I got the call on Nov.6,2015 at 5:20pm.

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  • Maine1965
    Maine1965 Member Posts: 17
    edited November 2015

    I too got the dreaded call November 6, 2015, High-grade DCIS. Yesterday I met with a surgeon and he gave me the following information:

    If he does a lumpectomy then he wants to do a MRI first
    to make sure there are no surprises. When I have the MRI and If the DCIS (my
    cancer type) is in many spots in my breast I have to have a mastectomy.

    If its only in one spot then I can do a lumpectomy with
    radiation and chemo.

    I told him I want to be tested for the gene because if I
    have the gene then I want the mastectomy either way. But he says only 5% of the
    time women have the gene and still get breast cancer. So it sounds like a "false negative". I will still have the gene test but not an immediate step.

    If I do lumpectomy radiation and chemo there's a slight
    chance it will come back. If I do mastectomy its gone assuming there's no lymph
    node involvement. If the cancer is truly DCIS then there won't be any lymph
    node involvement.

    All comes down to if I can live with my decision with no regrets . Still not really sure which way I will go. Maybe the MRI will make the decision easy for me......Any thoughts out there?

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  • Deba1
    Deba1 Member Posts: 10
    edited November 2015

    Oh well guess I have to wait another 2-3 weeks for the Oncotype DX to see if I need chemo. It won't even be sent out until Monday. Not sure why they don't just send this when they do the surgery. All this waiting is really frustrating!!

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  • Lizardbeth1968
    Lizardbeth1968 Member Posts: 21
    edited November 2015

    If I had it to do over again, I wouldn't have pushed the double mastectomy. The time spent in the expanders was absolutely miserable and I am 100% conscious of having implants underneath my pec muscles at all times.

    You can get through this. Just take it one step at a time

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  • Konakona
    Konakona Member Posts: 173
    edited November 2015

    I know how you feel,I got the news last thursday, I feel so lost and numb, I am taking axiety medication or I will go crazy and I don't see my doctor until Monday. I really hope this will get better when I have my final diagnost, for now I am like a zombie.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2015

    Kona it's just so awful now, plus the waiting over a holiday weekend. You can't believe it now but in time it will get better. This is not a death sentence. They're is so much that can be done. Push the awful thoughts away and stay in the moment.

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  • Maw-maw
    Maw-maw Member Posts: 9
    edited December 2015

    I'm sorry you got a call like this. I was diagnosed OCT 2. I had my partial mastectomy yesterday. It was a lot of appointments and test working up to yesterday. I have fluid in that same breast making a sloshing sound. Called SEROMA!!Does anyone know if that's normal after a partial mastectomy ?

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