didn't really get the memo. It is thick and just curling in on itself, holding steady at 1/4".

    A lady sitting to my right asked me: has your hair always been so curly? The lady to her right, a friend, but not the most diplomatic one, elbowed her and mouthed "she's got cancer".... Not she had cancer, had cancer tx, whatever. I almost laughed. I got my phone out and showed her a picture before chemo. She looks at it and then at me and said "you look younger" and she was still looking at the before pic. She then repeated, you look so much younger NOW. Then she asked if I lost all my hair. Out came the phone again. After that, no more stupid questions from that table.

    But later, milling around in a group, someone else said they just couldn't get over my hair, blah blah, it's so curly, blah blah, and since it WAS a dog party I said I'd sent away finally for my genetic testing and it turns out I'm 1/4 poodle! We all laughed. I wanted to say STFU. But I didn't. I knew it would make a good story. Whatever. It's my spine and my brain and my heart. The end

  • neverthought
    neverthought Member Posts: 90
    edited December 2015

    I was just going along today blissfully in denial, assuming I am cancer free unless proven otherwise. Then a doctor friend of mine asked me if I was still in remission. That just blew me away. No one has used that word with me until now, in fact I don't think anyone has used the "c" word with me either. That one little word remission just rocked my world, even though I know there are more than 20% chance of c returning.

    My scar is not so bad as far as scars go and it has been a long time since I felt beautiful, long before this year. Just that stupid prosthesis that looks like a fake boob is an ugly reminder. Somehow the cheap foam ones don't bother me except when I first got them and realized this is one more thing I have to carry around with me every day for the rest of my life. I got the TLC catalog today in the mail too. It kind of reminds me of when my son was stillborn and I got adds for a diaper service in the mail weeks later.

    Tomorrow I'll go back to being in denial again I guess.

  • shaz101
    shaz101 Member Posts: 718
    edited December 2015

    people are stupid!!!

    Katy so sorry you has to put up with that. It's so tiring when people start. Maybe we need t-shirtS that have STFU on them and we could flash them when required.

    And thankyou. You are the most beautiful person . Your kindness knows no bounds.

    Now where the fuck is my car!!!!

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited December 2015

    Neverthought- a thoughtless word can cause a lot of damage indeed. I'm sorry you were unsettled. I honestly (and I know we've talked about this before) don't know WTH to call myself. But here is a partial list of words I hate. I'm inviting everyone to add to my little list of horrors:

    Cancer

    Breast cancer

    Cure

    Remission

    NED (because they don't fucking know and there's no evidence because they're not looking for any)

    Journey

    New normal

    That's just a start. I don't want to take the fun away from anyone else

  • shaz101
    shaz101 Member Posts: 718
    edited December 2015

    neverthought. I hate that word. No one has said that to me. Thank goodness. I'd be shocked.


  • shaz101
    shaz101 Member Posts: 718
    edited December 2015
  • neverthought
    neverthought Member Posts: 90
    edited December 2015

    I sure hope Sharon has found her car by now!

    Thank you Katy. I knew if I came here someone would understand why that bothered me so much.

    Thinking a STFU would make a great t-shirt or maybe a tattoo, though I really loved that flower tattoo that I posted the link too a couple of weeks ago. She does 3D nipple tattoos too that are just amazing.

  • neverthought
    neverthought Member Posts: 90
    edited December 2015
  • Italychick
    Italychick Member Posts: 2,343
    edited December 2015

    you look strong (how about I bitch slap you and show you how strong I am)

    You've done amazingly well (gee, just because I didn't tell you how bad my guts and feet and hands burned doesn't mean they didn't)

    You totally rock the short hair look (sorry Eileen, I think I said that to you, but you really do)

    It will be okay (it will never be okay)

    You will be fine (and you know how?)

    Every cancer story I've been told since this started (horror stories are not what I need to hear, thanks for that)

    My hair looks terrible (stfu, bitch. At least you have it to whine about)

    I wish I had the courage to cut my hair and start over, it's so dead looking. (Give me the buzz clippers, I will put you out of your misery)

    I had scary blood work that turned out to be nothing (uh, trade you places? I actually said that to this person).

    I could go on and on. I guess those aren't single words, but each one was an idiotic statement.

    Sharon, did you find your car? Sorry you are wandering around the parking lot, been there, done that. First job interview I had in San Diego, I parked in a building parking structure, taking no note of where I parked. I had to walk every parking level to find my car, feeling like a dumbass the whole time.

  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015

    People can be stupid.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited December 2015

    Inspiration- you are an. Bullshit. I just showed up.

    Good-you look. Again, bullshit. I know how I look and I know this is code for "I am looking past you because your disease terrifies me"

    Prognosis-what's yours? Ummm. What's the color of your underpants?

  • shaz101
    shaz101 Member Posts: 718
    edited December 2015

    no car yet. So I decided to buy clothes instead. So far I have

    2 dresses and 2 pair of pants 😊 now I need a couple of tops. .. hmm and maybe even shoes.

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