April 2015 Chemo Crew... Starting in April? Please join us!
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Thanks you guys. I know a few of us (or more than a few) know all about unsupported spouses. I appreciate the place to vent. The monster is back in its cage now (not the puppy lol). Lynne, I am learning about puppy's on the fly! Julie is 8 weeks old. I've only ever had adult dogs befor. Really, I just am cranky at DH. Julie, well, I know it's not her fault. She's an innocent little furball. Let us all live long and prosper!
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I'm going to a Saturday 8 AM cardio dance class. What sort of monster have I become?!
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A very fit monster? Are you gonna twerk?
Got a full nights sleep! Everything looks brighter today. Thanks again everyone for being here! (((Hugs))))
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A full night's sleep? Those still exist? They are the yeti of my post-chemo life. No real twerking. A certain amount of laughable white booty-shaking. I have the meat, I just don't have the motion.
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Ladies.... Phew... Unsupportive significant others, friends, family - it's not okay! We have all been through so much shit, surgery, chemo, and for most rads. In an ideal world, our houses would be cleaned for us, food cooked, and we would be treated gently. Vent away as there is not place for judgement. We have a long way to go to heal and prevent recurrence...no one knows that better than us. Wish I had a magic wand!
A few of my friends are being extremely gentle with me as I heal; others are totally focused on their irrelevant and minor life issues.
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Positive, you are such a good influence in so many ways. Your nom de (computer.) Says it all.
Ok so DH called my dear brother an alcoholic gnome. He was totally serious. I can't stop laughing! Anyone have a garden gnome they could spare? For research purposes, you understand.
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Hahaha ksusan!!
Sorry to hear about the rough time you have been having, Jen. What do you do for work? Ten hour shifts are long!!! I'm a nurse and work 12 hour shifts but am on LTD and am not going back to work till Feb./March. In my humble opinion, you shouldn't be working, you are still recovering from treatment. I do realize though that not everyone can afford to be off work. Best of luck to you...hope DH steps up to the plate and starts helping. Sitting around playing video games is about the worst thing he can be doing, it just furthers depression. I know whereof I speak. But you can't tell someone else that. A therapist would be of great value to him In the meantime, hang in there and know that we all think you are amazing.
Only four days till my hysterectomy/oophrectomy. Eep! My insurance company phoned the other day and need a letter from my doctor to say that I am having surgery again...I phoned the office on Friday and I have to make an appointment to request that. Bloody hell, I just saw her. But she is booked up so I am to phone tomorrow morning to see if I can be squeezed in. It's always something.
I have a follow-up appointment with my RO on Wednesday. My skin has healed nicely and I imagine she will say, "Great, I never need to see you again".
Andrea
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8 1/2 months after surgery, 2 1/2 after radiation.
5 months after chemo.
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ksusan, your skin/scars/hair looks fabulous! Did you color your hair?
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Ksusan, looking great! I notice you have the hair points on the back of your head, I do too. What's up with that
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Nope, that's my current natural color--coming back in darker (my pubic hair is darker as well). My hairdresser offered to buzz the points, but I declined.
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Jenn, so glad you got to sleep! Eight weeks is quite young for a puppy, usually they recommend not taking from the mother/pups until 12 weeks. I am hardly an expert, but I had 2 puppies long ago, and I found this book: Weekend Dog that saved our life. It is out of print now, but maybe you can find a used copy.
Ksusan - cardio dance! I am jealous, I love cardio dance, used to teach it when it was called high-intensity aerobics :-) I miss moving to music.
Lorraine, it's true, you are so positive, it shines through.
Andrea, ugh, it is always something, why can't anything go smoothly? Thinking of you.
Karen, hope you are having a ball in LV.
Well, week one of work down, starting week two today, I'm in training all week, studying for my PMP.
Gotta run!
Lynne
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I have a lot to catch up on! I read everything, but won't even try to comment on all of it! I had a great weekend away in Vegas and enjoyed the half. Now back to reality!
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Andrea sending good wishes for smooth surgery and recovery!!! Just what you need are Insurance/Dr frustrations this week! Ugh!
Steph: Thanks for posting the info about the supplements!! Your surgery is next week isn't it??
ksusan: you've healed up so well! And I have serious hair envy!! I wish mine had come back in darker, but I really should be happy I'm not bald anymore. lol
Positive: Ditto to the others......not only do you have a positive spirit, but a beautiful one as well!
Princess: How's rads going?
Lynne: I had to get one of the pill containers to keep up with all my meds and vitamins. lol I hope your 2nd week back at work flies by!
I'm 5 weeks PFC now. I have practically no energy....but am getting my butt in gear and making myself exercise more regularly. My daily walks have been hard to get in the past few weeks due to all the rain we've had. I've recorded some exercise programs from TV and have started doing those. I still have a good bit of numbness in my feet, but see some improvement in them. The Arimidex is causing the ball of my thumbs to be sore and painful some days...I feel like I have so many aches and pains, my gosh! Fri I see the MO for my monthly visit with her, and will get Herceptin again next week. And so it goes.......
I hope everyone has a good week!
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Ksusan, your skin and scars look great! My radiated area was on the left side but looks pretty much like yours now. Your hair is coming back curly...was it curly before! Mine is still too short to tell but it seems to have at least some wave.
It's pouring with rain here on the west coast. After our drought this year, Mother Nature seems to be making up for it with a vengeance.
Andre
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Well, my insurance nurse navigator kicked me to the curb today. Guess I"m considered a "survivor" now!
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My hair wasn't curly before, so I'm enjoying the temporary change.
I am in the rain.
Jen, think of all the free time you'll have now!
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Thanks!! Rads is going, 6 down, 24 to go ;-) Having them put on music I like made a huge difference. So far , no skin changes that I can see.
Found out my incessant shoulder itching was from Herceptin and that claritin gets rid of it - so now I don't act like I have fleas
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I had a weird thing happen to me at work yesterday. The woman to whom I had transitioned my project to back in June IM'd me because she saw I was online, and she wanted to see how I am doing/ask if I was back. She then told me that she heard from someone else (didn't name names) that I wasn't doing well, and that I probably wasn't coming back to work.
What do think of that? I'm not sure whether I should totally ignore it as ignorant rumour mill, or check with my manager to see what the feelings were about me? I mean, anytime I had provided a status - it wasn't bad, I'd usually say that I was doing "OK", and then people would respond, "Oh, so glad you are doing so well." IOW, people seem to take even neutral responses as positive, not negative.
Just interesting . . .
Lynne
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Lynne- I would definitely speak to your manager, but not because you really need to hear "what people are thinking" about you and your situation. I would be concerned as a manager and for the health of the organization, that people are not unduly worried about you, their own workloads, and any imagined upcoming changes those plugged into the rumor mill may be manufacturing.
I would ask for his support and I might, if you can do it casually, ask your HR person for input and support in letting everyone know the facts of what are happening now, and what the plan is for re-integrating you into the day to day. I think people sometimes drop the ball and fail to communicate well in these situations. But that is precisely when they need to take a strong hand and speak up to quash the wagging tongues.
It is probably to your benefit to "fake it till you make it" in the workplace, except for any really close friends you may have. You could say if asked, "it wasn't nice, but it's over and I'm back" or something to that effect. I remember before I was dxd I knew next to nothing about BC. I might have wondered about a co-worker's prognosis. Every bit of information always goes through a person's "how is this going to affect ME" filter, and even without cancer, there are trouble makers and shit stirrers in every workplace.
That's why you shouldn't try to handle this alone. Let management and HR earn their paycheck. This is their job. And it affects them too, not just you.
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Hi Everyone....LIVESTRONG ends this week (SOB) and I graduate from the program (HA!) on Dec 6. I feel rejuvenated by their warm supportive nature.
Ksusan - LOVE the baby moon! OMG. And your hair is stunning..
Littleblue - alcoholic gnome? I swear my alcoholic friend has been the most incredible, supportive friend and hilarious as well. Mostly, he has allowed me to think of myself as beautiful...not easy for my tomboy self. Hmmph. Your brother made amazing shirts and really my spirits on his ability to be present with you.
Lynne - Ugh. Coworkers. Taking a page from Littleblue and Ksusan - it's time to moon them.
Andrea - wishing you a smooth surgery and good recovery.
Gingerchi - exercise will help! At a minimum, our LIVESTRONG trainers ask us to simply show up. Some of the folks that are still on chemo literally drag themselves in, exhausted. But then they sit there, and begin to ride the bikes slowly or use the threadmill. Some days, all I can do is show up with my migraine and intense menstrual periods; totally miserable but I show up. I think that's half the battle, right? Wish I could be there to drag you to the gym with me; I can be entertaining at times.
So can Jen, Susan, lol. Yup, we are a humorous group.
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Lynne- Ugh. The office telephone game, right? You say "this is a rule of thumb!" What they hear is "Chop off their thumbs!".
Katy- as always you are a wise and centering force here. I am so glad you are hanging out with us!
Ksusan-Yup! Tons of free time! And as Positive knows, when I have free time I start trying to figure out how to glitter bomb co-workers.
Princess- glad you aren't doing too bad with Radiation. Hester the proton canon wants to help you LOL.
Well, just had a conversation about what to expect from cancer treatment with a friend of a friend who just got diagnosed with ER/PR- Her+. She's 31 and a legit ultra runner- she just finished a 94 mile race. It was hard to present the facts without scaring her. I told her to join this site. She's going to be fine!!!!! Surgery scheduled for the end of the month, then chemo to follow. Barf. poor thing.
Hope everyone is gearing up for Thanksgiving with an extra helping of thanks and giving! I am thankful for you all!
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LittleBlue- Hester the proton canon - HAHAHAHAHAA
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Oh mother of god. I made spaghetti sauce for my mom and brother. My DH comes home, asked " where's the fresh meat dogfood I had in the fridge?". Bet you can guess where this is going...
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Hi Everybody. Getting caught up after taking a few days off from technology.
Remember how the fit hit the shan with my parents (who had moved in while they waited for me to get better so they could continue their move across the country)....well, apparently, I am better! I know this because with less than 24 hours notice, they packed up their car (leaving quite a bit of their 'junk' behind) and hit the road. Back in September, they promised my DS that they would be here for Thanksgiving and leave on December 1st. On Sunday (11/8), they told DS that they wanted to get ahead of the winter weather and had decided to depart on 11/21. On the morning of 11/11, the announced that they decided we are all doing really well and that they wanted to get 'ahead' of some bad weather and that they were going to spend a couple of days at a local hotel to 'decompress' and then hit the road. So, on the morning of 11/12, they packed up and left. I understand that they are really excited about their new adventure and are eager to get moved, but could they at least try not to make me feel like a giant speed bump in their plans. Just as we head into the season of family and togetherness....they are gone. Happy Holidays!
We head to Illinois for BS, PS, MO follow-ups on Monday, fly home Tuesday, and then DH has the rest of the week off work for Thanksgiving. We'll have Thanksgiving dinner with DH's parents and then spend the rest of the week hanging out together and NOT focusing on cancer for a change. Instead of traveling back to Illinois for Diep stage 2 surgery, we've decided to take a vacation someplace more fun and warm. We'll put off Stage 2 until closer to Spring (when it's warmer in Illinois). As much as I want the physical reconstruction to be finished, I want DH and DS to end the year having a great time and not just worrying about me in surgery....again.
P.S. Still having hair envy. Although mine has started to grow, it's growing sllllllloooooowwwwwlllllyyyyy! However, I am rocking less of a 'cancer patient' look and more of a "I just got back from a monastery in Nepal" kinda look. So there's that!
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DizzPark your hair analogy is HILARIOUS. Sorry about your parents' behaviour! That stinks.
Littleblue-please tell me you hadn't already eaten????
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Princess- Oh yeah. We ate it. And I had brought leftovers for lunch too. I wondered why it cooked down so much, but I figured it was just a very finely ground sausage! Barf.
Dizz, maybe your parents would like some of my spagetti?
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Of all the things dogs eat, it sounds like the least-bad thing to have eaten yourself.
My wife has a bad sore throat and is headed for urgent care. I'm glad it's this week and not next when we have family coming in.
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Littleblue...so funny! In kind of an "oh my God!" way.
Ksusan, hope your wife is okay.
Dizz, that sucks...your parents could have waited till after Thanksgiving. But look at it this way, it's after Canadian Thanksgiving
Sorry, not funny...
RO appointment this afternoon...if our highway is open again after a fatal car crash. It should be. Then my surgery tomorrow. I should only be one night in hospital, unless the hysterectomy has to be an open incision...in which case I will be in longer. Not looking forward to recovery but it's kind of nice being catered to by DH, he is a good caregiver
Talk to y'all in a couple of days!
Andrea
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