Having a scan? Waiting on results? The waiting room is open!

So I go for a MRI because the ct scan saw something in my liver and the dr said I should have the MRI so results came back today and it basically said that there are 2 1cm abnormalties in my liver so my Dr is waiting for the radiologist who normally sees my scans come back from vacation next week so now cancer or what never had it in my liver so a bit freaked out and this frigging waiting game sucks now I wait again to see what this radiologist thinks right now on herceptian/perjecta don't know if he will put me back on taxol or not had 19 rounds of that last 2 months just h/p last scan in may had nothing in my liver any input to help me out

Thanks

Patti

Ronnie, they did a second blood draw to reaffirm so no mistake. But a few ladies have said that has happened to them on this regimen so I remain hopeful. I felt somewhat better today, not such debilatating fatigue, but still just "weird" in the chest. Hard to describe, not really shortness of breath, just a fast heart rate and weirdness....I should have seen my TM numbers posted already but apparently my center forgot or something. I had my scan yesterday but Onc is off until Monday!! Don't they realize what anxiety we go through waiting? Does herceptin affect your heart function? Not JUST an echo, it's a heart function test, so just as scary as the rest....Hope it went well Ronnie.

Artist...I'm glad you've seen that others have seen the number fluctuation...another reason bc.org is so vital!  I experienced the same weirdness you're talking about...a couple times. I went to urgent care & once to ER.  I just didn't feel right...fast heartbeat, hard to take a deep breath. I appreciated that each time they respected that I had a reasonable concern, because of this disease & tx, and did monitoring, ekg, a lung x-ray, blood tests (the er dr was freaked cause my white count was over 30,000...asked if I'd had neulasta-yep!).  All checked out fine & they & my onc felt that it was probably dehydration.  Now...when I get that feeling, knowing I'm stable & on only herceptin, I try to get more water & know that I'm overdoing. I went on Prozac in July, due to a panic attack after onc took perjeta off my plate (a welcome but scary change...he took chemo off last Oct!), so I know that anxiety aspect too. We know our bodies so well & to not feel quite right (even on tx we know!) is concerning.  A simple, hopeful possibility on more water :-).   Yep...herceptin can affect the heart but the tech told me I had nothing to be concerned about...thank goodness. 

Patti...the wait stinks...but you'll have a more clear explanation.  Praying!!!

Hi all!

I haven't posted much since my diagnosis in August. I just finished round 4 of my A/C cocktail and I have my 1st PET scan in the morning. TBH, I'm freaking out!!! I'm so scared the chemo didn't do anything and I'm only going to have a few weeks left. Ugh I hate this.

I have an appointment with my oncologist on Wednesday for the results. It's going to feel like an eternity.

Well here it is and I have been up since 3 having anxiety because my mri scan showed 2 1cm abnormalties n my liver but now my Dr wants to wait for the radiologist who normally reads my scans to look at them and he is,on vacation to sometime this week never had liver Mets and I am freaking out took off from work today have to be up at 5;30 for work today and it is now 4:30 going to be a long day .I do take xanax but they seem to be not working so much these days .1 mg 2 to 3 a day so they are strong My anxiety has been real bad over scans and cancer for the last year I have lost 40 pounds don't know how much more I can take cannot eat when anxious so the weight keeps dropping off asked my Dr for a psychiatrist to talk to but no openings to Dec going to try accupunture otherwise I sm killing myself with my anxiety just needed to vent sometimes I feel all alone because nobody understands what we go through.

Patti

Ronnie Kay

I would love to go on disability but I own a hair salon and it is hard to take time off would love to focus on me,for once but anyway got an appt tonight for accupunture so hopefully this will work these anxiety attacks are wicked cannot eat or sleep and I want off the xanax so hopefully this,will be,my help I need just want to feel myself and eat and sleep again

Thank You

Patti

Holy smokes, Artist!  To have your pets live such long lives is so amazing, especially when you consider all the "elements"!  Our Skeeter was with us from birth to 19.  She & mama moved from WA to CA w/us when she was 1 & a coyote got mama...broke our hearts, but Skeeter moved from CA, to OR, back to WA, being indoors/outdoors & kept us & springer Jessie so happy. It's so lonely when they're gone, but what a beautiful life...to be loved and nurtured for that many years!!!  Our DDs have cats in their families...and with each vet appt, they wonder how Skeeter made it so long, so healthy :-). I'm comparing myself to her...going to go the distance...and wishing it for all my sisters.  I share the wish that the euphoria of a good scan would last. It seems when someone asks about it, and I relay good news, I get energized.  Then the reality of "the other shoe dropping" comes back.  I guess that's why I need/love this place...we get to share what SUE calls, a victory for one of us is a victory for all of us!  I feel that so strongly.  So I'm still cheering :-)

Patti...I remember when you posted a pic of a new hairstyle...cutie you!  You spend your days making others feel good...what a gift...just wish I could pamper you...but it wouldn't be cutting your hair :-).  I'm a good foot rubber!!!  Hope to hear about acupuncture & hope it helps you feel like you again!  I've been reading lots about it & am hlad I got an appt too!

Back in the waiting room. Had scans today - MRI on pelvis where I have one maybe two known lesions, CT on brain where there was a suspicion of a tiny lesion in July, and PET on brain and body where there were enlarged mediastinal lymph nodes and possible inflammation in lungs. Fearing the worst about brain which is the one which scares me. Blood counts have been so volatile I have had to miss some treatments.

Results on Thursday. Onc won't give over phone whether good or bad. Says he needs to be there if it's bad and that doesn't work if you release good news by phone. Tomorrow is going to be difficult but I have an all day meeting to distract me. Anyway time to curl up on the sofa wth the dog.

Bosco..hope ur scans come back stable..I know how you are feeling..my mum has her scan coming up on the 27th..we are all very anxious..they had to stop last chemo due to brain mets discovery..just keep the faith and strength going..its how you feel everyday that counts.will be thinking of you..thank you for your kind response on my post..xx

Thank you all for thoughts. News better than I expected. No new lesions but mild progression particularly in left hip. Nothing in brain (I misremembered earlier scan). Lungs still look like inflammation only. Have been waiting on radiation for hip but they wanted to sort platelets first. Now going ahead in Dec. No change to other treatment. He thinks progression due to missed treatments and lower dosagesdue to platelets.

Onc says there are new treatments which will be available in Spring if and when we need to change? And best of all, onc happy for me to take planned trip to Hawaii. Lots to give thanks for at our Thanksgiving dinner tomorrow - although I'm English, my husband is American so we celebrate Thanksgiving albeit a day late. Hope everyone is enjoying their holiday celebrations.

Thank you Linda. Feel I can breathe again

Had a PTscan the day before Thanksgiving, and having to do the wait until Monday or Tuesday is brutal! Hoping that I get good news soon, but at this point, I'm just really wanting any news to come quickly.

Hoping for the best for your results nbnotes!

That would be asap:-)

Yes nbnotes, I cry on my way to get a blood test, I cry over good news and bad. I think it is just the stress release mechanism. Although lately I certainly cried much harder over some not so good news.....