April 2015 Chemo Crew... Starting in April? Please join us!

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  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited November 2015

    Addie is back! How are you feeling?

    Positive, such beautiful leaves! Here it's all grey and green..

    I could look into the ooph and I will, but really I was just hoping for an easy thing to blame...ugh.

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2015

    If you want easy to blame, I blame Obama! Or, or, or, the Starbucks War on Christmas by having red cups with no Xmas snowman!

    I had my second haircut since chemo baldness today, to clean it up since it's growing at different rates on different parts of my head. It now looks pretty much like my normal haircut, only greyer and slightly curlier. I'll see if I can get a photo later.

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2015

    Oh--and my stylist used this as the shampoo: http://www.amazon.com/Kevin-Murphy-Stimulate-Me-Wa... No parabens! To me it smells pretty cedar-y, so culturally it's a man-shampoo since men own the wood scents, I guess. I think it's a little like the gerbil cage, but not in a bad way.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited November 2015

    War on christmas??? Wait, is Obama still president??? Yeeash. Ok I blame Starbucks. They are big enough to take it. Err...beer! Er..,bacon! Err...stress! Er....being a woman! Oh god....lol

    Good tip on the shampoo! I got my 3rd hair cut this evening, and I'm almost done with the baby shampoo. I've gotten weird about soap. First, I had my special chemo soap and I had to finish the last bar befor I could move on. Now I've got my special rads soap...same deal. Tomorrow should be the last day for it though! Same with lotion....

  • slothabouttown
    slothabouttown Member Posts: 449
    edited November 2015

    89.00 for that shampoo, Holy Gerbil Cage that's rich. For that price it must be made with the essential oil of giant redwoods.

  • KBeee
    KBeee Member Posts: 5,109
    edited November 2015

    Addie, I was just talking to my friend today that has surgery next week. Her eyes dilate from those patches too! I just get a rash from the adhesive

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2015

    Ja, it's shampoo I can't afford, perniciously applied to my head in a craven attempt to make me go back for another haircut.

  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited November 2015

    Hi everyone,

    Has anyone seen this clip about aspirin?

    http://www.wcvb.com/health/new-ally-in-battle-agai...

    Interesting...

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited November 2015

    Or...my option: Just don't wash my hair except maybe once a week. And rub lots of coconut oil in it. Does it work? No clue. But it seems to look the same weather I wash it or just rinse and oil. And I've trimmed it three times, but mostly just my neck and around my ears. Because I'm super lazy, kind of dirty, and generally a hippie. Also, I work a job where those three characteristics are kind of expected, which exacerbates all three..On the other hand- that shampoo sounds like it smells Fantastic!

  • AndreaC
    AndreaC Member Posts: 220
    edited November 2015

    Hi everyone!

    Hahaha Starbucks cups...yeah, let's blame Starbucks for everything. Damn you Starbucks, thanks for the cancer...

    I use regular shampoo...whatever is on sale. Right now it's Herbal Essences. Yes I know, it probably has all kinds of bad things in it. Too much effort to seek out natural shampoos...

    I am having my ovaries out in a week, without knowing if I have the BRCA gene or not. Also having a hysterectomy too, since my grandma died at 62 of uterine cancer. It's just a smart thing to do, the doctors keep assuring me. I am glad, it means that it's a couple fewer places for cancer to take hold.

    Thanks for the tip about Effexor, Renee! I have had hot flashes for the past couple of years...even though I was still getting my periods. This summer was brutal because it was so hot, it was unbearable. Now it's good...I feel warm now and then but it's manageable. Now of course my periods have stopped and after my surgery I know they are never coming back. Yay!

    A stormy day here on Vancouver Island. I'm meeting a friend for lunch though, that will be a bright spot in an otherwise dull day. Have a good day all

    Andrea


  • KBeee
    KBeee Member Posts: 5,109
    edited November 2015

    Positive spirit, my MO has me taking a daily aspirin. He said there is nothing definitive, but good evidence supporting it. He said good potential benefit with almost no risk

  • Stephmoen
    Stephmoen Member Posts: 563
    edited November 2015

    Addie I was wondering how your feeling I have my implant surgery and oopherectomy scheduled the day before thanksgiving and I have a trip planned to a huge waterpafk with the kids a week after that 😁 I hope recovery is fast

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited November 2015

    Oh my God. I have to vent. Cancer treatment is hard!! No I don't want you to go hunting and leave me with the puppy which I didn't even want for two nights! She gets up 3 times a night it takes me an hour to fal, back to sleep each time, and I go to work at 7. I also don't want to host a craft party on Sunday, because my house is a mess and I'm destroyed from entertaining the devil puppy. And I don't want to socialize at night on week nights, because, damn. I work 10 hr days and work out hard. DH pulled the PTSD from my cancer card, has laid himself off work, and stopped going to therapy and just played video games all day. He has the nerve to tell me he's going hunting and leaving his puppy with me! I'm to tired to go to work today because of the Damn dog, so that's more leave I have to take, u less I go in on Saturday after he gets home. I'm sick of puss footing around him because HE'S SO traumatized from me having cancer. Um, what about me? Am I not traumatized, let alone still tired from treatment? But, somehow, I manage to pull up my big girl panties and go to work, clean my house, and fucking FUNCTION. Motherfucker. Being tired makes me grumpy. And kind of incoherent. Sorry guys. Rant over. Also. How come he's a whiney little bitch and I'm the bread winner and the dinner maker right now??? And he has the nerve to suggest we don't need a house cleaner once every 2 weeks, which I pay for? Because it inconveniences him to leave the house for a few hrs while they work? And...he's gone to hunt ducks, which we don't even like, rather than elk, which we NEED. And my mom's comming tonight. And the house is a mess and I get to clean it. He's home all Damn day, how hard is it to load the dishwasher? And I can't say any of this to anyone because he has PTSD. Gotta provide a clqm, loving envi4onment. Ok, over for real now.

  • Addie29
    Addie29 Member Posts: 307
    edited November 2015

    just got the results from my ovaries- ALL CLEAR! in your face BRCA2!!! I got to my ovaries before you could! Muahahahahahahahaaaaa

  • ThePrincess
    ThePrincess Member Posts: 424
    edited November 2015

    Oh littleblue! I'd have exploded by now!! I wish we could all sit and have a girls happy hour to support each other in real life! It would be so nice if we could pop in and help you!

  • Addie29
    Addie29 Member Posts: 307
    edited November 2015

    oh Jen my husbands head would be on a platter- he's the breadwinner in the family but I wear the pants in the relationship. He doesn't talk about my cancer. He chooses not to. Egh- whatever then. I love my hubby BUT he sits on his ass once he gets home and doesn't offer much help- and when I ask for help I'm being a bitch. Oh well. It is what it is. If he hasn't changed by now after being together over 8 years he isn't going to

  • KBeee
    KBeee Member Posts: 5,109
    edited November 2015

    Addie, Great news!!!

    Jen, I am so sorry you are so unsupported. That's horrible. If he does not want to leave fro the housecleaners, they can just dust him like a piece of furniture or clean around him. I hope he comes around. And let your mom help you clean. I know she'd rather help you clean than have you exhaust yourself cleaning for her; if the situation was reversed, I am sure you'd want to help your mom as well.

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2015

    Addie, great news!

    Jen, vent away and I'm sorry.

    PTSD isn't a get-out-of-responsibilities-free card. If he won't at least go to couple's counseling to negotiate about both of your needs, that's important information for you.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited November 2015

    Addie! Great news! In your face, BRCA!

    Thanks for letting me vent, guys. I know I sound like an insane bitch. Hugs to everyone!

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited November 2015

    ugh. Just found out I'm ineligible for the TNBC vaccine trial. Why? Didn't ask. I was trying too hard not To cry. Fun day. Glad DH will have the dog for company when I die slowly and horribly.

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2015

    I'm not sure you're the one in your story who sounds like an insane bitch. (Not a professional opinion.)

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2015

    Jen, I'm sorry you got that news. It sucks.

    You are not going to die a) slowly and horribly; b) any time soon. Do some non-destructive comfort thing (like one drink, not 3 drinks) or get on the Stairmaster. This will pass.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited November 2015

    Ksusan, thanks for the sympathy. Sometimes it really helps to hear That everything will be ok. I called a friend and am going hiking in a half hour. You are the best! (How long do you think I can play chicken with my signature line lol)

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited November 2015

    Jen- you are not an insane bitch. You are lovely, and therefore, you are very loved here.

    Sending (((Jen))) for all of the assaults on your sanity today, despite which, you maintained it.

    xo

  • Italychick
    Italychick Member Posts: 2,343
    edited November 2015

    littleblue, it is easy to lose sight of the fact that most of us will be fine. Reading about horror stories, which are the minority, constantly activates fear. At least it does for me. I block all scary forums, so I can't go there because I don't see them. I basically stay on our March forum, the exercise one, steam room for anger, lumpectomy lounge, a couple of the alternative forums, and crazy town. The rest all just seem to scare the shit out of me.

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2015

    Same for me, Theresa.

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited November 2015

    Jen...about the tnbc trial. Remember, it's only phase 2 of the trial. There isn't a lot of time yet built up since phase 1 even started, so we don't have any conclusions yet about whether or not it's working. They 'think' it's promissing and isn't killing people when they take it. Only time will tell if it is preventing recurrence.

    You had surgery, nuked the crap out of yourself with chemo and then radiated the area for good measure. YOU are cancer free and you're going to be around for a really long time to keep us laughing with tales on how you try NOT to strangle the lump on the couch! Got that!!!

  • lovlilynne
    lovlilynne Member Posts: 405
    edited November 2015

    Jen, so sorry you are having to go through this. Is there a "vent about unsupportive loved ones" DB here? If so, sign me up! I am so glad you are going for a hike with your friend, even if you are already tired, it will be good to 1) get fresh air, 2) get out of the house; 3) vent to friend. I had lunch with my sisters today - so great to see them, they are so supportive and get it (as much as they can). I am still disappointed with DH, he doesn't do anything without me asking. Ugh.

    I totally missed the announcement on your new puppy, but I see you've mentioned it. Puppies are such a lot of work! I don't blame you for not wanting to take care of it alone. But, I'm wondering why it is still getting up 3x a night? Is it still very young? Are you crating? It shouldn't be like that for an extended time - usually around 12 weeks they should be able to not have to go out or get up.

    Lynne

  • lovlilynne
    lovlilynne Member Posts: 405
    edited November 2015

    Hi Ladies, saw my MO yesterday for the last time for a year unless something comes up to worry me. I'll see a PA in six months. We talked about how I am doing, she prescribed gabapentin for nerve pain, she said it would help with hot flashes from the tamoxifen if I get them too. She prescribed the tamoxifen, I'll start both tonight. We really didn't talk about much else, no "survirorship" here - she mentioned that sometimes after treatment, some patients need to talk to someone. I felt dumb because I know I have questions, but I didn't write them down or bring them, and I couldn't remember them. They had taken blood, and my levels were back to normal. She examined me. She said to have my mammogram in January (RO said wait 6 months after rads, but MO says she's not concerned about treated breast, so go have it done, so I guess I will). She said that it can take a year from end of treatment to feel back to normal.

    Got my 2nd part of pneumonia vaccine (dang it hurts today), but no flu shot, I refused.

    Her nurse called me today and said my vit. D levels are low (21), so she prescribed me a 50,000u pill to take 1x a week for 4 weeks, then I have to take OTC 2000u. I've been taking a sublingual supplement for a couple weeks now, so I guess that hasn't worked yet. I asked the nurse if the supplement should have Vit. k in it (which I read is necessary for absorption), but she didn't know. She said that the low Vit. D could be contributing to my stiffness/creakiness. I hope so - I mean, I hope that by getting the levels up, I'll feel better. I won't be tested again until my 6 month check.

    I guess I have to get a pill container thingy. I'll have my Prilosec, Oxybutinin, Tamoxifen, vit. D, and gabapentin! Yikes.

    Lynne

  • Addie29
    Addie29 Member Posts: 307
    edited November 2015

    Jen I'm sorry you're feeling down but please remember that not all tn become stage 4- and even with people taking tamoxifen sometimes that doesn't help stop a reoccurrence. We all stand a pretty fair chance of reoccurrence BUT that won't happen and we will all be here for many years to come. I'm really curious about why you weren't eligible for it? I've tried searching the mayo site for info on the trail and I get nothing. I want details. I want more info on it. I need more info on it. Have faith that you will be fine. I hope you enjoyed your hike b

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